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  • Mominator
    Mominator Member Posts: 1,575
    edited June 2017

    All checked in, signed four more consent document (in addition to the 15 page one mailed to me), and waiting to go back to pre-op.

    Thanks for your kindness, thoughts,and prayers. Just trying to relax now.

  • Sitti
    Sitti Member Posts: 230
    edited June 2017

    Mominator, thinking of you and praying everything goes smoothly. Update when you can.

  • new__me
    new__me Member Posts: 128
    edited July 2017

    Pugsmama, comforting to hear from someone else who is a DES baby. When i had my hysterectomy the surgeon removed ovaries, tubes, uterus, cervix because of abnormalities and the mutation . My uterus was the classic DES shape (tiny and T shaped)

    Both of my sisters are BRCA2+ and each developed breast cancer (one died). I am the only brca2+with DES. My mother is 91 and BRCA2+. Her mother died of ovarian cancer. Mom had ovaries removed years ago and so far no bc.

  • Mominator
    Mominator Member Posts: 1,575
    edited June 2017

    I am all done with pre-op. Previous general surgery case is running late. They are estimating about an hour wait.

    They allowed hubby in to wait with me, and my phone.

  • Molly50
    Molly50 Member Posts: 3,773
    edited June 2017

    In your pocket mominator!

  • EastcoastTS
    EastcoastTS Member Posts: 864
    edited June 2017

    Good luck, mominator!!!!

  • Mominator
    Mominator Member Posts: 1,575
    edited July 2017

    Thanks for all the good thoughts and prayers. I couldn't have my index card (with your names) with me in the OR, but I did have it in my locker and in my mind.

    It was a long day, and the previous surgery ran quite late.

    Good news, while waiting for previous case, I received an entire liter of IV fluids, plus I drank 7 whole 16.9 bottles yesterday. I was well-hydrated.

    I wasn't nauseous after surgery. Yeah!

    I'm home and resting.

    The hard lump on Lefty is gone. I've taken 1/2 pill of Percocet, and left is very achy right now, and much worse if I move my arm. Trying to keep my left arm still.

    Some funny stories, but I'm to tired to post.


    edited for typos

  • Cpcf
    Cpcf Member Posts: 2
    edited July 2017

    cpcf-bilateral exchange July 6, 2017

  • Cpcf
    Cpcf Member Posts: 2
    edited July 2017

    I just had my exchange surgery today. I had previously overdone it with my expanders, so it took some work for my PS to "fix" it while doing the exchange. I actually feel more sore than I did after the double MX. Because of this. Just happy to be ok the other side! I can wait to see what they look like

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited July 2017

    Cpcf - Glad you're done. But Step away from the mirror. I know everyone wants to look right away, but the swelling takes 6 weeks to 6 months to go down. Don't be disappointed with anything you see before then.

  • Imkopy2
    Imkopy2 Member Posts: 265
    edited July 2017

    Mominator-Ive been MIA for a few because he of the holiday but I have been thinking of you. I'm glad to hear you are recovering

    Hugs, michelle

  • EastcoastTS
    EastcoastTS Member Posts: 864
    edited July 2017

    Glad to hear that you're doing well, Mominator!

    Cpcf: Hope you're up and about soon. I'm set in Sept to have a lot of pocket work, too. Not excited by that prospect but will be happy to lose the beloved TEs! I guess that adds to the complexity of healing.

  • Moderators
    Moderators Member Posts: 25,912
    edited July 2017

    Welcome, Cpcf! Congrats on your exchange surgery, we wish you a speedy recovery!

    The Mods

  • Bevmomduck
    Bevmomduck Member Posts: 94
    edited July 2017

    I had my exchange today, too. Had fat grafting for the radiated side hollows and can't tell yet if it will make a difference, but all I want say is,GOODBYE CONCRETE BASEBALLS !! Hooray for squishy.

  • JXmom2
    JXmom2 Member Posts: 29
    edited July 2017

    New to exchage city. I was diagnosed back in october last year. 27 years old i did allll my drs orders :/ including 33 rounds of rads. Not a fan of triple neg! Seen my ps other day he said he can exchange me in around december! He streached me as far as he could "thin skin" lucky no breaks. Im around 320 cc. He mentioned one is a bit higher now and they can make them as even as possible. Also i know they will be SRX round smooth silicone high profile. Im assuming he would need to put in... 300 or 350 cc ? He also mentioned fat graftimg at surgery. Cant wait to have these out! So happy for exchanges iv read so far.

  • EastcoastTS
    EastcoastTS Member Posts: 864
    edited July 2017

    Bevmomduck:

    Excellent! Concrete baseballs indeed. Hey -- I'm in Charlotte, too. ;)

  • Scottiemom11
    Scottiemom11 Member Posts: 1,298
    edited July 2017

    Cpcf and Bevmom. . .glad all went well. Take it easy. Mominator hope all is still good and you are recovering quickly.

    Welcome Jxmom2. Lots of great support on this board.

