Anyone Using Wig ALL the time?

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Tannniii
Tannniii Member Posts: 8

Hello,


This is my first post on the forum, I am from Costa Rica, 32 newly diagnosed (Right 2,1cm Grade 3, 3/10 nodes, ER+, PR+, HER-). I had a double mastectomy with immediate reconstruction 12 days ago and recovery from surgery is going good. However, I am most scared about starting chemo in about a month particularly (of course) because of hair loss. I was looking at options and found that you can actually wear a high quality lace front wig but several weeks at a time without taking it off. I feel like doing this would minimize the psychological impact of going bald. I also have worn extensions for the last several years so the change of using a full wig would not be as noticeable. My plan would be to have the wig installed by a professional and have it removed and reattached every 2 weeks or so. Anyways I am looking for experiences from other ladies that wear their wigs extensively (including to bed) as opposed to only to leave the house.


Thanks and love to all,

Comments

  • Kicks
    Kicks Member Posts: 4,131
    edited May 2017

    I'm not familiar with wigs being secured on the head for weeks. Perhaps it's something newer?

  • Tannniii
    Tannniii Member Posts: 8
    edited May 2017

    Thank you so much for responding! What kind of wig did you wear? Did you get a special medical wig cap (monofilament) or just a regular wig? I am thinking of getting a full lace wig (or two) and am wondering if it will stand continous wear

  • NotHerToo
    NotHerToo Member Posts: 58
    edited May 2017

    I'm doing exactly the same as BosumBlues. I have 3, two are exactly the same style, and the third is same length and color so like in real life, my hair isn't identical day by day. No one at work even knows I've lost my hair..they think I just colored it because it's the same length and cut as my old, real hair. Caps to bed also, and I rarely looked. NOW I'm looking daily for signs of growth. Fuzz is welcome!

  • Jackster51
    Jackster51 Member Posts: 357
    edited May 2017

    Tann, do they offer cold caps in CR? Worth asking. Many women use them to save their hair during chemo

  • Tannniii
    Tannniii Member Posts: 8
    edited May 2017

    Hi JAcks, unfortunately they don't. I would jump at the opportunity of cold caps for a chance to save my hair but since thar is not an option I am looking at the best ways to wear a wig most of the time while in treatment

  • salasila
    salasila Member Posts: 41
    edited June 2017

    Bumping this up because that's the next thing on my mind after my surgery+reconstruction next week - chemo and losing my hair

    I'm thinking on getting a wig ASAP even before I start treatment. Do y'all get your wigs online (if so, which site)? Or do you get them professionally done at the hair salon?


  • BG46TN
    BG46TN Member Posts: 286
    edited June 2017

    I wore (wear) my wig to work and social events...right when I get home I take it off....I also wore caps to bed. But now that its starting to get hot here, I plan on going without very soon! (I'm a teacher so as soon as school ends the wig goes too lol) I do have some hair growing back already. I stopped chemo about 10 weeks ago and I have about an inch of hair now.

    Salasila, I bought my wig from a wig place so I could try on different styles to find what I liked best. My insurance covered the cost up to $1500 (I only spent $450) I would suggest you go to a wig store to try on some, definitely before you start chemo or right after your first treatment (I lost my hair right after my second treatment) You can always order a second one online (or get the brand and style # and order them online to begin with after you try some on)

    I also bought a baseball hat with fake hair on the sides, it was great for when I wanted to just run to the store or on weekends.

  • jmayersf
    jmayersf Member Posts: 6
    edited June 2017

    Hi Salsaila: I opted to try on wigs in San Francisco at a specialty center that serves women going through chemo exclusively. By doing it in person, I learned that I have a large head which limited my choices. I will need to pay out of pocket, but I found some cute wigs that were in the $200 range. What I really like was that no one was trying to "sell" me anything and I could try on what I wanted at will. And while they didn't have all sizes and colors, they did special order two for me with no obligation to buy. My real hair is a combination of curly and wavy and I didn't think I would be able to find anything like it. Also, much of my work is on line and clients see me rarely anyway. I am too much of a novice to buy a wig online and I didn't want the hassle of having to return it if it didn't work.


  • lidabit
    lidabit Member Posts: 26
    edited June 2017

    I was able to find someone who made a wig out of my own hair. Since it is wavy/curly, no wig felt right. It took a while to get it, but I wore a temp wig in the meantime. She does do consults over the phone. I will message you her info. I was very happy with it as then it was just my own hair.

  • lrwells50
    lrwells50 Member Posts: 254
    edited June 2017

    I've been wearing mine at work and if we go to dinner, but I take it off the minute I get home. I tried a cap, but it was actually more irritating as my hair was coming out. Now that it's almost all gone, I'll try the caps again.

  • Kicks
    Kicks Member Posts: 4,131
    edited June 2017

    I had 2 wigs during chemo. They were both very different. The one given me through the Facility I went to and the Master Cosmetologist who did the Look Good, Feel Betterr class. (If you haven't done a Look Good Feel Better class, check with your Facillity and/or your local ACS for the next class.) It had just come in in a box of wigs donated (brand new) from a manufacturer and she thought she'd never find the person for it as it is a gypsy shag. Wrong - I loved it. It is a light frosted and my hair is still as dark as it ever was but love it. (I still occasionallly wear it) My other wig is a light frosted pixie that VA bought for me through a local salon - still will wear it occsionally but not as often as the other one.

    Back in the late '60's to mid '70's, I had quite a few wigs - none even close to my hair. They were for FUN. I was a Master Cosmetologist and Salon Owner. I think the one I had the most fun with was a bright green one that I usually used for St. Paddy's Day. Not to forget one that I put a string of battery powered lights in. During chemo though for the most part - not something most would want to do. I would have IF I still had them but didn't want to spend money just to 'surprise' others.

    During chemo, I did wear my wigs a lot but most of the times I wore scarves that I made. Hubby and Son were always going to fabric stores and finding material they liked/thought I'd like and bringing it home. It is cold here in Fall and Winter so flannel and fleece scarves were nice when outdoors.

    I would not suggest ordering 'online'. Pictures are just that - a picture of someone else as it looks on them. We don't look like them. There is also the issue of fit - not all wigs have the same cap. Nor do we all have the same shape or size head. Colors do not always look the same in 'normal' light as opposed to photographic lighting. Can look different against our skin tone as opposed to the model's.

    Unlesss you are experienced with human hair wigs and maintaining them, they can be a chore that is beyond what most can do. The synthetic wigs of today are quite easy to take care,of any will remain how they are when gotten - baring being exposed to heat.

    Remember - the correct wig is fantastic - the wrong one is horrible. Only you can know how you feel with one - not someone else trying to influence you - be it a salesperson or a 'friend'.

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