Calling all TNs

Brneyegrl6608, I already did 5 months of chemo with 4 drugs - kind of need some new options. I'm just hoping that whatever I get this time is easier. I was nauseous 24/7 and got so run down last time.

Brneyegrl6608 - Thanks for the well wishes. This round of chemo is prophylactic. I just had a double mastectomy and am really cancer free at the moment. It's just that they think my chance of recurrence is very high.

Good luck on your upcoming chemo. I was very nauseous but not everyone is so I certainly hope you are fine through out yours!

Anyone heard anything new about the Metformin trial? It's been going on for a while now. I wonder if there's any preliminary findings?

Thank you Brneyegrl66 !!!!

oh Shirley, I so hope it's scar tissue. Please know we are here for you and praying while you wait. xo

Shirley, - I hope the dr was just being overly cautious and soon gives you B9 results!

Shirley please keep us posted. Here is hoping for scar tissue.

Lovemyvizsl...no, none of my nodes were positive. My surgeon and oncologist couldn't believe it. They told me they feel that the cancer "may be out there" in my system anyway as they can't detect microscopic errant cells. They did tell me the technology for microscopic detection is coming soon. Anyway, clear nodes is the positive I am hanging onto!

Shirley - I'm sending prayers and all the positive energy I can!

Shirley-- sending positive thoughts and prayers.

Warrior 2016--- glad to hear that nodes are clear.

Cathytoo---I only had TC-- 4 rounds.

I am also a member of this club no one ever wants to join. I had a lumpectomy, AC 4 times and then 12 taxol and carboplatin chemos. Now I have completed 20 of 31 radiation treatments. I have read this thread occasionally since this fun journey began last July but I was reading a lot that scared me 1/2 to death and decided I was better off not even reading. But yesterday Mayo sent me a new schedule which includes a lot of testing in July and my heart sank. I have been concentrating on just getting through today since last July and haven't even tried to look ahead. Now that's I am getting close to the end of treatment, I have no choice.

My oncologist mentioned a new trial that is still going through the final approval process and hasn't started yet. She said she'd go into more detail when she saw me in July as all approvals should be complete by then. I believe it consists of a shot and then low dose chemo pills. Has anyone heard anything more about this? I'm wondering about those chemo pills (and there's always the chance that I'll be in the placebo group) and my hair. I really want my hair to come back but not as much as I want to live, I suppose.

I also read something here about Xeloda. When I googled it, it looks like this is for metastatic breast cancer only. Is that correct and is anyone on this? When I saw the side effects, my heart sank. I've had enough of those SE with treatment so far. No one at Mayo has ever mentioned this drug to me. Is it something I need to be asking about?

Thanks everyone.....I guess it's time to take my head out of the sand I've buried it in

I had TC x 4; my onc intially said DD AC then Taxol x 12 weeks but then presented my case to 6 other oncologists and four out of the six said they would recommend TC x 4 so I went with that.

I always use my date of dx bc that's when I started fighting. Use whatever makes most sense to you 😁

I have read 3 yrs and 5 years. I have never heard 2 yrs.

greenae, I'm sure we all want to believe that. I know my dr. told me that at 5 yrs., you have no more chance of getting a reoccurrence of TN than someone who has never had BC at all. I'm curious if there are ladies on here who have had a reoccurrence and how long did it happen after the first diagnosis

I'd kinda like to know how they distinguish a recurrence from a "new primary".