CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.

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  • duckyb1
    duckyb1 Member Posts: 13,369
    edited July 2017

    Cubbie....you wouldn't think so would you.....considering all of Hollywood has C-sections on demand......t

    What makes it worse is he was the next on-duty Dr. that morning, and was left instructions from the previous Dr. whose shift was over...it was a woman Dr. and she told the idiot that 16 hours of labor and nothing, and we're delaing with twins.....so a C-section should be done and she also dis discussed it with him....my grandaughter..in labor heard the entire conversation.......he literally forced her to push, till he got the first twin out.....then the 2nd on after about 15 minutes was emerging.....my grandson-in-law saw the feet, and said "wow does this mean a C-section.......he said "no I can do this easily"........my GSIL said as he was trying almost her entire body was out, but not her upper chest.....he was tugging and my GSIL heard a "snap".......he asked what it was, and the Dr. said 'that was my latex glove"..........GSIL was at his wife's head at the time, so could not see lower down.......we now know what the "snap" was.....

    They did not find out for about 2 days that something was wrong with her.....she was immediately sent "which my sons Boss who is on the board at CHOP in Philly.......insisted she be transferred........the OB said it wasn't necessary........against the hospital's wishes my son had an ambulance take her to CHOP, and there after a cople days said her spine had been torn, and it was from a feet first delivery..........the rest is history......

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  • duckyb1
    duckyb1 Member Posts: 13,369
    edited July 2017

    She is a patient at Shriners' in Philly.....and has been to Boston Chicldren's Hospital, and E.I. Dupont in Delaware also a childrens's hospital....but most everything is done at CHOP...Children's Hospital of Phila....amazing hospital.......but Shriners plays a huge roll in her care too...thank God for good people

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  • Lucy55
    Lucy55 Member Posts: 3,044
    edited July 2017

    Ducky ..I cried reading your post ..and yours too Molly ..someone would have to hold me back from wringing the doctors necks ..

    I know the grief we are having over DGS now ..I feel angry at the whole world that something like this can happen to a little 4 year old ..he's just a little boy ..our little boy ..

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  • Lucy55
    Lucy55 Member Posts: 3,044
    edited July 2017

    Cubbie ..with you for your doctor's appointment..

    QMC ..hoping for B9 results for you !

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  • queenmomcat
    queenmomcat Member Posts: 3,039
    edited July 2017

    Molly/DuckyB: following the stories of Wyatt and Grayson with sympathy, and a tear or two (but don't tell them that)

    SharonRose: a belated welcome to you. I'm sorry it took me so long--my only excuse is that I've only now recovered from my sleep deficit. But pull up a rocking chair on the porch of the CrazyTown Inn, or a hidden corner of our treehouse, whichever suits your fancy. The rocking chairs and swings are comfortable, the breezes cooling and the amount of company is no more or less than what you desire at the moment. Moods can vary moment by moment. And don't forget to get the expandable pockets! Keep us posted on how your meeting on the 25th goes? Please?

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  • Cubbie2015
    Cubbie2015 Member Posts: 875
    edited July 2017

    Sandy, good to see everyone's being proactive about the anemia. Hopefully your wine-free period had paid off with better numbers.

    Lucy, still praying for your grandson. Do the doctor's still not have a diagnosis? I can't imagine what his parents are going through.

    Shriners is wonderful. I know some people whose daughter received orthopedic surgery through Shriners in Boston.. Cutting edge surgery back in the day, not even available in Chicago (our nearest major city) at the time. She is now married and a parent herself.

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  • Molly50
    Molly50 Member Posts: 3,773
    edited July 2017

    duckyb, I wish we could sit and chat in person. I know we would hit it off. I remember taking the wheels off Wyatt's wheelchair to fit into my station wagon every day when I picked him up from daycare. The day we got an accessible van was a celebration. The judge who presided over our settlement set aside $$ for the van.

    Lucy, I know your angry and grief stricken. I pray your DGS can overcome whatever is wrong.

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  • proudtospin
    proudtospin Member Posts: 5,972
    edited July 2017

    those stories of malpractice are truely terrible

    Well first chemo infusion done, boy you guys made for a heavy bag but so welcome. Course the place was running an hour behind but it was the of day before holiday, But really not too bad, i was worried as i forgot my cell phone and was borrowing a cell from nurse so i could update my driving pal. But all worked out. Just way tired. They told me that since they gave me benadryl in my iv, i really should not drive or risk getting a dui, sure dont want that. Next treatment is the 12th

    Rest till then

    Thanks for the support

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  • queenmomcat
    queenmomcat Member Posts: 3,039
    edited July 2017

    Proud: one down, how many to go? (or would you rather not think about that just now?) But there's always a bed made up in the CrazyTown Inn for those who need the respite.

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  • proudtospin
    proudtospin Member Posts: 5,972
    edited July 2017

    i am not sure yet how many treatments

    Nurse said that the doc, who i did not see yesterday,would let me know. I do know i see onc on the 12th and hope to get info then. This entire chemo thing really moved quickly

    Nurse said the number of treatments will be determined by my response to the med

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  • Cubbie2015
    Cubbie2015 Member Posts: 875
    edited July 2017

    Iris, glad to hear things went well. Hope it is too firecrackery noisy where you are and you can rest a bit.

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  • proudtospin
    proudtospin Member Posts: 5,972
    edited July 2017

    actually , woke up to sound of car alarm last night, not mine!

    Discussion around town is if stuff will be rained out!

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  • Cubbie2015
    Cubbie2015 Member Posts: 875
    edited July 2017

    How are you feeling today, Iris?

    I got my quarterly labs drawn today, and had an appointment with my counselor. I got a call from the MO's nurse telling me my mammogram was normal. I was like, seriously? I told her I had an ultrasound, not a mammogram (and restrained myself from pointing out that there is no mammo left to gram in my case). Honestly.

