April 2017 Chemo

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  • Momojcbc
    Momojcbc Member Posts: 94
    edited May 2017

    HI Fiore- I have (had) naturally curly hair too! It was hard to watch it fall out. I felt better after I shaved it. Being bald is odd. I don't love wearing a wig as they are hot and I am in southern Arizona. I guess you can say I am used to it now. Although I haven't ventured out anywhere without something on my head.

  • StaceyB
    StaceyB Member Posts: 32
    edited May 2017

    I have felt so proud of myself that no matter how awful I have felt at times, mentally or physically, I have been able to be strong and available to my kids. Today, I lost 50% of my hair and I just feel so wrecked. I sent everyone away for the day and I wallowing in self-pity. I have a very sympathetic kitty who won't leave my side.

  • Momojcbc
    Momojcbc Member Posts: 94
    edited May 2017

    Stacey- I know the feeling, we are strong. However, this is going to be hard and sometimes we are going to break. As long as we dont unpack and live there. Good for you for knowing you need time and taking it. I hope you have a wonderful mothers day.

  • DodgersGirl
    DodgersGirl Member Posts: 2,382
    edited May 2017

    short vent - sorry. Been trying to stay positive and walk to the next step of this long journey remembering that these steps are needed to fight C. But truth be told, I don't want to go to AC 4 this Wednesday.

    As spring has arrived along with sun, warmer temps, etc, I don't want to have another crappy weekend next weekend. I am feeling so good this weekend and it makes me realize that I will miss so much of "regular" life this spring and summer. Arggggg

    I already don't feel like drinking lots of water. I want to sleep at night. I want to nothave to take so many pills every so many hours. I want to have the energy to do things with my family and I don't want these bald spots along with hair spots all over my head.

    Sigh.

    Ok. Now it's time to see the good in the middle of the bad. Last AC..... that is a good thing. One more weekend to feel nauseous, then maybe that part of the journey will be behind me.

    This is a long journey. Lots more good and bad to deal with. But thru it all, thank you all for sharing and taking the journey together.

    For mom's in the group, Happy Mother's Day!!

  • Momojcbc
    Momojcbc Member Posts: 94
    edited May 2017

    Dodgersgirl!

    I am with you! Lets just run away! ;)

    We got this! I hope you have a bettter week. I have had these same days.

  • DodgersGirl
    DodgersGirl Member Posts: 2,382
    edited May 2017

    thanks Momojcbc! Thought about running away yesterday!! Then looked around at my family and knew I have to stay on the path and keep fighting

  • LimnoGal
    LimnoGal Member Posts: 157
    edited May 2017

    DodgersGirl and others-I'm about a year ahead of you (April 2016 Cheno group), and things are WAY better now. I feel pretty good. Things are going fairly well. I have hair (short, curly and not my style, but at least it looks intentional).

    I remember being where you are now. Plan something to celebrate the end of your AC treatments-milestones are important. And remember, a year or so from now, this will just be a bump in the road in the rear view mirror.A crappy bump, but a bump nonetheless.

  • DodgersGirl
    DodgersGirl Member Posts: 2,382
    edited May 2017

    LimnoGal-- thank you for the perspective!! I need that so much today as having a ay where I just don't want to go to AC 4!!!

  • LimnoGal
    LimnoGal Member Posts: 157
    edited May 2017

    DodgersGirl-I TOTALLY get that!!

  • tonyaberryman
    tonyaberryman Member Posts: 85
    edited May 2017

    Dodgersgirl

    You took the words right out of my mouth! My 4th and last AC is tomorrow, I'm already at my Mama's getting ready for what I like to call "HELL WEEK". I keep telling myself, this is hopefully the last treatment that's going to be rough. I'm mad that we are missing Spring and Summer "life", I mad because I don't have enough energy on hell week to drive to my boyfriends house, I'm mad because my 69 year old Mother has to watch me go through this and has to take care of me. But...... I'm very grateful this is going to be cured and this time next year we all will be cancer free and back to living a normal life. Thanks for listening

  • DodgersGirl
    DodgersGirl Member Posts: 2,382
    edited May 2017

    Tonyaberryman, good luck with AC4 today.

    When will you start Taxol?

    For Mother's Day, we visited my parents where hubby bbqed a great meal. I set up my zero gravity chair in the shade,put on sunglasses to protect my eyes.and enjoyed a beautiful spring day..... knowing next Saturday will suck. Sigh.

    Sorry you have to go thru "hell week" again but prayers that things will be better because of the AC treatments


  • Annbee
    Annbee Member Posts: 208
    edited May 2017
    Oh my goodness and I thought it was just me that felt this way about the AC. I am just coming out of hell week and it was not fun. AC #3 has been hard. Number 4 is one week from today and I already have anxiety. We can and will get through it! I keep telling myself that. I like the idea of a little celebration.

  • utjoy
    utjoy Member Posts: 56
    edited May 2017

    Sounds like we're all sharing similar thoughts, feelings and SE's...I'm woke up this morning to a shingles outbreak...no fever & I actually feel better than I have since last Thursday...waiting for a call back from ONCO as she needs to contact infectious disease since I had an infusion (IVIg) Tuesday that was supposed to prevent this.

