Back after 7 years

Options
13»

Comments

  • kira1234
    kira1234 Member Posts: 3,091
    edited May 2017

    Thanks for the invite Lisey. Someone suggested that group the other day maybe you. I've already been accepted. What a fantastic blessing they've been already.

    · Share on FacebookShare on Twitter
  • voraciousreader
    voraciousreader Member Posts: 7,496
    edited May 2017

    kira...glad to hear that lymph nodes were clean....going forward I wish you and all our friends only good surprises....

    · Share on FacebookShare on Twitter
  • Hopeful82014
    Hopeful82014 Member Posts: 3,480
    edited May 2017

    Kira, I'm glad to hear you got good news about your nodes. Every little bit helps, right? Thinking of you as you recover. Take care.

    · Share on FacebookShare on Twitter
  • 7of9
    7of9 Member Posts: 833
    edited May 2017

    Kira,

    Congrats on clear nodes! This is good news...way to kick this to the curb. I survived a recurrence hope you do too...


    · Share on FacebookShare on Twitter
  • wallan
    wallan Member Posts: 1,275
    edited May 2017

    Hi Kira:

    Wonderful news on negative nodes. Take it easy.

    I am thinking of you.

    wallan

    · Share on FacebookShare on Twitter
  • kira1234
    kira1234 Member Posts: 3,091
    edited May 2017

    Surgery went okay on Monday. I'm apparently an extremely adjetated person coming out of anthesa. Somehow my drain line got pulled out and had to be placed again. My surgeon told me this. At any rate I'm healing okay just a lot of future black and blue over half my chest and back. I'll be seeing him Monday and will hopefully get my pathology report.

    · Share on FacebookShare on Twitter
  • Meow13
    Meow13 Member Posts: 4,859
    edited May 2017

    kira, I found resting and sleeping helped me recover sooner. I did have some strange nerve pain in my teeth if you can believe it. I used ambesol to take care of it.

    · Share on FacebookShare on Twitter
  • Hopeful82014
    Hopeful82014 Member Posts: 3,480
    edited May 2017

    Ouch. That business w/the drain line sounds painful. I hope you can take it totally, completely easy over the weekend.

    · Share on FacebookShare on Twitter
  • kira1234
    kira1234 Member Posts: 3,091
    edited May 2017

    Meow I have been resting. I'm not usually quite so aggressive. Apparently I thought my classroom of kids were in the hospital room and I was naked. I'd quess I was quite hysterical about the entire thing.

    · Share on FacebookShare on Twitter
  • Meow13
    Meow13 Member Posts: 4,859
    edited May 2017

    Oh, dreams I had one that I was facedown on a toaster conveyer belt. My whole front was trying to recover from DIEP. Thank goodness I woke up and my front cooled off.

    · Share on FacebookShare on Twitter
  • Penzance
    Penzance Member Posts: 101
    edited May 2017

    Sorry you're back there. I think it's even worse than a 1st diagnosis. One lady I know was treated for bc 12 years ago (HRT linked), insurers consider that she would have to be 27 years NED after the end of treatment to be considered 'cured' (hence higher premiums and exclusions). My own breast doctor considers that patients are never 'cured', and that only a minority of patients with cancerous cells ever get diagnosed with bc, however he also thinks that the majority of these cancerous cells are 'lazy', as you say, and may well remain dormant for the whole (normal) lifetime of the patient. Giving you a big hug. 

    · Share on FacebookShare on Twitter
  • Hopeful82014
    Hopeful82014 Member Posts: 3,480
    edited May 2017

    Kira, I can understand being worked up about such a dream/hallucination. Just what you needed, right? Hope things are staying calm for you and you're starting to feel a bit better.

    · Share on FacebookShare on Twitter
  • kira1234
    kira1234 Member Posts: 3,091
    edited May 2017

    My breast surgeon believes breast cancer is a systematic disease that can hit anywhere. I am very thankful he has been so honestly with me and very respectful of my choices.

    · Share on FacebookShare on Twitter
  • kira1234
    kira1234 Member Posts: 3,091
    edited May 2017

    very good news today. I don't need radiation and notin my lymph nodes. Will be talking to the oncologist June 1st. I'll be updating my profile

    · Share on FacebookShare on Twitter
  • Hopeful82014
    Hopeful82014 Member Posts: 3,480
    edited May 2017
    Great!
    · Share on FacebookShare on Twitter
  • Falconer
    Falconer Member Posts: 1,192
    edited May 2017

    yay, Kira!!

