Scared and can't pull it together

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Ktweasel
Ktweasel Member Posts: 26
edited May 2017 in Just Diagnosed

I just found out on Wednesday that I have breast cancer. I am in complete shock and kicking myself for being overdue on my mammogram. I am a married 43 year old mother of three. I started feeling a tugging sensation in my left breast. They found two masses near each other there which so far are infiltrating invasive mucinous carcinoma. Each is 1.6 cm. I am terrified that the further testing coming up will show more problems. I have had lots of stupid health issues overnight the past few months (bladder infection, yeast infection, shingles, hemorraghic ovarian cyst...). I chalked it up to my body being out of whack but also suspected a hormon issue because my periods weren't getting goofy. Now I worry that it is because the cancer is bad. The wait is killing me.

I can't stop crying and thinking about leaving my babies behind. They are 12,6,&7. I can't pull it together and all I can think about is the worst case scenario. I don't know how to get through this

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  • Moderators
    Moderators Member Posts: 25,912
    edited May 2017

    Hi Ktweasel, and welcome to Breastcancer.org! We're sorry for your diagnosis and for what you are going through, but we're glad that you reached out!

    Now that everything is so strange and new for you, we wanted to recommend you to read through the pages of the following section from our main site. It's called Breastcancer 101, and has been designed for those newly diagnosed, to help you understand test results, the individual characteristics of the cancer, treatments that are recommended for you, and more.

    Hang in there. There is plenty support on the boards just waiting for you.

    Wishing you the best!!!

    The Mods

  • gb2115
    gb2115 Member Posts: 1,894
    edited May 2017

    Hi Ktweasel--sorry to hear your news. It is ok to cry. It's hard to imagine getting through something like this---I know, I remember. It's hard to believe, but take it from someone who is truly the queen of imagining the worst case scenario---you will get through this. Allow yourself time to cry and grieve and process everything. Take it one minute at a time, one moment at a time if you have to.

    What is your next step? Do you have an appointment with a surgeon?

  • Ktweasel
    Ktweasel Member Posts: 26
    edited May 2017

    I will have an MRI on Monday and I am waiting o the lab results about the hormone receptors. Next Friday I will have the genetic testing.

    I am afraid to hope for a good outcome in all this.

  • gb2115
    gb2115 Member Posts: 1,894
    edited May 2017

    Do you have access to a nurse navigator? Many hospitals or breast centers have nurses designated to listen, answer questions, and help you through. I probably thoroughly exhausted mine, but I found her very soothing and helpful in overwhelming moments where I feared I would lose my mind.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2017

    I am also newly diagnosed this week, don't have further test until Monday (MRI) and doing the same as you are: thinking about worst case scenarios and obsessing over every little issue I've had over the past couple of years and wondering/worrying if any are related. I can't sleep or function well at all. Took two days off work because I can't focus and that stresses me more because I know I'll need to take more time off later, so I wish I were emotionallystrong enough to work now.

    I'm sorry I have no advice (though the veterans here might) but I wanted to reach out and say hello from someone else who is going through it.

    Hugs to you and keep us posted on what you find out.


  • Lula73
    Lula73 Member Posts: 1,824
    edited May 2017

    So sorry you're going through this. But welcome to the group-you are in good company. News of a mass is always worrisome but so many other more important questions that give us vital information are still unanswered. You will know more after biopsy and/or MRI. The biopsy information will be the most helpful as it will tell you if the mass is cancerous or not, what type of cancer, the staging, whether it's hormone positive or negative, grade and recurrence risk. At 1.6cm this is an early catch which is good :-)

    Everyone responds to and deals with the news differently. I had 2 months between the 'we found something' mammo and the official diagnosis (Ling story). My strategy was to focus on everything else that I could control and put the mammo results on the back burner in my mind. The doctor' s office was taking care of all the details for the next steps (biopsy scheduling, etc). I focused on my son, my husband, my granddaughter, Christmas, thanksgiving, my cousin's wedding, etc. once final biopsy results came back I had a 45 minute raging pity party fit all by myself in the shower. I mentally ran through all my fears, threw things (I have a big shower), pulled my hair a little (like you do when you've had enough), screamed and cried. I let the water wash all of that right down the drain.When I stepped out, I pulled on my big girl panties and worked on putting myself back together with a "can do, looking to the future, positive attitude".

    I wish you luck! Feel free to shamelessly steal my coping mechanisms :-

  • EastcoastTS
    EastcoastTS Member Posts: 864
    edited May 2017

    Ktweasel and Epic:

    Sorry you are here -- but you WILL find support. I could not have made it through without BC.org.