    I had such an emotional weekend...so unlike me. Not a pity party, just weird! I'm so thankful that I have an understanding and loving husband. He bought me beautiful flowers and a wall hanging that says: "let your faith be bigger than your fear". I cried and cried...lol. Jeez...I start to tear up thinking about it...

    My cousin survived colon cancer last year...she told me it helps to name it...she named hers "Heinous Squamous Anus"...I haven't had a very creative mind lately but I'll be working on this and thought some others might get some help from it?!

    Prayers for all...we WILL be Champions!!! Cancer is just a 'thing'...

    Most of us are mother's and we can recall how the dread and pain of childbirth is quickly forgotten...so shall this be, as we come out the other end healed!

  • tonyaberryman
    tonyaberryman Member Posts: 85
    edited May 2017

    Dodgersgirl - Just got home from #4, so glad it's over. Feeling meh, the worse usually hits later today and then, the rest of the week. My Taxol treatments will start June 1st, hoping your 4th and final AC is kind to you.

    Annabee- You are not alone, they have all sucked for me, but we have to keep moving forward and KNOW, we've so got this!

    Utjoy- So sorry about the shingles, that just makes everything worse ..... cry about it, get it out! I cry a lot when I'm home alone, just because I'm miserable and lonely. I adjust my crown and realize how blessed I am, I will be cured and a year from now this will all be a blur.

    I have named my cancer Satan..... evil, vile, relentless, disgusting.....

    We ALL WILL BEAT THIS, we are strong fighters

  • StaceyB
    StaceyB Member Posts: 32
    edited May 2017

    Thanks Momjbjc - I appreciate it! I needed that day to get it all out, and I surprising felt better yesterday. I went out today in my baseball cap, and I have my final wig fitting tomorrow. So, I am in a little better place than a few days ago :)

    For those finishing AC I totally think a celebration is in order!!! I agree - we should all start putting little celebrations on the calendar that we can look forward too. I have my next treatment on Wednesday and I have been wanting a facial for so long! I think I will schedule one for 2 weeks from now to celebrate another round down ;)

  • tonyaberryman
    tonyaberryman Member Posts: 85
    edited May 2017

    StaceyB- yes I couldn't agree more, I feel like I accomplished / defeated the devil in the last AC dose from today. I will celebrate when I'm able and gear up for Taxol in June 1st.

    Good luck to all the ladies in this group! We are a force to be reckoned with and we are courageous !!!! 🙏❤️💪👊💪❤️

  • tonyaberryman
    tonyaberryman Member Posts: 85
    edited May 2017

    Dodgersgirl - Wanted to update all the ladies especially you...... so last night wasn't that bad for #4. Only slept 3 hours, didn't drink that much water, making me feel yuck I did managed to 12 glasses of water. I just ate coco coco pebbles, only because I was craving it, had 2 bowls, no taste buds. Tuesday's are normally my up Day and then then it hits again, I will update as the days go on. I feel so accomplished and feel relieved the red devil is finished.

    Good luck ladies, I can see the dim light at the end of the tunnel, we are unique and strong fighters , we've got this!!! 💪❤️

  • DodgersGirl
    DodgersGirl Member Posts: 2,382
    edited May 2017

    tonyaberryman-- woot woot!!! You did it!! Finished your 4 rounds of AC!!!!

    Make sure when you start feeling better, to have another bowl of coco puffs to properly celebrate!!

    Hopefully you won't have to watch the chemo nurse holding that large syringe of red crap while he/she slowly administers the toxin while he/she is draped in protective clothing. (At least that is the routine at my local chemo party hall)

    Hope the good days get here as quickly as they can for you.

  • tonyaberryman
    tonyaberryman Member Posts: 85
    edited May 2017

    Girl, I've been eating since 5:30 this morning!!!! I never ever want to experience the red devil again!!!! I know you take your last AC tomorrow, I was thinking about you while I was receiving my last dose.

    Hoping the last dose is easy cheesy, EVERYBODY I ask tells me Taxol isn't as bad, as AC. My gf said she lost her toenails, but they grew back. I can deal with that as long as they do. Her hair starting growing back during Taxol as well, hoping that happens for me , I miss my hair 😩.

    Good luck my friend, please let me know how you're doing tomorrow if you're up to it

  • DodgersGirl
    DodgersGirl Member Posts: 2,382
    edited May 2017

    AC 4 is in the books!! Still at the infusion lab, finishing up.

    Had problems with my port. They gave me the "roto rotor" drug to try to open port back up. It was working fine to get IV drugs IN but not so good for blood draw out. Had to have stick for CBC blood draw. Then some push of fluids to try to clear the port. Else my last red devil was going to have to be in an IV. Thankfully the staff was able to get a blood return and red devil went in thru the port which is a blessing.

    MO said tumor is continuing to shrink. More more than 50% smaller!!!

    Next chemo is May 31st when I start the first of twelve weekly Taxol treatments.

    Will have Neulasta onpro pad placed in about 39 mins, then this part will be over.


