Enjoying your 30s...and breast cancer!

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  • Moderators
    Moderators Member Posts: 25,912
    edited June 2017

    CurlyN-

    We want to welcome to our community here at BCO, although we're so very sorry for the circumstances that have brought you here! The first days and weeks can be overwhelming and scary, but we hope you find the support and information you need here to get through them! We're all here for you!

    The Mods

  • ElleElleBee
    ElleElleBee Member Posts: 19
    edited June 2017

    I am 32, very few risk factors, and a mom of three small boys (6.5, 5, and 3 years old)... I found a lump in my armpit a month ago. Finally got my appointments this week. Blood work and chest xray on Monday were clear, but mammogram and ultrasound yesterday looked pretty terrible. The lymph node is 3.8 x 2.3 x 1.9 cm and the mess in my breast is 5 x 5.3 x 3.5 cm. I am a small-chested gal and all of that seems HUGE. BI-RADS 5. Every doctor I've seen so far has looked at me with such pity and gravity instead of that "we are going to fight this, champ!" sort of attitude I'd like to see. It makes me more nervous. Biopsies are scheduled for this upcoming Wednesday, five days away. It feels like a lifetime. I just want someone to whisk me away and do all of the things... fix me. I'm terrified that there's cancer coursing through my entire body at this point. I can agree with all of the previous posters who have said that things will be better once there is a plan. This is excruciating waiting to see what comes next.

  • Anna-33
    Anna-33 Member Posts: 192
    edited June 2017

    I was diagnosed this year at age 31 (pregnant). Hormonsensitive. Lots of lymph nodes involved. Just started Taxol... what are yours experience with taxol so far?

  • MTwoman
    MTwoman Member Posts: 2,704
    edited June 2017

    Anna, are you still by any chance pregnant? there is another poster who is 22 weeks and struggling with making decisions about treatment and their impacts on her unborn child. Her name is RubyRoo, if you think you may have some useful intel for her, would you mind sending her a note?

  • Anna-33
    Anna-33 Member Posts: 192
    edited June 2017

    I found my lump in November, but got wrong diagnosis at first... Then mastectomy march this year.... followed by C-section pregnancy week 33. Six week later I started chemo.

  • LaTonya
    LaTonya Member Posts: 1
    edited June 2017

    HI, I'm LaTonya and I was just diagnosed. I'm 37 and in a state of shock!! I have stage 2 IDC. Was told I have to get chemo to try and shrink the tumor before surgery. I'm just at s lost and looking forward to hearing others testimony.

  • Adelozier
    Adelozier Member Posts: 84
    edited July 2017

    Latoya may I ask how large your tumor is? Are u triple neg or pos?

  • ElleElleBee
    ElleElleBee Member Posts: 19
    edited July 2017

    Yes, LaTonya, looking to hear more! I have IDC, ER+, PR+, HER-. My tumor is 5x5.3x3.2 cm. Positive in a biopsied node as well. MRI this upcoming Saturday will hopefully show us that the cancer hasn't spread past the nodes. Because I'm 32 years old, they're probably also going to send me for genetic testing. My guess is that I'll have chemo prior to mastectomy (definitely mastectomy because I'm barely an A cup and my tumor is so large). If genetic testing is positive for gene mutation, I would imagine they'd recommend double mastectomy which I would be just fine with.

  • purplestargazer
    purplestargazer Member Posts: 77
    edited July 2017

    Thanks for starting this thread! I'm 38 and have a 7 y/o. I start chemo next week and then the plan is lumpectomy with rads.

    Not looking forward to any of it but after the horrendous anxiety of the is it or isn't it waiting game I'm feeling positive and confident in my treatment plan.

    All the docs with whom I've spoken say it's a bump in the road and curable. I'm holding that tightly as I walk the path.

    Best to each of you.


  • Aleksandra30
    Aleksandra30 Member Posts: 34
    edited July 2017

    Hello all! I am 30 years old and I have just been diagnosed with IDC, grade 2 breast cancer today. I am obviously freaking out, I want to have a family one day and I am just terrified of this diagnosis and the next steps. Any words of encouragement would be super helpful. Thank you!

  • Moderators
    Moderators Member Posts: 25,912
    edited July 2017

    Hi Aleksandra-

    We want to welcome you to our community here at BCO, although we're sorry for the circumstances that have brought you here. We know getting a breast cancer diagnosis is scary and stressful, but we're all here to help you through it! You might want to check out our IDC forum for more info about your diagnosis and connect with others in your shoes: https://community.breastcancer.org/forum/96. And we also have a forum for our younger members with breast cancer, with lots of info about fertility and some of the unique issues you face: https://community.breastcancer.org/forum/27.

