Agree with Traveltext, we are glad you found this forum, and please feel free to post here any time!

20mg a day for the last 18 months. My oncologist is recommending that I remain on Tamoxifen for up to 10 years. I have had no noticable side-effects. Never felt better and NED.

I've been on Tamox for over two years without side effects. Great that the exgiva is doing the job for you, too.

Had erectile dysfunction issue!

2 month and then quit. It was tough decision.

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Also froskolin helped me a bit manage erectile dysfunction.

You can read about forskolin here https://forskolin.reviews - pretty honest review. It also helps with weight loss.

Intracavernosal forskolin: role in management of vasculogenic impotence resistant to standard 3-agent pharmacotherapy.

Hmm. May be there was some other reason of ED. I don't know.

Forum Members;

I'm new to the site but have been reading intermittently about breast cancer in men since I was diagnosed almost two years ago. I've been through surgery, chemo, and radiation and am now in my eighth month of Tamoxifen. The road has been rough (chemo was difficult with an uncontrollable neutropenic fever that landed me in the hospital for over a week; then neuropathy forced me to end chemo before I had done all twelve of my prescribed rounds) but things are improving in most ways. I do want to reach out, though, to see if others are having problems with Tamoxifen that I am experiencing (and I saw little mention of it in posts above); I acclimated fairly easily though I did find that I would burst into tears at least a dozen times a day -- not always sad tears! -- but that has abated somewhat.

My main concern is my WEIGHT! My health started to go downhill about four years ago and I went from being someone who spent at least two hours a day at the gym with a second exercise session most days added in to someone who can barely get up a few flights of steps without exertion. Now that I'm supposedly past the worst parts of my cancer journey I'm finding that the Tamoxifen is causing me to become increasingly plump/fat. I'm annoyed at friends who knew me when I was fit and athletic who now counsel me to eat less; I had a virus a few weeks ago and barely ate anything for two weeks and I still gained a pound. I'm up about 30 pounds over the past four years with most of it coming during the cancer ordeal. I do admit that my appetite is back and I'm ravenous but I've also resumed working out somewhat (though it's by my standards to a very limited degree) and yet I have to keep buying fat clothes.

I had been using testosterone/Androgel because chemo wiped out my testosterone; I was measuring basically nil (I think the last test I took before starting Androgel had my number at 22) but that really didn't help me to shed any weight or find renewed energy. Now I've had to stop using the Androgel because new findings have it that it may increase my odds of getting breast cancer again; I'm ER-positive and PR-positive and that combined with the use of testosterone is apparently considered a bad mix.

I am rambling and I apologize; when it gets late at night and I sit around in my boxer shorts that are t-i-g-h-t because my weight has gone up even more I seek refuge in on-line research. Is anyone else finding that the Tamoxifen has caused them to add a great deal of weight that does not solely come from sloth? I do have other health issues and I am in my mid-50's but when I work hard with my exercise regimen and eat carefully (I'm already a vegetarian but when being strict I push it toward veganism!) I STILL GAIN WEIGHT!!!

I DID think the one silver lining of chemo would be some weight loss but I was not nauseated for a moment during my rounds -- and the steroids would, of course, make me hungry for a few days right afterward. My oncologist said now many people don't lose weight because they've gotten so good at managing the side effects (which is, of course, a plus!). Yes, when my health started to go I did put on some unusual pounds but chemo and tamoxifen have seemed to stop my metabolism completely and almost reverse it, alas. In my reading/research I've seen that the most noted side effect of Tamoxifen for men is weight gain (about 22% of men report that) but I've also decided that I can't curtail taking Tamoxifen even if I continue to gain (I'll hope it levels off soon); the risk of another breast cancer episode is too great.

Thanks for your input!

Agree with you on the importance of the Tamoxifen. Bad luck that you joined the 22% group, but still work away on diet and exercise and you may get your weight down.

How long have you been off tamoxifen? Has your libbo come back. My husband has breast cancer. I can deal with no sex. And believe me it has been awhile. But there is no intimacy at all. He has been on it five years. He wants to stop. I’am scared for him.

I never had a libido problem. Sex drive is as strong as ever! At the recommendation of my oncologist, i stopped Tamoxifen after 6 years and is has now been 3 more years after that. At my annual physical, my blood tests include those additional items for breast cancer, so I no longer see my oncologist any more. So far so good.