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  • Dova
    Dova Member Posts: 16
    edited April 2017

    Hello ladies

    Cathytoo that's awesome, have an amazing time. We just got back from Vegas, mom had a blast and gambled like no tomorrow.

    She started A(on its own) on Thursday so far no side effect. When do you usually start feeling the side effects of the A? She also does a dose dense so hoping for good blood counts in 10 days.

    Love to all

    Cristina


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  • VLH
    VLH Member Posts: 1,258
    edited April 2017

    Very cool, Cathytoo!

    Lyn

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  • 6feetover
    6feetover Member Posts: 320
    edited April 2017

    Cathytoo: you rock! Here's to an amazing experience!!!

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  • LoveMyVizsla
    LoveMyVizsla Member Posts: 813
    edited April 2017

    Good for you Cathytoo!!


    Dova, I think the effects from AC hit me fairly quickly, but only lasted a few days each time. I know the neulasta shot effects lasted for two days.

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  • Cathytoo
    Cathytoo Member Posts: 667
    edited April 2017

    Dova...If you are getting a Neulasta shot or patch you MUST take Claritin the day before and for five days after. Result? No aches or pains‼️ I promise

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  • JLBinPDX
    JLBinPDX Member Posts: 127
    edited April 2017

    Just to put it out there, I had a Neulasta shot after my first chemo two weeks ago and will have another tomorrow. Claritin was mentioned but only if I experience pretty heavy bone and joint pain. I didn't have any bone pain so I'm glad I didn't add Claritin to my regimen. At wasn't at all required and barely mentioned for me so consulting your Onc would be best.

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  • Madison4568
    Madison4568 Member Posts: 54
    edited April 2017

    Cathytoo,

    The Claritin works great! With each shot the bone pain got worse. My skull even hurt! Thankful the Claritin helped!!

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  • Cathytoo
    Cathytoo Member Posts: 667
    edited April 2017

    JLBinPDx...sorry to disagree with you regarding Claritin use along with Neulasta. You are very lucky you had no bone pain with Neulasta. Hope it continues for you because the pain is horrible and unrelenting. A tiny pill taken for a few days eliminates that side effect and is really harmless. Also...since Claritin was mentioned to you, it stands to reason that it DOES relieve and prevent bone pain from the shot. My thinking is better to prevent than to relieve

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  • Cathytoo
    Cathytoo Member Posts: 667
    edited April 2017

    Madison4568...Funny thing is that they don't know why Claritin works...it just does. One time I forgot to take it and the pain was worse than labor pain‼️

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  • Meadow
    Meadow Member Posts: 2,007
    edited April 2017

    JL, yes, so glad you did not hurt. As Madison says, the pain does seem to increase as treatment goes on. Hoping you stay out of pain. Thankful for the Claritan help. I found Taxol to be very miserable, and the Claritan did help me. Always good to run anything we take past the Team. As Cathy said above, the ONCs seem to know and recommend this easy over the counter drug.

    Hello y'all...showing my Ozarks heritage tonight!

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  • greenae
    greenae Member Posts: 540
    edited April 2017

    Hi all

    Neulasta stimulates bone marrow to make WBCs. Along with firing up the WBCs to keep our counts up, it stimulates histamine release...which causes the bone pain. Claritin is an anti-histamine, thereby lessening the histamine production, and the bone pain. Yay!

    I too, am so glad it was part of my NYUregimen. I had back and hip pain 4 days after my first TC, and it was no fun. Thankfully, it didn't last long, and did not occur again. I took Claritin for 4 days after each infusion.

    I haven't been on here for awhile, but do check in. I am 2 1/2 years from dx and still have my fingers crossed, and am feeling good. I am sending prayers and hugs to all, and think of all of you often. To those in treatment, I wish you strength and few SEs, I found the mental stuff harder than the physical. Still working on it!

    You Ladies are Amazing!

    Special thoughts of Annie and hi to you, Shari! Meadow, I hope you're healing well. Yes, Cathytoo, plan that vacay, and enjoy! Div, keep on keeping on--you are incredible!

    I know I am leaving out so many, but know I think of all of you!

    Happy Spring

    Arlene

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  • JLBinPDX
    JLBinPDX Member Posts: 127
    edited April 2017

    I realize I was lucky to not have bone pain. I was really just saying that it isn't automatic that every oncologist strongly suggests Claritin in the regiment mentioned. Perhaps it's more individual. I take Claritin anyway at points during the year so I'm not opposed to it, but to take it prior to knowing if I need it is always challenging for me. I just thought it was more of a doctor thing, that's all. Best to all.

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  • Meadow
    Meadow Member Posts: 2,007
    edited April 2017

    Sound advice JLB, please let us know how you are doing. Thinking of you as you head into chemo again soon. You got this! We got your back too. Or as we say, "in your pocket ".

