I need my breasts to feed my baby!

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SallyReichman
SallyReichman Member Posts: 4
edited May 2017 in Waiting for Test Results

Hello, Everybody,

I've been stalking these forums, looking for answers and thought that I might as well just make my own post and see if I can get any reassurance. I'm feeling very anxious (quite terrified, if I am to be honest about it all) and could use someone to talk to. I'm currently nursing my ten-month-old baby (she is our third child and they all loved to breastfeed). I had several plugged milk ducts with this baby that just would not resolve, no matter what I tried. (And I tried EVERYTHING). My midwives finally referred me for an U/S, which happened on 3/15. Everything looked fine, according to the tech and the Radiologist. And yet, I still had a mass in my right breast that was bothering me.

Fast forward to April and things got worse. I could not empty my right breast of milk, no matter what I did. It always felt full and that mass was still there. Then I developed a little lump in my nipple (the size of a small bead that I could feel between my fingers). It made nursing excruciatingly painful, so I consulted with the midwives again. This time they referred me to a breast specialist and an appointment was made. While waiting for that appointment, the pain got to be too much and I called my midwives, begging for help. They referred me for another U/S. This one took place on 4/14.

At this U/S, neither the radiologist nor the tech were at all concerned with the bump in my nipple, nor with the mass in my breast. They only had eyes for an enlarged lymph node with what looked like "draining veins." They were also concerned that I had mastitis (initially I convinced myself that I had IBC, but the antibiotics cleared up the swelling, the redness, and the pain, so I can only assume that it was in fact mastitis).

The breast surgeon (when I finally saw her) reassured me that it is not IBC. She saw no issue with the mass in my breast, and said that the only way to deal with the bump in my nipple would be to cut open my areola and scoop it out, thus ending my nursing on that side. I cried & cried all the way home.

I have also consulted with an MD / GP who is also an IBCLC. She is kind and wants to help me, but thinks that I need to deal with the suspicious lymph node first. Thankfully, a good friend gave me some miraculous aloe gel that has caused the nipple bump to essentially disappear. No more painful nursing - YAY!

I had a core needle biopsy yesterday at the breast center. I have an appointment with the breast specialist on Friday and expect that she may have the pathology report for me then. (If not Friday, then the radiologist who took the biopsy said definitely by Monday). But how can I possibly wait that long?!?

If no one thinks that any of the lumps and bumps in my breast are of concern, then my fear is that this is actually lymphoma. How does a differential diagnosis for the two (BC vs. lymphoma) happen? Can they tell what kind of cancer it is (if it is in fact cancer) just by looking at the biopsy sample?

Any kind words are appreciated. I have three young children and I really need to see them grow up. At the very least, I want my baby to remember who I am. I'm so scared and alone with all of this.

Sally :-(

Comments

  • Autumnsweater75
    Autumnsweater75 Member Posts: 5
    edited May 2017

    hi sally,

    I know it's difficult to relax and be calm in your situation, but please try.

    HAs any of your doctors actually mentioned lymphoma?

    Mastitis (that is esebcialky an infection) could cause enlarged nodes.

    Try not to thinkthe worst. It's difficult, but you can do it


  • SallyReichman
    SallyReichman Member Posts: 4
    edited May 2017

    Thank you, Autumnsweater. I had been holding out hope that when I went on for the biopsy, that the doctor wouldn't even see the lymph node on the U/S (or at least, not a suspicious-looking node) & therefore tell me that the biopsy wasn't needed, that all was well, that it was all a result of the mastitis. That hope went out the window when she marked the site with a felt-tip pen :-(

    She also asked the tech who was with us if thy had looked for any "flow" on my last scan. HARG. I fear that here is something terrible growing in there and that it has a blood supply now. I know what to do: stay off the Internet, find joy in my children, stay busy. But the fears keep my thoughts spiralling down the rabbit hole.

  • JuliaJazz
    JuliaJazz Member Posts: 246
    edited May 2017

    Try to stay calm. I am sure you will get those tests back soon. Your local La Leche League Leader may be a support to you as well. Just someone to talk to. Even if it is positive there are so many amazing things they can do with modern medicine and you will be around for your kids for a long time. I am thinking of you.

  • Mominator
    Mominator Member Posts: 1,575
    edited May 2017

    Sally, deep breaths.

    I had a bad case of mastitis when I was nursing my first child. Antibiotics cleared up the infection, but left behind was a very large lump. Breast surgeon couldn't get anything out with a needle biopsy. (This was 1995, I don't know why he didn't do an ultrasound). Next he performed a surgical biopsy.

    It was an area of necrosis cause by a local infarct during the mastitis. Surgeon removed the plugged duct and the surrounding necrotic tissue. I had to pump and dump and was able to nurse again after 24 hours to let all the anesthesia medications clear out of my milk.

    Wishing you all the best, Madelyn

  • SallyReichman
    SallyReichman Member Posts: 4
    edited May 2017

    Thanks, Madelyn. I read your reply yesterday morning and it gave me a string of hope to hold on to. Yesterday was a bad day- May 4th was the be the birthday of a baby that I lost at 14 weeks in October 2014. So that was weighing on my mind. Then the baby fell and bruised her forehead as I was getting dressed for work, which brought on the bad-mommy guilt. And the waiting & worrying. I cried all the way to work and was a complete mess all day. I was to have an appointment today with the breast specialist, but her office called to cancel, because the pathology report is not in. The doctor goes on vacation today and won't be back until 5/17! They said that her nurse practitioner can call me with results, but that would be Monday at the earliest. Good grief! I feel like am going lose my mind.

  • Mominator
    Mominator Member Posts: 1,575
    edited May 2017

    Sally, sorry you had bad-mommy guilt.

    I realized that I didn't address all your concerns on my previous post.

    Lymph node: Our lymph nodes do a lot of work and sometimes they get swollen. Your lymph node may be swollen from the build-up of fluid from the mastitis/plugged ducts. Sometimes it takes a while to clear out.

    Biopsy sample: Pathologists can tell a lot about cancer from looking at the biopsy sample: ductal vs. lobular cancer (or other cancers), hormone status, and more. 

    Pathologists will take the time to describe exactly what is in the sample. Whether or not it is cancer, they still need to fill out all the fields, cross all the t's and dot all the i's, for every single sample that passes through their doors each day. So a delay in hearing the results only means that they are busy, not what the diagnosis is.

    Please take to heart the motto for this forum:

    "Worry does not empty tomorrow of its sorrow. It empties today of its strength." -- Corrie Ten Boom

    Spend the weekend enjoying your lovely family.

    Best wishes, Madelyn

  • SallyReichman
    SallyReichman Member Posts: 4
    edited May 2017

    benign results. HOORAY! (Though this still leaves me with the question of what's going on inside of this breast & why has breastfeeding been such a challenge this time around). Still, I'm overjoyed with this news. I've yet to receive the pathology report; it is supposedly in the mail. They recommended a 6-month follow-up scan, which I will schedule shortly. Thank you to all who offered support and kindness. Life is good and I am counting my blessings, you all among them

  • MTwoman
    MTwoman Member Posts: 2,704
    edited May 2017

    Thanks for letting us know and Congrats on your B9 results!

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