daughter pressuring me to have genetic testing.
I'm 67 years old and just diagnosed with a second cancer in my right breast. Thirteen years ago I was diagnosed with stage 3 invasive lobular carcinoma in my left breast. I had a mastectomy, chemo, radiation and 5 years of exemestane. My oncologist sent me for genetic counseling and because I have no family history of breast cancer and few cases of any kind of cancer in my family the counselor let me decide about genetic testing. I've had treatment for hydrocephalus and a brain tumor (benign) removed in the last year. I've become anxious and totally phobic about any kind of medical procedure because of these life experiences. So I decided to forgo any genetic testing. Now my daughter is upset and frightened that we may have a genetic form of breast cancer. She is pressuring me to have genetic testing. I've shared with her all of the above but she's not convinced that my breast cancer is probably not genetic. The thought of one more needle stick for a blood draw makes me shaky. What should I do
Comments
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soami, I wonder if your daughter could go get tested herself. Perhaps if she sees a genetic counselor and gives her family history (i.e. your history) that she will qualify to get the blood draw and get her own testing done.
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Totally agree with MTwoman...your daughter could totally get her own blood tested. With her family history, I can't imagine they would turn her away from that.
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Dear soami123,
Welcome to the BCO community. We are sorry that your new cancer has brought you here. it sounds like you have had quite a rough year already. We are glad that you reached out to us. As you can see already we have a supportive and informed group of members who can be truly helpful to one another. We hope that you will consider the feedback that you are receiving here. You also may want to read or have your daughter read more about genetic testing on our main site. Please stay connected here and reach out as you need. Perhaps you can navigate around the boards and find other forums that are also of interest to you. Please let us know if we can be of any assistance. The Mods
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Dear soami123,
Welcome to the BCO community. We are sorry that your new cancer has brought you here. it sounds like you have had quite a rough year already. We are glad that you reached out to us. As you can see already we have a supportive and informed group of members who can be truly helpful to one another. We hope that you will consider the feedback that you are receiving here. You also may want to read or have your daughter read more about genetic testing on our main site. Please stay connected here and reach out as you need. Perhaps you can navigate around the boards and find other forums that are also of interest to you. Please let us know if we can be of any assistance. The Mods
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I agree with the other posters - let your daughter get her own test done.
If you have it done, she will only know genetic results from your side of the family. If she has it done, she will have genetic results from both her parents' gene pools.
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Thanks so much for your feedback. I had discussed genetic counseling for her but failed to add the idea that she should get counseling because then she would have both parents genetics. Thjanks!
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Perhaps I can share my situation. I was the only one diagnosed in my family with Breast Cancer and had Genetic testing that revealed PALB2. this led to me having a dbl mastectomy and oophrectomy.
When I found out about the GENE my mom was out in the waiting room. The genetic counselor told me it would be of huge benefit to test my mom because she was the side of the family with sibblings who had cancer. She cautioned me that possibly it would cause my mom a lot of distress and to only ask her if it was something that she was willing to do. The reason is because I have 5 sisters and 4 nieces. It was important to know if my moms side of the family had PALB2 because of siblings with ovarian cancer and lung cancer. Each of them only have a 50% chance of having the PALB2 Gene its not a guarantee just because your parent the mutation.
My mom agreed to be tested and was negative for everything. It gave me a great peace of mind and helped guide my treatment and how I gave the information to the women in my family. In hindsight it would have caused my mom great emotional distress if she had tested positive. I know she would have felt responsible for my Breast Cancer. I would not recommend you get tested unless you have numerous children and are concerned about that information for them. Perhaps your daughter would consider getting tested though if she is negative there is still a 50% chance she didn't get whatever gene her parents might have had. On the other hand you are correct it would give her no information about her fathers side of the family.
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I did my full panel BC through Color Genomics. It is $249 self pay. It is also a saliva test not a blood test. They also have a program for family testing. Not really sure on the specifics. But you can check it out at https://www.color.com
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