Alternative drug to Arimidex

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  • dtad
    dtad Member Posts: 2,323
    edited May 2016

    Hopeunseen....so sorry you mom is not doing well on Arimidex. There are some natural things she can do to lower her estrogen levels. However it sounds like she just started the Arimidex so the se might get better with time. I have decided NOT to take anti hormones. I take a supplement called DIM in leu of them. I have also lost 25 pounds since my diagnosis and exercise regularly. Weight loss and exercise have been known to reduce recurrence rates. I have also eliminated sugar from my diet which is known to increase inflammation. Good luck to both of you.

  • BLS
    BLS Member Posts: 31
    edited April 2018

    interested in knowing how you are doing with your treatment. Reado one of your posts and would like to know more.

    THanks,

    BlS

  • dtad
    dtad Member Posts: 2,323
    edited May 2016

    BLS....sure what do you want to know? Im a year out from my diagnosis and so far so good but...they really don't do any systemic testing to check for recurrence unless you have symptoms. Im not really comfortable with that but its the present protocol. Please feel free to ask me anything or private message me if you want to talk more details....

  • GG27
    GG27 Member Posts: 2,128
    edited May 2016

    HopeUnseen, sorry you find yourself here, but there is good information & help from others will arrive. It's the weekend & sometimes slow here.

    The side effects that you're describing aren't unusual. Your mom may want to try a different brand, as it's sometimes the fillers that are causing the intense joint pain. They did for me. Insomnia & memory issues are unfortunately SE's. I take 1/2 a sleeping pill each night otherwise I don't get much sleep. Others have had success with supplements. It's a learning curve. Others take Claritin which seems to help with pain too. Sometimes the SE's lessen with time, the first month can be very hard.

    I don't have any alternative information for you, but I'm sure some of the ladies who know about these things will come along & help you out. cheers, GG

  • MomtoIrishQuads
    MomtoIrishQuads Member Posts: 128
    edited May 2016

    Hello all,

    I have been taking Armidex for 1.5 years (after Stage 1/2 BC with a lumpectomy) - and in the past 6 months I've had lots of issues that I didn't even link to Armidex (duh!). Insomnia (I can usually only get to sleep around 3am or later), weight gain, extreme fatique (e.g. to the point that it's hard to get out of bed), joint and bone pain and then just the other day, I had blood tests and my liver enzymes were elevated. My oncologist scheduled an ultrasound on Tuesday (presumably to figure out if it's the result of a tumor, or fatty liver - although she didn't say why - I have ascertained this from researching it myself). I also have a lot of autoimmune issues (Hashis, psoriasis, vitilago) - so it could also be autoimmune hepatitis (again - figured this out by researching on my own).

    Anyway - I've read that tamoxifen can cause liver issues - but just wondering if Armidex can, too??? I feel like crap and was thinking it was having 4 teenagers - and have been trying to make my way through it - but I'm not sure that I can. My two bouts of BC were both strongly estrogen related. Any thoughts? I just want my life back again..... Thanks all for any information or thoughts.

  • Mel2015
    Mel2015 Member Posts: 6
    edited May 2016

    MomtoIrish - I'm just wishing you some good mojo for your ultrasound!

    I'm new to this thread, and was just prescribed Arimidex....it's helpful to read everyone's thoughts on SE and options. Still trying to decide whether to start it, but I'm leaning toward it.

  • JanattheRanch
    JanattheRanch Member Posts: 1
    edited January 2017

    Well, I don't have 4 teenagers, just 3 dogs, but I know what the fatigue from Arimidex is like. After 10 months on that horrible drug, I threw in the towel because the fatigue was only the tip of the iceberg; if there are 15 side effects, I had 10 and I'm not exaggerating. The oncologist suggested a 2-month "vacation" after which we would revisit the issue. After that period of time, the quality of my life was almost back to what it was pre-Arimidex. When the doctor called in October I said someone would have to present several compelling arguments to go back on it but she couldn't. I have been off the drug since the first week of August 2016 and only now (Jan. 2017) is my thinning hair finally beginning to look like I wasn't snatched bald-headed! As for the other drugs, the side effects are very similar. My LFTs were normal while on Arimidex. Good luck. An interesting side comment. This is a breast cancer site and every time you type Arimidex it is underlined in red, like the spelling is wrong. Hmm.

