July 2017 Surgery

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  • KayaRose
    KayaRose Member Posts: 183
    edited June 2017

    Shelabela, I believe the sentinel node is the one closest to the breast where the cancer would first likely travel to, then there are, I think, 3 levels more. Each goes deeper and deeper into the lymph system. Mine were not tested during surgery. I had 1 out of 14 nodes test positive. The doctor said the radiation would take care of any other stray cancer cells. I hope she was right. It sounds better to me to keep testing during surgery till they are all clear rather than just hope the radiation gets them. Sounds like your docs are right on top of things.

  • toughcookie_21
    toughcookie_21 Member Posts: 185
    edited June 2017

    Edited to add- sorry if this is TMI! I don't know where else to ask questions like this.

    My surgery is scheduled for July 18 and by my calculations, I'm due to get my period on July 19 give or take a day or two. I have 2 concerns: 1) My periods are ridiculously heavy and 2) I typically have terrible PMS with breast soreness for several days leading up to my period. I have brought both of these issues up to my OB/GYN and PCP in the past, but they have both told me that it is perimenopause and that it will go away eventually and unless I'm willing to take hormonal birth control, I have to deal with it. I don't do well on hormonal birth control and thankfully, I haven't taken them up on that option considering I've had an ER/PR+ tumor growing in my breast for who knows how long.

    I'm curious here has ever had surgery while on your period and what did they do about the bleeding while you were in surgery? My second question is- what does everyone think about the breast tenderness and soreness and having surgery while my hormones are obviously so out of whack that they cause that much pain. My BC is hormone receptor positive!

    I mentioned this to the surgical oncologist and they said that the breast soreness is not a concern. They looked at me like I was nuts when I asked about having my period too. I can't imagine that I'm the first person to experience this.

  • Gigilala
    Gigilala Member Posts: 148
    edited June 2017

    hi ladies,

    I have my last chemo(TCHP) on Thursday 27 I have my surgery BMX on July we didn't schedule it yet

    My surgeon said 4 weeks after last chemo

    I am nervous and scared


  • Gigilala
    Gigilala Member Posts: 148
    edited June 2017

    hi ladies,

    I have my last chemo(TCHP) on Thursday 27 I have my surgery BMX on July we didn't schedule it yet

    My surgeon said 4 weeks after last chemo

    I am nervous and scared


  • shelabela
    shelabela Member Posts: 584
    edited June 2017

    Toughcookie,

    Can't help about the period thing as chemo has stopped mine! I am not sure if they will start back up or not. I would think that would of been a good question. Personal questions here, do you use a tampon? That would stop the flow for awhile. To bad they can't give you a drug to halt your period for a few months.

    I can't believe they would suggest hormonal Birth control right now. I was told to stop all birth control with hormones in it, I am triple +.

    What type of surgery are you having.. I am scheduled a day after you. I am having bi-lateral with TE placed that day. Today I went shopping for some lightweight sweatshirts that zip and some lightweight button shirts. I have lots of yoga pants and shorts already. A friend who had a baby 4 months ago is giving me her pregnancy pillow to sleep with. Not sure what else to get.

  • kae_md99
    kae_md99 Member Posts: 621
    edited June 2017

    hi all,

    you could also "pin" your drains on your clothes using tape and safety pin. this is what is normally done in the hospital and you could ask your nurse later on on how to do it..

  • KayaRose
    KayaRose Member Posts: 183
    edited June 2017

    Kae_md99, just a word of warning about pinning the drains to your clothing - remember to un-pin before removing the clothing. Sounds like a "duh" tip but, believe me, it's an easy thing to forget. You don't want to be tugging on those drains. Feels really odd and can hurt. When I had my drains removed after the last surgery, I was so surprised to see how long the drain tubes actually were on the inside. Velcro is another easy fix.

