MRI question

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GlossGirl
GlossGirl Member Posts: 12

Had a lumpectomy last week, they found DCIS and will be performing an MRI tomorrow. I'm super nervous about the MRI of all things! I'm claustrophobic and was wondering how far in the MRI machine I will be? Can anyone describe it for me?

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  • kira1234
    kira1234 Member Posts: 3,091
    edited June 2017

    Are you having an open or closed mri? You will be on your stomach and completely inside. I've since mine learned you can request sedation.

  • MTwoman
    MTwoman Member Posts: 2,704
    edited June 2017

    piece of cake. first of all, they'll give you something to "relax", even if you tell them you don't need it (I did, and they gave it to me anyway). in the tube-shaped machine, you lay on your stomach with your breast through a sort of cut out in the bed part. Then you'll go in (yes, all the way) FEET FIRST, so that your head is right by the opening. I'm sure they are used to people being nervous and some claustrophobic, so just let them know. They may be able to give you something extra, but make sure to have someone there to drive you home. It did make all sorts of banging noises, but other than that, honestly I could have fallen asleep. Try breathing or imagining yourself in a safe place, in great detail, in your mind. You can do this!

  • GlossGirl
    GlossGirl Member Posts: 12
    edited June 2017

    Thank you for the detailed description - that's exactly what I need to know so that I can prepare myself. Going to do lots of "yoga" breathing and let them know my concerns.


  • GlossGirl
    GlossGirl Member Posts: 12
    edited June 2017

    Thank you ... I will make sure I let them know I'm claustrophobic.

  • kira1234
    kira1234 Member Posts: 3,091
    edited June 2017

    mtwoman that wasn't my experience I have never been offered sedation. I've been through 3 mri experiences so apparently different centers work differently

  • kira1234
    kira1234 Member Posts: 3,091
    edited June 2017

    Glossgirl definitely let them know I learned the hard way

  • LisaAlissa
    LisaAlissa Member Posts: 1,092
    edited June 2017

    Hi Gloss Girl!

    It entirely depends on the equipment at the facility you're going to. Call and inquire...there are so-called "open MRI" machines, which are supposed to be easier if you're claustrophobic.

    My experience was that I was face down on a sliding bed, with my arms over my head (IV in one arm) and my breasts hanging down into a "breast coil." I was given headphones (for both music and instructions) and warm blankets. I closed my eyes, and they slid me into the machine and I think my arms came out on the other side. Believe my knees never went into the machine...

    But I had closed my eyes and let myself think of the the loud "clunks" of the machine moving back and forth as the heartbeat of God. Holding me to him/herself. I felt very cared for, and cuddled. And I focused on my breathing during the exam. I was so focused, that I was startled every time the techs spoke to me (and of course when the exam finished). During the exam, I just brought my thoughts back to my breathing and coordinating it with the banging of the machine and/or the music.

    You can control where your mind goes during the exam.

    But do call the facility you'll be using, tell them you're worried about claustrophobia and ask about what you can expect. (For instance, some facilities will allow you to pick the music, or even supply your own.)

    Hope your exam is completely uneventful.

    Hang in there!

    LisaAlissa

  • Italychick
    Italychick Member Posts: 2,343
    edited June 2017

    I just never opened my eyes so I wouldn't know what was going on. In my head, I planned a vacation and before I knew it the MRI was done. I figured what I didn't see couldn't panic me.

    Best of luck.


  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited June 2017

    I've had many MRIs, always on my back, until this one for my breasts. Never offered a sedative. For this one I was supposed to be on my stomach. My funky spine wouldn't allow it.

    So I was sent for an open MRI. I was seated for this. It was close quarters but I could see out. Apparently the tech had never done a breast MRI. It was uncomfortable but not as loud.

    The results were horrible. My bs went off like a rocket when he saw the films. Totally useless, waste of time and money for all.

    If you possibly can, do the regular way. I have never seen a doc so pi$$ed.

