Anyone with LCIS and ALH and ADH?

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Anonymous
Anonymous Member Posts: 1,376
Anyone with LCIS and ALH and ADH?

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  • CGG
    CGG Member Posts: 18
    edited July 2017

    I've read lots of post from members with one abnormal cell type or another, but haven't yet found a post regarding having all three cell types diagnosed. I've got all three types and they are all over my pathology slides ('full field defect'), so these are quite prolific in my tissue. Who has experience with this and what were the recommendations of your doctors? What did you decide to do? I've got consultations coming up in August and have read about possible options. I'd love to hear what were advised and how they decided to proceed. Thank you.

  • Moderators
    Moderators Member Posts: 25,912
    edited July 2017

    Dear CGG,

    Welcome to the community. We are sorry about your situation but glad that you reached out to our members. You may want to take a look at this information on our companion site breasthealth.org or check out our LCIS forum to continue to search for others who may identify with your pathology. Let us know how we can best assist you. The MOds

  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited July 2017

    One pathogist called my excisional biopsy DCIS and LCIS. Another called it ADH and ALH. The tiebreaker called it ADH and ALH. I was counseled to take Tamoxifen, but opted for PBM. A surprise IDC was found in that. Jackpot!

    I can joke about it now, but seriously it was no joking matter five years ago. Best of luck with whatever you decide. There are no perfect answers, just some that suck a bit less than others.

  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited July 2017

    My initial biopsy was ALH, suspicious for LCIS. The excisional confirmed LCIS, which is really just lobular hyperplasia that is further along the abnormal spectrum than ALH. It isn't at all unusual to have an "alphabet soup" of breast conditions. I'm just doing survellance

  • leaf
    leaf Member Posts: 8,188
    edited July 2017

    I have classic LCIS and ALH, found on the initial biopsy and excision. Other subsequent biopsies have also found more ALH and DH (not ADH). I took 5 years of tamoxifen after my excision. I have had no more breast biopsies after I started my 5 years of tamoxifen. Otherwise, like MelissaDallas, I just do surveillance. Everyone's situation is different; different people have different histories and emotional reactions to different options. Even people with 'exactly' the same situation as your will choose different options. No one knows your situation better than you do.

  • CGG
    CGG Member Posts: 18
    edited July 2017

    Thanks for the responses and for sharing how you have treated it.

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