Has anyone ever requested to have chemotherapy?

Options
pabbie
pabbie Member Posts: 370

After reading my pathology report and talking with my surgeon., (she feels I should have chemo) My oncologist is on vacation and before she left, she referred me to a radiation oncologist. I've had radiation before on that side in 2008 when I had a lumpectomy.

I've been having this strange feeling., women's intuition that I need chemo. I swore I would never have chemo again.

Comments

  • mistyeyes
    mistyeyes Member Posts: 584
    edited June 2017

    I always seem to have regrets when I don't listen to my intuition; but that doesn't mean it is always right. Maybe ask the surgeon why he/she thinks you need chemo and also talk to the oncologist and radiologist. My doctors are in contact with each other and the plan was decided with all of them working together. Every person is different so there is no one answer fits all, let us know what you decide.

  • pabbie
    pabbie Member Posts: 370
    edited June 2017

    Hi I emailed my surgeon and she passed the buck to my oncologist in regards to chemo. I don't think my doctors work together as well as yours.

    I hope you're doing well.

    Take care.

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited June 2017

    pabbie - there is usually a "tumor board" at most major hospitals. The doc presents your case and other MDs of every persuasion discuss it - BS. MO, RO, Gyn, etc. My MO is the one who took my case to the tumor boards of a hospital and a separate clinic.

  • carmstr835
    carmstr835 Member Posts: 388
    edited June 2017

    My oncologist did not feel chemo is enough of a benefit for me. He said the oncaDx score was 17 and 19. And called that a low score. He sent it in for a mamma print and that also came back low luminal A. My issue is I have tumors in both breasts, node positive, and extra nodal extension. The Her2 status went from positive +3 to after neoadjuvant hormone therapy to Her2+0 negative. I just need to know there is something systemic attacking those cells that escaped during the biopsies and surgeries.

    I requested chemo and my oncologist has agreed to keep me happy. I believe my intuition is right. My second opinion Dr. was recommending chemo as well. My surgeon says he supports my decision.

    Now I will request hemaceptin as well because my Her2 status was just reconfirmed as positive and second opinion dr again recommending treatment.

    There is nothing wrong with asking for a second opinion, or even a third. We get one chance to get this right.

    Good luck, pabbie I hope you get this resolved where you feel comfortable with your treatment

  • pabbie
    pabbie Member Posts: 370
    edited June 2017

    I believe it was presented before surgery to a tumor board., no mention of chemo at that time. All the cat scan picked up was the 1.1 centimeter tumor at the end of my right breast mastectomy scar.

    Things changed after surgery when my surgeon found 2 red dots next to the recurrent tumor on top of the skin., very small., pathology called it multiple Foci.

  • pabbie
    pabbie Member Posts: 370
    edited June 2017

    Thank you Carmstra835. This is my fourth cancer dx I'm dealing with.

    Colo-rectal in 1999, had 5-fu chemo, rads, and surgery.

    Breast in 2008, lumpectomy and rads. BC recurrence 2014. right breast mastectomy plus femara. May 2017 BC recurrence at the end of my right breast mastectomy scar, 1.1., surgical pathology also found small red dots called multiple foci., I think this is why my surgeon voiced chemo.

    I think I'm getting anxious because I don't see my 2 oncs for another week.

  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited June 2017

    pabbie, can you make your 2017 diagnosis public in your profile so we can see what you're currently dealing with and better advise you?

  • pabbie
    pabbie Member Posts: 370
    edited June 2017

    ChiSandy: updated.

  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited June 2017

    Well, with an ER+/PR- tumor, even if stage IA (node-negative), chemo would likely be recommended because PR- tumors tend to be more aggressive than ER+/PR+/HER2- ones. What grade did they say it was? Hope I’m wrong.

  • pabbie
    pabbie Member Posts: 370
    edited June 2017

    hi Sandy: I'm not totally sure about the PR- and don't know the stage.

    Both onc and surgeon said it was the same make-up as my other BC tumors which were er/pr+. I don't see my onc for another week and 3 days which is making me anxious.

    Thank you so much for the info., and will ask about the pr- and staging. :)


  • pabbie
    pabbie Member Posts: 370
    edited June 2017

    Good news from my oncologist: 95% of my current cancer has estrogen receptor. The aromasin would help in preventing another recurrence. If you don't tolerate the aromasin, you will need to consider chemotherapy. (I've been tolerating the Aromasin just fine.)

  • carmstr835
    carmstr835 Member Posts: 388
    edited June 2017

    I am concerned again. When 2nd opinions disagree with the original diagnosis and my MO takes this "new" pathology with a grain of salt, is it time to find a new oncologist? He said he will present these findings at a meeting and hope to come to a consensus. He also said about the "grain of salt" value he places on this new finding. He stated there are so many things that don't not match with the University of Michigan 2nd opinion pathology report. U of M sent for all the tissues from both my biopsy and surgery, redid all the staining and completed the IHC as well as FISH and came to the conclusion after a month of studying, that I am Her-2 positive, it is NOT a false positive.

    Their result matched the original biopsy result from Henry Ford pathology, but my MO doesn't believe I am Her-2 positive. I believe U of M thinks I have heterogeneous tumors, more than one type of cancer within the tumor.

    That seems to be an issue when using genomic testing and my current oncologist swears by genomic testing, my 2nd opinion MO puts no value in those genomic tests, I was intermediate 17 on one breast and 19 for the other. He then did the mammoprint, but he did NOT send in my left breast tissue for the mammoprint. The original biopsy on my right breast was the Her-2+ (IHC) the FISH was originally equivocal +2. The mammoprint came back luminal A and low.

    Originally my MO did not support my chemo request, but my 2nd opinion was very adament because of my positive lymph nodes and extra-nodal extension. My MO relented and agreed to TCx4, now he is balking again at treatment of Her2+. Anyone shed some incite into the reason this MO might choose to undertreat me? Is it my age? I am 62 and in very good health. No medical issues except my cancer. I expect to live another 30. My oncologist knows I want to do everything I can to destroy this cancer.

  • kira1234
    kira1234 Member Posts: 3,091
    edited June 2017

    Carmstr853 my goodness so many different results from the tests. It seems discrepancy between several tests. How many weeks out are you from surgery? I know there's a window the oncologists want to begin chemo.

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited June 2017

    If your MO is taking all the rest results to the "tumor board", I think that's the best possible outcome. The hard part will be waiting again.

Categories