Feeling sad.

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kira1234
kira1234 Member Posts: 3,091

I'm 3 weeks out from a double mastectomy with no reconstruction. The decision wasn't my choice unfortunately. Breast cancer just sucks. Unfortunately my breast cancer returned after 7 years in the same breast.

Comments

  • Emily2008
    Emily2008 Member Posts: 605
    edited May 2017

    Yup, it certainly does suck. There's a ton of collateral damage with breast cancer, physically and emotionally.

    Are you considering delayed reconstruction? I can't remember if you chose not to get recon because of a medical reason or because you just weren't interested in going through it.

  • kira1234
    kira1234 Member Posts: 3,091
    edited May 2017

    I had to much damage from my original radiation treatments. Both my breast surgeon and the oncologist agreed reconstruction was out of the question Emily2008.

  • Icietla
    Icietla Member Posts: 1,265
    edited May 2017

    I am so sorry. (((Hugs)))

  • Emily2008
    Emily2008 Member Posts: 605
    edited May 2017

    I'm sorry, Kira. That's really, really tough. I imagine it will take some time to get used to your new body, and I have read many women here who do just that. In fact, they not only get used to it, they end up being very happy with their decision.

    Just a thought, once you feel up to it and have sufficiently recovered from your mast, maybe you could consult with a really experienced plastic surgeon who does recon on previously radiated skin. While your breast surgeon may be great for breast surgery, he/she certainly isn't the expert on plastics. Maybe do a search on these forums for someone. You never know...

    And big, gentle .

  • mustlovepoodles
    mustlovepoodles Member Posts: 2,825
    edited May 2017

    Emily beat me to it.  I'd suggest consulting with a PS or two. See what they say.  They may have a different opinion about whether reconstruction can be done and what kind.

  • kira1234
    kira1234 Member Posts: 3,091
    edited May 2017

    Thanks ladies but my body hasn't done well with the treatments I've had. My breast surgeon is isn't one to recommend this course easily. He was extremely sad about what I've been through.

  • HoneyBadger47
    HoneyBadger47 Member Posts: 98
    edited May 2017

    Kira1234

    That really sucks. People choose to reconstruct or to go flat for lots of reasons. There are pros and cons for both and it just comes down to a personal decision. If that decision was completely taken away from me, I would be really angry. 😡

    At three weeks out I would imagine the anesthesia, pain meds, and trying to heal from the surgery make a lot of us depressed. I know I felt down. I'm understanding what people mean when they call this disease a sneaky b*tch.

    Bravo to you for summoning the strength to get yourself together to go through this a second time.

    Be kind to yourself and cut yourself some slack while you are healing. Allow yourself to be angry and to process this. There is no shame in seeing a counselor to help you process everything. Maybe take control of what you can control. For example I lost my nipple in my mastectomy. If you did too, would it make you feel psychologically better to at consult a PS about options for nipples. I have read on here that fat grafting can help radiation damaged skin whether you decide to stay flat or not. Don't know if that is true.

    And I am not implying you have to have anything done to make everything better. I'm just a control freak and it would make me feel better if I could take some control back in some way. If that doesn't help you or if anything here annoys rather than helps, tell me to shove it! 😀

    I think you posted on the right board. I'm sure others will be along to help.

    @$&& cancer

    Hugs to you.

  • trinigirl50
    trinigirl50 Member Posts: 343
    edited May 2017

    HI

    You may have already investigated this, and if so I apologise, but maybe at a later date you might be able to do Gap procedure where they take tissue, fat and skin to replace radiated damaged tissue.

  • kira1234
    kira1234 Member Posts: 3,091
    edited May 2017

    trinigirl 50 I've never heard of Gap procedure. I'm totally flat now would it be something I could do now? I know that the surgeon took more tissue than he wanted to because it was so badly damaged.

  • kira1234
    kira1234 Member Posts: 3,091
    edited May 2017

    Honeybadger I'm thinking if nothing else to see a counselor might be a very good idea.

  • HoneyBadger47
    HoneyBadger47 Member Posts: 98
    edited May 2017

    Kira,

    I think a counselor would be a great place to start. I could probably use it myself with all we have to go through with this diagnosis. I may research and find one who deals with the aftermath of BC. Just be sure you pick a good one. Trust your gut. If you don't like the first one you pick, don't give up. Try another.

    You can also start researching options like gap or doing nothing.

    I do agree with the comment that you should talk with some plastic surgeons vs. just your BS and onc. You can at least validate what you have already been told and find a way to make peace with it or you can make an informed decision based on options you are given. I would say visit with at least three.

