Starting Rads in March 2017

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  • LynnieRich
    LynnieRich Member Posts: 28
    edited April 2017

    I saw mine for the last time Weds last week. And am finishing my treatments tomorrow!!!! Woooohoooo!!!

    My RO said I'll have a follow up in one month.

    I am getting boosts right now but my clavicle is already healing. It was peeling and stuff at the end. I think I got off really easy though with the skin irritation cause that was really the only red place

  • misslil
    misslil Member Posts: 260
    edited April 2017

    That's interesting that the ROs aren't following up very long in at least some of the cases here. When I went through it the first time, I saw my RO for several years before eventually discontinuing.

    And then got to resume again in the recent past when I had this new situation to deal with ~ I haven't gotten far enough to discuss follow-up scenarios with any of the medical team yet, but guessing the RO will wish to keep me on his list for a while into the future.

    Six treatments to go. Still uneventful except the reddening and a little puffiness in the treatment zone.

  • javamama
    javamama Member Posts: 119
    edited April 2017

    Oh, I'm sure I'll have follow ups. It's just he sees active patients every Monday. This coming Monday will be my last standing appt with him. That following Wed., I go to see my MO, who I think will put me on hormone suppression drugs. The RO will probably want at least one follow up to make sure the radiation related skin irritation goes away or I haven't gotten any radiation related pneumonia or some other thing after treatment is over, but the wind is still open for certain side effects. My MO and RO are both part of my Cancer Group. There's no interruption in care and they all work with each other.

    22 treatments down. 3 more to go.

    I can do 3 of anything.

  • WenchLori
    WenchLori Member Posts: 1,558
    edited April 2017

    Javamama, only 3 more, yay! It's a wonderful thing how all 4 of my cancer team members are linked to each other also. It started with my BS who works hand in hand with my PS and my MO works hand in hand with my RO. The one meeting I'm really looking forward to is when my BS and PS are in the same OR with me. One will be removing this awfully annoying port and the other will be exchanging my TEs for squishies. 5 more months to go

  • javamama
    javamama Member Posts: 119
    edited May 2017

    I am done with radiation. My follow up with my RO barring any complications post-rads is the end of June. I see my MO on Wed. I'm pretty sure he's going to stick me on tamoxifen.

    Arm pit is peeling. Not bad though. RO said it looked like the skin rubbed together and off. He said the skin is really fragile and comes off easily and to baby it. He said I would know when it turned the corner. I will. I'm pretty in tune with my body.

    Now, I'm taking the summer off. Then I will go get a nipple and some scar revisions in Sept/Oct. Then tattooing if need be. AND THEN I will be done. Damn.

    Thank you one and all for your unwavering support as my chest wall and superclavicle area got fried!

    On a side note: I had immediate reconstruction with DIEP in NOLA. My surgeons were well aware the I might need Rads. I'm not sure what the did, but my flap looks beautiful. It held up GREAT. In fact, it softened during rads. I will say once again that NOLA are master artist. I found two pub med studies indicating no worse wear on flaps with or without rads after. I wasn't sure if I would be the odd man out. I wasn't. My flap looks red and like it's badly sunburned, but the skin maintained great integrity and the fat stayed nice. I noticed the softening in at the end of week 4/beginning of week 5.

  • WenchLori
    WenchLori Member Posts: 1,558
    edited May 2017

    Javamama, yay! Congratulations! Hip hip hurray! It's a wonderful feeling to finally be done isn't it? 🤗🤗

    I had an appointment with my PS this morning and he was floored how fast my skin had healed. He said I could have my TE exchange the first of July. It's been a long year for me so I'm putting exchange surgery off until Fall. I need to rest and heal before needing to heal from another step in my BC journey.

    Blessings to All


  • misslil
    misslil Member Posts: 260
    edited May 2017

    Saw my RO today for the last time during the treatment series (finish Thursday). He said follow-up in 3 months, then yearly thereafter.

    Area turned a little more red over the weekend, with a little more of that it could become quite lobster colored but it doesn't hurt so who cares I guess.

    Congratulations javamama and others who are finishing up or have the end in sight.

  • CeliaC
    CeliaC Member Posts: 1,320
    edited May 2017

    Echoing the congrats to all those who have finished! You did it! Gentle hugs & healing thoughts for everyones' skin.

