What do you consider your anniversary date of being cancer free?
Hi -
I'm curious what you mark as your anniversary for being cancer-free. Is it the last day of treatment? Is it the first follow up after you're done with treatment?
Thank you!
Comments
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I count it from my surgery date. Which looks like yours was just a day after mine! Hope you're doing well.
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I say surgery date; because in all likilhood that's when all my cancer left my body. I consider further treatment a sort of insurance policy
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My MO counts from diagnosis. I count from my surgery date like the others.
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Most medical people count from diagnosis, so I do as well. I reached my 5 years sooner that way!
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I do not consider myself "Cancef Free or Cured" as there is no 'cure' for BC at this time. I count my 'anniversaries' from my DX date - so 7+ yrs and still NED (No Evidence e of Disease) which is the best we can hope for.
But then, my DX (IBC) is very different from any who have replied so far (as was my TX plan and prognosis) - I beat the odds!
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From my surgery date. My MO uses surgery date as well. I am cured of cancer.
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I count from my first surgery date. Other than that, I'm with Kicks. There is no cure for breast cancer. I've already had a recurrence after I made the mistake of thinking I was 'cured' the first time, and my life could go on as before. But for now I'm NED again. I'll take it!!
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When was the 'cure' for BC found? Was it for all types, stages, etc.? What is it?
That would be amazing news but hasn't been on News programs! What is it that has been found that cures BC? I'm still NED but to get a cure so there would never be a possibility of a recurrence or mets would be better than 'just' NED.
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Everyone I know counts from date they got the word so I do as well. That way I'm consistent with all my docs. But it makes more sense to me to count from when you are done active tx as you assume after all that you are now NED.
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Ksusan- there is no cure for cancer. The best news we get forever until a cure is found is being NED. You need to keep up with your appts and be vigilant for aches/pains that don't go away as they normally do for you, etc. Saying you're cured implies you are done even thinking about it. Vigilance is a must for all of us.
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My surgeon told me when I asked this very question - from the date of surgery as that is when the tumour was removed.
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You can believe what you want, as do I. I am cured.
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Good luck to you Ksusan. Hopefully you will keep vigilant and go to follow up appts just to make sure..
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ksusan - you can think/'believe' anything you want to even with nothing to back up your 'thought'. Where is your documentation that there is a Cure for BC and that it has cured you? What 'majikal' potent cured you? Patent it and you will become a mega billionaire or trillionaire.
Believe in your fairy tales - we live in reality.
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The question of cure versus NED was discussed in the 30% thread. Beesie's reply provides food for thought, and suggests that people may reasonably choose to view their situations differently:
https://community.breastcancer.org/forum/105/topic...
BarredOwl
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Thanks Barred Owl. i'd forgotten about those discussions.
I think the best description of cures is - you will know you were cured when you hit 90 years old & die of something else.
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I'm going to ask my doc tomorrow at my chemo appt, but I'm thinking surgery date.
KSusan- love the avatar! How does one upload? My chemo brain can't figure it out. Lol! Have a good night all!
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Oh yeah, I remember those discussion BarredOwl. Here's the basic facts about this from the linked post:
"I think there is a huge difference between what a patient chooses to believe for herself and how she chooses to move forward in life, and what a doctor tells a patient. Since we can never know for sure who among us is cured and who will have a recurrence or develop mets, of course any doctor who pronounces to a patient that she is "cured" is an irresponsible idiot. For early stage patients, I am fine however if a doctor says something like "I hope and believe that your treatments were effective and that you have been cured, but since there is no way to know this for sure, it's important that you always remain diligent, come in for all your tests and call should you ever experience any unusual pains or develop any lumps."
This was addressed to me in that thread, and I agree.
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Now on my laptop, here is the full text of the post from Beesie (text in [square parentheses] added by me). I was also thinking of the fourth paragraph when I linked to it above:
https://community.breastcancer.org/forum/105/topics/812929?page=31#post_4781009
Traveltext, as I said, "Of course we can never truly know if we are cured or not - there is simply no way to know if all the cancer cells were successfully removed and/or killed off - but since we know that most women who have early stage breast cancer never develop a recurrence, we can conclude that most of these women were in fact cured by their treatment."
