Where do you gain weight/fat after diep flap?

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AnaMaria34
AnaMaria34 Member Posts: 23
edited November 2020 in Breast Reconstruction

Hi Everyone,

I'm considering my options for reconstruction and can't find answers to one (of many) of my questions.

After a diep, if you used to gain most of your fat in your belly and you have gained weight, do you gain it mostly in your reconstructed breast(s) or in the belly where they took your tissue?

I guess it might be different for different women. Anyone like me out there? I gain mostly in my belly. My arms/legs remain thin regardless of my belly. As an example, my family always buys me clothing in a size extra small because I appear to be pretty thin as long as I wear something baggy to hide my abdomen. My waist, however, needs a size large or extra large to fit comfortably in clothing. I have narrow hips, which also gives the illusion of me being smaller than I am. My grandfather once told me I look like an orange with four toothpicks sticking out of it.

So, specifically I wonder if I transfer most of the fat cells in my belly to my chest, will I now naturally gain weight in my reconstructed breasts since that is were my established fat cells are, or will I put on weight were I always did before even though there are fewer fat cells there? I know my foobs will also gain and lose weight with me, but will that become my new fat deposit area in place of my belly?

I hope this question makes sense.

Have you gained weight after your diep reconstruction? Where did you gain it before? Where do you gain it now?

Thank you!

Comments

  • ReginaZ
    ReginaZ Member Posts: 41
    edited May 2017

    I'm sorry I don't know the answer, but this is a really interesting question. I hope someone who can help comes along soon.

  • AnaMaria34
    AnaMaria34 Member Posts: 23
    edited May 2017

    Thank you, Regina. I've been searching high and low for answers online, and I'm surprised that I can't find what I'm looking for being that so many women have gone through this before me.

    Part two of my question is, once I'm on tamoxifen and my body is mirroring that of a menopausal woman, will my body choose to store fat in the middle like that of a menopausal woman (creating new fat cells?) or will it store fat on my reconstructed breasts because it's being tricked into thinking that is my waistline?

    I am a thin person who is very thick in the middle. My measurements are 35-33-36.5. I am 5'6.5" and 130 lbs. I am trying to make my decision for diep or implants (or maybe a combo of both), but am having trouble getting the information I want to make a comfortable decision. I am still relatively young (34) and am expecting an ugly weight gain after starting tamoxifen. (I have issues that make it hard for me to workout.) I've had body image issues all my life between my boxy midsection and never finding an adult sized bra to fill (I was an A on the left breast and an AA on the right before my bilateral mx), and I would feel awful if I am worse off after this whole bc fiasco.

    I very well may not have enough fat and tissue to fill an A cup bra if I do a diep. Several ps have told me it will be close to or a little smaller than what I had naturally before. I do not want to go through the embarrassment I felt of not being able to fill an adult bra. But I don't like the idea of just an implant as I would feel I am giving up my chance to have a smaller midsection. Plus if I put on a lot of weight because of tamoxifen, my implants might look disproportionately small.

    I could do diep and gain weight...if the weight would go to my flap site (though I've read that lots of tamoxifen fat ends up in your liver and other visceral places in addition to your waist). I could do diep plus implants, but then I'm adding complications and extra surgeries for life. And I might still gain weight making my foobs too big.

    Another concern I have with diep is that I might lose what tiny amount of contour I have in my waist. My ps said and I've read that many women look boxier after diep. My rib cage and my hips are about the same width and pulling everything down might accentuate that. Plus a lot of my fat stores are in my upper abdomen (like a man). I think I would rather have a small waist and no breasts, than breasts and no waist.

    That's where my dilemma lies. I feel like I lose no matter what. If I do diep I might be boxier (with an upper gut and huge ugly higher than normal scar). If I do implants and gain weight on tamoxifen, I might be boxier, will likely need revision and replacement surgeries, and increase my risk of dissatisfaction (feeling cold, looking fake, capsular contraction, etc.) If I do diep and implants I might be boxy and top heavy. And if I do nothing I'll be boxy, fat, and flat chested. (And of course doing nothing would still require a surgery to get these tissue expanders out.) I asked about Lipo and body sculpting but was told my bone structure wouldn't allow for a smaller waist to hip ratio even if all my fat was gone.

    I just feel like there is no clear best option. I read all the time that women are just happy to be alive and cancer free, and that we should just be happy with whatever outcome we have. I guess I don't really feel that way. I already don't feel good about myself. What's the point of going through all of this reconstruction crap if it's not going to help me feel better? Maybe I'm asking too much, but anything less is going to leave me feeling bitter. I'm very tempted to not even take tamoxifen. I can't imagine it's going to improve my quality of life, and if it doesn't, then what's the point of extending my life?

