BS won't send me home with pain medication

Isis02
Isis02 Member Posts: 13
edited June 2017 in Pain

First off l want to introduce myself. I have been looking at this site since my March 13th diagnosis of ILC and this is my first post.

I will admit that l was addicted to pain medications for years and found relief from the madness of addiction through Suboxone maintenance treatment. Since Suboxone is an opiate receptor blocker my prescriber and surgeon want me to abstain from the Suboxone for three days in order for the suboxone to get out of my system in the event l need an opiate for pain control after my BMX on the 29th. Then l am to resume my Suboxone when l no longer needed an opiate Doing this will put me through terrible withdrawals but l want to follow my doctor's recommendation.

While my surgeon has been very supportive today at my pre-op with my PS he was not supportive at all. Initially he told me he would send me home with pain meds. After he left the room his nurse came in and said she was unfamiliar with Suboxone and had educated herself regarding it, talked with the PS, who stated he would not send me home with pain meds. She told me this with her back to me as if l did not warrant a discussion of the matter.

I have not cried throughout my testing and diagnosis but l broke down today. I felt so stigmatized. I would not put myself through withdrawals for pain meds related to surgery. I just don't want to hurt and feel like l should be treated like any other patient.

Now l have bad feelings toward my PS. IF l was not so close to surgery l would find a more compassionate PS.

Part of this post is to vent and l am sorry it is so long. But l do have questions. Is it possible to make it through recovery without pain meds? Had this happened to anyone else?


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Comments

  • Isis02
    Isis02 Member Posts: 13
    edited March 2017

    Sorry. Header should have stated PS will not send me home with pain meds.

  • Beatmon
    Beatmon Member Posts: 1,562
    edited March 2017

    I can't imagine how you could go through surgery without some type of pain medicine. It doesn't seem that this is the right team for you. Good luck

  • MTwoman
    MTwoman Member Posts: 2,704
    edited March 2017

    Isis, I am SO very sorry that you are having to go through this stigmatization and alienation from part of your treatment team, at the same time as you are preparing to go into surgery. How horrible for him not to have had an open and honest discussion with you about his concerns, instead of sending in his nurse to tell it to (at) you. Shame on him!

    Now, as for your question, I know that there have been women that I've heard from on these boards mention not using prescription pain meds after mx surgery. If you don't get enough responses on this forum, you could also try the "surgery, before, during and after" (but delete this one first so you don't have 2 different ones running and potentially getting the same info from the same people).

    I am also wondering about your feeling that you would have horrible withdrawal from short term use of opiates. I'm sure that your addiction could be triggered (I've worked with clients who struggled with addiction), and having support set up for yourself in anticipation of this would be very wise, but I'm not as sure that a post surgical injection or 2 and a day or two of opiates (which is all I actually used) would leave you withdrawing. Most likely you'd want a wash out period before you re-started your Suboxone.

    Personally, I'd want to have a quick consult with the provider of my Suboxone (many doctors are NOT familiar with how to use this medication) and discuss a plan to support your care, use of medications for pain control, and coordination of care (when to stop Sub., when to use opiates, when to stop opiates and then restart Subox.) and ask for your providers help in being on your treatment team. Then I'd have a come-to-Jesus meeting with my surgeon and discuss this wrinkle in your otherwise already made plan. You deserve care as we all do. Please don't let yourself be treated with any less respect than anyone else.

    If the line has somehow been drawn in the sand around taking opiates home, then talk to your surgeon about planning to stay in the hospital until your pain is well enough controlled to transition to over-the-counter pain meds. You can't heal properly if your pain and swelling cause more pain and swelling, that causes pain that causes swelling; and your surgeon knows this.

    so sorry!! ((hugs))

  • Red_R
    Red_R Member Posts: 27
    edited March 2017

    Yikes. What type of surgery are you having? If it's a breast surgeon and plastic surgeon- maybe the breast surgeon will prescribe. I sure as hell wouldn't have surgery without pain relief.

    I'm so sorry you had this experience. It isn't like you're inventing cancer to get drugs. Sheesh.

  • MTwoman
    MTwoman Member Posts: 2,704
    edited March 2017

    Red_R, she's having BMX. I think her team needs to support her better.

