Adjustment to Implants?

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NotVeryBrave
NotVeryBrave Member Posts: 1,287
edited February 2018 in Breast Reconstruction

I just had BMX less than 2 weeks ago. I'm very concerned about how things look. I've been told by the BS, the PS, and a PT that the healing looks good, but it's not that. I told the PS that I wanted to stay the same - would prefer no surgery at all if that were an option. Not that my breasts were so great - they were smallish (B cup) and kind of saggy - but soft and not uncomfortable. What I have now seem to be too big/wide and oddly flat at the same time. How much of that will change? I know that there's still some swelling - drains were removed after 6 days, but there are some areas of fluid. The PS tried to draw off one area a couple of days ago and was not successful. The plan is for my body to reabsorb that fluid eventually.

I'm really worried about my eventual acceptance of these new breasts. I had the option to do lumpectomy with radiation and I don't want to second guess myself. I chose this route mainly because I didn't want to keep worrying about "stuff" they saw in the other breast and the risks of radiation. I also was concerned about the possibility of re-exicision for lumpectomy and probable other surgeries for symmetry. But this is so uncomfortable! I feel like I have a burning, tight band around my chest and the upper areas are so sensitive. It's such a weird mix of numb and painful! Does this resolve? How long? Will implants that look too wide or big change?

I'm so afraid that I've made a huge mistake. I get really upset thinking about it and it's always on my mind. I'm very grateful that the chemo was successful and that the lymph nodes were negative, but I'm just so tired and ready to be done.

Comments

  • tnd22
    tnd22 Member Posts: 65
    edited May 2017

    NotVeryBrave, I had my BMX 5 weeks ago so I am just ahead of you. Things will get better! Your breasts aren't done yet, don't judge how they look now as final. Are you having other reconstruction later? I was a large -DDD- size and would like to be at around a C cup. I have expanders in now, and yes, they don't feel right. Eventually the pain should fade. I know lots of people who have said it feels like a band on their chest. Mine does not, for whatever reason, but that is normal. Nerve endings wake up when I change clothes to sleep. The scar has receeded and is almost flat -yeah! My left side can feel just about everywhere but my right top above the scar is numb. I was told it might all be numb, and might not come back. It all sounds normal from my limited experience. Do you know personally others you can talk to about it? I found about 10 people quite easily, I interviewed them and found everyone is different and there is no real normal.

    Try to have peace of mind that the cancer is gone Let your body heal and know you are more than what your breasts look like.

  • NotVeryBrave
    NotVeryBrave Member Posts: 1,287
    edited May 2017

    Thanks, tnd22. I appreciate the response. The plan is for no further reconstruction - except maybe fat grafting if needed. I had the immediate implants, above the muscle.

    I'm trying to be patient but just so fearful that what was supposed to take away a lot of concern has just added more. I miss my breasts more than I thought I would, I guess. And I know it's all compounded by being so tired and sore. I hate looking at myself right now.

    I'm trying to breathe!


  • candles1
    candles1 Member Posts: 77
    edited May 2017

    notverybrave, I also had above the muscle immediate reconstruction. I'm almost 3 months out. I can't say I had pain, but definitely a very tight feeling that I was afraid was permanent. And the surface skin felt like it was constantly sunburned. I was afraid to side sleep.

    That all faded by about six weeks. Now, I mostly feel like it's all completely "me." I side sleep and do everything I used to do. I think the sensitive burning feeling is the skin stretching a bit to accommodate the new implants. The tightness is just the internal bra/stitching and eventually it all settles. Hang in there! You made great decisions!
  • NotVeryBrave
    NotVeryBrave Member Posts: 1,287
    edited May 2017

    candles1 - Thanks for the reassurance! It's one thing to hear it from the doctors - entirely different to hear it from those who have lived it. It's hard to not freak out, honestly.