  • notanisland
    notanisland Member Posts: 142
    edited May 2017

    Yay DodgersGirl! Congratulations on completing AC! And the 50% reduction in tumor size is wonderful news! Hope Taxol X 12 goes smoothly, with SEs few and mild.

    I'll be watching for your updates - we're on the same chemo regimen and I'm supposed to start AC tomorrow. Going in for an early port check today. It was placed on Monday and while discomfort has been negligible, there's still some redness (and lots of Itching so I wonder if I'm sensitive to the adhesive) and last night I found a large water blister had formed under the clear bandage about a 1.5" away from the port - probably from a combination of hot weather and rubbing against my bra strap. Hope this doesn't postpone the start of neo adjuvant chemo. I'm already 35 days out from DX.

    Get some celebrating in before May 31. You deserve it!

  • tonyaberryman
    tonyaberryman Member Posts: 85
    edited May 2017

    Dodersgirl- So happy the last one is over for you ! The SE's have really kicked in today. I spent the night with my BF for a change of scenery, he drove over and picked me up, which was a 40 minute trip and took great care of me today. Sore throat, NO appetite, headache, weak.

    Last time we feel like this so.......we can do this 💪

  • DodgersGirl
    DodgersGirl Member Posts: 2,382
    edited May 2017

    notanisland-- do you have anti-nausea meds for AC? I definitely do best when I take them as scheduled, drink water, take Claritin for Neulasta, and eat every few hours on days you are taking anti-nausea meds. I also rinse mouth with water, salt, and baking soda after eating which seems to have kept away mouth sores. Oh, and I are ice chips during AC to help prevent mouth sores. I drink ginger tea to help with queasiness and wear Sea Bands, too.

    Glad AC is over. It is certainly doable, just remember the yucky days start getting better and there are many good days before next AC

    Best of luck.

  • DodgersGirl
    DodgersGirl Member Posts: 2,382
    edited May 2017

    tonyaberryman-- all I want is a big bowl of cereal. Wonder where that idea came from!!!

    Hope your SE's are short lived!

    When do you start Taxol

  • Annbee
    Annbee Member Posts: 208
    edited May 2017
    I am just checking in. My MO said today that after chemo I will be getting infusions every 3 months (?) with a new drug to prevent bone mets. My bone scan was clear. I have not heard of this before. She said it isn't chemo and you don't get sick. I guess my port will be staying in.

    Yeah Dodger Girl you did it!! I hope very few to no SE. My MO said that Taxol is way easier than the red devil. I was thinking of you all day today.
  • DodgersGirl
    DodgersGirl Member Posts: 2,382
    edited May 2017

    Annbee- keep us informed on that new treatment you will be getting! Sounds interesting!

    Riding the pre-meds so far today. Yucky feeling will kick in Friday afternoon. But it's just a weekend and then things move firward

  • tonyaberryman
    tonyaberryman Member Posts: 85
    edited May 2017

    Bahahahaha, HUGE bowl of cereal!! I'll start Taxol June 1st, moving my chemo to Thursday's so I can recoup Friday, Saturday and Sunday and work Monday through Wednesday.

    Hoping you have minimal SE's

  • DodgersGirl
    DodgersGirl Member Posts: 2,382
    edited May 2017

    momojcbc-- I don't know when your biopsy is/was scheduled for this week but wanted you to know you are in our prayers and we are all here in your corner


  • mesaaz
    mesaaz Member Posts: 3
    edited May 2017

    I can't believe I just found this group! Reading everyone's journey has been so helpful.

    I started my chemo March 28...almost April. I haven't had the same experience with the side effects that most of you had. I wrote off my first round response to stress. My hubby was dx in Nov with Stage 3 lung cancer and I was the primary caregiver for my mother-in-law who is 89. John had been in the hospital 2 weeks prior to my chemo with an infection, moved my MIL back East the week I had chemo and we were getting ready for John's surgery the following week to remove his upper right lobe (hoping to save the entire lung...which ended up being successful). I was sick the entire 3 weeks.

    Second round was the week after John's surgery but my sister flew in to stay with us for 5 weeks (I have an awesome sister, I know!). This time I received acupuncture while I was getting chemo and did much better but still felt sick off and on the entire time.

    Third round, acupuncture wasn't available but thought I had this beat. Was sick starting Friday, went in for followup after chemo (Get it on Tues, followup is usually the following Mon or Tues). Went in for followup and had to get fluids plus potassium and magnesium, felt better afterwards. Day 9, I was up all night sick with diareha and still feel ill. Not sure if I can make 6 rounds of this...tired of feeling sick all the time. My husband did so much better than me...I feel like such a wuss.

    Going for an acupuncture session on Monday...still trying to stay positive but never feel better more than a 4 hours stretch..I guess I should be thankful for that!

    I need a little cheese with this whine!

  • Momojcbc
    Momojcbc Member Posts: 94
    edited May 2017

    Hey Dodgersgirl- Thank you for checking on me! I posted on fb and forgot to come back here. Biopsy wasn't too terrible.

    So they took the samples and have to have them tested I asked if he could tell by looking. He confirmed the cells were abnormal which is most likely the cancer.

    I see my doctor Monday and they will have full results then and our new plan of action.

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