Ater 5 years called for more tests after MRI

Lilly - so sorry they are not giving you more information. If you call the doc that ordered the tests, can you get he or she to tell you why more testing is ordered? And what tests are ordered?

Even after an MRI (with & without contrast), my surgeon wanted a CT (with & without contrast) before surgery. I thought it was to pinpoint the exact location. My MO also believed in sporadic PET/CT scans. I know most docs won't order those because there could be false positives (not to mention the cost), but I found comfort in the fact that they would show any 'hot spots' that might need a closer look. But they would have to alert you ahead of time of the dietary restrictions before that test.

Lilly - Crossing my fingers and toes that it is a big, fat NOTHING. I refuse to think otherwise. Hang in there and let us know, ok? Gentle hug.

Ugh, Lily. Is there no way to access your medical records, say via an online portal or something? Yes, MRIs and PET scans often produce false positives. Here's hoping that's what's going on!!!

Lily, so sorry for this unnecessary stress. As ShetlandPony said, the MRI is highly sensitive and even though my breast surgeon says it is 99.9% accurate, I don't agree. Proof? I had 2 doctors look at my MRI and convinced it was nothing because it was not spiculated and ultrasound could not pick it up. They were wrong. I had the breast surgeon convinced it would be 7mm. They were wrong. It was 1.8cm. My twin sister had an MRI after my diagnosis. Her MRI lit up in exactly the same spot mine did..right breast, upper, inner area. They biopsied hers and it was totally b-9.

I know it will be hard to wait, wait and wait.....the hardest. I hope you have family and friends to take your mind off of this until you have actual information to move forward. Hopeful you hear b-9!

Lilly, Shetland is a trooper in these things. I must tell you, my heart is palpitating real fast, knowing that they won't tell you. This is ridiculous. They might not tell you, BUT they HAVE to tell the Physician ordering the MRI to begin with. AND they do have a name for all their suspicions, sometimes it's weird names, but talking from experience they know what they have to look at even if they don't know what it is. So it would not be such a mystery to you. Try to get in touch with your doc and ask doc to find out what's up. AND you have a right to get the records, a CD of the MRI, and the records of any biopsy. MAKE SURE to have this in your hands.

At least, at least, they have to tell you what test it is, you ask to speak to the supervisor, that sounds absurd. Maybe they just had a secretary call you to schedule, but you could ask to speak with a nurse, to the Radiologist himself. You will be paying for it, right? You are an adult? You tell them that. It's not the appropriate manner to treat a person! In My humble opinion. Oh, are they breast specialists? Or they do all kinds of scans? Because those are less sensitive to your needs and worries, first of all. I'd tell you to choose a place you trust, and that you should feel comfortable. Best of luck.

SO happy all went well. Doctors fail to see (or at least are unwilling to accept) that our concerns never go away, internet or not. My onco (both here and in Wisconsin) never felt I should be followed up and only go by symptoms, so it seems more and more are leaning this way.

It's always nice to read good news on this board. Yay!