  • Sunrisefish
    Sunrisefish Member Posts: 67
    edited May 2017

    Hi Notverybrave, I just had BMX with immediate gummy bear implants above the muscle on May 17th. Like you, my new breasts are hard to get used to. They are hard and lumpy. This is normal at first. Many women say it will get better, and plastic surgeons can work wonders. Don't regret your decision to have a BMX instead of lumpectomy and radiation. That was my decision during my first diagnosis in 2014. Oncotype scored a measly 3. Cancer came back in the same breast less than 2 years later anyway. My reconstruction is more high risk because I had radiation. None if these decisions are easy, but BMX helps us get off the continual cancer wheel.

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited May 2017

    NotVeryBrave - I thought I'd answered you on another thread?

    Anyway - step away from the mirror. It will take 6 weeks to 6 months for any implants to settle in. There's internal & external swelling & settling & accommodating. You can read about similar questions & histories on the Exchange thread.

  • NotVeryBrave
    NotVeryBrave Member Posts: 1,287
    edited May 2017

    Sunrisefish - Thanks for responding. I'm very sorry that you are facing this again. Will you need further treatment? I hope your recovery is smooth and uneventful.

    MinusTwo - Yes, you've responded to some other questions and concerns I've had. Thanks. Sometimes it's just easier to post a question or ask for help then to try to go through thousands of posts.

    I'm doing a fair bit better lately. Last weekend was a train wreck emotionally. I think I'm coping better now. It helps to be feeling better. Just today, I've noticed less continual burning which makes life easier!


  • Sunrisefish
    Sunrisefish Member Posts: 67
    edited May 2017

    minus2, I LOVE Your advice and am going to take it!

    Notsobrave, They were not able to take out more lymph nodes, since I had that done in 2014. I have gone through many scanning procedures of lungs, liver, etc. They do not think the cancer has spread outside my right breast so still not recommending chemo. Pathology report on both breasts showed no cancer besides the one lump. They are recommending Tamoxifen. I hate that drug. Was not able to tolerate side effects last time, but will try again.

  • Mammabear
    Mammabear Member Posts: 18
    edited May 2017

    notverybrave, I had BMX with immediate implant reconstruction on 10 April. For the first two weeks it was horrible. Everything looked lumpy, and I was in a lot of pain. The BS assured me that it was looking good and would get better, but of course it is hard to believe at the time. Things started to feel a bit more normal at 3 weeks, as I was able to start to do more things and get a bit of independence back. I am feeling much better now (post 6 weeks) and they are looking less bumpy and more "boob" shaped.

    Something that really helped was gentle massage of my foobs with moisturiser. It is supposed to help with the healing and reduce scars, but it is also helping me to get used to the idea that they are part of me. The tight feeling is gone most of the time, but occasionally I feel it just to remind me that I am not quite back to normal. There are still a few lumps, but I am hoping they will smooth out. I have quite a few ripples which appeared after the swelling went down (3-4 weeks). My BS says she can fix them with fat grafting. I think I will just learn to live with them as I am not keen on any more surgeries.

    Anyway, I hope you are doing OK. I am happy with my decision to do the PBMX but it has been a tough few weeks

  • NotVeryBrave
    NotVeryBrave Member Posts: 1,287
    edited May 2017

    Mammabear - Thanks for your input. It's so reassuring to hear from others! I'm glad things have improved for you.

    I have some rippling and dents already. Hoping things will settle down before too long. The worst discomfort is still along the areas where the drains were - kind of hurts on my ribs. And I mostly worry that these implants are too wide. I'm hoping it's just remaining swelling.

    I don't know if I'll do fat grafting down the road, either. I don't want to be too picky. Or risk having it turn out bad.


  • Sassa
    Sassa Member Posts: 1,588
    edited May 2017

    I had bilateral mastectomies ten tears ago and went flat for two years. I then had delayed reconstruction with TEs and silicone implants.Because I had the delayed reconstruction, I was completely healed from the mastectomies and had regained flexibility and strength in my chest area (physical therapy and then exercise). The TEs didn't cause me any pain during the fills and the exchange was a breeze.

    When I first had the implants, they were hard and sat up high on my chest wall. It took six months to a year before they "dropped and fluffed" and the process continued for the nest three years.

    My implants are now nice and soft, I have a mammary fold, and a bit of jiggle when exercising. I actually prefer the implants over the original equipment.

