Waiting for biopsy results while pregnant with first baby

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Rubyroo
Rubyroo Member Posts: 38
edited May 2017 in Waiting for Test Results

Hi everyone. I'm 31 and found a lump back in January which I had an ultrasound on and was told it was likely a fibroadenoma. I became pregnant with my first child soon after. I am currently at 14 weeks.

Last week I went for a follow up routine ultrasound on the same breast, this time a radiologist came in after the tech had taken photos. She asked why I hadn't been recommended for a biopsy the first time around. She pointed to some jagged edges and explained she was not convinced that it was a fibroadenoma. Her manner implied that the first ultrasound and 'diagnosis' was done in error.

Here's what I know: the lump is 8 mm, I think I saw some blood flow due to the colour feature on the ultrasound, there are fuzzy or jagged edges. She took 3 samples during the biopsy. I also have a swollen lymph node in my armpit on the same side as the breast. I don't know the birads rating and I won't know the biopsy results for 10 days. I am sick with worry and shock, and am not sure how I will handle a positive diagnosis with my current pregnancy.

I'm respectfully looking for only positive experiences to keep me going until the final diagnosis. Has anyone had jagged edges on a mass showing on an ultrasound and had the results be benign from the biopsy?

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  • Adelozier
    Adelozier Member Posts: 84
    edited April 2017

    cant give you any hope as I am waiting my results too :( did they say anything aboitr it being hypo or hyper echoic ?

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  • Rubyroo
    Rubyroo Member Posts: 38
    edited April 2017

    No. But from my reading I believe it would be hypoechoic, since I understand that the lump is darker. I could see the imaging as the ultrasounds was happening and it appeared a darkerarea.

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  • kmartin3243
    kmartin3243 Member Posts: 108
    edited April 2017

    Good Evening! I am sorry that you are here, and have to worry about this. I am also 31 y/o. I had two masses in my left breast. They were very sure one of them was a fibroadenoma. The second one had jagged edges and they were concerned about it. They biopsied it a few days later. Fortunately, it was also a fibroadenoma. Please try not to worry. Sending you prayers and positive thoughts as you wait. :)

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  • Rubyroo
    Rubyroo Member Posts: 38
    edited May 2017

    Thank you so much for your response. I am wavering between feeling calm and then remembering the initial feelings of panic I had when the radiologist recommended an on-the-spot biopsy (I was not prepared for that first thing in the morning!!) and will suddenly feel sick with worry again. It's such a specific, awful kind of fear.

    I really appreciate the kind words and am happy to hear both of your biopsies resulted in benign fibroadenomas!

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  • kmartin3243
    kmartin3243 Member Posts: 108
    edited May 2017

    I am sorry. It really is a very intense fear. You don't really expect breast ultrasounds and biopsies for suspicious areas at this age (or at least I didn't). I tried to distract myself by spending more time outside and with friends. I noticed that it was better when I was not alone. You are in my thoughts and prayers tonight! :) Congratulations on the upcoming bundle of joy!

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  • Rubyroo
    Rubyroo Member Posts: 38
    edited May 2017

    Update - I had had an appointment booked with my doctor to discuss biopsy results on May 8. I have been in vague email communication with her, just asking to let me know if the results come in sooner.

    A nurse just called to let me know I can come in to see my doctor tomorrow to discuss the results. I am terrified this means bad news - last time when I had the first ultrasound done, my doctor's office told me the results (suspected fibroadenoma) over the phone. Does being asked to come in earlier than expected generally mean good/bad news? Neutral? Just trying to brace myself and know if I should ask for a support person to accompany me.

    Thanks for any input. My heart is racing

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  • MTwoman
    MTwoman Member Posts: 2,704
    edited May 2017

    It just means they've gotten the results earlier than expected and don't want you to have to wait unnecessarily. You asked them to let you know if the results come in sooner, and they did. There are many things found in breasts that aren't cancer, but it doesn't mean that finding one of them doesn't warrant a conversation. Please try to remain calm just one more day. Then you'll have the information that you need and a chance to discuss what that information means for you as well. Deep breaths, music, go for a walk, try to stay relaxed and as calm as you can - stress is really not good for your baby.

    ((hugs)) and do let us know what they say! we're 'in your pocket'

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  • Rubyroo
    Rubyroo Member Posts: 38
    edited May 2017

    Thank you. Perhaps it's the pregnancy hormones, but I'm feeling pretty overwhelmed. At least it's only one more day in limbo.

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  • Rrobin0200
    Rrobin0200 Member Posts: 433
    edited August 2017

    just speaking from personal experience and personal opinion, I would definitely have someone accompany you to your appointment. With bad news, you'll have an extra ear, and with good news, well, maybe you guys can have a nice lunch afterward! It's a win win. Best of luck to you. Prayers storming the heavens for you. ❤

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  • kmartin3243
    kmartin3243 Member Posts: 108
    edited May 2017

    Thanks for letting us know the update. Definitely bring a support person with you if you can. I brought a friend with me for the biopsy because she was off of work that day. I also brought my husband with me for the results. I am embarrassed to say that I was very emotional during both appointments from worry. Keeping you in my thoughts and prayers! :)

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  • Rubyroo
    Rubyroo Member Posts: 38
    edited May 2017

    Thanks to you all for the supportive words. Kmartin, I cried throughout the entire biopsy procedure! So my emotions are definitely running high too. I am torn about bringing someone for that reason - with bad news I tend get overwhelmed and withdraw until I can collect myself and I'm not sure having someone there to witness that will be a good thing for me but I'll keep musings about it today. Having someone there sometimes forces me to be strong when I just want to break down.