  • ILSunrise
    ILSunrise Member Posts: 130
    edited May 2017

    Congrats to all who have finished! I have two more "all-over" rads treatments then I will start 9 boosts. I am so ready to check this off my list. The worse area on me is near my collar bone but I do have a rash on most of the top breast tissue, under my arm and breast.

  • CeliaC
    CeliaC Member Posts: 1,320
    edited May 2017

    ILSunrise - Seems like you have had a long Rad journey, but the end is near. Sending you encouragement, healing thoughts & gentle hugs. Did you ask your RO or Rad Nurse about something for the rash and your "worse area"? Mometasone Furoate 1% Cream is the scrip RO gave me for rash. Hope they have provided you with some type of guidance on relief for the bothersome areas. If not, DEMAND it! (Check out long list of info posted earlier today on May 2017 Rads thread.)

  • ILSunrise
    ILSunrise Member Posts: 130
    edited May 2017

    CeliaC - I am near the end of rads. I asked why I had more treatments than I was expecting. I found out that since I had chemo before rads, they ordered a lower dose of radiation for each treatment but then you have to go for more sessions. It's supposed to help miniize the SEs since your body is still recovering from chemo. My RO did offer to write me a script for the rash. I told him I already had an RX for Triamcinolone Acetonide (leftover from chemo) which is a steroid cream. My RO said I could use it for the rash from rads but to let him know if I wanted to try something else. Appreciate your thoughts and encouragement. I did see your long post in the May Rads thread. That was a fantastic summary for everyone just starting on that journey and I know they are going to really appreciate all the insight!

  • WenchLori
    WenchLori Member Posts: 1,558
    edited May 2017

    IL Sunrise, I also had chemo first and had more treatments at lower strength. I waited a month after chemo before starting radiation. I was told the wait gives our bodies a chance to breath and recover before blasting it again.


  • ILSunrise
    ILSunrise Member Posts: 130
    edited May 2017

    WenchLori - I waited after chemo about the same amount of time you did. I was certainly glad to let the chemo SE's wind down first.

  • WenchLori
    WenchLori Member Posts: 1,558
    edited May 2017

    I've started a new thread for all of us that have bonded during radiation in March and April. Please come join us!

    Topic: Positive Thinking after Radiation

  • ILSunrise
    ILSunrise Member Posts: 130
    edited May 2017

    WenchLori - great new thread you created. I'll have to check it out.

  • WenchLori
    WenchLori Member Posts: 1,558
    edited May 2017

    IL Sunrise, I'm the only one there at the moment 😳


  • Sr2295
    Sr2295 Member Posts: 34
    edited May 2017

    last boost tomorrow! Sending encouragement and positivity to all

  • misslil
    misslil Member Posts: 260
    edited May 2017

    congrats! I finished last week. Was a little sore where the area had gotten quite red, but it's already starting to fade.

    Hoping it did its job if any little nasties were possibly left in there after my chemo and surgery.

  • Butterfly1234
    Butterfly1234 Member Posts: 2,432
    edited May 2017

    Congrsts to all on finishing your rads!!

  • ILSunrise
    ILSunrise Member Posts: 130
    edited May 2017

    Sr2295 - so exciting that you're finishing rads today! Way to go!

    misslil - congrats on finishing rads and glad to hear you are starting to heal up already.

    I have 5 more boosts.....let the countdown begin.

  • WenchLori
    WenchLori Member Posts: 1,558
    edited May 2017

    Congratulations to everyone finishing up your treatments! I'm counting down right along with everyone! Yes, let your count downs begin! 🙏

  • ILSunrise
    ILSunrise Member Posts: 130
    edited May 2017

    Question.....so I just had my skin break open under my arm and it looks like new skin in underneath. I still have three more treatments.....do I still just moisturize that area?

  • misslil
    misslil Member Posts: 260
    edited May 2017

    I would think so, but call your team to ask to be sure?

  • javamama
    javamama Member Posts: 119
    edited May 2017

    My underarm turned blackish and then started peeling. I had skin under as well. Pink skin. I'm not sure why I didn't realize that my boob would peel as well. As if I'd gotten a sunburn. As I said I don't know why I didn't expect the peeling from the burns. But I think it's because my RO told me that radiation burns aren't like regular heat burns or sunburns. Anyway, my boob peeled as well. The first parts that peeled revealed pink skin. As I continued to peel, however, the skin revealed underneath starting being more beige and like normal looking skin under a slough.

