Lumpectomy over, not sure of next steps

Unfortunately I don’t think you will get a clear answer. It will all come down to your tolerance for risk, and what those risks are in your personal case. All I can suggest is that you gather as much information as you can with regards to recurrence with and without further treatment(s), and then go with your gut about whether you think it is needed. And the reality is that someone else in your position with the exact same information could easily reach a different decision and neither one of you would necessarily be right or wrong.

For what it’s worth, I did both radiation and Tamoxifen and had no significant problems from either ...

I just wanted to write to commiserate with your dilemma. I had my lumpectomy about a week after you. My DCIS was bigger than what they originally thought - at least 2 cm.Unlike you, I do have necrosis present. My Oncotype came back low!I haven't talked to my oncologist yet...but like you, I am reluctant to have radiation or tamoxifen and was planning on using the Oncotype score to help me decide. I was also going to order a newer prognosis test to see if that would help me. However, the thing that is hardest for me in my decision is the fact that my tumor size went up and what that mean for recurrence. (I have been looking at the Van Nuys Index also...and on that scale I should do rad.) Like you, I go back and forth everyday. I will say that the doctors that I talked to who were more supportive in my considering not to do radiation were that way because of the original size - that is, when they all thought it was only half a centimeter like yours turned out to be! Just curious if you have gotten any closer to your decision yet?

So glad you were able to get good counsel from your docs that made you feel that you were not making a "stupid decision." Totally get that! Btw,I forgot to ask if age was a consideration at all. I am younger than 50, so that was another concern for my risk of recurrence.

Had my first surgery in April for what was described from my biopsy as an "Atypical Papilloma". During surgery they discovered 3.8cm of DCIS with unclear margins. My BS scheduled an MRI, bilateral U/S and another mammogram. The scans showed additional areas of concern on the left and found three new "areas of concern in the right breast". Three new biopsies were done on the right and were declared to be papillomas of a benign nature. My second surgery was done in May on the left breast again. This time 5 cm of DCIS was removed and clear margins were noted. I felt like a huge weight had dropped off my shoulders. Now I have appointments in July with both an RO and a MO. I'm glad of the time to recover some before the next steps. I want time to research what steps are best. The pathology did show stromal fibrosis which will continue to need close monitoring. I also have Thyroid cancer and Thyroid autoimmune disease so I have concerns about the effects of Rads, Hormone therapy and Chemo.