    Scottie

  • OG56
    OG56 Member Posts: 897
    edited July 2017

    I Just filled everything out for Vinny Myers and he makes you wait five months post surgery exchange before doing nipples he goes to several places I saw that he does too of course the shop in Maryland he goes to the Center for breast reconstruction in New Orleans and I saw he is also going to Dallas so you might contact him through his website and find out if he's coming to a place near you .

  • lrwells50
    lrwells50 Member Posts: 254
    edited July 2017

    Did anyone have just implants to replace the TEs? I'm trying to decide how long I'll be in the hospital, and how long I'll need help once I get home. No flap surgery, so that should help

  • farmdream
    farmdream Member Posts: 84
    edited July 2017

    lrwells50 - I had my exchange June 6. It was on an out-patient basis and I did not stay in the hospital. In regards to help at home...i think it would be good to have someone around for a few days if possible. My PS said not to reach above my head, lift, etc. And when I was allowed to shower, it helped to have someone.

    I think guidance from PS to PS is a little different.

  • Herculesmulligan
    Herculesmulligan Member Posts: 175
    edited July 2017

    I just had my exchange may 17. I took a week off from work but I felt pretty good so I caught up with things I had let slide.....I went to the dentist, had my car inspected, that sort of thing. I didn't have any drains. The first day or two it's nice to have a companion but I didn't need someone there like I did after my mastectomy.

  • Imkopy2
    Imkopy2 Member Posts: 265
    edited July 2017

    Looking for any of my warrior sisters in the Chicago area who may have had reconstruction at University of Chicago. Saw my onc today, told her what was going on with my former PS agreed a trip to the big dogs fir a second opinion wouldn't hurt. Since this is a revision surgery & I underwent radiation I figure I need someone with expertise in that area. I included her info below...any input you have would be great. Hugs!


    http://www.uchospitals.edu/physicians/julie-park.html

  • OG56
    OG56 Member Posts: 897
    edited July 2017

    Meg I agree I went to physical therapy about three weeks after my BMX and I had a lot of cording and so I have massage and gentle exercise and now it's been 10 weeks since my exchange and I'm still going once or twice a week and I'm finally seeing Improvement in the actual cording that went down my arm. I did get Frozen shoulders from both surgeries and had to have them injected with cortisone which fix the problem. I think everybody who has a double mastectomy or even a single and sometimes even with a lumpectomy needs to see a physical therapist who specializes in lymphedema.

  • OG56
    OG56 Member Posts: 897
    edited July 2017

    Meg I agree I went to physical therapy about three weeks after my BMX and I had a lot of cording and so I have massage and gentle exercise and now it's been 10 weeks since my exchange and I'm still going once or twice a week and I'm finally seeing Improvement in the actual cording that went down my arm. I did get Frozen shoulders from both surgeries and had to have them injected with cortisone which fix the problem. I think everybody who has a double mastectomy or even a single and sometimes even with a lumpectomy needs to see a physical therapist who specializes in lymphedema.

  • OG56
    OG56 Member Posts: 897
    edited July 2017

    Meg I agree I went to physical therapy about three weeks after my BMX and I had a lot of cording and so I have massage and gentle exercise and now it's been 10 weeks since my exchange and I'm still going once or twice a week and I'm finally seeing Improvement in the actual cording that went down my arm. I did get Frozen shoulders from both surgeries and had to have them injected with cortisone which fix the problem. I think everybody who has a double mastectomy or even a single and sometimes even with a lumpectomy needs to see a physical therapist who specializes in lymphedema.

  • Keepongoing
    Keepongoing Member Posts: 62
    edited July 2017

    this may sound weird , but has anyone have your implant make a "squeaky " sound when you moved a certain way occasionally ??? Just occurred on one side . I am almost a year out from exchange surgery. No major problems other than some minor rippling on the side that squeaked !

  • robinblessed54
    robinblessed54 Member Posts: 578
    edited July 2017

    Mine squeeked right after ex for a short time. I am 2 1/2 years out. I haven't heard it since. Might get advise from others here.

    Robin


  • DancingElizabeth
    DancingElizabeth Member Posts: 415
    edited July 2017

    Hi All - I'm scheduled to have exchange surgery for my TE's on 8/29. I wasn't too nervous about it - until I told my MO - who told me that I should have an appt. with her - after my surgery to "go over" the "pathology results". I'm not sure why!!

    I had some recent redness but was ultrasounded a few times and MO told me she believes it's from an infection, because it went away with antibiotics. But, now I'm all nervous again because she's having the tissue biopsied. I was looking forward to this procedure - now I'm dreading it.

  • 2FUN
    2FUN Member Posts: 956
    edited July 2017

    I'm sorry if I missed something, but what tissue will be biopsied?

  • DancingElizabeth
    DancingElizabeth Member Posts: 415
    edited July 2017

    Hi - I guess the skin will be biopsied - as I've had some redness a couple of times. I've had 3 recent ultrasounds - and no signs of a reoccurance. MO told me she thinks it's an infection from TE's because it clears up completely with antibiotics. Just having anything biopsied really scares me.

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