    Thinking of you, Queenie.

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  • queenmomcat
    queenmomcat Member Posts: 3,039
    edited July 2017

    Revealing Of The Results (for me) tomorrow at 11:45 am. Sublimating my panic into the reprise of my "Routing and Switching" class.

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  • proudtospin
    proudtospin Member Posts: 5,972
    edited July 2017

    cubbie, feeling ok today, thanks for asking, still waiting for hospital to give me time for next chemo

    But think i did ok, mostly just tired

    Did wake up with a sore in mouth but used biotine rinse and toothpaste

    Also slathered vasaline over inside of mouth and it seems better, got to say not interested in food yesterday or today, did force myself to have befast

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  • WenchLori
    WenchLori Member Posts: 1,558
    edited July 2017

    I'm 3 pages behind and trying to catch up with everyone.

    Waving hi 👋 and sending hugs for everyone 🤗!


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  • marijen
    marijen Member Posts: 3,731
    edited July 2017

    I'm 67 - today the male nurse asked if I was postmenopausal? To which I replied, thank you for the compliment!

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  • Cubbie2015
    Cubbie2015 Member Posts: 875
    edited July 2017

    I agree, Marijen, take that as a compliment and run with it!

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  • Molly50
    Molly50 Member Posts: 3,773
    edited July 2017

    What a great compliment, marijen!

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  • queenmomcat
    queenmomcat Member Posts: 3,039
    edited July 2017

    Marijen: Oh, [redacted], I'm only 50 and change and I'd take that as a compliment too.

    Proud: already thinking of cooling, soothing, tasty, slidy things I might prepare for you in the kitchen of the CrazyTown Inn

    Wenchie: waves hello, no matter how many pages you're behind, you're always welcome

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  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited July 2017

    Geez, Marijen, I’d have tipped him!

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  • proudtospin
    proudtospin Member Posts: 5,972
    edited July 2017

    i agree with that, best birthday present is a complement on age

    Well mouth sore is gone salt water rinse plus biotine toothpaste. Spoke to nurse yesterday and she said salt water plus baking soda is good. Still tired, you guys forgot to tell me that! Not hungry! Sort of have to remember to eat

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  • rainnyc
    rainnyc Member Posts: 1,289
    edited July 2017

    Iris, are you doing weekly Taxol? If so, there is a crash about 2-3 days in. I was hopped up on steroids for the first 24-48 hours. I also lost my appetite, as food tasted weird. Lemon in ice water worked when water tasted soapy. I also drank seltzer, with or without lemon. Watermelon was also good.

    If the benadryl gets to you, see if your MO will let you try hydroxyzine instead. That didn't make me sleepy.

    After a while on Taxol, I got used to it and pretty much ate what I wanted except in the first couple of days. Good luck to you!

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  • octogirl
    octogirl Member Posts: 2,804
    edited July 2017

    Iris, when I was on chemo nothing tasted good, but the right texture helped. I recommend mashed potatoes with gravy, and ice cream. Not the time to worry about calories. Ice cream almost always tastes good, or at least feels good going down. Sending hugs.

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  • CeliaC
    CeliaC Member Posts: 1,320
    edited July 2017

    Just popping in. Playing catch-up to pages missed while on vacation.

    Gentle hugs to all in need and healing thoughts, especially all undergoing chemo and other treatments. Not sure if this would taste good while undergoing chemo or not, but applesauce with cinnamon/ginger and also mac-n-cheese are "go to" foods for me when not feeling good.

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  • queenmomcat
    queenmomcat Member Posts: 3,039
    edited July 2017

    Chemo: some years ago there seemed to be a spate of women who had breast cancer around where i lived; at one point I ran into one of the regular patrons (customers) of the library where I worked, as she was contemplating a display of Little Debbies. She looked sheepish, but I just said something to the effect of "Not gonna lecture you on the importance of eating nutritiously at a time like this. There comes a point in chemo where 'whatever tastes good' is what you eat."

    So keep us posted, Proud, and none of us will notice when you end up in front of the snack cakes.

    (My biopsy was NED. All that sublimation into accounting for nothing! Harrrumph.)

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  • pennsygal
    pennsygal Member Posts: 346
    edited July 2017

    QMC - great news!!

    Iris - I concur with the ice cream suggestion. Topped with fresh peaches, it was my Taxol go to

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  • rainnyc
    rainnyc Member Posts: 1,289
    edited July 2017

    I definitely recommend ice cream if you can handle it. When I was having chemo, my sweet tooth went away (It's back). The thought of ice cream made me a little nauseous at the time, but I absolutely craved cottage cheese.

    Go with whatever you think might make you happy. Even a small dose of happiness is worth shooting for.

    GMC: hooray!!! (throws joyous handfuls of brightly-colored Ativan sprinkles into the air)

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  • proudtospin
    proudtospin Member Posts: 5,972
    edited July 2017

    great to have a reason to eat ice cream!

    Did just eat zucchini spiral noodles in sesame sauce........most i have eaten all week, tasted dandy

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  • Cubbie2015
    Cubbie2015 Member Posts: 875
    edited July 2017

    Great news, Queenie!

    I had a consult with a plastic surgeon today. After meeting with the doctor, a nurse was supposed to come back to get me for photos and then send me to checkout. They completely forgot me. I sat there in the exam room (you would think they would have needed it for someone else) for a half hour before before I finally just opened the door and went out to the nurses station to ask if someone could help me. Otherwise, I was just going to leave. I'd already been there a hour even before being forgotten, since they were behind.

    Tomorrow I see the surgeon for follow up on my ultrasound. They've already warned me that he is the doctor on call this week, so expect him to be late. I just hope they don't forget me!

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