    Keep us posted on how you are doing. I lurk a lot more than I post.







  • anotherNYCGirl
    anotherNYCGirl Member Posts: 1,033
    edited May 2017

    kira, - give yourself more time to heal, and then if you are still unhappy about flat vs reconstruction perhaps you can seek another opinion (or 2) from highly recommended plastic surgeons. I, too, had set backs due to radiated skin, but there are several options these days! Don't just go by one doctor's opinion!!

  • Momine
    Momine Member Posts: 7,859
    edited May 2017

    Most likely your surgeon ruled out immediate implant reconstruction, but there are other options, if after time you really find yourself not adjusting well to the flat thing.I agree that you should seek the opinion of PSs who do autologous reconstruction. Even if you decide not to have recon in the end, knowing that you do have options will restore your ability to choose.

    In my case, immediate recon was also ruled out, and my doctor asked me to delay recon until I was done with treatment. At first it was weird, and it took me quite some time to get used to it. By the time I was all done with treatment, my desire for more was somewhere below nil :D 6 years out I am still flat.

  • Wildplaces
    Wildplaces Member Posts: 864
    edited May 2017

    Kira,

    Cancer REALLY sucks - multiple losses on so many levels.

    Time heal some but not all. I believe a psychologist if good can help.

    On a practical level - fat grafting may be an option - there is some work to suggest it may help with radiation fibrosis as fat cells act as stem cells. It would be worth getting a PS or two opinions, taking some time ( aka months) to see how you feel and consider. It is very rare that nothing can be done to improve - you do need a solid second opinion though.

    I had a mastectomy and chose to be flat - then I needed radiation...it is what it is and I am ok with it without loving it.

  • GeorgiaRai
    GeorgiaRai Member Posts: 175
    edited May 2017

    kira, I'm so sorry for your circumstances. I can tell you - as one who knew from Day One that I did NOT want reconstruction, and really had to push to get my doctors to understand and respect my decision - those first few weeks and months were brutal. Losing your breasts is a huge deal, and even when staying flat is a choice, it's a drastic and life-altering change. I remember those early days - not wanting to see my own reflection (I had the added joy of being bald from neo-adjuvant chemo), and not wanting others to see me. All through rads, I was physically comfortable but emotionally/confidentially fragile. It was several months after I finished all treatments - once I got breast forms I liked and some hair - that I felt like I was finally "in recovery" and on the road back to being myself.

    Granted, it was easier for me because all along I was secure in the knowledge that reconstructed 'breasts' would not do anything to enhance my life; I was content being flat, but it definitely wasn't easy adjusting & accepting the new me.

    So give yourself some time. Heal, recover, get some strength back, and don't give up hope. As others have said, a plastic surgeon may find a solution for you! My PS definitely knew more about recon than my breast surgeon. For instance: I had implants (cosmetic) at the time and BS told me that would make recon easier since I already had a spot for new implants. Uh...no - that was not accurate at all! (It actually would have complicated matters.)

    I hope you find strength & peace in spite of all that cancer has taken from you.

    Rachel

  • kira1234
    kira1234 Member Posts: 3,091
    edited May 2017

    I can't thank you all enough for the support. Rachel very helpful post.

  • Lily55
    Lily55 Member Posts: 3,534
    edited May 2017

    I did fat grafting on radiated side and it improved the general área and quality of the skin and deeper tissue a lot.  I alsu use cannabis oil mixed with coconut oil and massage that in a few times a week - I am still flat on that side and hate it......as its not by choice but every surgeon who has looked at me since I did the graft and moisturising says skin is in good condition. It was not before for sure......

    I am on a hugely long waiting list for reconstruction, been waiting 5 years so far........so I know how you feel, please don´t feel alone xx

  • believe3
    believe3 Member Posts: 2
    edited October 2017

    Yes, it absolutely sucks physically and emotionally. The side effects of treatment have left me with permanent pain and discomfort along with the surgeries. Over two years and still not done. Fighting an infection now then more surgeries. When my chest opened after first reconstruction and implant was removed I felt even more uncomfortable as the skin tightened up against my ribs. It feels like my bones are bruised. I am so emotionally drained, extremely sad and confused. Don't know what to do.

  • Moderators
    Moderators Member Posts: 25,912
    edited October 2017

    Sending gentle hugs, Believe3. We understand your feelings, and being drained from all you've been through. We hope this community serves as a source of support and encouragement when you need it most.

    The Mods

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