Using Dignicap

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SoniaL
SoniaL Member Posts: 131
edited May 2017 in Chemotherapy - Before, During, and After

Has anyone here with triple-negative breast cancer used the Dignicap to try to preserve your hair? Sounds like results aren't great with my regimen so don't know if it's worth the try. I really value keeping my hair but want to make a logical decision.

My regimen is Adriamycin & Cyclophosphamide followed by Paclitaxel.

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  • Meadow
    Meadow Member Posts: 2,007
    edited April 2017

    Sonia, I did not use the cap, I did lose my hair. This did not bother me, I found my hair one less thing to worry about. It was very liberating. I know this is not your queston, but if I had it to do all over again, I would consider the ice for my feet before I would my hair...I have some permanent neuropathy in my toes, Taxol Toes as we say. that I wish I did not have. If icing my feet could have prevented this, I would do it. Hoping others respond soon with answers to your question. Hang in there, and my best wishes to you during chemo.

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  • Meadow
    Meadow Member Posts: 2,007
    edited April 2017

    Sonia, there is a very active thread here for Triple neg ladies, it is "Calling All Tns". Full of great people and information. Come check it out!

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  • SoniaL
    SoniaL Member Posts: 131
    edited April 2017

    Thank you Meadow!

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  • coachvicky
    coachvicky Member Posts: 1,057
    edited April 2017

    SoniaL

    Is used gel caps and lost less than 40% of my hair. Worth the money and time for me.

    Coach Vicky


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  • SoniaL
    SoniaL Member Posts: 131
    edited May 2017

    Hi Vicky...thank you. Glad to hear a good report. Can you tell me what shampoo you used? Thanks! (And, I see you are from Madison, AL - I grew up in Decatur!)

    Sonia

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  • SCM12
    SCM12 Member Posts: 17
    edited May 2017

    I'm also a triple negative breast cancer patient and my regimen was the same (Adriamycin & Cyclophosphamide followed by Paclitaxel). I used a device similar to the dignicap and it worked very well. I lost a lot of hair but kept enough to not need a wig and I think no one really noticed I was ill. The hair may not be the more important thing but it allowed me to feel better and to maintain my privacy.

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  • KCMC
    KCMC Member Posts: 208
    edited May 2017

    Hi: I am thinking about doing the same. There is a thread on here for cold cap users, called cold cap users past and present, under managing side effects. It has tons of information.

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  • SoniaL
    SoniaL Member Posts: 131
    edited May 2017

    Thank you - good to hear that report. I had my first chemo today and used the cap so we will see!

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  • SoniaL
    SoniaL Member Posts: 131
    edited May 2017

    That's awesome - I'll check it out. I had my first chemo today and used the cap so we will see how it goes!

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