Help! Was your breast covered for rads? Need to convince RO!
Comments
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Pupmom - cancer sucks! So sorry you had to deal with all that and nice to know you now do not think so much about it. It gives me hope. My mom explained that it was like an apron that wen over your head and tied at the sides so you could access and soap. It seems not even you should look at your body. She also told me that the older students would rebel by taking the apron off once inside the shower, wash up and put it on again before exiting the shower so the nuns wouldn't know LOL
Thank you all for the support, it was really helpful, Now, for an update.
So I had my treatment again today without covering, but found out that they have robes that they just had not told me about because I didn't need it, so I felt much better about walking in the hall without a bra and without my back showing., So once again was mortified in spite of the techs trying to cheer me up and t least covering my untreated side all the time, At the end one of them said " You did great! Let's hope all the sessions are like this one quick and nice". I couldn't contain myself and answered "Quick it might have been, nice it was not." Anyway after that I met with the RO who said immediately "we have to solve the modesty issue, I will figure something out, maybe a pillowcase" I said that is all I need, to be covered during treatment and not on display. She was very nice and accommodating, She said she only need the central marking to be visible at all times but that she will find a solution with the techs. With hat she left saying she was going over to speak with them.
So, what I learned is that we really have to speak up about our individual needs so they may be taken into account !!!
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Mariangel43 - my BP wasalso way high, a lot over my normal, because of the stress.
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lifeb4me, thank you! I don't think I went through more than other bc sisters, but the wonderful news is that time really does heal. I didn't quite believe it when people right here on BCO told me that 6 years ago! I was so full of fear and horror I thought it would never end. But it did!
I guess I will never understand having to take a shower with clothes on! Although I am very modest, I would be one of those who rebelled, lol.
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so proud of you for speaking up and glad the RO took your concerns seriously. You may have been the one to change the standard procedures for countless women coming after you!
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So glad you and your RO are working on a solution for you. Speaking up is important, especially when your needs differ from most (nothing wrong with that, you just had to make it known). I am almost 6 years out from a stage IV dx and though I will never be "cured" , life is pretty good!
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Pupmom - the only way I can see any logic with taking a shower with clothes on would be to wash the clothes that were being worn.
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Well-done, lifeb4me, advocating for yourself! So happy that the RO heard you and will help. Such a simple thing but so important. You may have improved things not only for yourself, but for other patients as well.
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life, glad you were able to find a solution that maintained modesty while permitting optimal treatment. Because I had 3D conformal-beam targeted rads, my markings (tape-covered) were located in a triangulated pattern in various locations across a very large breast (applied trigonometry?), there was no way any part of my breast could be covered during the 5 minutes I was on the table for each treatment, even though only the tumor bed was irradiated instead of the whole breast.
As for the showering fully-clothed, I’m with Kicks on that one. Sort of like when I get caught in a downpour without an umbrella or hood, I sometimes wish I had a little travel-sized bottle of shampoo in my purse. Two birds with one stone…
I still find it weird that at my gym, some women go into the women’s locker room bathroom stalls to change clothes. But that’s just me—my mom used to walk around half-naked when laying out her clothes before her shower on a hot day when it was just my sister & me around.
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My at home alone summer attire: underwear. Winter add a robe. My apt is surrounded by trees so no probs with lookiloos.
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Kicks, I agree. Don't want to make fun of life's mom though. The Catholic church has many wonderful things going for it, and no system is perfect.
Life I am so happy that your RO is listening to and addressing your concerns! That's the kind of doctor we all want!
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Kicks - LOL, yeah, conserving water too
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It's ok, pup mom. My mom would tell these things from school and laugh about them. This happened in the 1930's, a long time ago. She didn't agree with their educational methods, for which I am grateful because she raised usdoing the opposite. Also it was a different time.
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So, today I had my first covered up treatment and it went well. I did notice, however, that the techs were colder with me. I think they didn't like to have to change their ways. Not that I care if they were upset. I may be paranoid but when I arrived they said in a cold way that the doctor had said to cover me, after the setting up. I had told the doctor that being uncovered for the set up was ok, I understood the need, but what I didn't like was being on display for the treatment. I felt like they were punishing me for talking with the doctor since the last two days they left my untreated side covered and were mindful of my modesty. Today, not so much. Anyway, they can pout all they want, I'm glad I spoke up and am now covered
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ChiSandy, Although I would never shower with clothes on, I must confess I am one of those who goes onto the stalls to change. My mom was very modern thinking but nobody was allowed naked or half naked around the house. In your room or the bathroom only
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exbrmxgrl, I'm sorry you have to go through this, but glad you're doing ok
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Have to back up a bit - have actually taken bathes with some clothes on. Yrs ago I was a back country guide. Sometimes I would be the only woman so did take a 'bath' in the creek with a tank top and cut-off jeans on.
