Annbee- you mention fatigue. Yep, I have that side effect for sure. I have never taken so many short naps during the day. Then at nighttime, struggle to sleep past 230 am which just adds to bring tired.

I did sleep almost to 5 am this morning and hoping to do same tomorrow morning. But Wednesday is AC #3 so that cycle will just start over

I was cooking breakfast yesterday (I make an egg, sausage, cheese, salsa 13x9 casserole that I cut into squares to reheat during the week for a quick protein breakfast) and had to sit down in the middle of the process as I just felt fatigued. Probably means I need to take longer walks each day to keep stamina up?

Hope you are doing ok for the most part day to day

Hello Ladies,

Just got home from my 3rd chemo, actually had my Mama pull through Mickey D's for a bite to eat . What's weird about that you ask......... I don't eat fast food and haven't since I was a teenager, but within the last weeks I've craved it and my Doctor said I could eat anything I wanted.

Dodgersgirl: If I remember correctly, your 3rd dose is Wednesday ( we are on the same regimen ). I felt both meds before I even finished, I've had almost a full gallon of water today and am trying to keep " flushing out" both meds. I've had a real hard time sleeping since I was diagnosed , so sleeping during the day is out. They finally gave me something to help, but only sleep 6 hours a night.... better than nothing. Sucked on ice during the "devils dose" hoping that works, thanks for the tip. The anti nauseous medicine they give in the stomach , didn't hurt today I was thankful. On the other hand, when "the nurse" who's never touched me before, when to access my port and I wanted to slap her, lol. One of the other nurses said she probably didn't acess it from a good angle. She's will never touch me again.

Praying for all of you ladies that are going through this and hoping your next treatment is easier than the last

Hi, tonyaberryman-

I'd be delighted to stay in touch, feel free to email me at lizo@jps.net, or pm me on messenger if you're on facebook. I'm not exactly a veteran at this myself, but unfortunately i'm getting more and more experienced by the day, and always happy to help a fellow BC traveller...

Having regrets eating Mickey D's now, feeling real bad........SE are kicking in, this too shall pass

DodgersGirl

Thank you for the tip on icing the hands and feet. I am on Taxotere and cytoxan, 4 treatments every 21 days.

I have been told the Taxotere may cause the neuropathy. My first treatment was April 26 and my toes and fingers are numb now at the tips. I actually had trouble walking 2 days ago so I really want to find some ways to help with this before my next treatment on May 16. I put a ziplock bag of ice in the palms of my hands and wrapped my fingers around the ice bag. I also had my feet laying on a Ziploc bag full of ice. Apparently, that was not cold enough because I am suffering from neuropathy. One oncologist told me that the hands would have to be frozen to prevent the chemo from going there just like cold caps on the head. He said it would frostbite my hands if I had it that cold, because I have no hair on my hands, unlike my scalp, to protect the skin. He did not feel ice treatment will help but I want to try something. I'm also asking if I can go to physical therapy in between treatments to try to get the feeling back into my hands and feet. Neuropathy can be a permanent condition if not treated.

I'm also doing the Penguin cold caps, is anyone else trying cold caps

Interested in hearing more from those taking B or other vitamins re: tx. I'm still waiting for the starting date (delayed bc my post surgery is still healing). DodgersGirl - sorry to hear about the fatigue! But your breakfasts sound amazing, thanks for the idea for my own prep :-).

I am new to this group. I had thought I would be in the May 2017 group but they got my tx started earlier (yay?). I had my first carbo/taxotere on 4/25. This is the first day I felt well enough to post. Lost 8 lbs, WBC dropped to 1.5 but HELL WEEK IS OVER! This is so different from my treatment 12 years ago! But, as my nurse said, you are 12 years older and your system is quicker to detect toxic chemicals. Good luck to all of you!

Momojcbc - hope you get a little more clarity after your doctors appointments today. Sending positive thoughts your way.

notanisland - Hi, I am doryp and mainly follow the FB page but look back here from time to time.  I noted that you mentioned buspirone and wanted to encourage you to use it as needed.  I have taken it for many years on and off for anxiety.  I do not take it every day - only as needed - sometimes not for weeks and others multiple days in a row.  My internist says it is not addicting.  I do not have any side effects from it.  Basically, it just takes the edge off for me so I can enjoy my day on those when I need it 

I caught up on all the posts. We are going through a lot. Momojcbc, I know your doctors will have a plan to treat whatever they find. Hang in there. I guess it never stops getting crazier, does it? I'm learning more and more only others going through this really understand. Family and friends just have no concept of how hard this is. I know they try though.

I had my second chemo last week on Wednesday April 26. Just mostly slept on days three and four. Had a very bad problem with acid reflux that over the counter pepcid ac wasn't helping. I switched to prilosec which was a prescription from the doctor but I guess you can get it over the counter too, and it gave me such severe diarheaa so I don't think I'll take it again. I was so happy I had managed my diarheae this round and then one dose of prilosce and bam. So anyway. I think there's one other med. to try.

Also developed shingles from my face to the bottom of my foot which meant I can only hobble instead of walking. Just putting any weight on the shingle foot is excruciating. That's been the hardest thing. I have a couple of prescription meds for that, but you have to take them with food and I can't eat right now because of the acid reflux and diarhea so hopefully tomorrow I can start those. The shingles are painful. The oncology nurse was insistent I had to go in the next day to see the medical oncologist when I told her about my rash and I'm glad I did. Who knew, shingles. I feel a lot better just knowing what it is.

I would be happy at this point to be able to have a swallow of water! Maybe in a couple more hours. But even with all that, I still feel pretty okay. And I'm glad the second chemo is over.

msrobin58 - I have only done the water, baking soda, and salt rinse after every meal so I can't give you a comparison

I do eat ice during Red Devil to hopefully avoid mouth sores.

So far, I haven't gotten any mouth sores.

I think I had the start of thrush in my mouth after AC#1 but the water, baking soda, salt cleared that up right away

Anything can change as chemo SE can be cumulative but so far, it is working for me

tonyaberryman - how are you doing with SE after AC #4? Are they getting better yet