Just got my results from my biopsy... its all too much...
Hello everyone..
I just got my results from my biopsy .... and feel overwhelmed and like the world has fallen.. in fact I feel like I'm falling .. and can't stop..
Any advice or words of wisdom would be welcomed ..
My husband is on a business trip and won't be back until later this week.. so the timing of this is pretty bad .. but when is it ever good ?
I have a mass that is 17x14x14 .. it is IDC with a high grade w/ one lymph node positive .... that's all I know ... My NP said that right now my stage is clinically stage 2 ..didn't say a or b .. but my mass is less than 2 cm and it involves one lymph node .. so what I've read its 2a ?
It is estrogen positive..
My NP said that what I have is the most common breast cancer there is .. I think 80% of all breast cancers are what I have...
I'm going to surgeon on June 2nd .. but they hope to have an MRI and appt. with the Oncologist before then ..
She said that if it seems that like its awhile to get a an appt not to worry.. that this mass is not going to change over night or even change in a week or month.. at the start she said that it was a "slow growing"
She also said this type of cancer has a good prognoses and is treatable... but is it curable ???
Now my stage may change after they get in there and take it out to look at it ...
I know that I will do what needs to be done .. that's including have both of my breast taken off.. it will be hard ...but its doable..
There is only one other person in my family that I know of that had breast cancer than that was my mother's sister ... her's didn't show up until she was 80 ...
So here I sit... numb... my kids are grown... but they're still my heart... I think I have a good support base.. with my kids,husband.. in laws and friends....
One part of me is almost relieved... the other part is scared out of my mind... one part of me has one foot in the grave.. the part of me is a saying "OH NO.. we're a Warrior!"
but mostly I am numb and cold ( shivering ) .. I think I'm shock... srly ..
again any words of wisdom would be welcomed.. I 've read so many of y'alls stories and they are encouraging..
Thank you in advance ..
DeniseT in TN
Comments
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Oh, Denise,
I'm so sorry you have joined this sorority. Right after diagnosis is just about the hardest time - so much uncertainty, so little to hang on to, just the knowledge that things are going to be different.
Once you have met with your surgeon and oncologist, and have a treatment plan, the path forward seems to be easier to navigate. Treatment is available, and is effective for many, many people.
I found the time between diagnosis and the start of treatment excruciating. It seemed that I would never sleep again (spoiler alert, I did sleep again and during treatment I slept a LOT). Just knowing there is a plan was very reassuring.
People would ask me how I was, and for a while, all I could answer was, I breathe in, I breathe out. About a year after my diagnosis, a friend was diagnosed with stage II estrogen positive BC. "Breathe in, breathe out" became a bit of a mantra and a running joke between us. Sometimes we would just text each other with the initials, BIBO. She went through treatment with flying Colors, and is doing well,as have many others. I am happy to lend you some confidence that you will, too.
BIBO
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I'm about two months past diagnosis and I can tell you that it does get better. The second I heard the news I was an emotional wreck and didn't know how to process what I was being told. This forum helped me so much with my questions. I promise that once you have a plan in place it does get better but until then...take a breath, go for a walk, take a long hot shower and cry it out. If that doesn't help - get some ativan. Now is the time to help yourself and if that means medication then go for it.
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thank you both.... seeing so many women who have been through this, fighting and winning . .. helps ..
no sleep for me..but I have my bottle of ativan ...
I just want to start running and keep running ... run as far as I can... -
Denise, sounds so familiar. I just could not think of anything else. It completely took over my mind, I think it was like, am I going to die from this and when will that happen. I don't want to suffer. But once you know more and start treatments the agony goes to the back burner. It takes time you can't control the way you feel and think. It does get better.
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I echo what avmom, brneyegrl and meow said. The waiting and inaction are the worst. When I got my diagnosis, I just wanted to take off and get this taken care of. Once you see the surgeon and have a plan, you'll feel so much more in control. Each step forward is a step back toward normalcy. I had my surgery pretty quickly and just started my rads today. Only 32 more treatments to having this phase behind me!
I'm so glad you found this site. It's been my lifeline. There are so many wise, wise women here who share their experiences and offer great advice. But keep this in mind: Each of us is an individual. Each of us responds to treatments differently. What's right for one person may not be right for you. When you husband gets home, sit down and talk it through together.
Of course you're in shock. The reality will hit you like a ton of bricks. But we're all warriors, fighting this disease. We all wish you the very best and have your back.
Keep us posted.
MJ
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Mostly it's the fear of the unknown that makes it so hard but, trust me, it will not be as bad as you think. Just keep reading here so when you meet with your drs you'll be able to make sense of what they're telling you. Take someone with you to appointments so they can write everything down
It sounds like your doctor gave you lots of good, hopeful info. It's very encouraging when they say it's slow growing
Be sure to ask if you're a candidate for the oncotype test to see if the risks of chemo outweigh the benefits for you
I'm a year out from my diagnosis and things are good. They will be for you too.
