Starting Chemo in December 2013

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  • RobinLK
    RobinLK Member Posts: 840
    edited October 2016

    Thanks ladies. Slowed down a bit. Tolerating my new meds and in a holding pattern on the lung nodule.

    Ooh Kimie how exciting!

    Yes...please share CFR!!

    Happy your trip to Wisconsin went well. Family drama is best on a tv series

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  • missy6758703
    missy6758703 Member Posts: 218
    edited October 2016

    my shift key is not working, so therefore we shall have no capital letters in this post....but if i could i would scream fuck fuck fuck!!!!

    so i told you all earlier i was having some heart issues....well then i got very sick when i got home from amsterdam and had a cat scan done....nobody told me any results so i just figured all was well with that. it appears all was not well. i had my 3 year appt. yesterday with my oncologist and i asked her about it...she was surprised i had had one as nobody had sent her anything on it. we read it together and you could see how upset she was getting that nobody had sent her the report. as like robin,, i have a couple of nodules on my lung, a couple of enlarged lymph nodes and a large pericardial cyst next to my heart. i knew something more was going on because i have just not felt good. i guess this is a lesson in listening and knowing your own body. i have a pet scan scheduled for nov 1 and an echo on the heart nov 2. oh....forgot to mention....my fucking implant on my bc side has ruptured. again...i knew something was wrong but nobody seemed to listen to me.

    i am going to attach the ct report on here....maybe some of you ladies have some input. i am scared but also just going to have faith that everything is going to be ok.

    three years for us all.....time flies when we are having fun, huh?

    thanks for letting me vent!

    love to you all

    michelle

    image

    image

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  • kimie06
    kimie06 Member Posts: 215
    edited October 2016

    fuck cancer ! Uugh Michelle. I am on my phone and can't see the report clearly but will have a look on my PC.

    I have a granuloma on my lung that they've watched since this whole shit show started, it's been the same. I'm going with yours are that too., and it's a dam good thing you had this apt come up!! Was anyone going to bother sending off a report etc to your dr. Grrrrr.

    Are they going to drain or asperate the pericardial cyst?

    I'm sorry this stressor is in your life right now. I'm sending up some prayers. I've been thinking about you all day after your reply to my Facebook post.

    Robin I'm happy to hear things are ok. Why can't we all just be healthy and happy....I don't think that's too much to ask for, all things considered.

    ❤️ To all.

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  • RobinLK
    RobinLK Member Posts: 840
    edited October 2016

    Michelle, never a dull moment it appears. How infuriating that no one had the decency to contact you or your oncologist. Negligence, I feel. I am not in a doctor loving mood....it truly makes me so angry when they do not listen to us....they may have years of training, but we have more experience with our bodies. I love that my new team listens and then acts. Hoping for benign results Michelle.

    Today I get to rip my PCP a new one.....or at least tell him how I feel about him not listening to me. It should be a "fun" appointment....NOT... I want to fire him, but I don't feel like looking for a new PCP....I guess it will all hinge on his responses

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  • RobinLK
    RobinLK Member Posts: 840
    edited October 2016

    Missy...how are you?

    My prior response I will blame the exemestane....I was smack dab in the middle of a constant rage on that med.

    Met with MO...about to try Arimidex. Please pray that this one is easy on me. Thank you.

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  • keepthefaith
    keepthefaith Member Posts: 2,156
    edited October 2016

    image

    Hi Ladies,

    I just finished a week long tour of watching 2 of my grandkids...gotta love 'em, but happy to have it behind me! Whew! They are 2 and 4 yrs old. I am reminded of why we can't bear children at my age!

    Robin, Must be frustrating going from one HT to another. I'm sure they will find something that works well for you!

    I hope the rest of you are well!

    I just realized my LX was 3 yrs ago on the 17th. I'm glad I have forgotten about it for a while.