  • Isis02
    Isis02 Member Posts: 13
    edited March 2017

    i am having a BMX with TE placement. MTwoman l just emailed my Suboxone prescriber and informed her of the situation. Since the breast surgeon was very supportive l will call him tomorrow and see what he can and is willing to do.

    I appreciate all replies as well as no judgment regarding my addiction history. Thank you for your support.

  • MTwoman
    MTwoman Member Posts: 2,704
    edited March 2017

    Good! I hope that the two providers can work together to support you in your care. Red_R is right, your bc has nothing to do with your addiction history. As long as you are being open with your team (which you CLEARLY are) you should be treated with respect and not suspicion. Let us know what we can do to support you.

  • 7of9
    7of9 Member Posts: 833
    edited March 2017

    Isis, Maybe they can keep you in the hospital for 2 - 3 days after and medicate or can you go in daily for a shot as needed? I dropped from the max dose down to half in just two days. Was down to Tylenol in a week. There should be a middle ground!

  • 7of9
    7of9 Member Posts: 833
    edited March 2017

    That's another reason I get so ticked off at people wanted to over regulate meds. It is/was just a matter of time until they screw it up for people who really need them.

  • ksusan
    ksusan Member Posts: 4,505
    edited March 2017

    I had bilateral mastectomy with regional pain blocker (injection at the end of surgery) plus Tramadol (which I didn't use, and which is not a typical opioid) and lorazepam (a benzo). A few lorazepams were all I needed. You might ask about this.

    That said, you deserve the respect and sensitivity due to any patient. I would look for a different office.

  • Italychick
    Italychick Member Posts: 2,343
    edited March 2017

    Some members of my extended family burned out their opioid receptors from long term use of opiates for pain, and were given other types of pain relief that worked for them. I would definitely be coming up with a pain management plan before I went in to surgery, whether it is with opiates or other medications. When you need pain medication, you need it. When my mom was dying from kidney failure, they used Ativan to help sedate her and keep her pain free because morphine wasn't working well for her since her opiate receptors were fried.

    Best of luck, make them come up with a pain management plan. To not do so is cruel, in my opinion. Prior issues with addiction has no place in making sure you do not suffer after the surgery.



  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited March 2017

    Not that this is for everyone (and certainly not me; bring me a bag of ice, a pain pill, and a book, and do it NOW!)--but my sister has terrible reactions to opioids and always refuses them. She's done BMX, DIEP, bilateral knee replacements, and an ankle replacement, all with celebrex and tylenol. She manages fine.

    But I agree with what's been said. A plan for pain control should be in place before your plastic surgeon gets close to you with a knife. "Gut it out" is a choice, yes, but it should be YOUR choice, not his.

  • JWoo
    JWoo Member Posts: 1,171
    edited March 2017

    First, congratulations on your recovery! It takes an incredible amount of work, and real will to change your life in that way.

    I will say: after my DIEP reconstruction, which was incredibly painful, I tried Norco, but had an allergic reaction, so they send me away with 800mg ibuprofen. Now, it was not enough, but, it was tolerable. You PS has to give you SOMETHING. It does not have to be anything addictive, but they had to have something in mind. There are several non-narcotic options. Also, a local, internal pain blocker is absolutely an option. Not to provide either of those would be criminal. Maybe she was just saying that she would not be sending you home with any narcotic? It just sounds like a communication error here. Between your BS, your pain management case worker, and everyone, there will def be a path. Hold tight, and don't let it derail you or your process <3

  • MTwoman
    MTwoman Member Posts: 2,704
    edited March 2017

    I'm glad others have some additional options for you to discuss with your team, but I don't think that your providers will be any happier about Benzos (Lorazepam, Ativan etc) as they are as or more addictive than opiates. Your prescriber and surgeon should come up with a reasonable plan (and maybe a back up plan) with you so you feel confident that your pain will be controlled and you can focus on healing. Hoping for a speedy recovery for you and much peace. ((hugs))

  • SpecialK
    SpecialK Member Posts: 16,486
    edited March 2017

    I would see if you can get your BS and Subloxone prescriber to work together and formulate a pain management plan. I would also pursue two things - an anesthetic block - called a paravertebral block, it functions like an epidural during childbirth but higher up, I had this during BMX. A number of other members here on BCO have also had this. The other thing is an OnQ pain relief system, a non-narcotic localized pain control pack you wear until it runs out. It provides pain relief to the specific area, not the whole body. My surgeons did not use this, but many do and it appears to work very well - again, many here on BCO have been able to have this. Employment of these two things may allow you to have good pain relief without narcotics, or with less need for narcotic pain control. Here are some links:

    http://emedicine.medscape.com/article/2000541-overview

    http://www.myon-q.com/why-on-q.aspx

    Wishing you the best, and hoping your docs can work together to provide you a successful and pain-free surgery.

