DCIS Recurrence or another cancer or not

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  • proudtospin
    proudtospin Member Posts: 5,972
    edited March 2017

    the ro pulled a mamo after my surgery but before he was setting up my tatoos for rad. He looked at it and looked iin a dif spot and saw suspicious stuff. It was a crazy time as all the docs scrambled to figure out what to do.

    My onco is sort of shocked by all this but then again, so am I

    Afinitor i am adjusting to, gonna ask on next visit if ok to take at night as it makes me way tired

  • Scout7
    Scout7 Member Posts: 20
    edited April 2017

    it has been a while since I have been on this group. Finished rads in late October. Now my last post scan on Friday showed a new "focal area" of concern. Not in the same area as other cancer but in same breast. They want to do a MRI guided BX this Friday. Praying it is a fibricyst change. Don't see how I could have cancer again after lumpectomy and 33 rounds of whole breast rads.

    Anyone have examples of this type of situation turning out ok? Benign?

    Having suffer a DVT and PE in both lungs before BC Dx, last March 2016. I don't think have I the strength to do this again.

    Thank you for your support.

  • proudtospin
    proudtospin Member Posts: 5,972
    edited April 2017

    i had one scare like that at about the 3 year mark, biopsy tuned out clean but holy moly was i nervous

    Good luck and be strong

  • MTwoman
    MTwoman Member Posts: 2,704
    edited April 2017

    Sending you warm ((hugs)) and positive thoughts for b9 changes. So sorry you're going through this anxiety again!

  • Scout7
    Scout7 Member Posts: 20
    edited April 2017

    Proud, what did it turn out to be? Fibrosis ?

  • proudtospin
    proudtospin Member Posts: 5,972
    edited April 2017

    scout, it turned out benign think they said it some sort of fibroid but do not remember what they called

    It was done at a dif office than where i usually go, i sort of thought that dif eyes were seeimg all my scar tissue. I do remember my surgeon saying if it was something bad, thrn i would need a madtectomy

    But i was able to celebrate the all clear

  • Scout7
    Scout7 Member Posts: 20
    edited April 2017

    I had my MRI bx today. Found out I have another focal area behind my original cancer in addition to this other new area. Both locations had rapid uptake of the contrast suspious for cancer. I would like to think I had the right decision to have a lumpectomy last summer but now I am really worried they did not get all the cancer. Have to wait until Wednesday to have results at oncology office.

    Would appreciate any thoughts or insight to this situation.

    Thank you!

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited April 2017

    Scout - one thing about doing only a lumpectomy - you can always go back & do a mastectomy. I did have a BMX for DCIS due to the size of the tumors & the density of the tissue. I still had a recurrence 2 years down the road from a "micromet" that migrated into the lymph system before the first surgery. Or maybe 10 years ago. Or maybe during the surgery. There's just no way to predict for sure what will happen.

    I hope the results are not catastrophic. Many second areas do turn out B-9,

  • Scout7
    Scout7 Member Posts: 20
    edited April 2017

    minus two

    Thank you for Your insight. Was it found on a routine follow-up? I did not know dcis could turn into IDC.

    I hope all is clear now? Are you on treatment?

    Take care

    Scout

  • Beesie
    Beesie Member Posts: 12,240
    edited April 2017

    Scout, while DCIS is non-invasive, if it is not removed, it can develop into invasive cancer. You just need a few rogue DCIS cells to be left after surgery - and not killed off by radiation or hormone therapy - and it's possible to develop an invasive recurrence. About 1/2 of all DCIS recurrences are still DCIS, while the other half are not discovered until the DCIS has already evolved to become invasive cancer.

    The evolution of DCIS is visualized well here: http://www.breastcancer.org/pictures/types/dcis/dc...

    MinusTwo, did you have a localized (in the breast area) recurrence in addition to the nodal involvement or was your recurrence only in your nodes?

  • Scout7
    Scout7 Member Posts: 20
    edited April 2017

    beesie

    Thank you or the link. I remember that image in my binder the cancer center gave me. I would hope the radiation would have killed if there was something there. But my fear is it has been there all this time since I was dx last year..

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited April 2017

    I had BMX, including nipples, with no further treatment since the surgeon got clear margins & clean SNBs on both sides - and recon 7 months later. I went in for my scheduled two year MO check and asked about a lump under my collar bone. ULS lead to biopsy & to MRI and to PET/CT and so on. Both the surgeon and the MO were astounded when it turned out to be a local recurrence in the lymph system. No recurrence to any remaining breast tissue, so the surgeon did her job correctly the first time. They don't routinely test for HER2 with DCIS, but they discovered it was now not only IDC but also HER2+. All the active, nasty treatments were finished by the end of 2014 since I'm ER/PR negative. Thanks for asking Scout.