  • kira1234
    kira1234 Member Posts: 3,091
    edited June 2017

    I've never heard of sitting up for a breast mri. Mine was open and I was laying down with the cups holding my breasts

  • Kicks
    Kicks Member Posts: 4,131
    edited June 2017

    "first of all they will give you something to 'relax' even if you tell them you don't need it.". i have NEVER been asked if I wanted to be drugged and there is no way that I would taken drugs (or allowed them to be given) just to have an MRI/CT/Bone Scans after stating - NO - to 'relaxing' drugs! But that's me and I stand by it.

    I've had quite a few Scan (not all for BC). I've always been asked if I was closterphobic which I'm not so I don't know what would have been done if I said I was but apparently there were some options for those who say they are.

    None of my MRIs have I been on my stomach with my breast(s) "through a sort of cut out in the bed part".

    I have never been 'offered' drugs before any Scans. If I had and refused (which I would have) - I would not have taken (allowed) drugs for no reason.

    There is no way that anyone can tell someone else what the other individual will experience or how any procedure will be for them individually

    There can, on some cases', be similar experiences BUT we are each UNIQUE. Unfortunately 'some' will try to say what another WILL experience based on their own personal experience.

  • GlossGirl
    GlossGirl Member Posts: 12
    edited June 2017

    Thank you all for sharing your experiences. It looks like I'll be reporting back on what I've experienced as well since it seems there is no one way about it ... other than the fact that it's in an MRI machine! lol!

  • ShetlandPony
    ShetlandPony Member Posts: 4,924
    edited June 2017

    My advice is to make sure you are comfortable before the techs go to the "control booth" to start the scan, since you will need to hold your position for a while. Both times I had a breast MRI, at two different facilities, they gave me a gadget to hold with a button to push if I really felt I needed to summon them. I agree that visualization and other relaxation techniques are helpful. It's an interesting experience. Lots of sounds. Hydrate well today to help with the IV placement for the contrast material if your doc ordered it. Best wishes for an easy scan, GlossGirl!

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited June 2017

    My MRIs were on my stomach - with & without contrast. I did NOT go in feet first any of the experiences. I asked my MO ahead of time for some Xanax. It made it much easier for me. I also used the Xanax when I had a PET/CT - where you have to lie absolutely still without blinking an eyelash for 30 minutes while the contrast goes through your veins.

    But I agree with Kicks, a tech in an imaging center does not have the creds to give you something to relax you. No one ever offered anything to me. It may be a licensed doc who read the images, but they are not the ones who do the tests and techs can not prescribe meds.

  • Kicks
    Kicks Member Posts: 4,131
    edited June 2017

    Ths OP stated going for an MRI. She did not state a breast MRI just an MRI. Did not mention if the MRI would be with Contrast.


  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited June 2017

    I am always offered a Valium. The first time I declined it and it turns out I was quite claustrophobic. I took the Valium for the next few times. Now I've got it down, and I don't need it. I don't know what the machine looks like because I purposely don't look. They roll you in feet first and your head is in the opening. I mentally go to my happy place and do a lot of visualization exercises. I also "sing" songs in my head, verse by verse. You got this!

  • Tappermom383
    Tappermom383 Member Posts: 643
    edited June 2017

    I lay on my stomach with my breasts through openings for my MRI. I wasn't offered anything to relax me. The one thing I will ask if and when I have another MRI is for the technician to tell me how far along in the process I am (halfway done - just 10 more minutes - something like that). The noise was so loud they couldn't hear me calling out to them. There was finally a break and I asked "how much longer?" When I heard three minutes, I was so relieved! Since I've had surgery on both shoulders, it was painful holding my arms out straight for such a long time.

    Good luck to you, GlossGirl. It will be over before you know it!

    MJ

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited June 2017

    Kicks - absolutely right. Sorry for my confusion. Can I blame it on the Tropical Storm headed towards me?

  • Kicks
    Kicks Member Posts: 4,131
    edited June 2017

    Got to go and check NOAA. - I didn't realize there was a TS yet till you mentioned it. (I'm a bit of a 'weather nut' thanks to Daddy who was a USAF meteorologist. Also being a SW FL native, I try to keep up with what's going on. Here we get WS (winter storms) which I think are worse.

  • Kicks
    Kicks Member Posts: 4,131
    edited June 2017

    It's a Hurricane now ; at least there are Huricane warnings for several TX counties according to NOAA.

