No Rant, Just...

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stagefree
stagefree Member Posts: 2,780
edited June 2017 in Stage IV/Metastatic Breast Cancer ONLY

well


In the last 3 months I've swtiched to 3 new chemos, my belly is about to pop, everyone on the street congratulating my pregnancy, and no ascites!,

Found tumors in in all discovered organs..

TM 4000.

Cos of no useful Taxotere, lost all hair ughhh

Tonight I have an appt with MO..


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  • stagefree
    stagefree Member Posts: 2,780
    edited June 2017

    my TMs upped 1000 on just two high dose Taxotere..

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  • Kiss77
    Kiss77 Member Posts: 162
    edited June 2017

    So sorry, stagefree :-( Why don't you check again HER2 ? Maybe it has changed and you need something different.

    I suppose you are under a lot of stress right now. Be strong, you will find something that will kill c cells.

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  • yangtan
    yangtan Member Posts: 75
    edited June 2017

    hugs

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  • cive
    cive Member Posts: 709
    edited June 2017

    Ebru: 

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  • 50sgirl
    50sgirl Member Posts: 2,527
    edited June 2017

    Ebru, I wish I had some words of wisdom to offer to you or even a magic wand that would heal your body and ease you mind. You are always so helpful to all of us here and willing to share your experiences and advice with us. Unfortunately, I have no superhuman powers. Instead, I send you ((hugs)), prayers, and hopes that your doctors will find the answers you need and deserve. It must be discouraging to go through three treatments in such a short time, but you remain strong through all of this. Does your doctor feel that you might respond to your current treatment if you give it more time to be effective? Is your MO planning any additional tests to determine what treatment might be best for your? Are their any clinical trials available if the current treatment does fail? One last comment, you are correct that you did not rant, but please feel free to rant here any time you want.

    Lynne

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  • artistatheart
    artistatheart Member Posts: 2,176
    edited June 2017

    Oh Ebru, everything Lynne says and more. You are always such a positive forceful us. What a emotional slam that is. I hope they switch you to something more effective quickly. I'm glad you are seeing mO right away. You have a summer house to visit. Thinking of you.

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  • Kandy
    Kandy Member Posts: 1,461
    edited June 2017

    Ebru, I'm so sorry to hear that. I'm sorta in the same boat with my TM's going up even on chemo. I pray that they find something to stop it for you. It becomes so discouraging to have chemo and it seems nothing is phasing it. Hopefully it will kick in soon and turn things back around for you. Try to enjoy the moment.

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  • Beatmon
    Beatmon Member Posts: 1,562
    edited June 2017

    Ebru, so sorry the beast is giving you so much trouble. Feel free to do a great big rant! We all love you here. Brenda E

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  • Tina2
    Tina2 Member Posts: 2,943
    edited June 2017

    Ebru,

    I'm by your side. Picture me there: your shorter, fatter, older, funny friend who is with you all the way.

    Tina

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  • bigbhome
    bigbhome Member Posts: 840
    edited June 2017

    Ebru, I am thinking of you and praying for you!

    Hugs and prayers,

    V

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  • AnimalCrackers
    AnimalCrackers Member Posts: 701
    edited June 2017

    Ebru - thinking of you and hoping your MO has a good plan!  Hang in there.  We are all here for you.


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  • Moderators
    Moderators Member Posts: 25,912
    edited June 2017

    Dear Ebru,

    We are so sorry to hear this. We also send along warm thoughts and hugs to you. Please keep us all posted on how your appointment goes. The Mods

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  • susan_02143
    susan_02143 Member Posts: 7,209
    edited June 2017

    Ebru,

    Oh I hate to think of you being anxious about those blasted markers and your next treatment plan. And, I fear that your departure to the Sea will be delayed. I always love to think of you there, eating those lovely breakfasts, enjoying the clean air.

    Your MO needs to find your next magic drug; one that keeps you well for as long as Xeloda did.

    *susan*

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  • Wiegp22
    Wiegp22 Member Posts: 268
    edited June 2017

    Good luck with all this, prayers

    Paula.

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  • PattyPeppermint
    PattyPeppermint Member Posts: 11,162
    edited June 2017

    eru hugs

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  • Bestbird
    Bestbird Member Posts: 2,818
    edited June 2017

    Ebru, I am very sorry to hear your news. Everyone is hoping that things will improve for you, and if you do not mind, here are some suggestions.

    First, if your tummy is enlarged and there are no ascites, you may have some sort of obstruction. Please discuss this (and any other) possibility with your doctor, and if necessary seek a second opinion as to what is causing the swelling and what tests might help to identify the issue. This would be of great importance.

    Secondly, as kiss77 indicated, sometimes the pathology of the cancer may change, so if you might be able to have an area biopsied, that may help determine your next treatment (i.e. if an area is found to be HER2+, then you would be a candidate for a new category of therapies).

    Third, it may be possible that the rise in TMs are indicative of dead cancer cells if the therapy is working. TMs do not distinguish between live and dead cancer cells, and sometimes there is an initial rise if a therapy works. That said, I'm not sure about the timing of your therapies and the rise of the TMs, so this may not truly apply to the situation.

    I hope your meeting goes well, and please remember we are thinking of you!

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  • pajim
    pajim Member Posts: 2,785
    edited June 2017

    Ah Ebru, just blah. More blah. Many hugs to you and I hope they can find something that will help.

    Did I mention hugs? Have a kiss or two as well.

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  • Groovywilma
    Groovywilma Member Posts: 450
    edited June 2017

    Ebru,

    Argh! This is the part that we all hate. I hope your doctor has a new plan. Sending you healing hugs!

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  • Heidihill
    Heidihill Member Posts: 5,476
    edited June 2017

    Thinking of you, Ebru. Taxotere can cause the tumors to shed cancer cells. These cells are then in a more hostile environment in your bloodstream. The dead ones give the immune system clues to recognize the live ones. It sounds scary but maybe this was what your doctor had planned. Smoke them out and train the immune system or kill them with something else. Hang in there.

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  • stagefree
    stagefree Member Posts: 2,780
    edited June 2017

    thanks all,

    Absorbed all, feel better tonight. Will have last taxotere dose next week, then halaven starts. Zoladex shots as well. And Xeloda, my dearest all friend.

    MO mde a big mistake and and get vey close emotionally with me. I see her desperation so very closely..

    yet, my bodiliy functions are ok still, thank God.

    Maybe things turn around soon. Hope never dies, right ;


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  • Bestbird
    Bestbird Member Posts: 2,818
    edited June 2017

    Hoping that you will do beautifully on the combo, and that you will be able to enjoy a lovely vacation by the swa!

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  • kayrnic
    kayrnic Member Posts: 1,708
    edited June 2017

    Ebru,

    I'm so sorry to hear about all of this. Please keep us up to date. Hope is alive and well. Love and hugs!

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  • Bestbird
    Bestbird Member Posts: 2,818
    edited June 2017

    Thinking of you, dear Ebru, and sending warm wishes along with hope that things are beginning to improve!

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