    I know this makes me sound vain or superficial. I'm really not. I almost never fix my unruly hair, almost never wear makeup, never paint my nails, and shave only infrequently. Most of the time I look pretty unkempt.

    What should I consider that I'm maybe missing right now? (I am in the care of a psychiatrist and counselor for depression which is much improved currently.) How do you let go of disappointment enough to make a decision?

    Sorry for such long, frustrating post. I'm hopeful others will chime in with their experiences or suggestions.

  • tnd22
    tnd22 Member Posts: 65
    edited May 2017

    I'm looking at the DIEP flap in September. I did ask about weight gain but I'm not sure of the answer. There are several other longer forums that address the DIEP flap, I don't have the time to scan them all. I am wondering if my waist would be smaller but it sounds like maybe not. I wonder if we can search inside the forums.


  • BellasMomToo
    BellasMomToo Member Posts: 305
    edited May 2017

    I would also be interested in the answer to where the fat goes when you gain (or lose) weight. I forgot to ask my PS that question when I had my DIEP consultation. He did tell me that liposuction would be necessary to make my waist defined and that insurance won't pay for the lipo. I'm post-menopausal and have that post-menopausal belly.

    I went ahead and had a UMX w/o recon because I didn't (yet) feel comfortable going with DIEP. I am considering having DIEP in the future.

  • tnd22
    tnd22 Member Posts: 65
    edited May 2017

    I was just told by my PS's assistant you gain weight everywhere just like you would normally. That's not quite the words she used but that's what I took it to mean.

  • Sassa
    Sassa Member Posts: 1,588
    edited May 2017

    Yes, you will gain weight and lose weight in your bust like just as anyone would who gains or loses weight.

  • Rlsteadman
    Rlsteadman Member Posts: 76
    edited June 2017

    I asked my PS that question today about weight lose. He said it would be the same as before. It My bust got smaller before then it would still do the same after reconstruction. The same for my abdomen

  • Karen316
    Karen316 Member Posts: 1
    edited November 2017

    Hi,

    Had died flap surgery almost five years ago. Everything went very well. Now as time is going by my breasts are getting larger and larger. Almost to the point where I would love to have a breast reduction. They are huge and very heavy. Look amazing and very real. The only good thing is that my belly is totally flat. No weight gain there at all.

  • StarlitMomMom
    StarlitMomMom Member Posts: 29
    edited May 2018

    I had DIEP and BMX November 2017, phase 1. Complications centered around the viability of the skin envelope, needed to have skin grafting which ended up becoming 3 additional surgeries. Just 24 weeks ago, but ended up with pretty nice breast mounds which no one, when I am in clothing, would guess aren't my own breasts. Lots of scarring from the need for skin grafts--a number of fat necrosis areas which I am slowly reabsorbing--not going under to fix them, waiting to do Phase 2 when the fat necrosis is naturally absorbed.

    I love the idea of my DIEP breast getting larger over the years! I was a DD, now more of a D, which should be fine, but I am also afraid that as I lose weight, it will happen in the bust area first.

    Now to the question, it was one I had before surgery and couldn't get a straight answer from docs. I am gaining in my legs, tummy can't gain weight as all fat cells are removed. I am at the same weight I was pre surgery, and the gain really is to my once thin and muscular legs. I went from being a "column shaped" person to a pear shaped person. I am now working diligently on weight loss, so hope the weight comes off first in my legs (they now look like my Mom's, haha) as I don't want to lose in the bust....

  • Lula73
    Lula73 Member Posts: 1,824
    edited May 2018

    I'll see if I can answer the questions throughout this thread...Fair warning-it's a little Long but it is thorough:

    If you usually gain weight in your tummy will your new DIEP breasts gain the weight or will it still go to the tummy?

    The harvested fat has a memory. If you're a pear shape where you gain weight most noticeably in your lower tummy/hips, your breasts will now gain that weight. You'll still gain weight other places as well, but most moticeably the breasts. If you're an apple shape it will likely be a little different than for pears because apple shape gains from upper abdomen to lower abdomen where pears typically gain lower abdomen with upper abdomen being flatter/smaller. So an apple shape would likely have somewhat of a 50/50 - 70/30 split between the two areas. *See the 'boxy' section below*

    On the flip side you will also lose weight the same way. Additionally if your tummy was where you lost /gained weight noticeably first, you'll now lose/gain noticeably in your breasts first. Maintaining your weight after stage 2 DIEP is very important. If you do lose weight you can always go back in for a little nip/tuck that should be covered by insurance.