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Wanted to update everyone on this thread on what's going on....thank ya'll so much for the support
Hello everyone...
I'm just starting out ... I'm stage 2a 1.7 tumor w/ one node known to be involved...others from the MRI and US looked good .. Its Grade High/3 which means its aggressive but the MD's feel like I'm still in the early stage of my bc .
I'm also Triple Positive.
At first I was falling apart but since I talked to Surgeon and Cancer MD I feel better.. You know our mind go to the dark places when you don't know what's going on ...
The Doctor said that my prognoses is good and its treatable.... I have a shot of being cancer free...
Its not going to easy...and its not going to come without complications.. She said "don't be overly optimistic but don't be overly pessimistic either". It is what it is... and we're going fight it together...
First is
6 rounds of chemo given every 3 weeks... to see if we can shrink the tumor or even get rid of it, if all goes well then I take 4 weeks off... then surgery .....maybe radiation maybe not we'll its all up I guess the lymph nodes
then back to chemo for the hormone drugs add...for a total of 1 year in chemo... then I will have to take the pill form up to 10 years ..
Like I said in the beginning ..... I finally have hope....I didn't have that before yesterday ... as my NP would say its going to be a long haul but you can do this...
Every little victory .... even being handed a little hope ....
just wanted to share -
Hi DeniseT!
Be sure to join us on the triple positive board. By the way, you won't be doing chemo after surgery but Herceptin, which is targeted therapy for HER2+ cancer. The good news about Herceptin is that it has mild side effects, if any.
My lump did disappear after chemo! That's one of the best things about chemo before surgery; you can watch it work. ((Hugs))
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I remember vividly telling my sweet.mom n best friend(before I got hold of Fiancee) I'm going to die I'm too young n planning my 2nd marriage had my cry with them all then my faith I decided to fight with Hope n plenty Positive thinking Praise God I am a 23yr Survivor. Hang in there God Bless U All. msphil idc stage2 Lmast 3 no before n after got married n then 7wks rad 5days wk 0\3 nodes.
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ugh...I feel so overwhelmed. Recently diagnosed with IDC left breast and some DCIS. I've had a lot of tests done in a short period of time which has helped me. I've had a negative pet scan result 😊 and my right breast U/S just confirmed a few fibroadenomas, which were suspicious for malignant involvement. I am Er/Pr + and HER2-. Ki.67 is high @ 28%. Surgeon says I have complex dense, breast. Should I be offended LOL!! I've decided to have a dbl MX. US guided core biopsy of left axillary node is scheduled for the 10th 😣. I guess it's a low lying level 1node that measures 20mm? Doc says there's some thickening there, however, I am negative for LVI. There's just so much info and so many uncertainities. I hate this. Surgeon and MO are still on the fence.about.chemo/treatment until.after surgery. Left breast is a hot mess. Several satellite masses and largest mass is 3.2 cm. I just dont know if a.dbl MX is the right decision? I'm so confused. I'm sad and I'm rambling now. What would you do in thos situation? Someone help me please 😣😣😣😣😣
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Kim - there are several thread with people talking about BMX vs LX. As you've seen, it's a difficult decision. And a very personal one. Some of it depends on your risk tolerance. Some might depend on your age. When you get a minute, go to My Profile and put in your diagnosis & treatment to date.
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Hi Kim-
We want to welcome you to our community here at BCO. We're so sorry you find yourself here, but we hope you find this to be a place of support.
It might be helpful to spend some time reading through our surgical forum, lots of members share there about what led them to their decision: https://community.breastcancer.org/forum/91
The Mods
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Kim S- Agree with Minus2. Enter your path details that you have in your profile and make it public under settings. We can better address your concerns that way.
Take it one step at a time. MO is on fence about chemo and treatments because nothing is a known until surgery. What info you are getting now is a best guess. Some people upon sx for example found out their tumor is smaller than they had thought or vice versa. They simply cannot know for sure until they go in.
What to do now is decide lx or bmx. Age seems to play a big part in decisions. Younger people seem to opt more for lx than someone like me who was 50 at diagnosis. What led me to bmx is while I know there is no 100% guarantee that just because you remove the breast(s) that it won't come back, I felt more comfortable if not just psychologically being rid of worrying about it. I for one HATE mammos. Now no mammos because no breasts. I hated my breasts pre-cancer. DD/DDD and saggy heavy because they were dense. Now I have size C implants that are firm and look and feel better on me than my originals.
I agree that you should spend your time now reading how people came to their decisions lx vs bmx, esp those in your age group. It's a personal decision that each one of us makes for ourselves. Best wishes.
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