  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited March 2017

    I had bilateral knee replacements last fall and an OnQ ball was used on both legs. In the recovery room, the anesthesiologist threaded a very small catheter into my upper thigh, to the area around the femoral nerve, and attached the OneQ ball. The local anesthetic numbed the area of the incisions for about 60 hours post-op, and I was able to walk on the new knees, very little pain, without any problem. I had one for several of the breast surgeries, too. They're absolutely great.

  • candles1
    candles1 Member Posts: 77
    edited March 2017

    Ask about a nerve block. My anesthesiologist used this, and I had no pain after my BMX. I didn't need or take any pain pills once I left the hospital (not even Tylenol). During my overnight stay, they gave me intravenous Tylenol and Celebrex. The nerve block (which did require an injection in the back) was amazingly effective

  • Meow13
    Meow13 Member Posts: 4,859
    edited March 2017

    I had a DIEP on left side very little pain. I only took pain meds maybe the first night. I switched to extra strength Tylenol and Tylenol PM. I did fine. There really isn't that much feeling after the surgery.

  • windingshores
    windingshores Member Posts: 704
    edited March 2017

    I had a paravertebral block for both my mastectomies. Make sure that no one gives you pain meds while the block is active- they are not necessary.

    The first time, some communication glitch must have happened because they gave me pain meds after surgery, including a pump, and I threw up all night, felt out of it, and generally suffered.

    The second time, if I could have worn a big sign,  I would have. I made darn sure everyone knew- no pain meds.  I woke up feeling pretty normal and really didn't even need a hospital stay. No pain for 2-3 days that time and recovery was overall more easy.

    That said, both times, I did need pain relief in the first two weeks. The pain was different both times, but at times intense, especially with the first one. I do think Tylenol could be enough.

    One thought: I did NOT keep pain meds in my system or take them early in the pain, as everyone suggested. Instead I allowed myself 1/2-1 pill later in the day when I felt I couldn't stand it. My daughter was having a brain procedure and I had to monitor her blood sugars in the hospital, so I had to strike a balance between being functional in terms of pain and not being out of it.

    Get that paravertebral block!!




  • Eian01
    Eian01 Member Posts: 30
    edited March 2017

    Sorry to hear about your situation, it's difficult to went through surgeries especially for suboxone addicts…Have a speedy recovery

  • runor
    runor Member Posts: 1,798
    edited May 2017

    My lumpectomy was extremely painful. I bled into the surgery site and was re-opened again, all internal stitches cut and dug around in looking for the bleeder, then all those internal stitches re-done and outer incision closed up again. I can only imagine that it was like hamburger in there! And it HURT! I had over 30 stitches in my lower bits after a difficult birth and they called the gardener in to give me an episiotomy with his garden shears, it was that epic, and it DID NOT HURT like this lumpectomy did.

    I stayed one night in hospital and was given Tylenol. Not even T3. Plain, old, useless as hell Tylenol. It didn't even get rid of the headache I had from having been sedated twice in a few hours. I do not consider myself a wuss, but I cried. I could not move. My breast felt like everything inside was ripping and tearing. No position was comfortable. I was in so much pain I was nauseous. I didn't sleep a wink. Pure hell.

    In my opinion, that was unethical. We have a standard of care we maintain when treating our farm animals and we do not allow pain like that to go untreated. In fact, I seriously considered going out to the tack shed and helping myself to a little of the horse pain meds, THAT stuff would have made sure I didn't feel anything for about 6 days! But I told Husband that if the surgeon said I needed more surgery because the margins weren't clear, and if I said, "Like hell I will!" partly it would be her fault for the absolute crap job she did of pain management. Because that is their responsibility. I wonder how many people refuse important treatments because of how badly they were managed first time around? Doctors and hospitals should HEAR about this. They are selling a service, you are the client, they get paid for what they do and if they do a bad job, they need to know. No one needs to be rude, but I did tell my surgeon that I was not happy with this aspect of my care, because it didn't feel like care at all.