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Way back at the beginning of this whole rodeo, after being harangued into wearing a silly kleenex kind of paper gown for some procedure or other, I went on Amazon and bought myself my own "mammography modesty gown." It's like a printed cotton robe that wraps and ties around the front. I took it to every single doctor's appointment, every scan, every anything when I had to, yet again, pull out my breasts. I was NOT going through this experience wrapped like a piece of butcher's meat.
And I'm not what anyone would call a naturally modest person. Now that treatment is behind me, I'll hoik up my shirt for the neighborhood to see what breast cancer and reconstruction looks like.
Lifeb4me, good for you for speaking up. The techs will survive. Maybe it will make them think a bit about what the experience is like from the table, under the beam.
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Life, glad you and your mom have a sense of humor about it! My best friend in high school was raised Catholic, and oh the stories! She was the type who questioned doctrine, and that was just not tolerated. So her parents had to move her to the public schools during junior high. Maybe that was her plan all along, lol. That said, she was always loyal to the church. I went to many beautiful midnight masses with her. She was even sad when they switched from Latin to English masses, and always ate fish on Friday, after that rule changed. Go figure.
It's been a long time, but I remember making a tech upset about something I said, maybe complained about. I didn't think it was a big deal, and most people would have just moved on. But after that I got the cold shoulder from her and a couple of other techs. I remember thinking how petty it was to hold a grudge against a terrified newbie to cancer. The doctor closely supervises, but those people rule the roost in the treatment room.
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This is a difficult time. You have been through a lot already I only had a gown for the waist up. I wore pants or skirts to the treatments. The techs said that the reason that the treated breast was kept uncovered was to help reduce burning of the skin. The doctors there felt that doing the area covered increased the risk of burning. My techs were very professional and they did everything possible to make the uncomfortable situation more comfortable.
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I am in the medical field, and also managed in an imaging center where we had Radiation Therapy. If I had a patient who asked what you did and my techs gave the patient a cold attitude I would remind those techs that these patients are real people going thru a lot so please be patient with them.
Glad to hear your Dr was on your side.
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Right on, Goincrzy8. Lifeb4me, I'm glad you have the right attitude about the techs' coldness. You did nothing wrong, so don't take any cr*p from them or let them blame or bully you. How immature and snotty of them to resent having to make a small change for you. A mature, caring person would have an outlook more like this: We didn't know that we could do this to make you more comfortable, and we are glad that the RO was able to offer this solution. And of course you respond as I am sure you have, graciously and without gloating. Why do they have to make it a power struggle instead of a team problem-solving effort? Where is compassion for a person having cancer treatment? And you know what? They should have been the ones to go to the RO and say, "Our patient is very uncomfortable, can you help? " The techs may "rule the roost", as pupmom says, but they know that you are not afraid to tell the doc what happens, and they have to obey the doc.
"Today not so much" what? Do you mean not so cold, or not so mindful of modesty?
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I am so glad you spoke up. One of the most difficult things is not being heard or someone acting like you are over reacting. It makes a difficult situation so much harder. I made a comment once to a dermatologist that I had ugly black X's and marks on me (just to warn him before my full body check for moles) I joked and said they really should find a prettier way to mark us for radiation, like butterflies or flowers (joking) He said that is crazy who cares? who looks at it? I said me and he rolled his eyes. I wanted to punch him. Lets put some marks on your special body parts doc!
I just finished session 7 and I will really be glad when it is over. I know this sounds silly but I sing twinkle twinkle little star over and over again in my head until it is over. It helps calm me.
Best wishes to you and hopefully this will all be behind us soon.
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RadOnc at Evanston Hosp./Kellogg Cancer Ctr. had an illuminated translucent panel on the ceiling above the table, painted with a forest scene of autumn & spring leaves, as if you were lying on the forest floor gazing up through the treetops. I didn’t put together a playlist, nor did I ask for music to be piped in, as each session was so short (5 min.—it took longer to get into the gown and then dressed again). I was allowed to wear my jeans, but had to take my shoes off because that might have affected positioning.
Evanston Hosp.’s Center for Breast Health uses pink wraparound front-opening/side-tie mammography gowns; in cooler weather they also offer pink fleece bathrobes to go over them. The tech yesterday for my semiannual mammo had me slip out of one sleeve at a time for the views; she wasn't surprised when I told her that after slipping out of the R sleeve I didn’t need to put my arm back in before doing the L side. She said about half the women there don’t bother, just taking the gown off during mammography and not putting it back on till they were ready to go back to the waiting lounge.
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