  • Janett2014
    Janett2014 Member Posts: 3,833
    edited May 2017
  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2017

    This is an old thread, but if anyone is reading it--I had to switch from Arimidex to Aromasin (which are both red-underlined, telling me that bc.org doesn't maintain the dictionary, but instead it's our computers). Arimidex brought awful side effects and after 1.5 years I switched to Aromasin, thank god. After I threatened to top AIs completely, MO gave me Aromasin.

    So far so good, nearly all side effects (bloating, weight gain/inability to lose, terrible mood changes, trigger fingers etc) other than the occasional hand joint pain, which might be from too much computer work, disappeared. As for liver issues, I have CBCs done every 5 months during my regular check ups and the only liver enzyme elevation I had was from taking too much aspirin and Advil because of the joint pain I had on Arimidex.

    Claire in AZ

  • MamaOz
    MamaOz Member Posts: 432
    edited June 2017

    Anondent are you still around?

  • dtad
    dtad Member Posts: 2,323
    edited June 2017

    Just want to say that I take DIM in leu of an aromatase inhibitor. Please feel free to comment or ask any questions.

  • kira1234
    kira1234 Member Posts: 3,091
    edited June 2017

    dtad all I'll say is I have several friends who choose to go with dim and life style changes who are stage 4. That's not to say those using the drugs won't have a relapse. I've done what I was told to 6 years of tamoxifen /Aromasin and yet I'm here again with a second diagnosis of breast cancer.

  • dtad
    dtad Member Posts: 2,323
    edited June 2017

    kira...so sorry you are dealing with a recurrence. I have to say that most recurrences occur while being on anti hormone therapy just because most people do take it. However it is obvious that there are no guarantees either way. Unfortunately if you have a recurrence that stats go out the window! Good luck to all navigating this complicated disease and making these tough decisions.

  • dtad
    dtad Member Posts: 2,323
    edited June 2017

    kira...so sorry you are dealing with a recurrence. I have to say that most recurrences occur while being on anti hormone therapy just because most people do take it. However it is obvious that there are no guarantees either way. Unfortunately if you have a recurrence that stats go out the window! Good luck to all navigating this complicated disease and making these tough decisions.

  • MamaOz
    MamaOz Member Posts: 432
    edited October 2017

    Hi !

    Any of you gals still available for comment? That started back in 2010?

    I am just starting arimidex but would like to hear from some of you that did alternatives 5 years or more ago and are still ok...


  • dtad
    dtad Member Posts: 2,323
    edited October 2017

    Hi guys...I'm not 5 years out but I am 21/2 years out! I take DIM in leu of an aromatase inhibitor. So far so good. Best to all.

  • Soulfullone1
    Soulfullone1 Member Posts: 5
    edited November 2017

    hi I am new to this site and just about to start cmf chemo. How can I find the thread natural girls as I did a search and couldn't find it. Thanks so much for your help

  • Icietla
    Icietla Member Posts: 1,265
    edited November 2017
  • dtad
    dtad Member Posts: 2,323
    edited November 2017

    There are a few threads that address it. The one above and also one that is titled opting out. Let me know if you want more information. Good luck...

  • MamaOz
    MamaOz Member Posts: 432
    edited November 2017

    what matural things are you doing dtad?

    Ive been on arimidex for one month I take 1/2 a pill

    I am 5' ... 98 lbs and think 1/2 is plenty for me , not telling dr that yet. Im 2B with 3 positive lymphs

    Had chemo bmx and radiation

    Im stiff but after im moving around ok. More worried aboit bone loss as I already have osteopenia. And i refuse to take biophosponate

  • dtad
    dtad Member Posts: 2,323
    edited November 2017

    MamaOz...Like I said above I take DIM in leu of an aromatase inhibitor. I also have lost 30 pounds and try to exercise daily. Both those have been shown to lower recurrence rates by 40 percent. I also take several other supplements including melatonin, baby aspirin, mushroom extract and berberine. Hope that helps!

  • MamaOz
    MamaOz Member Posts: 432
    edited November 2017

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