Unfortunately things are going downhill

Options
1…910121415…38

Comments

  • Jennmadd
    Jennmadd Member Posts: 36
    edited May 2017

    I am so happy to read your update from your scan!!! No progression is wonderful news!

    · Share on FacebookShare on Twitter
  • lulubee
    lulubee Member Posts: 1,493
    edited May 2017

    Wonderful news, Kandy! So happy for you!

    · Share on FacebookShare on Twitter
  • Mominator
    Mominator Member Posts: 1,575
    edited May 2017

    Kandy,

    Wishing you a lovely weekend with lots and lots of Harper time.

    Love, Madelyn

    · Share on FacebookShare on Twitter
  • PattyPeppermint
    PattyPeppermint Member Posts: 11,162
    edited May 2017

    kandy. Good news. Doing happy dance.


    · Share on FacebookShare on Twitter
  • Lita57
    Lita57 Member Posts: 2,437
    edited June 2017

    Didn't know where to post this - so I'll post it here.

    Powers Boothe passed away from a heart attack brought on by his quiet, six-month battle with pancreatic cancer. All cancers are terrible, but I hear that pancreatic is particularly NASTY during the end stages. He probably had a rough time during his last few weeks.

    What a brave man...he kept it private, didn't want any of the paparazzi and Hollywood types to know while he was alive.

    Kudos to his palliative/hospice care team for respecting his privacy. Any one of them could have made some $ selling the story to the tabloids weeks ago. Of course, stories might still make it into the rags now: "Powers Boothe's agonizing last days..." along with sneaked out i-phone photos.

    I just hope that doesn't happen. Let the man rest in peace and give the family their privacy.


    · Share on FacebookShare on Twitter
  • Micmel
    Micmel Member Posts: 9,450
    edited June 2017

    May he Rest In Peace without any cameras, in his face and may his privacy always be honored. Cancer=taking to many everyday. Not ok. Sadly we are helpless ~M~

    · Share on FacebookShare on Twitter
  • Kjones13
    Kjones13 Member Posts: 1,520
    edited June 2017

    kandy--although I haven't been around lately, I still think of you often. So thankful to hear great news on the scans!!! Blessings to you

    · Share on FacebookShare on Twitter
  • zarovka
    zarovka Member Posts: 3,607
    edited June 2017

    Kandy - how are you feeling?

    >Z<

    · Share on FacebookShare on Twitter
  • Kandy
    Kandy Member Posts: 1,461
    edited June 2017

    As always, thanks to everyone for checking in. This past week has been a very difficult week for me. I had chemo last Tuesday and see MO. He told me they had been watching my hemoglobin and every week it drops a little more. He thought I should have a blood infusion this week since it is my week off of chemo. I think the chemo did drop it some more last week. Since last Wednesday I have found it very difficult to stay awake. I sleep day and night. We have increased my pain meds a couple times and as far as pain am doing much better. I go on Thursday to get the blood transfusion. I'm actually looking forward to it cause I'm feeling pretty rough these days. I was able to get to church yesterday but I think I dozed through most of it. My sister said not to worry about it that she was sure there were others there sleeping, lol.Keep me in your prayers, and I always pray for each of you. Take time to enjoy the moment.

    · Share on FacebookShare on Twitter
  • melmcbee
    melmcbee Member Posts: 1,119
    edited June 2017

    Praying for you Kandy

    · Share on FacebookShare on Twitter
  • DivineMrsM
    DivineMrsM Member Posts: 9,620
    edited June 2017

    Prayers, Kandy

    · Share on FacebookShare on Twitter
  • Lynnwood1960
    Lynnwood1960 Member Posts: 1,284
    edited June 2017

    Kandy, praying that your blood transfusion brings you some relief from your fatigue. Hang in there!

    · Share on FacebookShare on Twitter
  • dlb823
    dlb823 Member Posts: 9,430
    edited June 2017

    More prayers that the blood transfusion will give you both a physical and an emotional boost. It's hard to stay in the game when you feel so tired and run down. Deanna

    · Share on FacebookShare on Twitter
  • Southernsurvivor
    Southernsurvivor Member Posts: 632
    edited June 2017
    Kandy - prayers for the blood transfusion to provide you energy. In my experience, it makes a huge difference. Thanks for keeping us updated - we care!
    · Share on FacebookShare on Twitter
  • zarovka
    zarovka Member Posts: 3,607
    edited June 2017

    Kandy - the blood infusion will help, but pain killers are exhausting. the meds may be a piece of it.

    Lots of pieces. Hang in there.

    >Z<

    · Share on FacebookShare on Twitter
  • Iwrite
    Iwrite Member Posts: 870
    edited June 2017

    Thinking of you Kandy! Hope this gives you a big boost and much needed energy

    · Share on FacebookShare on Twitter
  • Mominator
    Mominator Member Posts: 1,575
    edited June 2017

    Thinking of you Kandy and hoping the transfusion will give you a boost.

    Are you getting your Harper time?