    A few of us "Hill Country warriors" thread ladies are meeting with another group, for lunch in San Antonio tomorrow. So, it will be fun to meet some new ladies and visit with friends.

    Happy Fall Y'all!



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  • RobinLK
    RobinLK Member Posts: 840
    edited November 2016

    I hope you had a fun time at your get together! I am thankfully tolerating Arimidex so far.

    Missy - don't know how often you check here. Know you are in my heart and prayers.

    Jodi - I hope you are healing up from this past round of treatment.

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  • kimie06
    kimie06 Member Posts: 215
    edited November 2016

    Just poking in ..... all is well here, I am done my first semester and onto clinical again next week until christmas..... I am looking forward to that.

    Jodi - always in my thoughts and prayers

    Michelle - How are you?

    xo

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  • keepthefaith
    keepthefaith Member Posts: 2,156
    edited November 2016

    HI ladies,

    I hope you all are doing well and have a wonderful Thanksgiving. I'll be with my entire family at my DS's....my ex and his spouse will be there also, but nothing a couple of glasses of wine can't fix!:)

    Jodi, extra prayers going out to you:).

    (( HUGS and blessings to all! ))

    Terri

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  • Crazywabbit
    Crazywabbit Member Posts: 563
    edited November 2016

    Nice to hear from you Terri

    Hope everyone's T Day went well. I am spending the long weekend with my son in New Hampshire. I hope to fly to CA and spend Christmas with my other son and his wife in their new house.

    I lost my precious little dog last week. She was my heart dog who got me through my husband's long illness and death as well as my constant companion through out Chemo. The house is just so empty and quiet.

    Sending special wishes to Jodi and her family during this holiday season.

    3 year Mammo and US on the 5th. Getting anxious already.

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  • keepthefaith
    keepthefaith Member Posts: 2,156
    edited November 2016

    Barbara, so sorry you lost your sweet little baby. That is so hard. I hope your up-coming appts go well. Yeah, anxious is the word!

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  • kimie06
    kimie06 Member Posts: 215
    edited December 2016

    So close to CHRISTMAS !! I hope you all are well.....xo

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  • Lisaj514
    Lisaj514 Member Posts: 719
    edited December 2016

    same sentiment here to all you beauties. Happy holidays! It's been ages since I've posted. I'm well. Continued close monitoring with a few scares in there in between but all turned out ok. Had hysterectomy in July due to continued and worsening prolapse problems. Not related to cancer at all. And i am soooo much better, more comfortable in so many ways-like a huge weight taken off my pelvic floor. Kept ovaries as many protective factors to keep them until age 65 I was told even with bc history, for bone,cardiac and cognitive health. Husband and I are doing better in our relationship. We took a beautiful trip to Hawaii in sept and another trip planned to Alaska next August! We figure do things while we can and are still healthy. NO REason to wait. life is precious need to live it when you can you can!

    💕🎉💗🎄🔯

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  • kimie06
    kimie06 Member Posts: 215
    edited December 2016

    Merry Christmas to you all...........xo let's blow through 2017 in fine fashion

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  • Jodi040812
    Jodi040812 Member Posts: 383
    edited January 2017

    Checking in with everyone! Praying we have an uneventful 2017!! I am so happy you are all doing well. My Ibrance and letrozole combo is working. I am working full time and running my girls to practices and school it seems every minute lol! I have good and bad days in my head. The mind is the hardest thing to heal, but hey I was crazy before!!

    I want to thank y'all for all the support and prayers. I really feel surrounded by Love. I have not jumped on the other boards. Maybe once everyb3 months or so I poke in and look around, but I still can't admit I am one of them. I still post a lot on my FB page, and everyone thinks I am so open and brave. The truth is I am scared to death literally. I don't want to die. I want to see my girl a grow up. And then, I start to compromise bd say we'll if I could make it 10 years somehow emery would be 22, Ellison 18 and Lulu 13. I hate thinking about it. I'm praying though! Some say find peace but that feels like quitting- see my mind is nuts! I am doing good just day by day

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  • keepthefaith
    keepthefaith Member Posts: 2,156
    edited January 2017

    Jodi, so happy that you are doing well! I follow your posts on FB and you really are brave!:) I'm sure your family is super proud of you. I hope you continue to keep the beast at bay for many, many years to come. I have read many good things about the Ibrance combo.