    Anyway, y'all... be prepared to peel. ;)

  • ILSunrise
    ILSunrise Member Posts: 130
    edited May 2017

    javamama - thanks for the information. The skin underneath is pink. I think my boob is going to peel soon too.

  • WenchLori
    WenchLori Member Posts: 1,558
    edited May 2017

    ILSunshine, my skin also turned black and then just seemed to melt away. The new skin returned pretty quickly. It's not considered an actual "burn" because the radiation keeps our skin from reproducing skin cells as it normally would. It's very painful but it will get better. I was actually very surprised and thrilled how fast the new skin returned after finishing my treatments. You can do this! We're a tough bunch of sisters here and we've got your back! ALWAYS!



  • CindyABH
    CindyABH Member Posts: 7
    edited May 2017

    Hi ladies. I finished chemo in February and they would like me to do Radiation. I am having such a hard time deciding to go forward with it. I'm not sure if the possible side affects and the percentage is worth it. A big part of me does not want to do this. My RO wants to do the whole right breast, or breast wall, under arm and clavicle. (I think I am saying this right). I am feeling more like myself and would like to stay that way. I've read so many things and seen so many pictures that it really worries me. If anyone has had doubts or some helpful advise, please share. I'm not trying to sound like a downer, I am just confused and scared.

    Thank you,

    CindyABH

  • ReginaZ
    ReginaZ Member Posts: 41
    edited May 2017

    Cindy, I know how you feel. I had initially decided not to do rads because in my case it has no survival benefit, only a local recurrence benefit. However, my breast surgeon convinced me that it was still worth doing, so I did. I do think about the possibility of future long term side effects... I'm also aware that if I hadn't done it I would always be waiting for that local recurrence. If there was a survival benefit, I don't think I would hesitate. Good luck with your decision

  • WenchLori
    WenchLori Member Posts: 1,558
    edited May 2017

    Cindy, welcome. Radiation is a pretty scary thing to think about and it's a huge decision to make and we do it for many different reasons. What type of BC do you have? Grade? Stage? Have you had surgery already? If you go to your profile page you can add all of your BC statistics so we can help you through every step of your treatments during this horrible journey we are all on. I was very scared and anxious before starting rads too and that's totally natural. We are all different and our bodies and skin react differently to radiation. The decision I made to go ahead with radiation was that I wanted to throw everything they have at my BC so there wasn't much arguing in my head to go ahead or not do it at all. Once I learned that my cancer had spread to my lymph nodes it was a no brainer for me, I also had a DBMX to lower the chance of a recurrence. Like you, I felt really good after I finished chemo and I didn't want to go back to feeling that way again. But now that I'm 5 weeks out I'm feeling pretty good almost back to my old self. I still need to take a nap now and then but I can handle that better than possibly going through all of this again. If I do have a recurrence at least I know I did everything I could to fight back. Whatever you decide to do is going to be a hard decision to reach but in the end you have to do what's best for you.

    I didn't have any skin changes until about the 5th week. My skin ended up turning black and peeling under my arm and the out side part of my foob. Within 2 weeks of finishing radiation my skin was back to normal. You'll have some itching and redness on the radiated side but most of the gals here had very minor side effects. The one thing I'd recommend you not do is use a petroleum based cream during radiation. My RO recommended it and I regretted using it as it's very thick and is painful to wash off before going in for my next treatment. I also feel that the heavy petroleum based cream fried my skin even more as I wasn't able to get all the residue off before my treatments. Feel free to PM me with any other questions you may have.

    Lori


  • ILSunrise
    ILSunrise Member Posts: 130
    edited May 2017

    CindyABH - I too finished chemo in February. I can tell you that overall chemo is worse than rads. I see your diagnosis is different than my ER/PR- but HER2 +/ & node positive. Plus you had reconstruction. So, has your RO and MO answered all your questions on why rads is recommended for your situation?

    Since I had a lumpectomy, rads were kind of a given. I can tell you I had a good experience and the rad techs were so nice and caring.

    Hugs to you and I hope you can get enough information to make the best decision for your situation.

    WenchLori - glad to hear that the skin healing and growing back happens quickly.

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