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  • LoveMyVizsla
    LoveMyVizsla Member Posts: 813
    edited April 2017

    I didn't get bone pain, I had muscle pain. Claritin didn't help me. So glad all of that is behind me. Having a flare up of rib pain from radiation though. 🙄 Last rad treatment was 10/14/16. Hurts when I reach for anything. Probably just inflammation.

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  • Valstim52
    Valstim52 Member Posts: 1,324
    edited April 2017

    I had the terrible bone pain. Claritan helped. My MO had suggested it right from the beginning. My nurse practitioner had so many helpful things that were right on line with these boards. So glad I had both, but like lovesmyviz, so happy it's behind me.

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  • Meadow
    Meadow Member Posts: 2,007
    edited May 2017

    I am letting you all know that I am having a Latissimis Flap on Wed. I had reconstruction surgery in December, and 4 months later, it still won't heal. So my PS says it is a must do. It will put healthy skin and muscle on my chest wall, from my back. Letting you know so you can hop in my pocket, and say a prayer for me. I feel ok about it. Ready to get healthy.

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  • SuprSurvivr
    SuprSurvivr Member Posts: 139
    edited May 2017

    Meadow - you will be in my prayers. Peace be with you

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  • Valstim52
    Valstim52 Member Posts: 1,324
    edited May 2017

    Our prayers and hugs are with you meadow.

    val

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  • Cathytoo
    Cathytoo Member Posts: 667
    edited May 2017

    Meadow...I'm already in your pocket bringing prayers, good wishes, caring and support for you. I'm sure that pocket will be overflowing❤️❤️❤️

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  • anotherNYCGirl
    anotherNYCGirl Member Posts: 1,033
    edited May 2017

    Meadow, - you already know I'm in that pocket, too! Update when you can!

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  • Dova
    Dova Member Posts: 16
    edited May 2017

    meadow saying a prayer and hope things go Good. We (mom) did take Claritin with Taxol and first infusion of Nulasta. Made mom super drowsy even if it says mom drowsy ones. She slept a lot but She needed too. Than with A she decided to only take 2 days with the first 2 injections (she has a series of 7 shots for 7 days starting the 3rd day after chimo) but she was just fine. Thankfully no bone pain hopefully she keeps it up like this.

    Div hope things are gone well haven't heard from you or Anne. Take care and sending good vibes

    Love to all

    Cristina

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  • KSteve
    KSteve Member Posts: 486
    edited May 2017

    Meadow - I had that surgery 3 years ago. My skin had failed due to radiation damage. It was a definitely a major surgery that I think I underestimated going in. I typically bounce back quick, so even though my PS had told me that it was a longer recovery than anything I had done to date, I still expected to breeze through it. I'm not telling you that to scare you at all, I just know I was caught by surprise. Fast forward to now, it was the best thing I ever did. My skin had really tightened on my radiation side and after I healed, I am so much more comfortable than I was before. Don't hesitate to reach out if you have any questions. I'll be thinking of you this week.

    Hugs,

    Kathy

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  • MomMom
    MomMom Member Posts: 523
    edited May 2017

    Meadow

    Prayers for successful surgery and healing.

    Love, Paula

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  • LoveMyVizsla
    LoveMyVizsla Member Posts: 813
    edited May 2017

    ((Meadow))

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  • ScotBird
    ScotBird Member Posts: 650
    edited May 2017

    Meadow I'll be thinking of you on Wednesday. Hope it goes really really well.

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  • ALHusband
    ALHusband Member Posts: 344
    edited May 2017

    Meadow,

    Thoughts and prayers for a successful, uneventful surgery. If there's room, this big ol' fat guy would like to jump in your pocket as well.

    Mike

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  • simplelife4real
    simplelife4real Member Posts: 563
    edited May 2017

    Meadow, wishing you the best on Wednesday.

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  • TNpotato
    TNpotato Member Posts: 71
    edited May 2017

    Meadow - Squeeze me into that pocket too! Good luck on Wednesday! May you be in full healing asap!! {{HUGS}}

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  • TNpotato
    TNpotato Member Posts: 71
    edited May 2017

    Hey LoveMyVizsla!  I was just reading back in the thread and noticed you'd been having pain when you reach for something. After rads, I got really tight, had to go see a PT for cording. She gave me a bunch of stretches to do and I was doing just swell, as long as I did those exercises. And the cording cleared right up.

    Then I started the Xeloda and ended up basically in bed for a few weeks due to SE's, wasn't doing much at all, including those stretches. Well, boy did I have pain reaching for things after I started getting up and about! I've been doing my stretches religiously for the past two weeks and it has really helped. From the little I've read, the muscles/skin in the irradiated area tend to constrict, so it's really helpful to do stretching and range exercises. I know it's helped me. Hope you are feeling better! :)

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  • NavyMom
    NavyMom Member Posts: 1,099
    edited May 2017

    Good Luck to you , Meadow. In your pocket, too.

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