INSOMNIACS place to talk in the wee hours

Mags it was Phyliss that needed the info. She was prescribed Ritalin at 8 am and 12 noon. May or may not take the 2nd dose.

You are Adderall 30mg two divided doses usually only take one.

You were the first that I heard prescribed the Adderall for day fatigue. Now she is the second i.e a drug normally used for ADD/ADHD I would have to do a search for the differences between the two drugs. Sure wish I hadn't lost my counselor to Obamacare, b/c he was a true ADD/ADHD on the drug for many years. I'm not sure if this has been an application of the drug for an extended period of time and I'm just hearing about it now. Hells bells could be a forever thing and I didn't know.

Just as a trivial pursuit observation. I had appointments over time, with my counselor from 1pm to last appointment of the day 8:30pm, but usually 5-6pm. I found it interesting observing his focus in the late hours versus earlier than say 6:30pm. We talked about it a couple of times. His focus was off in the last hours. But then we would just get howling with laugh stuff. I did however make sure I took the bit earlier appointments.

Do you feel any unusual things once the drug wears off? Phyliss isn't. But now I have to collate what you two are saying Hahahaha. Then remember it---- that's a hoot. If you see which ever doc that prescribed it, ask them when they started prescribing it for daytime fatigue. Reason this could be another suggestion to other members to explore with their docs.

Till I heard it from the two of you, hadn't heard it........I think I will stick with that Hahhaha

Oh Mags, Love you, so much......Okay what I have to do is go back to Phyliss and have her ask her doc why she suggested it.

You found it b/c of fibro, why did Phil find it? That is what I have to answer. Because two may lead to thousands. Fatigue is one of our biggest complaints.

Off label use of drugs are often found this way, word of mouth patient to doctor, doctor to doctor. Then a drug is considered "safe" as an off label use just by use, except it's never been studied. As long as adverse events aren't reported to the FDA. Mags this is actually a very big deal. I must not fall down on the pursuit of this. So bug me when you feel up to it.

Effects on babies and teens are not at question here. That would be dealing outside the scope of our discussion b/c it would be so rare.

Effects on chemo patients and those on AI's is relevant. This could be a good thing to pass on. But, also, it may be happening and we are late to the party.

Wenchie are you sure tha raccoon isn't part cat?

Mommie, still working on a thought about twin. Weird.

Mtw, I agree that generally psychiatrist and anesthesiologist start the doc community of off label use of a drug, but how much is b/c of grassroots discussion occurs b/c patients noting that something caused a change, and their primaries gave it to the. For example, I'm taking Savella. Last time I took it I lost 30 pounds or so. The direct action was as a SNRI. s.e. weight loss. I restarted it recently to see if the same thing would occur.

Another old example, When I was on the Hot Flash Forum years ago(first 25 pages). Effexor was being given to women that had hot flashes. it was a cascade effect of women using it. There was some research, but it wasn't definitive. People here were getting it from their docs. There has been research since, but I forget it's results. It's widely accepted for HF's, but is a terrible drug for anyone to get of off.

Same with Mags and Adderal, she brought the info from her fibro board and her doc decided to let Mags try it. Did the doc look to see if it was an off label use or a approved direct use we don't know. But one of it's effects is wakefulness.

Another example, is Metformin. I did some research 2 years ago on the weight thread and metformin popped up in the research. It can lead to weight loss. My HBA1c cooperated by moving off 5.4>>5.6>>5.7>>5.9. Easy direct indication. My PCP ordered it, Iook it for a few days and something was not right and I discontinued it(memory splat). It's now 5.5 and nothing changed.

I think the most classic example is valium. It was developed as a skeletal muscle relaxer(1959). It was very soon found out that it was very good for anxiety. It became the "little Housewives" best friend in the 60's. By 1970, it had fallen in use b/c it was seen to be addicting or habituating. It was considered a bad drug. By the time I found it in 1975 hardly anyone new it was skeletal muscle relaxer. In this case it was the reverse. It's original approved use was lost. I found it in 75 when I was dealing with a severe neck problem. Even into the 2000's I still would have to explain to the nurses why our new neurosurgeon was using it for his back cases, b/c their perception was it's indication was for anxiety. Then I would go through a whole explanation.

The point being is use for off label can be found on the patient level by sharing info as it was on the fibro board ant Hot Flash Forum, and then it becomes known to docs who then talk just like we do. Eventually, if it's wide enough known a company will do a study.

Mommy, Glad you got an answer so quickly.

Loverly, you hoooo getting busy?

Talk about weather, cold and damp and rainy. The grass is loving it. It's turned a brilliant green.

Mommy, that's very nice, that talking about her helped. If you'd like to talk about her more, that would be lovely. It's getting close to your anniversary. What's the special plan?

LOverly, you are the last person that I would think a procrastinator. Seems to me someone here has been to Amsterdam. Perhaps Sensi? Worth a shot to Pm her? OR perhaps Jwoo?

Wenchie, sounds like you have a friend for life. Funny about cats & coons and boxes. You taught me how bad possums are for horses, but that the eat ticks like crazy(? is that right). What niche in the ecosystem do raccoons fill beyond the penchant for trashing? I saw on fb yesterday referencing gardening. It showed that you could cut the tops off of certain produce and a new plant would grow out of the base. The picture shown was of a cabbage or a lettuce. I couldn't cut and paste.

After working on the PORT thread for years the "keep or get rid of port" discussion has always gone on. The common thread that I have observed is for those folks that want to get rid of their ports is that it's like graduation i.e. I'm done with it and onto the future. It's a VERY personal issue. Some feel very strongly about keeping it. I only mention it here b/c you may run into folks that will bend your ear on why you should have kept it. Analogy, when we were dx'd, folks that would tell us "stuff", like asparagus or their relative dying etc. What it comes down too, is your decision for you.

GRADUATION DAY ! Congratulations in your pocket with the coffee and chocolate.

Shep, Pris is so cute. Wish your vision was better. Miss you here.

Junie hasn't posted in awhile? She has been such a goer doing so much with Kirby. Nice.

MTw waving

Hahaha Loverly, I caught that plug for "Smoking Cessation". Yes, I did try Wellbutrin one time. It didn't agree with me. You know that I have to start all drugs --low and slow--low dose and increase super gradual, well even doing that the drug didn't like me. So, I just kept smoking.

Two days to go Please, if you can post pictures, I know that's a lot to request. Living vicariously through your trip. The remodel isn't terribly stressful. I've gotten to the 'Oh well stage'

Hi Celia !

Mommy :0 Hahhaha

Waving at everyone