What do you consider your anniversary date of being cancer free?

Zelda33
Zelda33 Member Posts: 14

Hi -

I'm curious what you mark as your anniversary for being cancer-free. Is it the last day of treatment? Is it the first follow up after you're done with treatment?

Thank you!

«1

Comments

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2017

    I count it from my surgery date. Which looks like yours was just a day after mine! Hope you're doing well.

  • Manu14
    Manu14 Member Posts: 153
    edited February 2017

    I say surgery date; because in all likilhood that's when all my cancer left my body. I consider further treatment a sort of insurance policy

  • Gully
    Gully Member Posts: 268
    edited February 2017

    My MO counts from diagnosis. I count from my surgery date like the others.

  • Denise-G
    Denise-G Member Posts: 1,777
    edited February 2017

    Most medical people count from diagnosis, so I do as well. I reached my 5 years sooner that way!

  • Kicks
    Kicks Member Posts: 4,131
    edited February 2017

    I do not consider myself "Cancef Free or Cured" as there is no 'cure' for BC at this time. I count my 'anniversaries' from my DX date - so 7+ yrs and still NED (No Evidence e of Disease) which is the best we can hope for.

    But then, my DX (IBC) is very different from any who have replied so far (as was my TX plan and prognosis) - I beat the odds!

  • ksusan
    ksusan Member Posts: 4,505
    edited February 2017

    From my surgery date. My MO uses surgery date as well. I am cured of cancer.

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited February 2017

    I count from my first surgery date. Other than that, I'm with Kicks. There is no cure for breast cancer. I've already had a recurrence after I made the mistake of thinking I was 'cured' the first time, and my life could go on as before. But for now I'm NED again. I'll take it!!

  • Kicks
    Kicks Member Posts: 4,131
    edited February 2017

    When was the 'cure' for BC found? Was it for all types, stages, etc.? What is it?

    That would be amazing news but hasn't been on News programs! What is it that has been found that cures BC? I'm still NED but to get a cure so there would never be a possibility of a recurrence or mets would be better than 'just' NED.

  • Artista928
    Artista928 Member Posts: 2,753
    edited February 2017

    Everyone I know counts from date they got the word so I do as well. That way I'm consistent with all my docs. But it makes more sense to me to count from when you are done active tx as you assume after all that you are now NED.

  • Artista928
    Artista928 Member Posts: 2,753
    edited February 2017

    Ksusan- there is no cure for cancer. The best news we get forever until a cure is found is being NED. You need to keep up with your appts and be vigilant for aches/pains that don't go away as they normally do for you, etc. Saying you're cured implies you are done even thinking about it. Vigilance is a must for all of us.

  • wintersocks
    wintersocks Member Posts: 922
    edited February 2017

    My surgeon told me when I asked this very question - from the date of surgery as that is when the tumour was removed.

  • ksusan
    ksusan Member Posts: 4,505
    edited February 2017

    You can believe what you want, as do I. I am cured.

  • Artista928
    Artista928 Member Posts: 2,753
    edited February 2017

    Good luck to you Ksusan. Hopefully you will keep vigilant and go to follow up appts just to make sure..

  • Kicks
    Kicks Member Posts: 4,131
    edited February 2017

    ksusan - you can think/'believe' anything you want to even with nothing to back up your 'thought'. Where is your documentation that there is a Cure for BC and that it has cured you? What 'majikal' potent cured you? Patent it and you will become a mega billionaire or trillionaire.

    Believe in your fairy tales - we live in reality.

  • BarredOwl
    BarredOwl Member Posts: 2,433
    edited February 2017

    The question of cure versus NED was discussed in the 30% thread. Beesie's reply provides food for thought, and suggests that people may reasonably choose to view their situations differently:

    https://community.breastcancer.org/forum/105/topic...

    BarredOwl

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited February 2017

    Thanks Barred Owl. i'd forgotten about those discussions.

    I think the best description of cures is - you will know you were cured when you hit 90 years old & die of something else.

  • AbbyG
    AbbyG Member Posts: 23
    edited February 2017

    I'm going to ask my doc tomorrow at my chemo appt, but I'm thinking surgery date.

    KSusan- love the avatar! How does one upload? My chemo brain can't figure it out. Lol! Have a good night all!


  • Artista928
    Artista928 Member Posts: 2,753
    edited February 2017

    Oh yeah, I remember those discussion BarredOwl. Here's the basic facts about this from the linked post:

    "I think there is a huge difference between what a patient chooses to believe for herself and how she chooses to move forward in life, and what a doctor tells a patient. Since we can never know for sure who among us is cured and who will have a recurrence or develop mets, of course any doctor who pronounces to a patient that she is "cured" is an irresponsible idiot. For early stage patients, I am fine however if a doctor says something like "I hope and believe that your treatments were effective and that you have been cured, but since there is no way to know this for sure, it's important that you always remain diligent, come in for all your tests and call should you ever experience any unusual pains or develop any lumps."

    This was addressed to me in that thread, and I agree.

