working during TC

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SmudgeCat
SmudgeCat Member Posts: 2

Hi there! My doc is recommending 4 courses of TC due to my ODX score (23) and age (31). I haven't decided yet if I will go with the recommendation. My concern is work. I teach at two different colleges, long commute, mental exertion, lots of time on my feet, lots of sick people around. I know TC is considered "chemo light," but I just don't know what to expect. I'm worried that, as an adjunct instructor, if I can't work I will lose my position. Does anyone have experience with similar kind of job during this type of chemo? Thanks so much!

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  • NancyHB
    NancyHB Member Posts: 1,512
    edited June 2017

    Hi Smudge,

    I've done both AC-Tand TC, and worked both times. First time was AC-T, I worked 30 hours and was in grad school. Had a few days each cycle that really set me back on my heels with flu like symptoms, but I persevered. Second time was 6 cycles of TC, just last year. Worked full-time, took one day off each cycle when I felt at my worst. I had a flexible work schedule, and was able to work at home on those days when I just couldn't drag myself to the office.

    Not sure where you heard that TC is "chemo light" - frankly, TC was just as difficult for me as a AC-T. I have strong reactions to the taxanes (Taxol in AC-T and Taxotere in TC), so both regimens were tough on me. Everyone is different, and it can be hard to predict just how you'll do during chemo, but for most of us chemo is tough but doable.

    I wish you well in your journey

    *edited for typos

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited June 2017

    SmudgeCat: How is your state of health & fitness? And you didn't say if your ER/PR positive or HER2 positive. At your age, unless you've been a couch potato, you likely have some reserves going into this mess.

    I had 6 rounds of neoadjuvant TCHP (Taxotere/Carboplatin/Herceptin & Perjeta) because I am HER2+. I was never nauseous but did have BigD & was very tired. And I lost a LOT of weignt - like 60 lbs. I did not have a complete response so after surgery I had 4 rounds of AC (adriamycin & cytoxan). That one did me in and I had to quit after 3 infusions. Then I had rads & did Herceptin every 3 weeks for a year. Everyone has a different reaction. Some people work the entire time, some are wasted. I don't agree that TC is necessarily 'chemo light', but it would definitely be better not to be around sick people when your immunity is compromised. Maybe the doc will consider Neulasta shots each time?

    Below is a link with tips for people starting chemo. There are also threads with people going through chemo now - like Chemo May 2107 or June 2017 Chemo. I read the month before to see how it was effecting others who were 1/2 way through, but it's great to be able to communicate w/others in the same situation. Good luck.

    https://community.breastcancer.org/forum/69/topics...

  • SmudgeCat
    SmudgeCat Member Posts: 2
    edited June 2017

    Nancy, MinusTwo - I'm sorry you had to go through chemo twice :(. I was told TC is better because it has less residual toxicity/permanent side effects.

    My stats are: ER/PR+, HER2-, clear nodes. Stage still uncertain; they have to redo the pathology because apparently no one could figure out what's going on. I'm also BRCA2 positive.

    Still not sure whether to do the chemo. Seems like a very gray area.

  • NancyHB
    NancyHB Member Posts: 1,512
    edited June 2017

    Smudge - it's hard enough making choices in all of this, without also being on the dreaded "grey zone". Clear nodes is definitely working in your favor; do you know the grade yet? That could also help inform your decision.

    Since you're still uncertain, maybe a second opinion can help you feel more solid in whatever decision you make. I've gotten a second opinion twice; the first time it confirmed what my MO suggested and I felt more confident in my choice, and the second time it was a grand departure from the suggested treatment and I was grateful to have the support and confirmation to not do a recommended treatment. In both cases my gut was telling me something and I needed to explore those feelings deeper. I believe it's important we feel secure in the treatments we choose (even if we don't like them).

    Taxotere and Cytoxan themselves don't have the cardiotoxic effects that Adriamycin has, and in that way are "easier" than the AC-T regimene, that's true. There are still significant SEs to consider, though: Taxotere in particular has a risk of permanent hair loss, and long-term or permanent neuropathy can also occur. It's possible you'll also get the Neulasta injection the day after chemo, too (a good idea if you're concerned about germies), which can, in some cases, cause some significant bone pain for a couple of days. The hardest thing is that you won't know how you're going to react to any of this until it's happening - but even then, it IS doable. I was a little slower for a few weeks but now, on the other side, I can look back and say it wasn't too bad.

  • Snowfall
    Snowfall Member Posts: 90
    edited June 2017

    I am a college professor, and was able to work part time during 4 rounds of TCHP. I taught an online course, worked on some research projects, and went to occassional meetings on campus. Frequent and unpredictable diarrhea (even with Imodium) and significant fatigue made being in my office and in the classroom very difficult. Do you have the option to teach online or in a hybrid format

    TCHP had limited effect in shrinking my tumor, so I've now switched to dose dense AC. The side effects are more manageable, although I do have several days of substantial fatigue each cycle. That may be a result of extended treatment. I started back in November as a participant in an HP-only study, then moved to TCHP in January, then to AC in May. Throughout, I've had a number of unexpected delays and adfitional medical appointments due to low blood counts, even while on Neulasta throughout chemo, and the need for electrolyte infusion and fluids. All this to say, I think it would have been impossible for me to truly work full-time on a regular schedule during this period. Happily, my work allowed me to take intermittent medical leave, rather than having to be out entirely. That has helped me conserve serve my sick leave and feel connected to my work, which I love, without compromising my medical care. For me, it was important to be realistic with my employer about the possible limits I will be facing, even though they were not easily predictable ahead of time.

    Hope that helps you plan, as best we can when navigating the unknowns of treatment.

  • ksusan
    ksusan Member Posts: 4,505
    edited June 2017

    TC is not "chemo light."

    I taught through it. I sat rather than stood, had some guest speakers in to lighten the prep, and asked students who were ill to let me know and complete alternative assignments rather than come in.

    Best of luck!

  • Snowfall
    Snowfall Member Posts: 90
    edited June 2017

    Another possibility that occurs to me, depending on the schools' policies and your discipline and the size of the classes, is that you could use a flipped classroom approach that would allow you to record lectures for students to view before the class meeting. Best practices usually recommend short lectures. I try to keep mine between 15 and 30 minutes. I don't really have to sacrifice any content, because I do not have to do the repetition and notetaking pauses that in person lectures require. Students can simply rewind.

    Classtime is then largely a workspace for application of the ideas and skills bystudents, either individually or in groups. You can incorporate a lot of peer review that checks their comprehension without you having to do individual feedback. That kind of format allows you to lecture when you're at your best, and gives you some flexibility during class sessions when you're dealing with fatigue or other side effects. If you're not familiar with the terminology flipped classroom, googling it will give you all sorts of information. It's a kind of trendy name for a style of teaching that many disciplines in the humanities have used for a long time, but math and sciences are starting to adopt particularly with the availability of online instruction.

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