    ((HUGS))

    Terri

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  • kimie06
    kimie06 Member Posts: 215
    edited January 2017

    Jodi so happy to see you poking around, I follow your page too !!!

    hope all is well with everyone !!


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  • Crazywabbit
    Crazywabbit Member Posts: 563
    edited February 2017

    hi all, hope you are doing well. I dodged a bullet today. I had been having pain in my upper back for 3-4 months, just one spot. Finally asked for a bone scan thinking this is it, stage 4. Thank God it was just awful arthritis in my spine. Up and down it. I was freaking out when they took me back for another view after I thought I was done. But that was Ok. What a scare. I was planning my 90 day notice at work and all the cruises and trips I had to squeeze in the next 2 years. Terrible how we can obses with fear at each pain we get


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  • kimie06
    kimie06 Member Posts: 215
    edited April 2017

    Cwazyrabbit, its been a while since I have popped on, life is getting in the way, well more school is getting in the way, happy to hear the scare turned out to be "good" news as good as arthritis can be, lol.

    It seems as though we are all busy, time moves on :) hope everyone is well.

    xo

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  • Crazywabbit
    Crazywabbit Member Posts: 563
    edited May 2017

    well missed the bullet with the bone scan but unfortunately not long lasted. My MRI now shows a spot that is probably a recurrence. They cannot see it on the US or Mammo but since lobular grows in layers it may not show up until very thickened. So long story short I am scheduled for a simple mastectomy in June after I get back from my family cruise. Though about DIEP, the only reconstruction, I would consider but I do not want to spend eight to ten hours under anesthesia. Not worth the risk at my age. I can always do reconstruction later if I am unhappy.

    Really hoped to get longer then three and a half years.

    Wishes for all of you for a good summer. I will enjoy taking my sons and DIL on an Alaskan cruise next week. I will not tell them until after the cruise. Do not want to spoil it for them.

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  • chicopeach57
    chicopeach57 Member Posts: 166
    edited May 2017

    So sorry to hear that, you know we are all here for you. Cancer sucks

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  • keepthefaith
    keepthefaith Member Posts: 2,156
    edited May 2017

    Barbara, I hope your MX goes well and there are no complications. ILC is sneaky. It sounds like your Dr's are staying on top of it. Pls keep us up-dated. So nice that you are going on a cruise-to Alaska, no less! Send pics:). ((HUGS))

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  • RobinLK
    RobinLK Member Posts: 840
    edited May 2017

    Damn....so sorry Barbara. ILC is sneaky. I did the UMX with no reconstruction. I can understand not wanting to be under that long. As if chemo did not steal enough brain cells... You are in my prayers.

    I am on here pretty regularly as I reside in Crazytown with a fantastically supportive group. Our chemo group can never be topped though. Love you all!

    Crazytown Link***Click here!

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  • missy6758703
    missy6758703 Member Posts: 218
    edited May 2017

    Barbara you will be in my thoughts and prayers..... damn you cancer!!!! The fear and anxiety never really goes away, does it? We are all heading towards 4 years from diagnosis.... seems crazy.

    I had a huge scare in October when the whole area between my breasts lit up on the PET scan. As most of you know from Facebook I had surgery through my neck where they went behind the breastbone and were able to get some good biopsies.....no cancer present but all of the lymph nodes were basically dying from the inside out...probably caused from infection but I still think it's a reaction to the implants. Just switched from tamoxifen to femara on my meds so we will see how that goes.

