Survivors - what do you think helped prevent recurrence so far?
Stage III survivors - aside from the offical guidance to prevent recurrence (exercise, eat heathily and maintain a healthy weight) what, if anything, do you think has helped prevent recurrence for you so far? Anything in particular? I'm on Tamoxifen
I am just over a year on from diagnosis ER+, 3 lymph nodes positive but very large tumour over 5 cm and frightened out of my wits about the future. Immunity & blood counts not yet fully recovered from chemo (which finished last October) so can't exercise too much. I walk 1-3 k on alternate days mostly.
Comments
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"Accentuate the positive, eliminate the negative anx don't mess with Mr. InBetween!"
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Femara, without a doubt.
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Thanks. My treatment plan will involve a move onto Femara in 2-3 years time (was perimenopause at time of diagnosis).
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Among txs and a healthy lifestyle I think having a positive attitude helps. I find when I am down that I notice my aches and pains more. There have been studies that show attitude seems to help prevent ill health from coming to fruition. So it doesn't hurt to move on embracing every day and just being happy to be alive.
And keep up with your appts/scans.
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PS2016 - when you get a minute, do go to My Profile and enter your diagnosis & treatment to date.
I'll second the 'positive attitude'. Everything else l do in MODERATION. I haven't cut out anything, but have increased exercise and decreased sitting on my butt. As for food, I've always believed in moderation and not any special diets. I'm 4 years past my recurrence and feeling more energy every day.
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I've known far too many people with positive attitudes who had a recurrence to believe for one second that breast cancer could be put off by a good attitude. I think what a positive attitude does for you is allow you to enjoy every day that you have.
As far as why I have not yet had a recurrence (when I fully expected to by now given the stats and my own family history), I can only credit the quality of the surgeon who did my surgery, tamoxifen, and a dose of complete luck. I didn't really make any changes in my life, because I wasn't doing anything extreme in the first place. As the earlier poster said--moderation, which helps protect against many maladies.
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I am trying to practice the 13-hour fasting now to reduce the risk of recurrence based on this study -
"The researchers reported that fasting for fewer than 13 hours per night was associated with a 36% higher risk of breast cancer recurrence compared to fasting 13 or more hours per night".
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Thanks everyone
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Can you post a link to the study about fasting please?
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I'm with Kathleen here. Quality treatment and the good old tamoxifen seems have done the job for me so far. I too believe there are limitations to the positive attitude thing and have read studies where it was proved that it was not enough, by itself, to ward off recurrence. Of course, life generally is improved by having a positive attitude. Perhaps there is no one answer to this topic's question, so whatever anyone is doing that's working is fine.
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I wasn't implying that all you need is positive attitude. But there are studies that show people who are always depressed are more susceptable to illnesses. One of them is dementia. Just like diet and exercise isn't the end all to preventing disease, neither is positive thinking- but it does help and at the very least, helps you live a happier life.
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I truly cannot figure it out - I thank God every day when I take my Anastrozole - side effects and all. I was able to take Herceptin only for 3 months because of major heart damage. After having talked with literally thousands of breast cancer survivors, I can never come up with any rhyme nor reason. Some of the most positive women I've ever met had a recurrence. And some who eat the best diets, exercise constantly do as well.
If I had to pick one thing, it would be going to an NCI Designated Cancer Center (University of Michigan in my case) with amazing surgeons, oncologists and geneticists. My confidence in them has gotten me through it all as well as with my mom and sister with their diagnoses.
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IMO that's why there won't be a cure for cancer Denise. There is absolutely no rhyme or reason. I would think after all these years and years of research it would have been found. I think the best we can ever hope for is NED for the rest of our lives, not a cure.
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Thank you for posting the link Stephilo!
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Agree with Artista, a cure for cancer is a pipe dream. Worse, it's a dream perpetrated by the pink charities wanting more donations for "awareness" campaigns. Look at their financial statements and you find that around half of the donations received goes to admin. What a con.
Getting quality treatment, as Denise suggests, is vital for living out your years with this disease, since there's no one-size-fits-all treatment plan due to the very many kinds of bc.