    Right now you need to remember that you need to recover from the mastectomies. The pain and tightness you may feel are mostly due to the mastectomies and not the implants. The tight band around the chest is because nerves were cut during surgery and you feel the lack of sensation as a tight band. Nerves will regenerate. The nerve regeneration is not fun; you may feel intense itching, a burning pain in back by your scapula, or my favorite, what I call death by a thousand bee stings. Each time the itching, burning, stinging stops, you will again have sensation in some part of your chest.

    When your surgeon clears you, ask for a referral for physical therapy to regain movement in your upper body and flexibility. After physical therapy, exercise with light weights and other exercises and stretches need to be part of your life. It will have help your chest muscles stay strong and flexible which means your implants will ride easy in their pocket.


  • Sunrisefish
    Sunrisefish Member Posts: 67
    edited May 2017

    Thank you Sassa, it's great to hear from someone who is 10 years out and to be reassured that there is light at the end of the tunnel!! Really appreciate all of the posts here. Thank you ladies.

  • SummerAngel
    SummerAngel Member Posts: 1,006
    edited May 2017

    I just want to add that if you're still feeling like the implants are wide and flat (I've heard the term "hamburger buns" more than once) after a year or so, it's a very simple operation to change them to a different style. I was very specific with my PS about not wanting that effect, so he used "ultra high profile" implants on me. I'm extremely happy with the results.

  • peyton3
    peyton3 Member Posts: 43
    edited May 2017

    I am exactly one year out from a double mastectomy followed by immediate reconstruction and I have had problems from day one. I have been in extreme pain from the very beginning. I was adamant about staying the same size which was a B cup. I am a small person, 5 feet tall and small frame. My PS never listened to a thing that I said, he put in 500cc implants and never even asked me or told me he was doing this. For the last two months I have had this tightening and clinching of my implants, sometimes it feels like I am being crushed literally. If I am sitting down it feels like the implants are crushing my ribs, so driving or riding in a car are not good, nor trying to watch TV. I thought I might be getting capsulation but then they will softened up again. Went to a new PS yesterday to see if exchanging to smaller implants would help me, she said it might help relieve some of the pressure on my ribs, but she could not say for sure. Told me to think it over and then decide. I can't stand this I am just about ready to say just take them out period. What really upsets me is that these PS do not want to admit there is such a thing as PMPS.

  • DanielleT
    DanielleT Member Posts: 9
    edited May 2017

    hi excuse my ignorance but what is PMPS ?


    Sorry you are having trouble with your mastectomy and implants ... all this chemo, radiation and surgery can be so all- consuming ... it's a lot to carry ... glad you haevthe sisters on this site who have al,ready ten through this surgery ( mine is scheduled for June 19)

  • NotVeryBrave
    NotVeryBrave Member Posts: 1,287
    edited May 2017

    Sassa and SummerAngel - Thanks for the input on your successful surgeries. It helps so much to hear from others. I appreciate you taking the time to address these issues for me and others.

    Peyton3 - I'm so sorry that you've had all these problems. I would maybe do more shopping around for a PS that has a plan to help you. How discouraging it must be!

    For my part - it is getting better. I think part of the problem for me was plain exhaustion. I was SO ready to move on! It doesn't really work that way, though. :-(

    I'm 3 weeks out now. I still have some of that pressure feeling as well as some sensitivity in the upper chest and pain under my arms and at the outer edge of the incision line on each side. I only take ES Tylenol a couple times a day. I can sleep sort of tilted to the side without a problem - just tuck a tiny pillow into my armpit, along the breast. The bruising is almost completely gone as well as the peeling of the skin. The R nipple acts normal even though I can't feel it. The L one is still kind of weird - we'll see.

    I do go to a center that specializes in lymphedema for PT. I have a little cording under the L arm. They gave me initial exercises to do and they do a type of massage therapy for the cording. Waiting for okay from PS to increase allowed exercises and movement.