    We hope this is helpful! Take it one day at a time!

    The Mods

  • Anna-33
    Anna-33 Member Posts: 192
    edited July 2017

    Aleksandra30... Most people survive breastcancer! Remember that. Do you know what kind of cancer; hormoesensitive, HER2, triple negative, lympnodestatus, ki67..... These factors will be used in planning the best treatment for you.

  • anniejabam
    anniejabam Member Posts: 3
    edited July 2017

    I was just diagnosed about 3 hours ago... yeah I'm freaking out!!! I'm 34 years old, married for 9 years, and have 3 children - two boys that are 7 and 5 yrs old and our daughter who is 8 months. I don't have many details yet, except I have DCIS. Because of the size (8.cm) it will most likely require I have a mastectomy. My head is definitely spinning and I'm trying to figure out where to start. I stay at home with the kiddos and the past week has been hard to handle... just the stress of not knowing. I'm not sure how the next 6+ months are going to play out and I'm terrified.... terrified for myself, but mostly for my husband and kids. Would love to hear any advice or suggestions on how others got through the tough months. I'm so happy that I found this forum and look forward to meeting everyone.

    Mel

  • BlueKoala
    BlueKoala Member Posts: 190
    edited July 2017

    anniejabam - sorry to have you have to join us!

    I'm home full time with my kids, too, but they were 9, 5 and 3 when I was diagnosed. The hard thing was that I couldn't take sick leave: I had to keep doing my job.

    Here are some thing some I did to get by, I don't know what will apply to you:

    - if people offered to help, I tried to say yes. Mostly it was meals, but a couple of friends stopped in, brought coffee and swept my floor or cleaned my bathroom before they left. The best help, though, was the friends who came over, made us both a cup of tea, and then played with my daughter! Three year olds need a lot of attention, and I didn't have the energy for it.

    - I lowered my expectations even further than they already are. So what if my bathroom wasn't spotless? I can sleep on my dirty sheets for a little longer - just let me sleep!

    - I put stuff in the dryer instead of hanging it on the line if I was feeling too sick (then I bought an indoor airer, and I still use it!)

    - I did online grocery shopping.

    - I cooked a lot in a slow cooker. I could put dinner on in the mornings when I still felt good, then by night when I was feeling gross dinner would already be done. We were going to pre-cook some meals and freeze, but we didn't get around to it before treatment started.

    - there was a lot more TV than I would normally allow. Everyone else tells me my daughter doesn't seem worse off for it, but I can tell. I got her into an online learn to read programme (she's a bright cookie and was ready for it) - Reading Eggs for any Australian mums reading this - and that made me feel a little better about her screen time. I love the Lego video games too, so I let her play with me in the afternoons because they involve problem solving.

    - both my husband and I dropped everything inessential in our week. We are on all sorts of rosters at church, and people were happy to fill for us both. He dropped out of his indoor cricket team. I focussed on getting better and he took the kids to soccer training and swimming lessons and birthday parties. If I didn't feel I was up to going somewhere, I didn't.


  • Aleksandra30
    Aleksandra30 Member Posts: 34
    edited July 2017

    Thank you MODERATORS for your support and warm words! <3

    Anna in Norway: Thank you as well for your encouragement! At the time of writing the post, I was crushed and terrified. 7 days into diagnosis, I am much better. I do not see this any more as a death sentence and I am ready to fight this sucker with all power I have in me! I did get some clarification (biopsy results), which are still unclear, but I am hoping to talk to my breast surgeon on 17th.

    ER 0, 0%

    PR 1, 1%

    Her2/neu 4.6, 100%

    ki-67 2, 46%

    p53 2, 91%

    Anniejabam: Hang in there! I understand its scary, but it is so early right now. Try to take it day by day. sending love!

