How long to feel normal after implants?

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NotVeryBrave
NotVeryBrave Member Posts: 1,287
edited July 2017 in Breast Reconstruction

I had BMX (skin sparing, nipple sparing) in May with immediate, above the muscle silicone implants. I knew that there would be pain after surgery and I knew that there would be numbness from cut nerves. I knew there were a whole bunch of possible complications.

The problem with this site is that it's hard to know what's normal. A lot of people post about problems (I have), but there's not a lot about normal progression. I worry when I see people's lists of multiple, multiple surgeries.

I had this surgery in the hopes of having a quicker recovery and a "fast pass" to being done. The mastectomy relieved some of my worries and, in my case, kept me from needing radiation. I was hoping to not need any further surgery.

So ... who out there has implants that they are comfortable with? No pain? Reasonable appearance? How long did it take to be comfortable? Since I still have varying degrees of pain in different areas, I feel like it's constantly changing. Is that normal and for how long?


Comments

  • MTwoman
    MTwoman Member Posts: 2,704
    edited June 2017

    NotVeryBrave, Me. I only had umx, and had a TE, then exchange surgery, so different process entirely. I couldn't do nipple sparing, as I had multi-focal dcis and one area was too close. They never discussed skin sparing (14 years ago, it might not have been done much back then). It took awhile to feel comfortable with my new foob, as it took most of a year to get it in place. I had a hematoma with my lx, so they did my surgeries in stages. I had 5 surgeries over the course of a year. So, after my final plastics work (my ps built me a nice nipple), I would say it took several months. But honestly, I don't really remember it that clearly. I do remember it took awhile for the feeling to come back under my arm. That was weird, having to look when I shaved. But that came slowly back too. I have all the feeling back in my skin. It just takes time. I'm sorry that I can't be more specific, but I think we all "come back" to our new normal at different rates. Do you have a group that you could join, either at your hospital or treatment center? It might be nice to have others to talk to about this face to face. I went to one for awhile and really like it. But I'm a therapist :)

    Good luck and don't expect too much too soon. Your body and mind have been through some pretty major stuff and may take awhile to get adjusted.

  • NotVeryBrave
    NotVeryBrave Member Posts: 1,287
    edited July 2017

    Thanks for the response, MTwoman! I see your thoughtful posts frequently. Can I ask why you joined fairly recently if your diagnosis was quite a while ago?

    What I'm really looking for is kind of a time line - even though I know everyone is different. I'm less concerned about getting feeling back than I am about not having discomfort. I'm so tired of things hurting and worrying about those pains - as well as lumps and bumps.

    So what did others feel week by week or month by month after similar surgery? When did the discomfort go away? Or did it?


  • Legomaster225
    Legomaster225 Member Posts: 672
    edited July 2017

    I'm interested in this topic as well. My surgery was just 9 days ago so obviously I have a way to go for recovery. I also had above the muscle direct to implant. I do notice a lot of nerve tingling in my left breast. It seems to crawl from my back to around to myentire breast. Not uncomfortable but weird feeling. I think they look pretty close to my preBMX breasts already. Maybe a little rounder and wider under my arm but I still have some swelling and am not moving around freely yet as I still have 2 drains in.

    I like the idea and look of the pre pectoral implants so I am hopeful thinks proceed without any issues.

    Any others with experiences they can share?

  • ready2bedone
    ready2bedone Member Posts: 95
    edited July 2017

    HI Notverybrave - I had my BMX in May too (5/25) but I have TE above the muscle instead of direct implants. I still have some nerve pain around the perimeter of my breasts. It can be quite annoying and was keeping me up at night until my PS said I could take 300 mg of gabapentin at night and that has made a huge difference, not just at night but the next day as well I don't need any during the day now that I am taking more at night. I think the larger dose calms down the nerve endings enough that it lasts a while - I still feel the stinging type sensations during the day but not as much and I can easily distract myself with other things. Plus gabapentin helps with sleep too so that's a bonus. Are you taking anything for nerve pain? If not, I would definitely ask for that since that made a huge difference in my overall daily quality of life!!

    Overall, I am feeling fairly normal (whatever the heck that is!). I have full range of motion back with only a little stiffness though I haven't really done any of the exercises they gave me. My breasts of course are still quite numb and I am pretty tender still under my arms (I think that is also nerve pain since I didn't have any lymph nodes removed there). My energy level is back to normal - getting more sleep finally has helped with that. I don't know if your restrictions are the same but I still am supposed to not lift more than 5 lbs, which is a pain in the butt and I have to keep reminding myself because I don't feel like I need that limit any more.

