Before you were diagnosed, how were you feeling physically?
I've been reflecting a lot on this. I have been exhausted for a long time. I would fall asleep sitting up sometimes and would have a difficult time staying focused. I thought I was getting lazy! I had also become much more sedentary, preferring to stay in the house rather than go out. I seem to have been swelling in my hands and arms. What symptoms were you experiencing?
Comments
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I too had been exhausted, a case of the shingles twice, which another woman I know who has breast cancer had the shingles twice too before diagnosis. I am 47 years old and chalked it up to being an older mother with 2 kids ages 10 and 12.
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None! I felt exactly the same as usual.
You might want to get your Vit. D level checked. As we are coming out of winter into spring, it's not at all unusual for some to have been suffering with low Vit. D (S.A.D. - Seasonal Affectively Disorder) for a while. The 'symptoms' you wrote about could possibly be SAD.
It is quite easy to handle if low D is a problem then it's easy to handle. Just take Vit. D suppliments and use a 'light box'. During the late fall, winter and early spring, my PA has me take 10,000 IUs and summer 5,000 IUs daily. I also use my Light Box daily fall, winter, spring daily for at least 20 - 40 minutes a day based on the weather (blizzards I use it longer daily). A light box is designed to simulate sunshine which is associated with Vit. D production.
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I had no symptoms -- I felt perfectly fine before my dx. I was running 13 miles a week on the treadmill + walking my dogs one mile a day.
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Exhausted all the time and pain. I had it in my head that bc isn't in my fam so can't be that. It's hormones as it was with pain for my mom at the start of menopause. So I never got checked until 2 years ago from weeks from now the pain was very painful.
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I had no symptoms other than the lump.
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I didn't feel any symptoms before diagnosis. In fact, I felt great and was probably in the best shape I'd been in years. I had just finished a summer full of hiking and camping right before I was diagnosed.
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No symptoms for me at all, even now with chemo I'm still hitting 10k steps a day, usually. Cancer was a shock and stage 4 from the get go was crazy. If it hadn't been for the lump, I never would have believed the dr's.
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Physically fine, but I did have a slight shingles outbreak the year before dx.
However, the entire summer before the actual confirmed dx in September I "felt" that something wasn't right--like there was something waiting for me that was dark and frightening. It was a beautiful summer and sometimes I'd feel like I had an umbrella over me, blocking the sun.
I had gained about five pounds that year, and thought to myself that if I got chemo, I'd lose it. Crazy thoughts to have for no reason, but there you are.
Claire in AZ
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I was extremely tired before diagnosis. The fatigue went away after surgery. I had some fatigue during radiation (usually at the end of the week), but it was different from the pre-diagnosis fatigue. I think the tiny tumor (that felt compelled to start spreading) was draining me and I felt it.
My lump also hurt, which I'm told is not the norm.
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Not me! I had no symptoms whatsoever (except for the lump).
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My only symptom was an inverted nipple. No lumps. Even surgeon couldn't feel the lumps.
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I had been feeling like crap for 4-5 years prior to DX. Went to doc, had checkups, nothing found. Mostly fatigue, increased appetite, weight gain, scatterbrain.
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I've been exhausted for years but that's because I'm a mom, work full-time and have a Vit D Deficiency. I felt great before diagnosis and am still in shock. How can I have cancer and feel great? It certainly makes it hard to accept.
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I had a flare up of symptoms of my "benign" fibrocystic issues. I gave up caffeine in 2012 and that made my breast pain and cysts nearly go away (I know that removing caffeine doesn't work for everyone.. my breast doc suggested to try it and we were both happy it worked for me)
Then suddenly early this year, age 48 at the time, corresponding with what seem to be other perimenopause symptoms, I had a lot of issues with my left breast: a benign mass, many cysts, inflammation, pain. Had a benign mass surgically removed, had needle biopsies and aspirations. Radiologist and breast surgeon said some was a bit unusual but "for my age" not really enough to worry about -- attributable to fibrocystic breasts and hormone changes -- but checking everything out to be sure. Over the past few months I've had multiple exams on this breast including mammo, US, physical breast exams. Plus the biopsies.
Then boom, after I had been given "all clear" (all of this at a very respected breast specialty center in a major city by the way) and decided I must just have to live with with it, doc called and said she was a surprised but the last needle biopsy -- the very last thing she was going to look at, and that had been previously hidden near a cyst and that the radiologist felt sure was also benign -- was cancer.