  • Froggiebee11
    Froggiebee11 Member Posts: 6
    edited July 2017

    I'm 32 and newly diagnosed on 7/5/17 with TNBC. I found out I was BRCA 2 positive in 2012, just recently had a prophylactic mastectomy with reconstruction on 6/28/17

  • Dani_fd
    Dani_fd Member Posts: 74
    edited July 2017

    Hi everyone, I'm glad and sad to see others here. Not sure what to feel right now. I was diagnosed in June after they found metastasis in my broken hip, the femur was completely hollowed out due to lesion. I'm stage IV, mets to bones and lymph,hr+/her+, and still in the prestage treatment planning. My oncologist called me today with the news of my biopsy, left breast. They put a clip in after in case they need to perform surgery, is what I was told. He Wanted to tell me early so I had some time to digest the news that the cancer is aggressive and he wants to start me on chemotherapy next week. I still know so little about the details and it's got me feeling like I've been left in the dark about everything but I'm impatient I guess. This has all happened so fast. Originally, after testing the cells from my hip they said I was HER2-. Breast tumor says otherwise. Still no talk of surgery, but my blood tests say I'm healthy enough to continue -I just finished my first round of site specific radiation to hip and shoulder. No plan yet for breast or lymph removal.

    I broke my hip by simply stepping out of my work truck, I'm heavy set but was very active until that, worked 5-6 days a week in a shop and road crew barricade work 8-10 hours a day. I had to have an implant dynamic hip screw with pins and plate, have been recovering from this for last 6 weeks. New aches and pains everyday are starting to eat me up while I'm helpless to be able to leave my house without assistance. Trapped like a rat in a cage

    I have a 13 yr old daughter, we just broke the news to her when she got back from her fathers for the summer. I have no idea how to help her with this either but I had her dad and step mom, my dad, me and my spouse there when I explained it to her. I didn't go into much detail but wanted to be honest with her.

    Thank you for listening, thank you for being here. I know I'm not alone but that doesn't make me feel any less alone.

    Mom of 1,

    D

  • gb2115
    gb2115 Member Posts: 1,894
    edited July 2017

    Hi Danielle--welcome to BCO and so sorry that you've made your way here...that is definitely devastating news. It's completely understandable that you don't know what to feel. How old are you? I have a daughter too, but she's 4 (almost 5). If there's anything we can do to help, let us know. There is also a stage IV area of the BCO that is active, if you want to pop in there and introduce yourself.

  • Dani_fd
    Dani_fd Member Posts: 74
    edited July 2017

    Hi Gb, I am 36. Thank you for the support, to and from for everyone here included.

    I have been looking at articles about returning to work. I'm far from ready, I still can't get around without a wheelchair and walker. I'm too unstable on crutches so going to back to work full time isn't an option yet. I have just had so many appointments to keep and procedures and tests. My employer is keeping me on the books even though I'm not getting any hours, but they are also keeping me on their insurance (amazing) and they haven't filed officially for leave of absence for me for that reason. I want to go back, that is my long term goal anyway, I want to get back to my life that's for sure. Having a broken hip has really taken me down a few pegs aside from everything else.

    I will pop in the stage IV forum, thank you for the help. There is so much I know I can learn from everyone here.

    Thank you!

  • FuzzySocks
    FuzzySocks Member Posts: 22
    edited August 2017

    Hi, I'm here to join you ladies. Still waiting for pathology to know more, but after finding a strange indentation on my boob, my world is feeling overwhelming right now. i'm 34 with two young kids. i do have a strong family history of BC so i guess in some ways not super surprised. feeling really tired and down but hoping once i know more and have a plan in place things will feel less overwhelming.

  • gb2115
    gb2115 Member Posts: 1,894
    edited August 2017

    Hi Canadamom, welcome to the boards! I am 39 with a young daughter (was 38 when diagnosed). Sorry you are here to join us...have you been diagnosed with breast cancer or are you waiting for the word from pathology on that?

  • Dani_fd
    Dani_fd Member Posts: 74
    edited August 2017

    Canada Mom, you are in the right place. I truly hope and pray your results come with good news but in the event it doesn't, there are a lot of women here for support, encouragement and wonderful life stories. I am 36 mom of a 13 yr old girl, was diagnosed at stage IV with bone mets just this June. When I saw a fold and indentation in my breast, I though it was from a bra that was too tight, and my fatty deposits don't help, as they have always been strangely shaped. Unfortunately is wasn't good. I am sending out my prayers to you and yours, keep us updated. Everyday there is something to learn and take away from these groups here.

    Love Danae

  • FuzzySocks
    FuzzySocks Member Posts: 22
    edited August 2017

    gb2115 i guess i won't be officially diagnosed until my biopsy results are back, but the radiologist and my doctor said that in their experience it is definitely cancer and it appears to have spread to my lymph nodes. so i think it must just be a matter of waiting to hear what stage etc? this certainly explains some symptoms I've been having

  • FuzzySocks
    FuzzySocks Member Posts: 22
    edited August 2017

    oh my goodness Dani i'm so sorry that it metastasized to your bones :( sending a huge hug and prayers to you.

    i thought my indentation was maybe just fat shifting or something lol. until the indentation got bigger... I wish i had listened to my body earlier... funny neither of my kids liked to breastfeed on this side. guess they knew something i didn't.