  • illimae
    illimae Member Posts: 5,710
    edited June 2017

    Hi all, I'm jumping over from the June surgery group with a tip I found helpful for newbies. Get some inexpensive button up pj's from walmart or similar and sew in inside pockets for the drains. I found this a vast improvement to the neck or waist straps and it's pretty easy.

    image

  • sochiniteli
    sochiniteli Member Posts: 2
    edited June 2017

    toughcookie_21 I'm having a bilateral mastectomy with reconstruction on the 11th, and that is the day my lady time is scheduled to start, too! I actually just asked my care coordinator about this yesterday because I have a heavy flow, like you. She said to tell your medical team when you check in for surgery - apparently they can give you a special pad-type thing to wear that can accommodate heavy periods if you're going into a longer surgery. I'm hoping the breast tenderness isn't an issue, and I have to say it will be nice to be knocked out and medicated when my cramps are the heaviest

  • sochiniteli
    sochiniteli Member Posts: 2
    edited June 2017

    toughcookie_21 I'm having a bilateral mastectomy with reconstruction on the 11th, and that is the day my lady time is scheduled to start, too! I actually just asked my care coordinator about this yesterday because I have a heavy flow, like you. She said to tell your medical team when you check in for surgery - apparently they can give you a special pad-type thing to wear that can accommodate heavy periods if you're going into a longer surgery. I'm hoping the breast tenderness isn't an issue, and I have to say it will be nice to be knocked out and medicated when my cramps are the heaviest

  • LoveBig
    LoveBig Member Posts: 24
    edited June 2017

    Add me to the list scheduled for skin sparing bmx with snb on both sides July 7

  • lifeisgood33
    lifeisgood33 Member Posts: 26
    edited July 2017

    Like everyone, i'm sure, this was not a 'team' I wanted to join... but, after several weeks of conflicting opinions re: pathology I am scheduled for a lumpectomy to remove two tumors in my rt. breast on July 14.......the day before my birthday. I've just told people now they have two reasons to be extra-nice to me!!

    I am told it should be fairly straightforward, but i'm not certain how the lymph node process works. Do they only take one, unless it's cancerous? Do they take a few, just to be sure? I realize i should have asked my surgeon but it was one question that I didnt' have written down.

    Wishing all on the July 'team' steady-handed surgeons, good pain meds and strong recoveries.


  • kae_md99
    kae_md99 Member Posts: 621
    edited July 2017

    lifeisgood33,

    my BS will take out 2 sentinelLymph nodes and will go from there. if they turn out to be positive for cancer then he will take out some more...

  • shelabela
    shelabela Member Posts: 584
    edited July 2017

    lifeisgood,

    That is what I was good also. They would take out the first ones that they know are cancerous then go from there

  • lifeisgood33
    lifeisgood33 Member Posts: 26
    edited July 2017

    thank you kae and shelabela. I wish you all the best with your upcoming surgeries.



  • jkbrca2
    jkbrca2 Member Posts: 67
    edited July 2017

    if your surgeon has you wearing one of the surgical bras to compress things afterwards, you can clip the drains to the bottom edge of those. My doctor actually wanted me to keep my BMX drains clipped higher than coat pocket height so My drains had little plastic clothespins type things to hook them up to my surgical bra. It worked well for bathroom etc. He hardest part was avoiding turning to my sides to sleep for a few months. Its tough to sleep on your back so long.

    Good luck and prayers for ladies with surgeries this week!

  • shelabela
    shelabela Member Posts: 584
    edited July 2017

    So ladies,

    If you have had your surgery how are you doing?

  • SuzyFL
    SuzyFL Member Posts: 29
    edited July 2017

    I am having my surgery tomorrow morning! I can't wait to get this over with, it seems like I have been waiting forever. I know there are a few of you having surgery this week, I hope everything goes smoothly for you.

  • shelabela
    shelabela Member Posts: 584
    edited July 2017

    good luck tomorrow suzyfl! Keep us posted when you can

  • kae_md99
    kae_md99 Member Posts: 621
    edited July 2017

    goodluck suzy!

