Diagnosed 1 week ago with IDC

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Mykidsmom65
Mykidsmom65 Member Posts: 18
edited July 2017 in Just Diagnosed

I was diagnosed one week ago with focal IDC.  Aside from my head spinning in a million different directions, I'm a nurse so as the surgeon, nurses, etc are speaking to me, they leave so much out.  They say she a nurse she understands what is next or what is going on.  Hello!!  Right now I'm a patient not a nurse.  And..I'm not an oncology nurse so no....I don't know what's next or what certain things mean.  And even if I did, explain it to me like I'm a two year old.  I can't even process all this right now.  Rant over.  lol.   What I do know I that it is estrogen and progesterone receptor +, HER2 -, Ki-67 strong (34.4%), tumor is grade 2. I go for an MRI on June 30 as they want to re-examine the mass in the left breast, look again at the right breast to make sure they have not missed anything, and attempt to get a look at some lymph nodes. They don't have a good measurement on the mass because there was a big cyst on top of it when they initially measured.  The surgeon is guessing its between 2-3 cm. All I can think of is how long am I going to be out of work, how to pay my bills, and what if I die?  I have an eight year old I adopted as a single parent when she was a baby.  Dr. Google and I have become joined at the hip and sleep is hardly happening because I really need to stay away from anymore breast cancer web sites!!  I hate this diagnosis but am really looking forward to the support of the gals on this site as well as encouraging others too.  I look forward to "meeting" all of  you and learning and soaking up your wisdom.

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  • Moderators
    Moderators Member Posts: 25,912
    edited June 2017

    MyKidsMom65, welcome to Breastcancer.org,

    We're so sorry to hear of your diagnosis, but we're really glad you found our Community. We know right now it's very overwhelming, but you've come to the best place for support, information, and advice. There are many, many other members here who understand exactly what you're going through!

    First, stay off Dr. Google -- you'll need to rely on accurate medical information sites, such as right here at Breastcancer.org. All of the information on our main site is written in easy-to-understand language and there is a LOT of it. Don't read too much at a time, take it in small bites, but the more you learn about your diagnosis and treatment, the less anxious you will feel. For starters, the section on Your Diagnosis helps you walk through each piece of your pathology report and explains what it means, along with some questions to ask your doctors.

    We're all here for you, so please come back often, post a lot and ask questions. You're sure to get great support!

    --The Mods

  • MTwoman
    MTwoman Member Posts: 2,704
    edited June 2017

    Mykidsmom, So sorry you find yourself here, a member of our club. And am also sorry that your providers have forgotten that right now, you are not a nurse, but an overwhelmed patient. I am sure others will be along shortly to give you more detailed information and share their experiences, but for now, ER/PR receptor + status means that they can provide you with meds to suppress hormones after your treatments, to reduce the risk of recurrence (that's a good thing). HER2 affects cell signaling networks governing proliferation, and a - means that you aren't overexpressing HER2 and you won't be a candidate for a targeted therapy (like Herceptin or Perjeta). Regarding Ki-67, breastcancer.org says this " Ki-67: Ki-67 is a protein in cells that increases as they prepare to divide into new cells. A staining process can measure the percentage of tumor cells that are positive for Ki-67. The more positive cells there are, the more quickly they are dividing and forming new cells. In breast cancer, a result of less than 10% is considered low, 10-20% borderline, and high if more than 20%." find full text here: http://www.breastcancer.org/symptoms/diagnosis/rate_grade

    Please do "break up" with Dr. Google, he's no good! And you need your sleep. If you don't get sleep, you'll be less able to take in and process the information that will come fast and furiously in the next few days/weeks. It also can affect decision making. If you need something temporarily to help you sleep, please ask. There is a thread on anxiety that gives some tips on how to engage in distraction and relaxation while you wait for all of the images/labs. I'll post it here: https://community.breastcancer.org/forum/83/topics/855477?page=2#idx_50

    Things really do start to feel better, or you feel more empowered, once you have a treatment plan in place. You'll find many different forums on surgery, hormonals, chemo etc that can help you put together your list of questions. Carrying a recording device or calm (and fast writing) friend to appointments can be helpful, so you can review information later.