    Will I look boxy and have a scar around my middle?

    After stage 1 DIEP, the answer is not necessarily. After stage 2 DIEP the answer should be no. In stage 1, the goal is do mx (if needed), harvest the fat, and transplant it to the chest wall creating new breast mounds. after they've removed the swath of skin and tissue from your abdomen the will pull/stretch the skin back together. This is what gives you the boxy shorter waisted look after stage 1. Ideally the scar should sit low on the abdomen so that it can be easily hidden under a bikini bottom (and not one of the high waisted ones either). Sometimes they place it low from the start, sometimes they lower the incision line in stage 2. It's important to ask this question during your consult.

    During stage 2, your PS should recontour your lower half. This in addition to a lift on your new breasts helps restore a natural breast to waist to hip ratio. Additionally, they will do some light lipo across your abdomen (upper and lower) to help reduce any uncomfortable tightness you may be experiencing. For women who have the apple shape, they can do more aggressive lipo And something called plication in the waist area to recontour it to your preference. It's important to also ask about this during your consult.

    And they should be able to get all the recontouring procedures for your lower half covered by insurance. It's important to ask about this too.

    *Note that not all PSs agree with recontouring your lower half - their thought process is, 'you have boobs now and this is breast recon not a total makeover. Hit the gym!' The problem is hitting the gym does not fix the short waisted/boxy issue or correct the new breast to waist to hip ratio that's out of whack and can cause your pants not to stay up. The new shape is a direct result from the recon and correcting it should be too. Not all PSs know how/want to know how to get it covered by insurance so they either don't do it or have you pay out of pocket. The reality is, the new bottom shape is a direct result of reconstruction which is covered by insurance so insurance should and will pay for recontouring it. If your PS is committed to superior quality outcomes for you as a whole, not just you and your breasts, none of this should be an issue.

    What will Tamoxifen be like? Will it create new fat cells?

    Everyone's experience with tamoxifen is different. Some have horrible side effects, some have mild or no side effects. There is no way to predict it. The only thing you can do is try it and see how your body responds. You can also research different methods to deal with any SEs you may have (ie Curcumin supplements for joint pain & hot flashes). We all get BC at a different point in our lives. I've seen where many women who are in their 60-70s say they're discontinuing their anti-hormonal due to severe SEs after they've tried them all and tried to alleviate the SEs with any and all suggestions given to them. They usually also state that if they were younger, in their 30s or 40s or even 50s it would be different and they would continue to take them because they still would have decades more potential years ahead of them vs at their current age.

    Not everyone gains weight on tamoxifen. It's not like a steroid where you just blow up really quick. You also have to look at menopausal women from an age standpoint too when trying to compare. The older we get we tend to not be as active as we were in our 20s, 30s, 40s. Active = burning excess calories. Not as active and eating the same = weight gain thru excess calories. Plus our metabolisms start to slow significantly starting at around age 30. This means our bodies don't burn as many calories just to function (heart beat, breathing, etc). This also results in excess calories. All those excess calories result in weight gain. As a younger woman taking tamoxifen all of these factors apply somewhat but are still quite different than someone who older than you.

    New fat cells are not created because of menopause or because we're on an anti-hormonal. We are born with a set number of fat cells (granted they are very small and usually quite deflated). Those fat cells grow larger over time. They have a huge potential for growth. That's why once removed by lipo or surgery or freezing them literally til they die, you don't gain weight back in that area again. The only way we get new fat cells is when the original fat cell grows beyond its capability and (for lack of a better layman's term) splits in half creating 2 chat cells that can then grow. Again, a fat cell's capacity for growth is many times it's original size. And the splits usually occur when you hit the mid to upper end if the obese range.

    What's the point of going through all this reconstruction crap if it's not going to make me feel better? Maybe I'm asking too much...