  • toughcookie_21
    toughcookie_21 Member Posts: 185
    edited July 2017

    I know what you mean about feeling like you've been waiting forever. I was originally scheduled for a lumpectomy in June followed by radiation then it turned into a BMX and chemo. I kind of just want to get it all over with at this point.

  • TWills
    TWills Member Posts: 679
    edited July 2017

    TE surgery July 10. BMX was in Dec, just finished chemo and have decided to have the TE placed before Rads. Good luck everyone!

  • SuzyFL
    SuzyFL Member Posts: 29
    edited July 2017

    Good morning ladies!

    I had a successful surgery yesterday. Lumpectomy and sentinel lymph node biopsy, removal of 3 lymph nodes which tested negative (big sigh of relief here!). My pain in manageable, not too bad, first night of sleep was good (with help of pain meds before bed!). My kids spent the night at a friends house, so all was quiet, just me and husband. Thankful so much for this message board, reading thru this has really helped me with info and just feeling a little better about all of this. Good luck to everyone this month!

  • PNWskier
    PNWskier Member Posts: 22
    edited July 2017

    Lumpectomy with sentinel node removal and port removal 2 days ago. I was originally going to have a mastectomy but the presurgery chemo (4 months) brought me into the lumpectomy range. I am fairly sore with trouble bending over and lifting my arm. I removed the ace wraps and showered last night. It looks pretty good, I don't see any large bruising or bleeding. The sports bra helps a lot. I finally took a narcotic pain pill since the pain woke me up last night but I generally don't mind being really sore if I can avoid the narcotics. The sentinel node was clear in surgery and I will get the pathology report in about a week and a half with my follow up appointment. I am also looking forward to seeing how much cancer is left in the tumor that was removed. Two other smaller tumors disappeared on MRI after 3 months of chemo so the surgeon took a "generous" lump to try to include that area as well. I may need oral chemo in addition to radiation if there are enough cancer cells remaining.

  • shelabela
    shelabela Member Posts: 584
    edited July 2017

    Suzy,

    Glad to hear you had a good surgery! Now to a speedy and healthy recovery! Keep us posted on the pathology results!


    PNWskier,

    Awesome about the nodes being clear! Thats great that you were able to get to a lumpectomy! Keep us posted on the results as you get them in


    I think there is 2 having surgery today if I remember right, Newlydiagnosed42 and Kmath71. Prayers for a smooth surgery!

  • Candyapple17
    Candyapple17 Member Posts: 36
    edited July 2017

    Thinking of you July ladies and praying for quick healing and better results!

  • bratmobile
    bratmobile Member Posts: 16
    edited July 2017

    I think I will be in this group if the PS's office with ever gets back to me to schedule! It's tentatively the last week in July, the week of the 24th but I could also be the first week of August. Im planning a BMX but part of me still wonders if unilateral is the way to go. The left side is necessary and the right would be prophylactic. Because I was dx before 40 and pretty darn healthy, I am anxious about a new primary in years to come. I'm planning immediate reconstruction with TUG flap surgery. I feel like this will be intense but something I'm more fit to face now rather than 20 years down the road. Is second guessing oneself a normal part of this process?!

  • kae_md99
    kae_md99 Member Posts: 621
    edited July 2017

    hi all,

    just had my pre-op with my PS. apparently ,i have to sleep on my back for 6 weeks after the surgery. yikes... we have a recliner but its in the living room downstairs and its too big to fit the door to our room. i guess i have to sleep in the living room or improvise and use lots of pillows on our bed..

  • aussierockchick
    aussierockchick Member Posts: 12
    edited July 2017

    I had aerform te removed and silicon implant on my rhs on 4th july. Healing well, resting at home and looking very even. Would never hav thought i could feel this happy again after initial dx but here i am. Such a relief to say goodbye to the expander. Good luck to you all. This is not fun. X

  • kae_md99
    kae_md99 Member Posts: 621
    edited July 2017

    aussie,

    how long did you have the expanders for and did you uave fills too

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