    Trying my best to motor through today

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  • MTwoman
    MTwoman Member Posts: 2,704
    edited May 2017

    Of course you have pregnancy hormones and feeling overwhelmed is normal, pregnancy or not! Just try to breathe through it and focus as much as you can on positive things. Just one more day. You can do it!

    and Rrobin is right, having someone with you is always good, especially when anxiety is running high.

    ((hugs))

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  • Okiemomof4
    Okiemomof4 Member Posts: 54
    edited May 2017

    I, too, would have someone go with you. If it's positive, your mind will be reeling and you won't really hear what the doctor says. An extra pair of ears is useful. And if it's B9, then you can celebrate with someone!

    Try not to play movies in your head. Go with what you know. You have had a biopsy and will get results tomorrow. That's all you know at this point. I know that's easier said than done, but try!

    Prayers for you and your sweet baby

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  • Rubyroo
    Rubyroo Member Posts: 38
    edited May 2017

    Well, here's another update that's not looking good - I just received an automaticappointment confirmation through email at the breast clinic (Henrietta Banting Breast Centre, in case anyone is familiar) at the hospital I had the tests done. I looked up the name of the doctor I'll be meeting with and she is listed as an oncologist/hematologist.


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  • Rrobin0200
    Rrobin0200 Member Posts: 433
    edited August 2017

    most breast surgeons are oncologists. Remember, whatever the outcome, you will be okay. Shocked, scared, angry, feelings of helplessness, but you've got this. Don't read into too much. Follow the advice of your doctors. Day to day. Baby steps. Once a plan is in place, if even needed at all, you'll feel better. Try not to stress (easier said than done) but remember, your baby is first and foremost

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  • Michelle_in_cornland
    Michelle_in_cornland Member Posts: 1,689
    edited May 2017

    One of my tenants, 30 years old, had a cancer diagnosis during her pregnancy. I don't remember if she had surgery during or after her pregnancy. But, surgery is an option, both safe for baby and mom, during pregnancy. She followed with radiation and is doing great. Keep telling yourself that you and your baby will be fine, because you will be. Modern medicine is wonderful and we have some terrific doctors out there!!! Big hugs from Michelle.

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  • LilyKian2012
    LilyKian2012 Member Posts: 1
    edited May 2017

    Hi. I also found a lump when I was 25 weeks pregnant in July 2015, After a 2 week wait I went to the breast clinic and was also told it was probably a fibrodenoma. Biopsies were taken anyway. Hopefully for you it will be that. I don't want to worry you but support and reassure you if the results come back more serious.

    Results came back and it was triple negative breast cancer. I was in huge shock too but try and think positively. I had a mastectomy at 27 weeks, a midwife was with me all the way through and baby was fine. My baby was induced at 32 weeks by Caesarean section. 3 weeks later I started chemotherapy. Then had radiotherapy.

    Lily is now 19 months old and absolutely fine. She is a little dot but doing amazing. Since I have had lymph node dissection and 4 nodes removed for testing and all were clear. I'm doing fine and am more positive than ever. Either way, you are both going to be fine. Love Cathy x


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  • Rubyroo
    Rubyroo Member Posts: 38
    edited May 2017

    I'm sorry you had to go through that while pregnant, and I'm glad to hear you're doing well now. How big was your lump?

    Most of my emotions are partly due to some shock and a bit of panic. I went from not thinking about breast cancer at all, to knowing a lot more than I expected to over the course of 4 days. It's difficult as I would much rather be focused on being excited about this baby than having to contend with cancer. I am very much hoping that whatever surgery they recommend is preemptive, but not sure the chances of that. I know it's foolish to try and speculate when I'll find out soon tomorrow, but it helps my anxiety to flesh this all out here rather than over-worry my husband tonight!

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  • Katiew321
    Katiew321 Member Posts: 6
    edited May 2017

    Sorry to hear you are going through this, I know the worry your going through the same happend to me but I was diagnosed with a rare benign tumor called a phyllodes tumor. Remember there are so many things that the lump could be but as humans we always think of the worst case scenarios. Sending you hugs and got my fingers crossed for you for tomorrow!

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  • kmartin3243
    kmartin3243 Member Posts: 108
    edited May 2017

    I know it is impossible not to worry! I am glad you will finally get some answers tomorrow! Hoping for the best for you :)

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  • Moderators
    Moderators Member Posts: 25,912
    edited May 2017

    Welcome LilyKain to the BCO forums.