    You are NOT asking too much. You should be able to honestly say you are happy with the results you get thru recon (not just happy considering you had BC and mx) or even thrilled with the results - you deserve it. Finding the right PS is a huge part of this. Ask your questions plus the ones i posted above in my comments. If you're not hearing the right answers move on to the next PS. If you're investigating a DIEP or SGAP flap, be sure you're only discussing your candidacy for the procedure with a plastics microsurgeon who does the procedure. A PS who does not do those types of procedures will almost always tell you you're not a candidate for it or you won't like the results. It's not in his best interest for you to go somewhere else to have your recon done. And he is not trained to even evaluate you for one of the flap procedures. It's like asking the butcher in the grocery store how to select a ripe cantaloupe. When you do start doing consults with PSs who do DIEP/SGAP, be sure to look at their before & after photos. Make sure they are photos of their work and not their partner's work or someone else's. If no pics, cross them off your list and move onto the next DIEP PS. If you look at their pics and wouldn't be thrilled to have the results you're looking at for you, cross them off your list and move onto the next DIEP PS. Don't think your outcome will be any better than what you see in those photos-odds are the photos are of their best work.

    Keep in mind that the vast majority of women travel for their DIEP or SGAP recon. Even with major nationally recognized teaching hospitals with cancer centers that have gotten every award imaginable that is right in your backyard, they may not have DIEP surgeons or may not have good outcomes. It's not the size or prestige of the facility, it's the skill of the surgeon and whether they are committed to superior quality outcomes. The more DIEPs they do, the better their skill gets. The more committed that are to superior quality vs just average quality outcomes, the more attention to detail/incision placement/recontouring they will have. They will also have flap failure rates well below the national average of 10% and they will have low infection rates (<2-4% is ideal).

    How do i know so much about this topic?

    I am a HUGE researcher. I've researched this procedure and many of the centers that do them from just about every angle you can imagine. And I've had BMX with immediate DIEP flap recon done. I chose The Center for Restorative Breast Surgery in New Orleans (aka NOLA on the BCO boards). I Traveled there from NC. I was worried about traveling, but in the end it was not a big deal. I am thrilled with my results. The results you see in their online before & after photos are the real deal - I'm living proof. (Link to their before & after DIEP flap page is at the bottom of this post.) I recently had the opportunity to compare my before photo with my 6 months post stage 2 photo and I look better now than I did then (and I looked pretty darn good then.) I can and do wear a skimpy bikini no problem, all the scars have faded nicely, the short waisted look from after stage 1 is no more, I don't have to wear a bra (but I do because my nipples still respond to cold), I can wear a non-underwire comfortable short cami style bra no problem and look like I did before wearing a push-up underwire, I do not get stares in the locker room at the spa when I'm changing-no one can even tell anything was done unless they look really closely (which in normal everyday interaction no one is that close where they basically have their face within an inch of my breasts/bikini line). Bottom line: with a highly skilled DIEP/SGAP Plastic Microsurgeon who is committed to superior quality outcomes, you can be truly happy or even thrilled with your results. I hope my answers have been helpful! I am happy to answer additional questions and/or communicate 1 on 1 if you would like

    https://www.breastcenter.com/result-photos/diep-photos/




  • SantaFeNM
    SantaFeNM Member Posts: 1
    edited February 2019

    I had Diep Flap Surgery in October of 2015. I also gain my weight in the tummy. Typical apple shape. Since the surgery I've gained 20 pounds and feel like most of the weight went to my newly reconstructed breasts. I did gain weight in my arms and back as well but primarily in my breasts. They are huge now. I am trying to lose weight and am hoping that my breasts will shrink.

  • Moderators
    Moderators Member Posts: 25,912
    edited February 2019

    Dear SantaFeNM,

    Welcome to the BCO community. Thanks for reaching out and sharing your story. This particular topic has not seen activity since May. That doesn't mean others will not see your post and respond but if you don't get a timely response you may want to start a new topic. Let us know if we can be of help. The Mods

  • JnSgober
    JnSgober Member Posts: 2
    edited February 2019

    I had DIEP flap reconstruction in December and my Dr was very quick to tell my I would gain and loose weight in my breasts just like I did In my natural breasts. I asked about the fat around the stomach and he said it would be the same as it was before. If I gained there before I would continue to. The body will not connect the new breasts to the midsection even thought that is where the tissue came from. Hope this helps you

  • Suziefromflorida
    Suziefromflorida Member Posts: 3
    edited November 2020

    I love your reply. I had my surgery done in Mount Pleasant, SC and my surgeon was assisted by one of the surgeons from New Orleans. Question since you seem so very wise on the topic. Have you heard of intestinal issues after DIEP? I’m nine weeks out and have been having horrible gas pains that wake me up at night. The pain feels like an ovarian cyst. Same pain and location. I no longer have ovaries. They hit me at night and almost bring me to tears. If I wake up and take some gas x and message the area to release it, I can get relief.

    Sincerely

    “Boxy Waist”

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