    Sending you positive thoughts and warm ((hugs))

  • rdeesides
    rdeesides Member Posts: 459
    edited June 2017

    Mykidsmom65,

    Hi, I haven't been diagnosed yet, but am waiting on my core biopsy results, following a BIRAD 5 mammogram. I already had slight insomnia before I felt the lump in my breast, and now that I am waiting for a most likely cancer diagnosis I really was not able to sleep. I asked my doctor for Xanax and let me tell you, it's a miracle. It helps me sleep and I don't feel the least bit groggy or anything. I should have asked for it ages ago. If you are really stressed out, I recommend you ask your doctor. Not sleeping won't help you or your child. (I have a 9 year old).

    Hugs and best wishes.

  • Rrobin0200
    Rrobin0200 Member Posts: 433
    edited August 2017

    I wholeheartedly agree with MTwoman. You MUST break up with Dr. Google. He is not good for your health and well being. Take our advice, please. I wish I would have. I googled and googled until I literally almost put myself in the hospital. I was worried so much. Every ache and pain, I attributed to my diagnosis. Stick to the support here on this website. Everyone that I've met is extremely knowledgeable, professional, and such a great source of support.

    Don't think about tomorrow. Take it one day at a time. That's the best advice I can give you. It will help both you and your child. Exercise. Read a book. Go on a quick get away. Listen to your doctors.

    Now, if I can heed my own advice..

  • mustlovepoodles
    mustlovepoodles Member Posts: 2,825
    edited June 2017

    Mykidsmom, I totally get it I've been a nurse for 40 years; oncology is not my field. You could have put all my knowledge about breast cancer into a teaspoon, prior to my diagnosis. Some of my doctors and nurses expected me to fully understand and make decisions because, you know, I'm a nurse.

    My advice is to try to take someone with you to appts and ask questions. I found that my doctors were willing to slow down and explain things when my husband was with me. It shouldn't be that way but it was. Get off of Google STAT! Google is great for finding recipes or locating a painter in your area. It is terrible at finding legitimate research about breast cancer. Breastcancer.org is your safest option.


  • Mykidsmom65
    Mykidsmom65 Member Posts: 18
    edited June 2017

    Thank you so much for all the info!  And, yes, Dr. Google and I need to end our relationship.  I find myself waking in the middle of the night thinking about it.  I am definitely a planner and right now this all feels very out of control.

  • Mykidsmom65
    Mykidsmom65 Member Posts: 18
    edited June 2017

    This site has been a great resource.  Its making it easier to end my relationship with Dr. Google.


  • Mykidsmom65
    Mykidsmom65 Member Posts: 18
    edited June 2017

    That's where I am.  Every ache or pain I just know its in my bones or brain.  lol.  I'm turning a bit loony.

  • Mykidsmom65
    Mykidsmom65 Member Posts: 18
    edited June 2017

    Please let us know  how your biopsy turns out.  Will be sending out prayers for you.

  • Mykidsmom65
    Mykidsmom65 Member Posts: 18
    edited June 2017

    Thank you for such a great resource in this site.

  • Mykidsmom65
    Mykidsmom65 Member Posts: 18
    edited July 2017

    So the core biopsy of my largest lymph node was positive. I'm confused though. Breast biopsy is invasive ductal carcinoma and lymph biopsy says metastatic adenocarcinoma and refers to primary tumor in breast. Is that the same as saying hey your node is positive or is this some other kind of cancer? of course its Friday so no one to ask until Tuesday when doc is back in the office.

  • ElaineTherese
    ElaineTherese Member Posts: 3,328
    edited July 2017

    Hi!