    I am sorry this happens to anyone. There is no excuse for it.

  • dtad
    dtad Member Posts: 2,323
    edited May 2017

    Hi everyone. IMO we are going to see more and more of this. It is due to the opioid OD epidemic going on in our country right now. I have a debilitating painful autoimmune disease. I was on opioids to treat the pain but eventually weaned off of them and now on a low dose of suboxone. I won't go into the painful nightmare I went through for my BMX but it was atrocious! pain management docs are being scrutinized about their opioid prescriptions. I understand the seriousness of the ODs however I think we have to be careful when treating people with legitimate chronic pain. Good luck to all...

  • lrwells50
    lrwells50 Member Posts: 254
    edited May 2017

    Isis02, ask the PS (or maybe a different PS) about Exparel. It's a non-narcotic analgesic that they put in the wound, and lasts several days after surgery. I think it made a big difference in how much pain medication I took. There is also some sort of nerve block that my orthopedist told me to ask for, which I didn't, but probably should have at least explored. At the time he told me, I was two days away from surgery, so I didn't bring it up. That said, I'm not one of those (and not saying this is a good thing...) that doesn't want to take what pain medication is offered. I didn't see any reason to make do with ibuprofen if I had hydrocodone available which worked better. I do, however, think I COULD have made it with very little prescription pain meds if I'd had to, and I think the Exparel was one reason. I was lucky that my bed raises and lowers, making it easy to get out of bed, and my daughter came and stayed for two weeks and cooked. I wouldn't have needed her that long, but she lives in Indiana, and we don't see her often.

  • Tpralph
    Tpralph Member Posts: 487
    edited May 2017

    i agree with MT wholeheartedly. I had BMx with Diep immediately. Couldn't tolerate the hydromorphone and at day two just used Tylenol 3. When going home they fill in doc wanted to send me home with Hydromorphone tablets which I hadn't even been taking. So I told him no I did not want that it made me nauseous but if he could give me a few Tylenol 3 just to get me through some nights it would be helpful. He said no that he probably just give me some regular extra strength Tylenol so I thought that might be ok. Anyhow in the end I noticed on our way out the pain team had already prepared a prescription for Tylenol threes so confusing. Suboxone should only be taken when you're starting to go through withdrawal you don't take it before a withdrawal. Which I'm sure your Suboxone provider will tell you that. I think the best advice was to get your surgeon either your plastic surgeon or a breast surgeon to communicate with the Suboxone provider and work out a good plan or as someone said maybe perhaps stay in the hospital longer to manage your pain. There are a lot of people out there who are recovering from opiate addictions and more and more Health Care Providers are learning how to deal with this. It is not fair, just or right to send the patient home in pain which could be managed. I hope all goes well with you and good luck. My pain would have been somewhat bearable without the t 3 s at night but the pain is so much better with them to help me sleep comfortably

  • ksusan
    ksusan Member Posts: 4,505
    edited May 2017

    I begged for pain management for extremely painful biopsies, to no effect. Be assertive!

  • Meow13
    Meow13 Member Posts: 4,859
    edited May 2017

    Holy cow, I kept my drugs just in case. It is terrifying to think of suffering through severe pain. I would not want to suffer a withdrawal from pain meds either.

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited May 2017

    As everyone has said, you deserve a pain management plan. Your surgeon needs to work with you on this. Sorry they are being difficult. That said, I can't take opiates, and did just fine after BMX and all my recon surgeries with just tylenol, ibuprophen, and marijuana. A BMX is basically just a big paper cut. It hurts but its not debilitating. You will do just fine! :)))



  • ksusan
    ksusan Member Posts: 4,505
    edited May 2017

    FWIW, my BMX was pain-free. A few Lorazepams for jumpy muscles, no NSAIDS, no opioids.

  • dtad
    dtad Member Posts: 2,323
    edited May 2017

    ksusan...That's great but curious if you had reconstruction. That's really the most painful aspect of surgery. I have never heard of anyone who didn't have pain with that! Glad you didn't suffer.

  • ksusan
    ksusan Member Posts: 4,505
    edited May 2017

    I didn't have recon.

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