  • gb2115
    gb2115 Member Posts: 1,894
    edited August 2017

    Canadamom, so they need to make it official but it sure seems they typically have a good idea what they are looking at. But hopefully they are completely wrong, right?! Pathology is the next step. The type of cancer will play a major role in your treatment plan. Staging typically isn't final until after surgery. A lot of pieces need to come together and it's usually pretty slow so hang in there.

    Incidentally when breastfeeding (I pumped exclusively for 1 year) I only got half the milk out of the side that eventually grew cancer, compared to the other side. Makes me wonder if it was already growing in there, blocking ducts or just defective cells or something. I've heard of other women like this too. It's interesting.

  • FuzzySocks
    FuzzySocks Member Posts: 22
    edited August 2017

    hmmmm gb2115, thats really interesting that you couldn't get as much milk out of that side! very strange, but at the same time makes sense. so they don't stage until after surgery? i assumed the biopsy would give that info. looks like i have so much to learn! ahhhh.

  • Eibra
    Eibra Member Posts: 24
    edited August 2017

    hello brave ladies , i diagnosed last year i was 31 yrs , no family history , my genetic test is negative, i have a unique situation which is my tumor is medullary feature in teo hospital was triple negtive , and in other two hospital was Er weakly positive 10-20% , so i started tamoxifen four month ago and I developed big ovarian cyst and thickness in endometrial I freaked out and stopped it , not yet married and i would love to have babies , any one have same situation, if I stopped the tamoxifen it could be okay ? I just can't feel okay to take a medicine ghat may cause to me more complicated issues , they send the block to cleavland hospital to make sure regarding the Er its very confusing regarding my tuomr genotype

  • MTwoman
    MTwoman Member Posts: 2,704
    edited August 2017

    Eibra,

    I would recommend that you talk to your MO about stopping the Tamoxifen and what your personal risk would be without it. The risk reduction provided by an intervention should certainly outweigh the risks posed by the intervention itself; so if you haven't had that discussion, maybe it's time. Sorry there has been confusion about your pathology, getting the Cleveland Clinic to provide expert opinion will hopefully give you some better answers. Good luck!

  • Dani_fd
    Dani_fd Member Posts: 74
    edited August 2017

    Much love and luck to Eibra, Canadamom and everyone here!

    I just finished my first day of chemo. 7 hours. I had a reaction to the herceptin within the first 30 min. I was relaxing, almost dozing off, and the pain started, like flu body aches all over, came on fast, back ache, legs, arms then neck, I was shivering/shaking/trembling involuntarily. They stopped for 30 min, gave me Demerol to stop the shaking, I ended up getting about 4 blankets piled on, more benedryl and just waited it out. I could breath and I told my nurse about it right away, they were very attentive, stayed with me the entire time.

    I got my port yesterday at 3:00 pm. I wish I could have had a week to heal before starting chemo, my sternum hurts terribly, all underneath my breasts, very tender, like I was crushed or sat on. The port site looks good but hurts down the vein and it hurts to take a deep breath in, 10 hrs now gone by since I got home.

    Treatment went as such: Port plugged into, saline solution first, then Tylenol by mouth, benedryl w saline, steroid (I already forgot which one), then herceptin, pause, Demerol, saline, benedryl, finish herceptin, next up perjita (went fine, no issues), then finished with taxotere, saline to flush line and done.

    I don't have to go in again until 8/25/17.

    I just wanted to share my first time chemo experience, I wish every love and a journey filled with hope!

    -Danae (Dani, Danny...

  • MakeupLover
    MakeupLover Member Posts: 64
    edited August 2017

    Hi all!

    I didnt know this post existed, would have posted sooner lol. I just saw it on Active Posts.

    I got diagnosed on 7/17 and have yet to start treatment. Waiting on PET scan results and genetic testing results. Then hopefully a treatment plan and surgery options will be discussed with my doctor. I also want to get a second and possibly third opinion prior to starting. I just want to be sure I'm going down the right path when it comes to this.

    I am 33 yrs old, married, with a 7yr old boy. And I work full time.

    I'm sorry we are all going through this so young but glad we can come together on here and fight BC together! *hugs*

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