    First, many will tell you and I'm not sure it helps to hear but it's true...you are in the worst time right now. Believe me, the fear lessens as you gain more information and this path does level out some. I imagined all the worst case scenarios, too, and felt extreme moments of fear due to having a 9-year-old child to worry about. But it got better with information/education, action (surgery + adjuvant therapy for me), support. I am now almost three months past surgery and starting to feel, well, not normal because it's a new normal -- but I'm settling into my new normal. You will, too!!! Ask questions/vent/etc. And get a GREAT medical team on your side.

    My plan was taking each issue one at a time -- one moment/day at a time. Take a breath. Come here. Guessing there is nothing you can say or ask that has not been said/asked before.

    Big hug to both of you!

  • Jujube2
    Jujube2 Member Posts: 29
    edited May 2017

    I'm sending you a hug!

    This beginnng part, to me was the scariest, the not having a plan. Once you get your plan, you can wrap your mind around one step at a time . One foot in front of the other.


    Best to you, -and prayers!!!

  • Lindacim31
    Lindacim31 Member Posts: 15
    edited May 2017

    Hi so sorry you have to make this journey. I understand how scared you are. I was diagnosed in January and the phone call was like being hit in the stomach so hard I couldn't move. I cried and I have days where I still cry. This is a great place to get support and answers to questions you may have. Try just to take it one day at a time since it's very overwhelming. Treatment today is much better than ever and there are many resources available. Best advice I can give you is to find a doctor who makes you feel comfortable, ask questions, and know we are all here for you. I wish you all the best you got this.

  • Ktweasel
    Ktweasel Member Posts: 26
    edited May 2017

    thank you everyone for your kind responses. I really appreciate it. I do have a nurse navigator who has been great. She got my genetic test moved to Monday now before my MRI.

    She had the hormone receptor results: ER+, PR-, HER2-.

    I can't stop analyzing everything about my health and kicking myself for not getting my mammogram last year when I was due. I have large breasts and got used to ignoring things. No way I worry that tender areas where the breast ends but rib cage is has Brennan something's bad and not just daily bra and if breast wear and tear

  • MTwoman
    MTwoman Member Posts: 2,704
    edited May 2017

    Okay, Ktweasel, the HER2- part of your hormone receptor status tells us that this is a less aggressive beastie than it could be (HER2 overexpression is a driver of growth). And the ER+ means that you'll be able to use endocrine therapy. These are good pieces of information and will help you and your team as you start to make your treatment plan.

    Please, please stop "kicking yourself". That just 'adds insult to injury' (as the expression goes). You are dealing with it now. You need all of your mental energy to collect information and engage in discussions about what you want for your treatment. Spending some valuable energy castigating yourself is not really helpful. (please read that with sincere empathy, not scolding) Now is the time to pamper yourself, go for a massage or a mani-pedi. Spend time enjoying your lovely children to take your mind off being worried. I agree with all of the women above, this is one of the hardest times because you don't have your "marching orders" yet and can feel powerless. It is a steep learning curve. Once you've selected your team, made your plan and get going, you've turned an important corner. Until then, practice good self care and do things you enjoy with those you love. You can do this! We're here with you. ((hugs))

  • xnygirl
    xnygirl Member Posts: 3
    edited May 2017

    Hi there. I was just diagnosed yesterday so I empathize with you. It's very surreal and scary. I don't know what your faith is but trust that everything will be ok. Enjoy the weekend with your kids and happy mother's day!

  • KCMC
    KCMC Member Posts: 208
    edited May 2017

    Hi, I was just diagnosed March 1st, I am 47 years old and have two children 10 and 12. Things do get better, I have my surgery scheduled in 10 days, double mastectomy with DIEP flap immediate reconstruction. My best advice is let yourself grieve, don't be hard on yourself. Keep yourself busy, do things you enjoy. I still have days that I cry, but not as often now that I feel a bit more in control of things. I deal with depression already and upped my anti depressant, started exercising, I walk about 12-15 miles a week. All these things help and make me feel a bit more normal. Hang in there, there are a lot of great ladies and men on this board. Take a deep breath and be kind to yourself. Sending positive vibes your way.

  • Ktweasel
    Ktweasel Member Posts: 26
    edited May 2017

    you are so nice. And to those of you who just got diagnosed, too, thank you for your support in spite of your own stress!

    I am doing a little better tonight. Shock is wearing off a little. I am just exhausted from crying, worrying, etc

  • cytaylor
    cytaylor Member Posts: 1
    edited May 2017

    I was also diagnosed this week (yesterday). I am also a mother of 3 (23, 19 & 8). Right now the only person that knows is my husband. My oldest daughter is scheduled to take the LSAT for law school in 3 weeks and I can't add this stress to her, especially since I don't know what it all means yet. I also don't know how to pull it together at this point. Today I went shopping because I didn't want to stay home alone to think. But then I felt like such a fake as I ran in to people that I know and of course said "good" to the "how are you" questions. I don't know how I'm going to function working tomorrow in the ER without falling apart!

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