  • SpecialK
    SpecialK Member Posts: 16,486
    edited July 2017

    Direct to implant is not as frequently done - partly because one needs to be a candidate, and also because many PS don't have enough familiarity yet with doing this type of surgery, especially placing the implants under the skin and not the muscle. It may be that you receive fewer replies to your questions due to that. Comparing direct to implant that are sub-pectoral, TE sub-pectoral, and regular exchange to sub-pectoral implants are not going to be necessarily similar situations in terms of discomfort or how long it took to feel comfortable. I have sub-pectoral round (not anatomical) silicone implants after sub-pectoral expansion with tissue expanders. I would say the discomfort, for me, at exchange was easing at the two week point, gone by the 4-5 week point, but it does take at least six months for the final shape to appear. However, I had the mastectomy with TE placement quite a long time prior to exchange and that took at least 6 weeks to be without pressure and discomfort, so I was not dealing with mastectomy pain when I received final implants. I had ALND surgery five weeks after mastectomy and I would say it took up to a year before I lost the tingling sensation in the axilla, down the inner bicep. You might consider asking for a referral for physical therapy although since pre-pectoral is not stretching muscle you may not feel improvement on the front of the chest, but could still benefit from gently stretching shoulders, upper back, and arms.

  • Sunrisefish
    Sunrisefish Member Posts: 67
    edited July 2017

    Legomaster225, it sounds like my surgery was similar to yours. Your signature line lists radiation. Did you have radiation previously or are you going to have It? I had direct skin and nipple sparing BMX on May 17th with anatomical implants placed above the muscle with Alloderm. I had previous radiation 2 years ago. I am a little over 6 weeks out and doing well. I have full movement, full feeling in the skin of both breasts, the radiated nipple is numb with limited erectile function, the non radiated nipple is completely normal. Scars have healed beautifully. I still have a small amount of pain in both sides, and the upper portion of both breasts. They both feel lumpy with some hard parts throughout. Hard parts are continuing to change and soften. They are a little wide and flat on top. I plan to do fat grafting to increase the flatness in the upper part. Plus this is good for radiated skin. The non radiated side has dropped a little, maybe .5 inch. In a tight t-shirt it makes the non radiated side look a little bigger. Not that big of a deal, but may require a lift in the future. I'm still a work in progress, but I certainly don't expect perfection and I'm pretty happy with things so far!

  • Sunrisefish
    Sunrisefish Member Posts: 67
    edited July 2017

    oh forgot to mention I am still getting some pain zingers.... really intense pain sporadically that seems to happen almost anywhere in either breast. Was having a lot of really sharp pain on the radiated side scar, but it has now subsided. I think pain is probably a good sign as nerves regenerate or spring back to life.

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited July 2017

    NotVeryBrave: I agree with what Special K says. Most docs don't do direct to implant or implants on top of the pec muscle. I had TEs and exchange surgery 7 months later.

    Whatever the process, there are months before the swelling goes down - at least six. I've heard you will experience at least one month of fatigue for every hour of anesthesia. There are more months before your get your energy back. And you have Herceptin for the rest of the year, right? The side effects can be minimal but it's still in your body. You have to start any exercise program very slowly so as not to tear interior stitches.

    Second thing - it depends on your age when you started treatment and you overall health.

    So in answer to your question - I was older but in good health. Maybe a year after the last surgery I started to find my NEW NORMAL - not too much pain, nice appearance.

    But I didn't take tamoxifen because I was ER/PR negative. It is my understanding that can mess with your body 'normal' in many ways. So you need to re-calculate if that's in your plans.

  • NotVeryBrave
    NotVeryBrave Member Posts: 1,287
    edited July 2017

    Thanks for all the help! It seems like all the info helps but adds some questions, too.

    I figure my situation is somewhat complicated by a few things: chemo before surgery, recon at same time of BMX requiring four hours of surgery total, fever three days later (believed to be drug related), continued Herceptin, and L breast infection at five weeks requiring hospitalization with IV antibiotics.

    I did go to PT for four weeks, twice a week starting the week after surgery. I wasn't really discharged from that since I had to miss the last appt with the infection. It did help quite a bit with range of motion and they did assessments for LE as well as massage for some cording I was developing.

    For those who might be reading this and are early out - here's my experience:

    Initial week was fairly decent pain pretty much all over my chest and I took pain meds on a schedule as well as muscle relaxers. I took the lower dose every six hours. My drains were removed at six days.

    The next week was much better for pain and I quit taking narcotics. However - I developed crazy chest tightness and pressure. It felt like my breasts were being crushed all the time. I also had a lot of pain where the drains had been.

    By week three or four the smushing feeling was getting better, but I was hypersensitive on the upper chest skin. The PT instructed me to purposefully rub different textures across the skin to "retrain" the nerves. It helped! At that point my range of motion was much better and I just needed to work on some strengthening.

    When I noticed the pink areas on one breast as well as a new area of discomfort, I called the PS. He saw me that day and sent me to the hospital. Three days later I went home on two weeks of two different antibiotics.

    So - as I'm sure you all can imagine - I'm ready to put this behind me. I hate taking medicines. It seems like I take what I have to and them have a SE and then have to take something else! I was a healthy 50 year old when this all started last November.