    It's just a way of saying that your breast cancer has moved to that lymph node. But, its the same cancer.

  • Mykidsmom65
    Mykidsmom65 Member Posts: 18
    edited July 2017

    thank you so much. I didn't think they could know just by that needle biopsy if I was stage 4. I feel like a crazy person lol.

  • ElaineTherese
    ElaineTherese Member Posts: 3,328
    edited July 2017

    The term "metastatic" can be scary. But, yes, the only way to tell whether you have distant mets is to do additional scans (MRI, PET scan, bone scan, CT scan, etc.).

  • kira1234
    kira1234 Member Posts: 3,091
    edited July 2017

    What it's saying is your tumor has moved into at least one lymph node. Your doctor will vary likely request additional tests before making a decision on treatment choice.

  • kira1234
    kira1234 Member Posts: 3,091
    edited July 2017

    What it's saying is your tumor has moved into at least one lymph node. Your doctor will vary likely request additional tests at this point.

  • msphil
    msphil Member Posts: 1,536
    edited July 2017

    hello sweetie I'm glad u made it to our site here its overwhelming but when u get treatment plan things will slow down to Inspire u to hold on I was in process of making wedding plans for our 2nd marriages when I found the lump had my cry then decided to fight started with my faith and plenty of Hope,went to sleep with anxiety med n saying cancer u must leave my body. I am now Praise God a 23yr Survivor. msphil idc stage2 idc Lmast 3months chemo before n after got married then 7wks rad 5 days wk also tamoxifen 5yrs. God Bless Us All

  • Mykidsmom65
    Mykidsmom65 Member Posts: 18
    edited July 2017

    I see you are from philadelphia. I was born there. thank you so much for the encouragement. I am in a relationship now for 2 1/2 year. Feeling like now what. Feel like now how is it fair to him. I appreciate your encouragement.

  • Mykidsmom65
    Mykidsmom65 Member Posts: 18
    edited July 2017

    So I received by "clinical" staging of 2 B. The doctor feels hopeful because although my lymph node or nodes are positive (don't know how many at this time") t hey aren't matted or fixed. He said scans are not the standard with stage 1 or 2 breast cancer. What? Rediculous. Unless he has x-ray vision, he has no way of knowing if there is mets! Right?? Because I have had some pain in my left hip he is willing to do it but not until i pushed as this could change the course of my treatment. Feel a little confused about this standard for stage 1 and 2 breast cancer. How do they really know that is the stage unless they scan you. Needless to say, I start chemo tuesday and a bone scan, ct of chest, abd, and pelvis on the July 31. Any thoughts or medical insight? This is all so new.


  • ElaineTherese
    ElaineTherese Member Posts: 3,328
    edited July 2017

    What your doctor said is generally accurate; breast cancer patients who are Stages 1 and 2 generally don't get CT or PET scans or even MRIs. They are expensive scans, and are often deemed unnecessary by health insurance. Even though I was diagnosed at Stage 3 with an aggressive kind of cancer (triple positive, Grade 3), my insurance company balked at paying for my MRI (though it was later OK with my PET scan).

    In many instances, it is the case that patients at Stages 1 and 2 are highly unlikely to have mets. For example, if you have a small tumor, no nodal involvement, and your cancer is growing slowly (Grade 1), the patient is very unlikely to have mets.

    In your case, your ki-67 is high and you have nodal involvement. Scans seem more appropriate for you than for many at your clinical stage.

  • lrwells50
    lrwells50 Member Posts: 254
    edited July 2017

    I think my MO wanted a CT because I have frequent indigestion, and he was afraid of mets. My abdomen was negative for mets, but did show that I have a small hiatal hernia, which explains the indigestion. Although I had no node involvement, my postsurgery labs showed I had ILC instead of IDC, and an intermediate OncotypeDx score, so I just today finished my last chemo. I go back in three weeks for the Arimidex prescription.

    Good luck with your future treatment.

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