Diagnosed and scared

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Elfmcg
Elfmcg Member Posts: 91
edited July 2017 in Just Diagnosed

I've just had results of my core biopsy.

It's stage 1 grade 3, invasive ductal carcinoma, hormone receptor negative and her2 positive.

Breast surgeon said he is happy that it's confined to one area of breast and us on nodes look clear, so I won't need any more tests but am booked straight in for sentinel node biopsy and segmental excision.

My question is, if on examination, it has spread to some nodes after biopsy, does this mean dire things?

Thanks

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Comments

  • Tpralph
    Tpralph Member Posts: 487
    edited June 2017

    are u asking if the biopsy can cause the spread to the nodes?

  • Sjacobs146
    Sjacobs146 Member Posts: 770
    edited June 2017

    Having positive nodes does not necessarily mean "dire things", you will know a lot more after the lumpectomy and the sentinel node biopsy. I had a positive node, and feeling great after completing treatment over 2 years ago. This is the most difficult part of the process, waiting for information and a treatment plan. It's totally normal to be anxious, Trey to keep busy and distract yourself with positive activites

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2017

    As you can see, I had several + nodes and am still here. Nodes are, from what I've read on these boards, can actuallybe the first line of defense against further spread, so it doesn't necessarily mean that + nodes mean death. Even distant metastases, moving you from Stage I to a higher stage, can be stopped in their tracks with proper treatment.

    Take heart. Your surgeon told you that your nodes look clear, so go with that for now. You're going to be fine-promise. Hugs~

    Claire in AZ

  • Rufhewn
    Rufhewn Member Posts: 45
    edited June 2017

    It all sounds good (if you have to get BC cancer). To answer your question, if by some unexpected chance the surgery shows it in a node or two, it may move you to stage 2, still early stage, treatable and very possibility curable. Her2 has very effective drugs and my oncologist actually said in this day and age, he prefers her2 positive due to the drugs available to treat it. Won't be an easy path but you will get through it. If your oncologist doesn't prescribe herception and ideally perjeta, get a second opinion. Keep us posted. Pam

  • Elfmcg
    Elfmcg Member Posts: 91
    edited June 2017

    thanks ladies, all sounds good, and Ill take whatever I have to, just the unknowns are scary as hell.


    Can anyone tell me as I'm hormone receptor negative and her2+, is it safe for me to continue the combined pill?

    Thanks in advance

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2017

    Elfmcg,

    Since you're asking about an rx'd med, you should pose that question to your own doctor: call them this Monday and ask, and don't let their office staff ignore your request. Giving medical advice to stop a prescribed med would probably be irresponsible in a discussion thread.

    Good luck! You'll be okay.

    Claire in AZ

  • Elfmcg
    Elfmcg Member Posts: 91
    edited June 2017

    yes you're right, I've three left in the pack I'm on, and I'll ask my doctor on Monday, thanks for all the info

  • msphil
    msphil Member Posts: 1,536
    edited June 2017

    hello sweetie its ok to be nervous we have been there once plan in place anxiety will slow down I was diagnosed while making wedding plans I found lump idc stage2 0\3nodes Lmast 3 no chemo before n after surgery got married. Then rads7wks 5days a wk 5 yrs on tamoxifen. I am now a 23yr Survivor Praise God. God Bless Us All hang in there keep HOPE. msphil

  • Tappermom383
    Tappermom383 Member Posts: 643
    edited June 2017

    Congratulations, msphil, on 23 years! And thank you for still chiming in here. It's so helpful to us newbies to hear from the veterans. What an ordeal you had at such a happy time of your life.

    You're right about getting the plan in place - that makes all the difference. I felt as though I was moving forward rather than being stuck in quicksand.

    Best of luck to you, elfmcg. I'm glad you found this forum. The ladies here are so helpful.

    MJ

  • dtad
    dtad Member Posts: 2,323
    edited June 2017

    Rufhewn....sorry to disagree but I think we have to be careful about using the word cure when referring to BC. The term they now use is NED, no evidence of disease. The reason being is that unfortunately it can come back at anytime. Good example is Olivis Newton John. She had a recurrence after 25 years. That being said, many of us are NED for many years if not the rest of or lives! Good luck to all.

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited June 2017

    I would not continue birth control pills unless you have the considered approval of your oncologist.

  • pupmom
    pupmom Member Posts: 5,068
    edited June 2017

    All docs told me, based on scans, that my nodes were clear before surgery. Yet, after surgery it was found that I had 2 positive micromet nodes. 5 years later I'm still kicking and living large! I think you will be just fine!

  • Beatmon
    Beatmon Member Posts: 1,562
    edited June 2017

    My oncologist still doesn't allow me any estrogen and I'm 65.....which is orobably overkill, but why take the chance in my case....I certainly don't need BC pills. But some estrogen in my vag area would be great. I would wait until I talk to oncologist rather than surgeon. Remember surgeons are not oncologist...and oncologists don't do surgery.

    You will be on a treatment plan to treat the her2

  • MTwoman
    MTwoman Member Posts: 2,704
    edited June 2017

    I had triple negative DCIS and I haven't ever found 1 doc that would consider giving me anything resembling estrogen.