    Hopefully I've had my turn(s) and am finished with the beast, but I'm no longer upbeat or blase about recurrence &/or mets. Of course I'll be upset if "it" knocks again since I've done everything possible, but I won't be shocked or as devastated another time. I have truncal & breast lymphadema to remind me every day, not to mention dead feet from CIPN. Still, I'm not bitter very often. I've made accommodations & moved on & I am one of the fortunate ones - so far.....

    Scout - I'm sorry you have to wait until Wednesday. Waiting is the hardest. please let us know when you get your results.

  • Scout7
    Scout7 Member Posts: 20
    edited April 2017

    What an incredible journey you have been on. I hope your journey will cancer free going forward. You are very brave. Thank you for sharing your story.

    As soon as I get my results I will report back. I am hoping the radiologist will call me Tuesday and say all is B9. Have scheduled appt for Wednesday with Onc to review results anyway.

    Take care.

  • Scout7
    Scout7 Member Posts: 20
    edited April 2017

    the waiting for results is agony! I don't remember being this worried the first time I waited for my original breast cancer dx. I guess knowing the treatment process makes one not want to go through it again. 2 more days to go! Ugh!

  • Cashiola
    Cashiola Member Posts: 1
    edited May 2017

    Hello

    Just diagnosed about a week ago .... typically if you go the BMX route , you can skip radiation? Wow as I'm typing this ...it just all came to me . I'm deciding if I'm going to hang on to the girls or endure radiation... bad dream ???.. somebody wake me up!!!

  • Moderators
    Moderators Member Posts: 25,912
    edited May 2017

    Dear Cashiola,

    We are so sorry that you find yourself here but so glad that you reached out to our community. There is much support and information here from others that can help you as you get ready to make decisions and start your treatment plan. We know that others will weigh in but we wanted to say welcome. Stay connected here and keep us posted. The Mods

  • Icietla
    Icietla Member Posts: 1,265
    edited May 2017

    Hi Cashiola, and welcome to BCO. So sorry about your diagnosis and the difficult surgery decision that comes with the shock of being diagnosed.

    About your question -- It depends. It may depend on the location (or positioning) of one's tumor/s; on nodal involvement; or on other factors. Here is a good informative article__

    http://www.breastcancer.org/treatment/radiation/when_appropriate

    Give your surgery decision a lot of thought. Consider that because of health conditions or complications, some mastectomees cannot have reconstruction (or cannot have reconstruction efforts completed). This post by member Beesie points out numerous considerations for those making the choice between surgery types__

    https://community.breastcancer.org/forum/82/topics/848049?page=1#idx_11

  • edwards750
    edwards750 Member Posts: 3,761
    edited May 2017

    MinusTwo - I had a micromet too but mine showed up in the Path report after my lumpectomy. My BS was surprised and even said they had to dissect and re-dissect to even find it. He told me that would mean chemo. Not his call. My ONC ordered the Oncotype test to help determine a treatment plan. My score came back@11. No chemo but 33 Rads treatments.

    I think we all have the fear factor about a recurrence. Unfortunately comes with the C DX. What I have noticed from what Ibhave read and heard is most of the BC recurrences happen in the first few years. Of course there are exceptions with the horror stories of 10 and 20 years post and the beast is back. No safety net for us ever. We can however, get a dose of optimism from the Oncotype test and as years go by generally.

    I went through my BC process in a fog. If it ever comes back I'll at least be prepared for what's coming.

    Diane

  • Suzi_4
    Suzi_4 Member Posts: 13
    edited October 2017

    hi sitti how are you going .i have dcis high grade ductal carcinoma in situ i had lumpectomy 4 weeks ago and my doctor told me no radiation only to take tamoxifen I'm pr- er-

  • dulcemia
    dulcemia Member Posts: 1
    edited October 2017

    I was dx with DCIS in 2014, stage 3 comedolumpectomy afterwards re excision and rads for 6 weeks. I thought It was done well at least not expecting chances of reoccurrence so soon . After mamagram on Tuesday Oct 17 needed other test while at mamagram screening and informed of findings , 7 mm spiculated mass and 2 mm viewed on sonogram scheduled for biopsy on Nov 6 . Reading post has made me aware of how many women are experiencing reoccurances in shorter time frame

  • Sitti
    Sitti Member Posts: 230
    edited October 2017

    Dulcemia, I'm so sorry to read that you are facing a possible recurrence. It seems to happen more than I originally thought. I hope your results turns out to be benign. Please up date when you can. Wishing you the very best.

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