    · Share on FacebookShare on Twitter
  • wallan
    wallan Member Posts: 1,275
    edited May 2017

    Great news Kyra!

    wallan

    · Share on FacebookShare on Twitter
  • kira1234
    kira1234 Member Posts: 3,091
    edited May 2017

    Thanks wallan. I see you've recently had a new bc diagnosis. Wish we both didn't have this happen again but nice not to be alone.

    · Share on FacebookShare on Twitter
  • wallan
    wallan Member Posts: 1,275
    edited May 2017

    Hi Kira:

    Hugs to you. I love these boards for the support and knowing we are not alone. With my 2nd BC dx, I only needed mastectomy and Arimidex. No rads or chemo needed thank God. It seems to me that BC treatment and attitude towards the disease has changed ALOT over the last 13 years since I had I had it last time.

    Do you find that?

    wallan

    · Share on FacebookShare on Twitter
  • Emily2008
    Emily2008 Member Posts: 605
    edited May 2017

    Wallan, it's amazing that you say, "I only needed mastectomy and Arimidex"...the things we try to find the upside to, lol! I've done and said the same thing. What a crazy life we lead!

    I agree that BC txt has changed a lot. With my first dx 8 years ago to this most recent one, my docs approach my care with more information and clarity. No telling if we're always making the right decisions, but we do the best we can with the most up to date info out there.

    May we live LONG and prosper!

    · Share on FacebookShare on Twitter
  • cse70
    cse70 Member Posts: 43
    edited May 2017

    wallan and emily,

    I agree that the second time was more optomistic for me. When my MO said "stage 2a", I said "Yay, I've done it before so I can do it again!" Silver linings can always be found....


    · Share on FacebookShare on Twitter
  • kira1234
    kira1234 Member Posts: 3,091
    edited May 2017

    Wallan, Emily 2008, and cse70 I agree the doctors have much more knowledge than they did 7 years ago. I'm just done with my double mastectomy and know that I won't need radiation. My breast surgeon and oncologist both are hoping I won't need chemo. I know I was in the gray area originally. We will see. I have an appointment with the oncologist June 1st.

    · Share on FacebookShare on Twitter
  • Meow13
    Meow13 Member Posts: 4,859
    edited May 2017

    So glad to hear you won't need radiation.

    · Share on FacebookShare on Twitter
  • kira1234
    kira1234 Member Posts: 3,091
    edited May 2017

    Thanks meow13. I went with the mastectomy for that reason. I'd done radiation 7 years ago and the surgeon didn't want me to have more.

    · Share on FacebookShare on Twitter
  • Penzance
    Penzance Member Posts: 101
    edited May 2017

    Really good news. I find it amazing how the field changes too. In the past, people used to criticize cancer research a lot, saying it was useless and didn't translate into better treatment, however I find this is becoming less and less true. The difficulty is making people around us understand that you can live for many years with cancer, or have long periods of NED, and no, the doctors didn't make up the disease or make a mistake! Best of luck for your appointment with the oncologist.

    · Share on FacebookShare on Twitter
  • kira1234
    kira1234 Member Posts: 3,091
    edited May 2017

    Penzance you're correct with all the knowledge they're learning. I'm in a tough spot though because I have lobular breast cancer but it's pr- which is extremely unusual. At least they now know tamoxafin doesn't work on lobular with

    · Share on FacebookShare on Twitter
  • suzmaxey
    suzmaxey Member Posts: 3
    edited May 2017

    I can understand your fears. I had DICS 10.5 years ago in my R breast, had a lumpectomy and radiation. Now I have a cancer in my L breast, and am scheduled for surgery first week of June. I found out about a month ago but have to wait until June 1 when my Medicare starts. I live in Central America and could have the surgery here but would rather not, even though it would be free. The waiting is very scary.

    Good luck. Life isn't fair sometimes. I will be thinking of you.

    · Share on FacebookShare on Twitter
  • kira1234
    kira1234 Member Posts: 3,091
    edited May 2017

    suzmaxey hugs going through it again. We're all here for you. I know how hard the waiting is. I think you're doing the right thing waiting.

    · Share on FacebookShare on Twitter

Categories