  • Kicks
    Kicks Member Posts: 4,131
    edited June 2017

    As dtad said - according to all I have seen (all my Drs included), there is no 'cure' for BC at this time. The best we get is NED (No Evidence of Disease) now.

    If also needs to be remembered that not all Breast Cancer is the same. There is DCIS (Ductal Carcinoma In Situ), IDC (Invasive/Infiltrating Ductal Carcinoma), ILC (Invasive/Infiltrating Lobular Carcinoma) and IBC (Inflammatory Breast Cancer). All are VERY different. There is also the Stage, Grade, ER/PR and HER2 status which comes into play with TX and prognosis. Thus - with BC there is no "One Size Fits All'.

    Edited for spelling


  • Elfmcg
    Elfmcg Member Posts: 91
    edited June 2017

    thanks ladies, I'll definitely stop the pill

  • NotVeryBrave
    NotVeryBrave Member Posts: 1,287
    edited June 2017

    With HER2+ there's a good chance that chemo with Herceptin and possibly Perjeta will be recommended before surgery. Hopefully you have plans to meet with a medical oncologist and radiation oncologist to get their opinions on risk and benefit for various treatments.

    Good luck!


  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited June 2017

    Yes, it would be good if the recommend neo-adjuvant. Please do go into My Profile and fill our your diagnosis & treatment to date. Good luck

  • Rufhewn
    Rufhewn Member Posts: 45
    edited June 2017

    Hi dtad, thanks for the clarification. I have seen the word cured being used by respected medical professionals and it's my understanding many women are cured but unfortunately no one individual will ever know for sure whether or not she iscured. So I don't disagree that NED may be a better way to describe it. Pam

  • Artista928
    Artista928 Member Posts: 2,753
    edited June 2017

    Good post dtad. Makes my skin crawl when MOs who should know better than anyone tell their pts that you could even be cured. No. There is no cure. We can only hope we are NED and when our time comes ideally we go peacefully in our sleep. If my MO ever mentioned the word "cure" to me even if I was DCIS I'd change MOs.

  • Kicks
    Kicks Member Posts: 4,131
    edited June 2017

    None of my Drs ever used the word 'cured' or 'cure' other than to say this is no such thing as a 'cure' for BC at this time. My Surgeon did say that he had gotten all he could find out and had good margins thanks to the neoadjuvant A/C. I guess some might have taken that to mean "I was cured" but that would not be true and not at all what the Surgeon said in actuality.

    I'm not concerned that I am not 'cured' - I'm happy to be NED (No Evidence of Disease) for 7+ yrs. I'm healthy, happy and living/loving life to the utmost I can every moment I'm granted. I refuse to choose to dwell in Negativityland.

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited June 2017

    Since that's the only option at this point in BC research, I too am happy with NED. I would also run from a doc who starts talking about 'cured'. It may be just semantics, but I think it's REALLY important.

  • SummerAngel
    SummerAngel Member Posts: 1,006
    edited June 2017

    My MO told me he was confident I could be cured. He's a great doctor and I have no problem with him using the word, knowing that there are no guarantees. I really don't understand the animosity towards the word, personally.

  • kira1234
    kira1234 Member Posts: 3,091
    edited June 2017

    Summer angel how long after diagnosis are we cured then?

  • MTwoman
    MTwoman Member Posts: 2,704
    edited June 2017

    kira, that's the point. We're never "cured". They remove all evidence of disease, and then use radiation (to decrease risk of local recurrence) and chemo (to decrease risk of cells traveling to other sites to set up shop) and anti-hormone meds to shut off the food chain. They try to get rid of all evidence of disease, but it can return. We do whatever we can to prevent it, but it's possible. Summer angel was just saying that it doesn't upset her for someone to use that word, as it does other posters above.

  • pupmom
    pupmom Member Posts: 5,068
    edited June 2017

    Summer Angel, I think we all just want realistic expectations. My RO said that to me once and I was over the moon. Then I began reading about the reality of the situation. I'm almost 6 years out, so I kind of feel "cured," but I know it can always rear its ugly head again. That's probably the reason I've agreed to 10 years on tamoxifen.

  • kira1234
    kira1234 Member Posts: 3,091
    edited June 2017

    That's exactly my point popmom and mtwoman I was 7 years out with an excellent prognosis yet it came back. One has to always be aware.

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited June 2017

    So can we agree on NED? And try to eridicate the use of the word "cured"? At least until cancer research comes up with something much useful.

  • Kicks
    Kicks Member Posts: 4,131
    edited June 2017

    MTwoman - ''They remove all evidence of disease. and then use radiation and Chemo.". (Shortened quote)

    You need to educate yourself on more than just your personal experiences with your DCIS.

    For many of us, it was not as simple as ' getting it out and then radiation and then Chemo". I can only speak for myself - it was neoadjuvant A/C, UMX, adjuvant Taxol then rads and estrogen blockers (not anti hormone meds.)

    NO ONE k ones what tomorrow will bring!


  • dtad
    dtad Member Posts: 2,323
    edited June 2017

    Summer Angel....absolutely no animosity against the word cure. I just think its misleading, especially to the general public. There is NO cure for BC and we need more research to find one! You have the right to think whatever you want about your own prognosis. Good luck to all navigating this disease.

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