Not sure if related but the past couple of years I've also had worse outdoor allergies, joint inflammation and pain (blood tests ruled out the major bad stuff you would first guess), trouble sleeping, and irregular periods. I had it all checked out and did PT and a steroid shot for the worse joint/pain issue (near my clavicle).. was told just age/perimenopause/normal, which might be the case but of course now I wonder.
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I had fatigue but am not sure if it was from cancer.
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I felt not different before I was diagnosed.
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I was the "picture of health." I felt totally fine! I eat well, am a workout gym rat, and overall take care of my body. No lump, no dimpling, no indentations, no discharge. Nothing. It was a routine mammo that picked up the suspicious microcalcifications. Dcis dx after further testing. Ugh. But definitely blessed that it was found so early
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I felt completely normal before diagnosis.
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The only thing I can say is I felt more fatigued the year or so before. I attributed it to age (49), kid (9), job.
Did not change my life in any way -- I just felt I was more tired more often. This seems to be gone after surgery.
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I've often wondered about this. I didn't think I had any particular symptoms before my diagnosis (aside from the lump) but my cancer was relatively slow-growing and fairly large (almost 3cm) when it was removed. How long had it been there? When would I have started experiencing symptoms? Now I'm on AIs that cause fatigue, brain fog and discomfort so...who's to say whether those possible, pre-existing symptoms have gotten any better?
Also...I've been a research tech and grad student for the last 6 years so the baseline level of exhausted is pretty darn high...
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I was feeling great! I had lost almost 40 pounds (my choice) and was having the time of my life. I've always thought maybe my weight loss helped me to feel the lump and get it checked out.
Three years out and I'm 50 pounds heavier thanks to AIs and just my general lack of energy. Boo!
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I had been so tired, but I contributed the fatigue to having a 3 year old later in life. 35 when I gave birth. I remember going to the doctor about a year prior and complaining that I just felt off. I didnt notice a lump until I was dx'd at stage 3.
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I felt totally fine. Never felt a lump. I had a full physical 3weeks prior to my mammogram and my PCP didn't feel my cherry-size lump, either. BC came like a bolt out of the blue.
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I felt totally fine. My overall health was excellent. My mass was found during a routine breast exam. I had been completely unaware of it...after diagnosis i thought back and maybe remembered feeling it and thinking nothing of it. I'm 33, and I was honestly ignorant about breast cancer. It wasn't on my radar at all.
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I had felt something was "wrong" for about 18 months, just an undefined dark nebula that hung over my usual chipper self. I was tired a lot, sometimes felt wobbly on my feet, and wanted to sleep more and more. I have been a very healthy person the past 15 years and didn't even have a GP, so I went to a Walk-In clinic last year and reported to the puzzled doctor that "something is wrong". Obviously, she couldn't help, because nothing showed up in normal tests. Mammograms had been "clear", just a few calcifications. I finally discovered my tumor myself a month ago - it was hiding out under a cyst, and it hurt. Thankfully found, and now on to surgery June 19.
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S12Clear:
I didn't feel bad mentally. Was pretty happy, etc., but did feel more tired than usual for the year/year and a half before diagnosis, too. That is all I can attribute.
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I napped constantly and couldn't get out as I usually did. I kept attributing it to my autoimmune disease. I have ankylosing spondylitis and expected short bouts of fatigue. But when it continued longer than ever before, I thought something else was wrong. My dh and I suspected depression, I've struggled with that beast too. But I still had a desire to do things I usually liked, I was just too exhausted! My libido wasn' t affected. So I knew that wasn't how I typically feel when depressed. There's no pleasure in anything.
And finally in the month before my dx I had persistent shoulder pain. That's what helped me discover my lump! I was sitting in bed complaining that my shoulder still hurts. I reached across my chest with my left hand to rub my right shoulder and brushed lightly against something. I had to feel around a bit to get to it but I instantly thought this is the reason for my problems. I was familiar with all of my bumps, cysts, scar tissue from other surgeries and knew this wasn't there before! March 26th, I'll never forget it...
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I felt like a champ. Better than I have ever felt. No lump, no discharge, no pain. Nothing. A routine mammo picked up my calcifications
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hello sweetie I felt fine working going out on weekends in good health then I found the lump But Praise God I'm doing great Now a 23yr Survivor was planning my 2nd wedding at 42 . God Bless Us All. Msphil idc stage 2 0/3nodes 3 Mon chemo before n after Lmast got married then 7wks rad 5days wk then 5 yrs on tamoxifen.
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I felt fabulous, in great health and good shape. I did not experienced any fatigue during treatment either, not after surgery nor during radiotherapy. The day after my surgery I did a 12kmwalk.
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