    I currently have a burning, stinging type pain all around the outer edges of both breasts - mostly noticeable when I touch the areas or move a certain way. I'll ask about the Gabapentin - that sounds promising! I also have a lot of hard places around the edges. The scar line is a little raised and hard but seems good. I'm mostly numb everywhere that is breast as well as the underarm where the lymph nodes were taken. I remember that starting to improve about four months after the biopsy before.

    I have a lot of rippling and one big dent on the top L side. I feel like the implants are too big - I wanted to stay the same - so I wonder if that contributes to the rippling and discomfort. My breast skin definitely was shiny and then peeled, but I know some of that was swelling. At least there are no more skin issues like discoloration or bruising.

    My PS has told me that I have no restrictions for activity, but I'm careful. I told him I was worried about messing something up, but he said I couldn't hurt anything at this point. I quit wearing a bra at night at six weeks with his okay. That still feels a little odd but wearing a bra 24/7 was a pain - even with the super stretchy ones I had.

    I am supposed to start Tamoxifen soon. I have lots of reservations about that. But - there are lots of ER negative ladies who wish they could take something so I guess I'll try it.

    Sorry so wordy!


  • muska
    muska Member Posts: 1,195
    edited July 2017

    Notverybrave, I had nipple sparing BMX and reconstruction with expanders placed under the pectoral muscle, so it is not the same thing as what you had. I had fills done at the same time a I was undergoing chemotherapy, with only very minor complications (small infection at the peak of chemo that was caught early and successfully treated with oral antibiotic. ) Then, exchange to permanent implants that didn't require any adjustment followed by a full course of radiation. At the end, the result is very good. If it weren't for the radiation the result would be great. However, feeling comfortable and forgetting that I had implants, took a while. I would say I felt significant improvement about six months after the exchange surgery and completely comfortable about a year after the exchange.

  • NotVeryBrave
    NotVeryBrave Member Posts: 1,287
    edited July 2017

    muska - Good to hear about the 6 months to feel more comfortable and a year to feel "normal" - whatever that is! And I'm glad you are happy with the results.

    I know my PS said - when I was freaking out at 2 weeks - that things would be much better by 6 weeks and great by 6 months. He always mentions fat grafting as "icing on the cake" but not sure I'll risk any further surgeries. I suspect it's both a case of things improving as well as just accepting them.


  • hausla01
    hausla01 Member Posts: 7
    edited July 2017

    I think the hardest part about breast cancer is that there isn't really a normal you can compare yourself to. There are SO many variables!! I can tell you my surgery experience to hopefully give you some comfort- bilateral nipple sparing mastectomy with small implants instead of tissue expanders under the muscle 3/10/17. 2.5 weeks of pain bad enough to require narcotics, was still needing ice and ibuprofen for 6 weeks. I had minor other problems after surgery but it sort of kept my mind focused on one area of pain at a time (vein irritation from IV medication, plus mouth ulcer from breathing tube during surgery) How the pain changed was pretty weird - at first it was the whole chest, later it morphed into nipple sensitivity to the point of shower water hurting but it calmed down around 2.5 months post-op, but then I really noticed neck and shoulder pain. I had round 2 reconstruction with bigger implants and fat grafting, just over 2 weeks ago. (Plus had fallopian tubes and one ovary removed since I'm BRCA2 +). This surgery was so much easier to recover from than bilateral mastectomy. It just shows you how much a bilateral mx sucks! I plan on going to physical therapy because of the neck/shoulder pain and building back strength in the chest and arms. PT is first line treatment for chronic pain management. I figure it will not hurt to be proactive. I am pretty happy with my implants already. Things will get better for you, just be as patient as you can :)

  • NotVeryBrave
    NotVeryBrave Member Posts: 1,287
    edited July 2017

    hausla01 - Yep, BMX sucks! My PS keeps reminding me that I had major surgery not that long ago and my BS told me that any surgery takes time for the body to recover from the anesthesia alone.

    I don't know if I'll ever do anything more. I wish there had been more communication beforehand as to what I wanted. I thought "stay the same" would be adequate as to my preferences and I said that every time I was asked. Perhaps the final product will be that, but I doubt it. I would prefer a less wide base and slightly more projection, but I'm not the expert.

    In any case - it's good to know that subsequent surgeries are better.

  • Legomaster225
    Legomaster225 Member Posts: 672
    edited July 2017

    Not very Brave, I asked to be the same size as well. I think they look good, although I'm still swollen. I am very tiny so the PS said getting the same size might be difficult. I feel I am pretty much the same projection my breasts just seem very wide and round at the base. I'm taking pictures so I can compare in a few months

    Sunrisefish. I have not done radiation yet. I will be starting early August. RO was ok with implants first. We will see how it goes

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited July 2017

    I have feeling in the skin covering my implants. Not sure when it happened but I'm 3-1/2 years down the road. I feel like my "new normal". I do not have any sexual stimulation. I miss that, but.....

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