    Love, Madelyn

    · Share on FacebookShare on Twitter
  • AnimalCrackers
    AnimalCrackers Member Posts: 701
    edited June 2017

    Kandy - thinking of you and wishing you major improvement after the blood transfusion! 

    · Share on FacebookShare on Twitter
  • artistatheart
    artistatheart Member Posts: 2,176
    edited June 2017

    Feeling tired is the worst. I hope the transfusion helps tremendously and you finally get to start enjoying the summer. Always thinking about you Kandy!

    · Share on FacebookShare on Twitter
  • AmyJM
    AmyJM Member Posts: 665
    edited June 2017

    I have been so busy at work that I finally had a chance to check in and am just now seeing your post about the scan results. So happy for you! I hope the transfusion helps with your energy level too!

    Love and hugs, Amy

    · Share on FacebookShare on Twitter
  • PattyPeppermint
    PattyPeppermint Member Posts: 11,162
    edited June 2017

    kandy. Just seeing this message hoping a blood transfusion is a boost of energy you need. Keeping you in my prayers


    · Share on FacebookShare on Twitter
  • Kjones13
    Kjones13 Member Posts: 1,520
    edited June 2017

    praying

    · Share on FacebookShare on Twitter
  • Southernsurvivor
    Southernsurvivor Member Posts: 632
    edited June 2017

    Hi Kandy -

    Just checking in to see how you are feeling today. Hope your blood transfusion went well and you are feeling better.
    · Share on FacebookShare on Twitter
  • Kandy
    Kandy Member Posts: 1,461
    edited June 2017

    Hello ladies, the blood transfusion did go very well. I am not as tired as I was and do feel some better. I go for chemo tomorrow and labs, so we will see where my count is. I hope all of you are doing well. Prayers for all of you and enjoy the moment.

    · Share on FacebookShare on Twitter
  • TarheelMichelle
    TarheelMichelle Member Posts: 871
    edited June 2017

    /waving/ Hey Kandy!

    I laughed at your comment about falling asleep in church. I have been to 4 movie matinees in the past month, and have fallen asleep at every one. Maybe I should just plan to take naps there.

    Hope to see you soon!


    · Share on FacebookShare on Twitter
  • PattyPeppermint
    PattyPeppermint Member Posts: 11,162
    edited June 2017

    glad the transfusion is working on you're energy. Hugs



    · Share on FacebookShare on Twitter
  • Kandy
    Kandy Member Posts: 1,461
    edited June 2017

    So, my day started out so promising. My tumor markers fell 200 points. Woohoo. My appointment with MO went well. He said that now with markers falling confirmed the MRI and pet scan report, life is good. Then off to chemo. I was finished with chemo, they discharged me. I went to the bathroom on my way out. I had started itching. All of a sudden it hit me, I looked in the mirror, and sure enough, back and stomach was blood red. I came out and called the nurse. I was like, I don't think this is good and pulled up my shirt. She rushed me back to the chair, about 6 nurses came. They accessed my port again and started pushing drugs to stop the reaction. I had to stay a couple more hours. I'm so sad. Find something that works and I'm allergic to it. Great. They said my MO would call tomorrow to discuss what we are going to do. What a bummer. God bless you all. Keep enjoying the moment.

    · Share on FacebookShare on Twitter
  • 50sgirl
    50sgirl Member Posts: 2,527
    edited June 2017

    Kandy, I don't know what to say except GRRRRRR and a bunch of words I cannot say, let alone post. I am with you in spirit and lifting you up in prayer. I am glad that the treatment benefited you as far as you could handle it, and I hope that the next treatment that you and your MO agree on works even better! BIG, BIG (((HUGS))).

    Lynne

    · Share on FacebookShare on Twitter
  • LindaE54
    LindaE54 Member Posts: 2,054
    edited June 2017

    Kandy - Hooray for TMs going downwards! I suppose you have pre-meds such as Dex, Benadryl and something for nausea before starting the chemo drip? I had my 4th Taxol infusion today and had an itchy skin rash pretty much all upper body. They stopped everything, gave all saline and chemo a 15 min break and then resumed. I had a 1/2 worth to go but they doubled the time to one hour for the rest of the infusion and then was smooth sailing from there. Weird thing is same thing happened on infusion number 2 at exactly the same time. We decided that from now on we will administer the chemo over two hours instead of one. There are ways to cope with these reactions such as adjusting the pre-meds or time of infusion, so don't be sad just yet! I'm so happy for you that TMs went down, mine are still creeping up after 1 cycle of Taxol. MO will move up scanning if my TMs don't start behaving.

    · Share on FacebookShare on Twitter
  • Micmel
    Micmel Member Posts: 9,450
    edited June 2017

    I agree completely with Linda. They will prepare more premeds as a prevention. Make sure you ask them to slow the infusion. Same thing happened to me. They didn't stop the chemo, especially if It was benefiting the patient. It happened to me with abraxane my throat closed up, next time Benadryl & Ativan. It never happened again. I don't think they will switch you just yet, unless it keeps happening, especially since it seemed to have leveled out, or they wouldn't have let you go. Hugs hugs ~M~

    · Share on FacebookShare on Twitter

Categories