Stage 2 or Stage 4
So in September I was diagnosed with Stage 2 her-2 positive metastatic breast cancer rate 3 and up until now I've been under the impression that after my double mastectomy and all of my chemo that technically the cancer was gone I hadn't been considered in remission yet because I hadn't finished all my treatments but I still thought that it was all removed from my body. Recently I started radiation and effort to make sure the cancer did not come back, the radiation caused a very large burn on my rib cage and because of the mastectomy and I couldn't feel it so I didn't realize how bad it had gotten. It caused sepsis throughout my entire body and I had to go to the hospital and while I was in the hospital because of the sepsis they did a chest x-ray and said that I have what's called enlarged lung nodules so now they're saying that I have to wait 3 months for another scan and that there's a 50-50 chance that the lung nodules could be cancer or they could be nothing they could have been caused by the infection or millions of other things but it's 50-50 chance and obviously if I fall on the bad side of that 50/50 I'll have stage 4 breast cancer I don't really know what I'm asking my fellow Warriors I'm scared I wonder if anyone else has been through this and come out on the good side and if they came out on the bad side how long can I really live that way can I still survive for many years that way?
Comments
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You've been through a lot. BC on top of sepsis.
Hopefully someone else will weigh in soon who has experience with a scan showing lung nodules.
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hi JPenny,
Although this did not happen to me, over the many yesrs i hsve seen similiar scenarios and they have not turned out to be mets. Or lungs are filters, so not everything that. Shows up on a cxr is a baddie. It can Happen due. To infection or inflammatory changes.
Try not to worry
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Hi, JPenny - I'm sorry you're having an especially tough time of it. It's all bad enough without sepsis and other worries. Scans have become so sensitive that they now routinely pick up incidental findings that we wouldn't have otherwise been aware of.
I have lung nodules that were found in my diagnostic workup. They've remained the same through all my treatment (neither growing nor shrinking) and we no longer track them. Waiting for the results of that 1st follow up, especially, can be tough. Right now, though, you need to focus on getting through radiation and taking really good care of yourself. Don't let additional worries or stress intrude any more than you can help (I know - that's so much easier said than done!). I hate it when people say "Oh, you'll be fine" as though they have a crystal ball, so I won't. I do hope that you end up where most of us do - with benign nodules of unknown origin. Hang in there.
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Hi Jpenny, I know this is a scary time for you so I hope my info helps ease your mind a little. First off, I am very sorry about your infection and subsequent sepsis; that in itself is a lot to endure. I lost my Dad in 2011 from an infected port that caused sepsis, then septic shock. He had Stage IV colon cancer, had been in chemo for three and a half years and had just had a good scan with shrinkage of his tumors when this happened. So complications from our treatment is something to be taken very seriously.
About the lung nodules. I had to have a chest CT shortly after I started radiation (Canadian protocol), because I was having swelling and weakness in my right arm and hand. My BC was on the left side, btw. My RO just wanted to make sure nothing else was going on. They found two small nodules in the lower left base of my lung. I was so scared and upset because I had only finished chemo a month earlier. And these two areas were not on my original Pet/CT scan done after DX prior to starting chemo. I did not get to see my MO unfortunately, but the CRNP checked my tumor marker for me and it was good. I have had two "3 month follow-up" chest CT's since then. The first one in December (just days before Christmas) was no change, and on the second scan this past March the areas were gone. Or at least had not grown. My Onc explained the images are taken in slices (1 cm I think) and it may have missed them on my very first scan. He believes they were from an old infection (I've had a lot of bouts with bronchitis) and he also said it was possible it was from the radiation. He is going to keep an eye on it, but I am off the three month follow-up. So don't give up hope that your findings are benign. I know how easy it is to think the worst, but trust that your medical team is going to be monitoring you closely. I know the idea of having regular chest CT's is very worrisome but it was also a relief to have some answers. Good luck and please keep us posted! -
I also have lung nodules. Three of them that were found when I had a petscan in July of 2014. They weren't even monitored for me. It's nearly 3 years later and no issues so I'm assuming they were benign. Hang in there.
Nancy
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hello
Lung Nodules are very common, I unfortunately found this out when I was first diagnosed and I had my work up scans . I had never even heard of lung nodules before this. At that time they found a 6MM nodule on my lung. They scanned it after I finished chemo and there was no change. Then it was scanned again over two years with no change so was deemed to be benign. When they first found it I almost drove myself to the brink of insanity worrying about it. Then I joined these boards and realized that many women have had lung nodules. Apparently, they are very common and usually benign. The hardest part I found is waiting for scan results after a follow-up.I believe the protocol is scan it for two years and if nothing has changed then it is nothing to worry about. Good luck
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I'm another noduler. Oncs used to get grave about a finding of lungnodules because back In the day on X-ray they'd only be seen at maybe 1 to 2 cm iin size which is more worrisome, But CTs pick up weeny things that mean nothing - they just freak us out. I don't know where JPenny's team get 50/50. A bit of googling and you'll friend studies which show that nodules under 1cm are more often benign than not.
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Also chiming in that I had two small lung nodules at my first CT after my mastectomy and my MO felt pretty confident they were benign. (Small is always good.) Even if they weren't at that point, they were too small to biopsy. Repeat scans at six months (after chemo) showed no change. Nodules are common, as everyone has said.
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I am glad they're watching you and retesting. Good luck and I hope all goes well
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Raising my hand as having a benign lung nodule. They are VERY common. Mine hasn't changed at all in four years.
Yours is most likely due to the infection.
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I had my 2 year scans two days ago and the report came back okay except they saw 2 very small lung nodules. I am absolutely flipping out because, I am sick right now with a cough and cold but am so beaten down that it couldnt eve. leave me alone for 2 years. The doc didn't act alarmed ...said they would revisit it in a year. I haven't seen the report yet. I have heard it can happen after chemo and rads, infection etc. But shit, I am afraid to get my hopes up with this ticking bomb in my body. How do you guys stay sane? Seriously...I run...I run away from it ...I try to avoid it at all cost but it terrifies me every single day .
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Maryb2017-
We're so sorry for the worry and anxiety you're going through. We know how scary the prospect of a recurrence is! Everyone deals in their own way, none are right or wrong. It seems promising that the doctor didn't appear worried, and we hope you continue to have nothing to worry about.
The Mods
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And if you read the previous posts, you'll see how many lung nodules turn out to be b9. Long as you are actually jogging when you run away from it, that will help.
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lol thanks everyone... I am wrapping my brain around it and reading lots of these posts I felt much better. I guess because I was 3a I panic more thinking it's more likely but from what i have read that is not the case.
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