    Sorry to hear what you're going through right now but we're glad to see that you found the forums and decided to reach out to others with your words of advice and support.

    We're here if you need questions answered/help around the boards.

    Hugs and best wishes,

    The Mods.

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  • lucy89
    lucy89 Member Posts: 6
    edited May 2017

    can you please update when you have results, we are all thining and worrying about you.

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  • Rubyroo
    Rubyroo Member Posts: 38
    edited May 2017

    It's IDC, multi-focal, node-negative, 'intermediate-high' grade. Meeting with surgeon on Monday. Is any of that 'good' news?!

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  • kmartin3243
    kmartin3243 Member Posts: 108
    edited May 2017

    I am very sorry to hear this. Please let me know if there is anything I can do to help. You have been in my thoughts and prayers throughout the last several days. I am sorry that I am not extremely knowledgeable with that terminology. However, I am fairly certain that node negative is a good thing. I am sure that one of these very knowledgeable ladies will be around to help.

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  • Okiemomof4
    Okiemomof4 Member Posts: 54
    edited May 2017

    Rubyroo,

    • So sorry that you have joined the club no one wants to be in, but on this site, you will find tons of support and people who will be in your pocket every step of the way. I again advise you not to get ahead of yourself. Go with what you know. You have breast cancer that started in a milk duct and has broken out of the duct into your breast tissue. It does not appear to be in your lymph nodes(although one can not be 100% sure until surgery). Intermediate grade means it is not lazy but it is not super fast-growing either.

    I promise you will feel better once you meet your surgeon and have a plan in place. If you can't control your anxiety, call your oband ask for an anti-anxiety med safe to take while pregnant. Prayers going up for you

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  • obsolete
    obsolete Member Posts: 466
    edited September 2018

    Ruby, sending you & baby lots of love, light and hope for a successful treatment strategy. Because your tumors lacked readily identifiable malignant characteristics on ultrasounds with negative nodes, you certainly have some favorable features. Final pathology, regarding grade, can differ following your surgery, so please do not worry about your tumor. You can and will stay focused on the upcoming miracle growing in your tummy, with many reasons to march onward. This is just a bump in the road, so please continue to remain focused on your miraculous baby bump...some bumps are good. 🙏 Will hold you & baby close in thought & prayers. Big teddy bear hugs!!

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  • Rubyroo
    Rubyroo Member Posts: 38
    edited May 2017

    Thanks everyone for your warm words - I just had a chance to read everything now as the last two weeks have been a blur!

    After meeting with my new medical team, I had a lumpectomy with sentinel node dissection on Wednesday. They removed three small lumps in total.

    Now comes the long wait for the full pathology report. Baby is doing well. I'm hoping some miracle happens that I won't need chemotherapy and get to ride out the rest of my pregnancy relatively normally, and follow up with rads and hormone therapy after baby is born. I'm told the biopsy results revealed a ER/PR + (>95%) and HER - diagnosis in the biggest lump. Hoping for no surprises in the other two and for negative nodes.

    While it has been tough, I do feel better post-surgery. I've learned the baby is a boy and I'm trying my best to enjoy this pregnancy, with the awareness this may be my one and only

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  • Michelle_in_cornland
    Michelle_in_cornland Member Posts: 1,689
    edited May 2017

    Ruby, my tenant, the one I was telling you about, has had two children and had breast cancer. She had cancer before her last child and her last child is doing great. I am glad that you had your surgery and that you are hormone positive. That is the type of breast cancer which is most common. HER negative is a very good sign. Stay healthy and active. Did you know that diet and exercise can ward off recurrence and even the beginning of cancer cells? There was just a really interesting piece that I read about studies done on colon cancer patients that exercised and ate a healthy diet. The findings were quite profound as the researchers found fewer recurrences in those that took care of themselves.

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  • Rubyroo
    Rubyroo Member Posts: 38
    edited May 2017

    Hi Michelle,

    Good to know. My doctor has described me as a 'healthy person with cancer'. I have no risk factors - I'm slim, exercised regularly and have always eaten a healthy diet. I used to have the odd cigarette socially but quit last year and my alcohol intake pre-pregnancy was not remarkable. I average 4-6 km a day of walking from walking my dog and walking to/from work. I'm also someone who is discerning when choosing personal/beauty products - I go for the more natural ingredients when I can afford to. I only mention these details because I feel like I have no obvious cancer 'traits'. Since being diagnosed, I have contemplated giving up soy milk, but am doubtful that was a contributing factor.

    Before the diagnosis I was planning on a natural homebirth. My doctor agreed I was an ideal candidate with no complications. This diagnosis has really thrown me for a loop. I'm getting genetic testing done due to my age, but I have no known family history.

    The only factors I can think of was having been on various forms of birth control and anti-depression medications when I was younger. I was on them for almost 10 years and started as a teenager.

    I know it's not useful to try and determine the cause of my diagnosis but it does feel like extremely bad luck as I feel healthy, look healthy (especially during this pregnancy) and have always had a pretty solidly healthy lifestyle. It's been perplexing me! If you could link to the study that you read, i would be interested in reading it too

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