Let's remember that this is a thread in the Stage I forum and it is talking about how 30% of early stage [i.e., Stage IA, IB, IIA, IIB, IIIA] women go on to metastasize [suffer recurrent metastatic disease].
Importantly, what this also means that 70% of early stage women do not go on to metastasize. The percent is considerably higher for those who are early early stage (Stage I). Some of these women will develop local recurrences, but most will not. Most were cured by their treatment.
To some of the earlier discussion, to suggest that we are all just in remission, or to imply that those who think or say that they are 'cured' are foolish or fooling themselves or not taking proper care is doing a huge disservice to early stage women. Of course some will recur. Of course some will develop mets. Of course we can never really know if we are cured or not. Of course we all must remain vigilant. But most of us are cured, and to think this and believe this - while remaining aware of the risks - is reasonable and healthy.
Edited to add: Artista, I think there is a huge difference between what a patient chooses to believe for herself and how she chooses to move forward in life, and what a doctor tells a patient. Since we can never know for sure who among us is cured and who will have a recurrence or develop mets, of course any doctor who pronounces to a patient that she is "cured" is an irresponsible idiot. For early stage patients, I am fine however if a doctor says something like "I hope and believe that your treatments were effective and that you have been cured, but since there is no way to know this for sure, it's important that you always remain diligent, come in for all your tests and call should you ever experience any unusual pains or develop any lumps."
BarredOwl
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The question of cure versus NED/remission was discussed ad Infinitum in the 30% thread. Occasionally, discussion would get sidetracked into how well someone was treated on diagnosis,and how this might affect chances of recurrence. Poor Barbie suffered criticism on this score as I recall.
It seems to me that most of us tend to rationalise our situations, more or less guess our survival prospects, and assign ouselves a prognosis that matches our biased viewpoints. And then self-satisfiedly rely on crude overall statistical percentages to back up our predjucicial decisions.
As John Lennon sang: "Whatever gets you through the night is alright". This works fine for me.
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The hospital here counts cancer anniversaries by surgery date. So my 1- yr checkup was in the middle of my Herceptin injections. That didn't make any sense to me, because so long as I had active treatment going on, I felt sort of "safe". My emotional crash came after my post Herceptin checkup, about a month after the last dose. Part of that was due to several recurrance scares, two bad chest colds --- and losing my dear sweet dog of almost thirteen years. Just today I was thinking yeah, I was extremely depressed the start of this year, but I'm finally through that dark tunnel and back into the light. I will never feel cancer-free, but I am NED for the time being, and focusing on other things in life.
So: official anniversary: surgery date 8/2015
My own anniversary: my last dose of herceptin (14 1/2 months after surgery)
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I like surgery date, since that's when the tumor was removed. Most of the subsequent treatments were "mopping up" or "insurance" so they shouldn't count for anniversaries. Otherwise you could say when we stop hormone blockers and that's sort of never these days.
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Sx date makes the best sense. That's when the tumour comes out. I wish MOs would use that to determine how long on meds and such instead of dx date like mine does.
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My dx, but my surgery date is only one month later.
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My anniversary date is my dx, my daughter's is her end of treatment - it's whatever you choose. There's no right or wrong date. We are both NED - DD for 18-yrs, me for 6-yrs, but with every new ache or pain, our 1st reaction is still "cancer".
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I count from the date of dx, as do the docs.
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Sorry, but some of us are cured. I am one. Over 8 years out with TNBC, you are CURED. No possibility whatsoever that same thing can come back. It does not prevent another cancer, but the old one is gone, totally and completely.
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Sorry, but some of us are cured. I am one. Over 8 years out with TNBC, you are CURED. No possibility whatsoever that same thing can come back. It does not prevent another cancer, but the old one is gone, totally and completely.
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My oncologist counts post-treatment date as the official date. I finished RADS in August 2011 so she counted August 2016 as my 5 year milestone.
Diane
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There is no cure yellowdoglady. Any one of us can recurr at any point in our lives. Happy you are 8 years NED and hope it continues that way.
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