When I faced a treatment decision about my recent second cancer, the urologist asked what I wanted, and out came "timely and appropriate treatment". Add "quality" to this and you're starting off with the odds in your favor. Then, as most people here understand, be your own advocate and check and double-check everything along the way.
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Popping back in to say that I think a lot has to do with somatic mutations that are not standardly tested for. I was alerted to the pik3ca mutation early in this whole mess and someone here (don't remember who) has posted about the p53 mutation. Both mutations can lead to treatment resistance and per my Foundations One testing i have both. I believe that's why I'm now Stage IV despite very aggressive treatment and healthy lifestyle. I know Stage lll generally doesn't get the oncotype but i imagine that's why two people could both have small tumors, node negative, ER/PR+/Her2- and drastically different scores.
My focus now is figuring out the best targeted combo to hit all these mutations
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not to change the subject but when I read your comment bad_at_u I felt I needed to post this research that's going on about elephants p53 gene (and maybe the explanation why elephants don't get cancer very often):
http://fox13now.com/2017/01/17/utah-researchers-use-elephant-genes-to-battle-cancer/
We make it synthetically in the lab. We introduce it into the human cancer cells, and those human cancer cells are all dying, they're getting wiped out. This is just so very exciting for us."We make it synthetically in the lab. We introduce it into the human cancer cells, and those human cancer cells are all dying, they're getting wiped out. This is just so very exciting for us."
about staying alive it has been proven how important lifestyle is, it might not prevent a recurrence but it can delay it.
I really believe in curcumin, exercising, reducing stress and avoiding toxins. -
I know a lot has been said for exercise (which I agree with), but especially directly after treatment, I'd say "activity" is a great goal. I think a lot of cancer survivors feel pressure to exercise, and this can be tough when you're still recovering from heavy duty treatment. I'd say eventually exercise is the goal, but just make it a point to be active in the early stages...a FitBit or pedometer helps with this, just walk around a lot, take the stairs when you can, carry in your own grocery bags, etc. Every little bit counts. Once you get a little stronger you can step it up.
I definitely notice a huge difference in my pain levels when I move more. I have joint pain from my anastrazole and when I'm a lazy bum, it hurts!
I am also a believer in supplements, which I know is kind of controversial. I take turmeric, calcium, Vit D, krill oil, turkey tail mushroom, CoQ10 regularly, and make smoothie daily with fruit (usually berries), water, green powder, hemp powder, chia seeds, coconut oil and/or greek yogurt, and greens (spinach, kale, etc). Does this all help? Who knows! But it makes me feel better mentally so I keep it up!
If it helps even one iota I'm happy.
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All well put Magnolia.
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You have to consider a whole lotta luck since many who do the "right" thing recurr and those who don't, remain NED for the rest of their lives.
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So true. It's bad luck when you get bc and good luck when you remain NED!
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I try to put in perspective that there is still a TON we don't know about cancer. You are all right, plenty of people who do everything "right" recur, while those who pay no special attention get to NED. I think living well, in all senses of the phrase, has to help...but there are just no guarantees in the cancer game (which is what I hate about it!). That's why we all have to fight hard for more emphasis on breast cancer RESEARCH! So important.
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That's great Magnolia that you eat well. I have always eat well,especially just befor being diagnosed in Nov. 2013. I was also a part time housecleaner,so lots of exercise. I could not eat at all during chemo or until lately. Lived on crackers. Doing much better this year. Didn't expect to still be alive. So as usual, you never know. Love and good luck to all
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I'm with you, Magnolia. There is a massive amount as yet unknown about why cancer recurs. There are the beginnings of understanding about the various contributors. It is so complex. What appears as no rhyme nor reason today will most likely not be that way in 25-50 years. There is rhyme and reason, and they are working feverishly to understand how all the pieces work together.Right now there are discoveries happening every day about how bc works. The main subtypes will be drilled down to many more subtypes. Compare what is known today versus 40 years ago...monumental. Huge strides are being made, but we tend to downplay them because they are not curative for all. It can't happen fast enough. I do believe there will be a cure eventually, but these cures come with 1,000 different scientific studies, step by step, and not in one, giant 'Ta Da' moment. Research is key I totally agree.
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Regular exercise, maintaining weight, green tea and no booze.
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