  • BarredOwl
    BarredOwl Member Posts: 2,433
    edited February 2017

    Now on my laptop, here is the full text of the post from Beesie (text in [square parentheses] added by me). I was also thinking of the fourth paragraph when I linked to it above:

    https://community.breastcancer.org/forum/105/topics/812929?page=31#post_4781009

    Traveltext, as I said, "Of course we can never truly know if we are cured or not - there is simply no way to know if all the cancer cells were successfully removed and/or killed off - but since we know that most women who have early stage breast cancer never develop a recurrence, we can conclude that most of these women were in fact cured by their treatment."

    Let's remember that this is a thread in the Stage I forum and it is talking about how 30% of early stage [i.e., Stage IA, IB, IIA, IIB, IIIA] women go on to metastasize [suffer recurrent metastatic disease].

    Importantly, what this also means that 70% of early stage women do not go on to metastasize. The percent is considerably higher for those who are early early stage (Stage I). Some of these women will develop local recurrences, but most will not. Most were cured by their treatment.

    To some of the earlier discussion, to suggest that we are all just in remission, or to imply that those who think or say that they are 'cured' are foolish or fooling themselves or not taking proper care is doing a huge disservice to early stage women. Of course some will recur. Of course some will develop mets. Of course we can never really know if we are cured or not. Of course we all must remain vigilant. But most of us are cured, and to think this and believe this - while remaining aware of the risks - is reasonable and healthy.

    Edited to add: Artista, I think there is a huge difference between what a patient chooses to believe for herself and how she chooses to move forward in life, and what a doctor tells a patient. Since we can never know for sure who among us is cured and who will have a recurrence or develop mets, of course any doctor who pronounces to a patient that she is "cured" is an irresponsible idiot. For early stage patients, I am fine however if a doctor says something like "I hope and believe that your treatments were effective and that you have been cured, but since there is no way to know this for sure, it's important that you always remain diligent, come in for all your tests and call should you ever experience any unusual pains or develop any lumps."

    BarredOwl

  • Traveltext
    Traveltext Member Posts: 2,089
    edited February 2017

    The question of cure versus NED/remission was discussed ad Infinitum in the 30% thread. Occasionally, discussion would get sidetracked into how well someone was treated on diagnosis,and how this might affect chances of recurrence. Poor Barbie suffered criticism on this score as I recall.

    It seems to me that most of us tend to rationalise our situations, more or less guess our survival prospects, and assign ouselves a prognosis that matches our biased viewpoints. And then self-satisfiedly rely on crude overall statistical percentages to back up our predjucicial decisions.

    As John Lennon sang: "Whatever gets you through the night is alright". This works fine for me.


  • tessu
    tessu Member Posts: 1,564
    edited May 2017

    The hospital here counts cancer anniversaries by surgery date. So my 1- yr checkup was in the middle of my Herceptin injections. That didn't make any sense to me, because so long as I had active treatment going on, I felt sort of "safe". My emotional crash came after my post Herceptin checkup, about a month after the last dose. Part of that was due to several recurrance scares, two bad chest colds --- and losing my dear sweet dog of almost thirteen years. Just today I was thinking yeah, I was extremely depressed the start of this year, but I'm finally through that dark tunnel and back into the light. I will never feel cancer-free, but I am NED for the time being, and focusing on other things in life.

    So: official anniversary: surgery date 8/2015

    My own anniversary: my last dose of herceptin (14 1/2 months after surgery)


  • Traveltext
    Traveltext Member Posts: 2,089
    edited May 2017

    I like surgery date, since that's when the tumor was removed. Most of the subsequent treatments were "mopping up" or "insurance" so they shouldn't count for anniversaries. Otherwise you could say when we stop hormone blockers and that's sort of never these days.


  • Artista928
    Artista928 Member Posts: 2,753
    edited May 2017

    Sx date makes the best sense. That's when the tumour comes out. I wish MOs would use that to determine how long on meds and such instead of dx date like mine does.

  • Meow13
    Meow13 Member Posts: 4,859
    edited May 2017

    My dx, but my surgery date is only one month later.

  • mostlymom
    mostlymom Member Posts: 466
    edited May 2017

    My anniversary date is my dx, my daughter's is her end of treatment - it's whatever you choose. There's no right or wrong date. We are both NED - DD for 18-yrs, me for 6-yrs, but with every new ache or pain, our 1st reaction is still "cancer".

  • yellowdoglady
    yellowdoglady Member Posts: 349
    edited June 2017

    I count from the date of dx, as do the docs.

  • yellowdoglady
    yellowdoglady Member Posts: 349
    edited June 2017

    Sorry, but some of us are cured. I am one. Over 8 years out with TNBC, you are CURED. No possibility whatsoever that same thing can come back. It does not prevent another cancer, but the old one is gone, totally and completely.

  • yellowdoglady
    yellowdoglady Member Posts: 349
    edited June 2017

    Sorry, but some of us are cured. I am one. Over 8 years out with TNBC, you are CURED. No possibility whatsoever that same thing can come back. It does not prevent another cancer, but the old one is gone, totally and completely.

  • edwards750
    edwards750 Member Posts: 3,761
    edited June 2017

    My oncologist counts post-treatment date as the official date. I finished RADS in August 2011 so she counted August 2016 as my 5 year milestone.

    Diane

  • Artista928
    Artista928 Member Posts: 2,753
    edited June 2017

    There is no cure yellowdoglady. Any one of us can recurr at any point in our lives. Happy you are 8 years NED and hope it continues that way.

Categories