    My son graduated with his masters of Architecture and is moving to Portland next week and my daughter continues to work and lives with her boyfriend. My life didn't quite go as planned when I discovered John cheating on me.... he blamed me for cheating on me because he was lonely and I hadn't moved there yet..,,wtf. Glad I hadn't! Something kept holding me back and I am glad I listened to my gut instinct. I learned what narcissism is.... I saw all the signs for so long but I guess love is blind. Lesson learned....

    I hope you are all doing well! I think of you so often!

    Love, Michelle

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  • Lisaj514
    Lisaj514 Member Posts: 719
    edited June 2017

    Barb, yes I agree with all, DAMN cancer! So sorry to hear this but you'll come through just like you did the first time. You got this!! Keep us updated. We are here for you.

    You are probably on your trip now. Hope it is a great experience. So glad you can do this before your surgery. Share pics. (We are also taking an Alaskan land/sea cruise, end of July.)

    I think of all of you often and can't believe what we went through 3+ yrs ago. We are all still fighting

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  • Crazywabbit
    Crazywabbit Member Posts: 563
    edited June 2017

    survived my UMX with some heart arrhythmia problems. Needed to spend the night on a heart monitor due to rapid atrial fibrillation. I got home yesterday feeling pretty good. Best news today. NO CANCER found in the breast. What a relief. Sad to go through all this for a false positive MRI but better then worry for the next 6 months getting follow up Scans. Now I can stop worrying that the AIs were not working and if it was recurring in the breast it was going to pop up elsewhere in my body soon

    Now I can plan my future and not hand in my retirement papers yet. Maybe early next year. For now heal and enjoy 4 weeks off work. I did get online last night and checked messages from my office. There were some waiting for me already.

    Friends have set up dinners being delivered for the next ten days and lots of flowers here now. I feel so pampered and loved.

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  • RobinLK
    RobinLK Member Posts: 840
    edited June 2017

    What a relief. Rest up and continue healing. So thankful you had positive results.

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  • keepthefaith
    keepthefaith Member Posts: 2,156
    edited July 2017

    Barbara, so happy to read your news! I hope you had a great time in Alaska.

    Nice new avatar, Lisa!

    I have a 6mo MO follow up next month. Stopped taking Tamoxifen in January. No reason, other than my gut told me it was time and a few annoying SE's. I justified it by finding a study that said 2 yrs vs. 5 yrs, made 1-3% difference in a 10 yr recurrence (if I remember correctly). So I made it 2.5 yrs. I guess I will see what MO has to say about that. I have read about a topical form of Tamoxifen. I may ask her about it.

    I hope all is well with the rest of you lovelies. My DS, DIL and 2 Gk's are coming over in a bit. We'll have dinner and watch the fireworks. They're within viewing distance of my house, but we'll probably drive a bit closer to get a better view.

    Happy 4th!


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  • Jodi040812
    Jodi040812 Member Posts: 383
    edited August 2017

    barb what fantastic news!!! Hey ladies!! I am still doing good❤️. Had something pop up on my MRI, but had PET scan, CT and a x-ray and they said nope! My CA-15 marker went up since last Nov from 35-38. I read that inflammation can effect it, and my reports said chronic inflammation (well duh! I've been saying that) in my neck right side. I don't think my body appreciates the rods, metal mesh and screws lol🤷♀️!!! So! I have decided to really cut back on my sugar intake. Salads mostly for lunch starting next week since I go back to teaching. Yes, still working and coaching - I have quitting issues 😂. Just wanted to drop in and say I'm still swimming and reports still say no active cancer again. Side effects are sucky, but y'all what an amazing path so far. I just wish the neck shoulder pain would lay off. It is my new normal, and trying to come to terms with it. Love to all of you.


    Jodi

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  • keepthefaith
    keepthefaith Member Posts: 2,156
    edited August 2017

    Jodi, so good to hear your news!!! That's amazing. Your girls must be so proud of you:)

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