    I have to say that I've already considered different implants. These just seem too wide for the space, but maybe they'll change. I'm sure I won't do anything for probably at least a year. As much as I researched everything I went through - the surgery was kind of a last minute thing and in some ways I wasn't thinking clearly enough to ask enough questions. I assumed my PS would know what to do to get me back to "original" as much as possible. I see him tomorrow and have a few questions. ;-)


  • Smpr
    Smpr Member Posts: 18
    edited June 2017

    I am 3 months out from direct implant. My implant has been a problem since the 3rd week started as a burning itch. Now it is a constant burn with hardness that comes on goes. Have talked to the ps and he wants me to wait and see. The burning feeling goes all the way up my neck,around to the back and down past my elbow. I sleep with an ice pack changing every couple hours. Did have some relief while on Benedryl and steroids. Not sure if I can take it another month when I see him again

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited June 2017

    NotVeryBrave - be sure you talk to your doc before you start anything new. I have anatomical implants and my PS was very specific that I DIDN'T massage.

    I am now 6 years out and I'm happy with my implants - as happy as one can be w/o the original equipment. You can always look at a revision down the road it you still don't like them, but let some time go by to get the anesthesia get out of your system and build your health back up first.

  • Artista928
    Artista928 Member Posts: 2,753
    edited June 2017

    I am glad that insurance is required to cover adjustments after perm implants are placed because it's not cosmetic but attached to the bc dx. My right one is lower than the left (which was over radiated and is currently giving me issues with a small leakage that hopefully will be fixed with these stitches). If the implant needs to come out, it's 6 mo and ps will put it back in and adjust the right side at the same time. If not then I wait a month to make sure left is fine now and get the right one adjusted. Can't wait.

  • NotVeryBrave
    NotVeryBrave Member Posts: 1,287
    edited June 2017

    My PS lifted any restrictions at my appointment last week and PT has moved me up to the exercises for increasing ROM for raising arms. I'm feeling pretty good most of the time. I only take ES Tylenol occasionally - mostly for the area on my side that feels like bruised or pulled ribs sometimes.

    The PS stands by his choice for implant - something about them fitting my frame and "the pocket" - but I never had breasts that stuck out to the side where my arm brushes them. It seems by his remarks that it's more about me getting used to them than about anything with the implants changing. They are Mentor, anatomical shaped and textured.

    Question about sensation - how many of you gained sensation in the numb areas and/or lost the extreme sensitivity in the others?


  • Artista928
    Artista928 Member Posts: 2,753
    edited June 2017

    In Aug I'll be 2 years out from bmx. I've just started getting back a little more sensation from having basically 0 including part of my upper arms. PS says it's the bmx because it cut nerves and may or may not regenerate. Everyone is different. Some get it back and some don't get any back. There is no "expiration" date on when sensation may come back.

  • NotVeryBrave
    NotVeryBrave Member Posts: 1,287
    edited June 2017

    Well, as usual, nothing ever seems easy with me. I developed some pink areas and new discomfort on the L side last week and ended up in the hospital for three days for IV antibiotics. I've been home for a week on two oral antibiotics and have another week to go.

    I never had a fever or any blood work changes - thankfully. An US showed two areas of probable fluid, but they can't say if those are infected or not. I saw the PS a couple of days ago for follow up. He doesn't know when the areas will go back to normal skin color - still look a little pink now. I see the Infectious Disease doctor next week for follow up.

    I'm worried since there doesn't seem to be a good way to know if the infection is gone. I have a lot of odd pulling sensations there. I'm wondering if it's normal to still have painful areas 6 weeks after surgery?

    I'm so sick of trying to be patient with how I look and feel! The "foobs" are too wide and a little flat. I have no idea of what "normal" bra size or style to try - or bathing suit! And now I have the threat of having one removed for infection! How does that even work? I had skin/nipple sparing surgery.

    Anyone had these experiences?


  • Mariev
    Mariev Member Posts: 4
    edited February 2018

    Hi there:

    I just read your information on burning and itching. I have a breast removal, expanders and 1 year later the implant in. I have itched and burned on my stomach and back for 13 months. I put on hylatopic cream from Dr., but nothing seems to help. Can only wear cotton and no bra. Horrible. I hope this gets better. Let me know how you are doing now? thanks Marie


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