  • MTwoman
    MTwoman Member Posts: 2,704
    edited June 2017

    geez guys, a little harsh today? I will be very careful of my pronouns from now on.

    Glossgirl, here is a link that provides a video for claustrophobic folks. https://subrad.com/services/open-mri I do not know if there are additional options at your center, or if those options compromise the quality of your results (per spookiesmom's experience), but letting your referring doc know that you need something to help relax you and talking to the center up front about what's available there would be good steps so that you know about your particular situation and what to expect.

    Good luck!

  • kira1234
    kira1234 Member Posts: 3,091
    edited June 2017

    I was quite surprised my husband was allowed to be in the room when I had my mri. I knew he was there which helped to calm me down. One thing I'll add don't try to get up to fast. I was in such a hurry to get out of that room and got up so fast I passed out. :)

  • gb2115
    gb2115 Member Posts: 1,894
    edited June 2017

    So it looks like you had (or are having) your MRI today, right? Let us know how it went. I had 2 MRIs a week apart...one was regular and one was with a biopsy. I found the MRI itself to be pretty easy, but I did take ativan that was offered by my breast surgeon. Not sure I'd have needed it though...to be honest. I get claustrophobic enough (the bone scan was super fun with the machine right in your face), but I think the fact that the breast MRI had me facing down made it easier. I think the worst part was getting the IV, and even that wasn't too bad because I had a good person putting it in both times. I wouldn't hesitate though to get another MRI if I needed it, insurance coverage aside (that's a different story right there).

    We go through so much, don't you think?!

  • GlossGirl
    GlossGirl Member Posts: 12
    edited June 2017

    I'm back! I did it! I didn't even cry! I told everyone I came into contact with that I was super nervous and claustrophobic and they gave me the BEST MRI woman. I didn't take anything beforehand - no time to get it since the MRI was scheduled yesterday. She told me everything step by step, nice and slow and even held my hand as I went into the machine. It was face down which was better for my claustrophobia and I just kept telling myself that if I can lay on a beach or a massage table, this was the "same" thing. Thank you all for helping me ... this is all happening so fast. I had a lumpectomy last week and was diagnosed a couple of days ago, so everything is really scary right now until I meet again with my doctor on Monday to explain a course of action.

  • GlossGirl
    GlossGirl Member Posts: 12
    edited June 2017

    I'm back! I did it! I didn't even cry! I told everyone I came into contact with that I was super nervous and claustrophobic and they gave me the BEST MRI woman. I didn't take anything beforehand - no time to get it since the MRI was scheduled yesterday. She told me everything step by step, nice and slow and even held my hand as I went into the machine. It was face down which was better for my claustrophobia and I just kept telling myself that if I can lay on a beach or a massage table, this was the "same" thing. Thank you all for helping me ... this is all happening so fast. I had a lumpectomy last week and was diagnosed a couple of days ago, so everything is really scary right now until I meet again with my doctor on Monday to explain a course of action.

  • kira1234
    kira1234 Member Posts: 3,091
    edited June 2017
  • kira1234
    kira1234 Member Posts: 3,091
    edited June 2017

    Fantastic on Monday you'll know more. Hugs!

  • ShetlandPony
    ShetlandPony Member Posts: 4,924
    edited June 2017

    Well-done, GlossGirl! And well-done kind MRI tech. That makes such a difference.

  • LisaAlissa
    LisaAlissa Member Posts: 1,092
    edited June 2017

    Well done GlossGirl!

    So happy to hear your good news! Here's hoping for good results from the MRI too!

    LisaAlissa


  • lrwells50
    lrwells50 Member Posts: 254
    edited June 2017

    Mine was like kira1234, face down, arms first. One of the many reasons I decided on BMX was so I didn't have to get any more breast MRIs. They have a high number of false positives. After the MRI with contrast, I had to go back and have an MRI biopsy, which showed the new areas that lit up the first time weren't problems. I wasn't offered anything, and I don't remember them asking me if I was claustrophobic. I also thought the worse part was having my arms and shoulders in that position for so long. I agree with being careful when you try to stand up. The nurse warned me I might be light-headed, and stayed by me until she saw I was okay.

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