May 2017 Surgery Group

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  • IDC_Husband_2017
    IDC_Husband_2017 Member Posts: 8
    edited April 2017

    my first post, thanks to the initiator of this thread. My wife was diagnosed with IDC in March and surgery is scheduled for May 11. She's opted for an MX though LX + radiation was also an option. We've been told that the tumor is 11mm (US) or 16mm (MRI). Pathology from core needle biopsy showed grade 1, ER/PR positive, HER2 negative, Ki-67 10-20%. Anxious about the wait time between diagnosis and surgery, worried about nodes and the post -op pathology. Getting used to worry being the new normal.

    My best to everyone on the forum. Stay strong

  • Lordhelpmetoo
    Lordhelpmetoo Member Posts: 197
    edited April 2017

    Cherri, welcome!! Yes stronger together. Our surgeries will be just a few days apart.

  • dcdrogers
    dcdrogers Member Posts: 115
    edited April 2017

    Hello ladies and gents,

    Had my pre-op with my PS yesterday for bloodwork, EKG, post-op instructions and to answer any lingering questions. I have another pre-op schedule on May 3rd, the day before surgery, to have the radioactive seeds placed. I can't believe I am actually looking forward to surgery next week. I hope I don't have to spend more than 1 day in the hospital. My BS said at least 1 day MAYBE 2. The PS says it will more likely be 2 days. Guess I'll know for certain a week from now.

    p.s. I'm currently on 10mg of prednisone for muscle inflammation and my PS is concerned about wound healing so she prescribed 10,000 units of Vitamin A to help with counteracting the prednisone.

  • stephilosphy00
    stephilosphy00 Member Posts: 386
    edited April 2017

    Hi ladies, I will have single nipple sparing mx On May 10. All the scans indicate that I have one node affected but I am afraid I actually have more cancerous nodes and I will fall into stage 3 after surgery. However, currently I opt for radiation instead of ALND, the surgeon agrees about that and I will only have SNB during the mx.

  • Cheri444
    Cheri444 Member Posts: 12
    edited April 2017

    Thank you, Lordhelpmetoo. We'll weather this storm together! :-)

  • Cheri444
    Cheri444 Member Posts: 12
    edited April 2017

    Thank you, Lordhelpmetoo. We'll be weathering this storm together! :-)

  • DizzyGirl
    DizzyGirl Member Posts: 59
    edited April 2017

    Welcome all! Has anyone met with the radiology oncologist and started planning radiation? He seemed to say that reconstruction is a bigger risk for radiated skin. I was also surprised that radiation after mastectomy decreases the chance of reoccurance from 30% to 5%. Overall the visit was intense and I should have brought someone with me. They gave me a lot of information and I kind of went into overload. Chemo brain I guess.... I have post chemo mri and pet scan on Monday. See the surgeon on Wednesday and hope to get a surgery date.

    Dizzygirl

  • JuliaJazz
    JuliaJazz Member Posts: 246
    edited April 2017

    I am having a double mastectomy on May 5th.  Lymph node biopsy will determine whether I need chemo after.  I have decided after talking with friends that I will not have reconstruction.  At my age, 68, I just want to get on with life and don't want to go through any more surgeries.  It is nice to connect with all of you. My best friend, a survivor, advised me to just worry about one step at a time so right now I am preparing for surgery.  After that I will think about questions for when I meet the oncologist.  One thing at a time is better for my mental equilibrium.

  • dcdrogers
    dcdrogers Member Posts: 115
    edited April 2017

    @Dizzygirl,

    I was hoping to get into consult with the radiologist before my upcoming surgery on May 4th, but that isn't going to happen. I'm being treated at a breast cancer center so my doctors are all under one umbrella and work together. The RO that I wanted to consult with had no openings until after my surgery so I think I'll wait at least 2 weeks after surgery so that I'll have some time to heal first. I'm about 99% sure I'll be needing radiation (2 enlarged nodes with 1 testing positive node).

    I'm going for direct-to-implant. I consulted with my PS and she thinks radiation will not impact my skin much, if at all. I'm black (not sure that factors into anything or not :) and I do plan to begin moisturizing and massaging the implant and surrounding skin as soon as I get the go ahead. PS seems pretty confident that I'll not have skin issues, but she informed me that if radiated side becomes an issue I'll still have the option of a DIEP. I only have enough stomach fat for 1 breast. If the implants prove too much of a problem (multiple surgeries, infections, etc...) I'll probably go flat. I'm "only" 46, but I already know I don't want to be in and out of surgery for the next couple of years. I plan to LIVE after BC.

    ~Dee

  • ThreeC
    ThreeC Member Posts: 92
    edited April 2017

    My initial dx was an "atypical papilloma". I woke up from a lumpectomy with a 3.8cm specimen with no clear margins and a new dx of DCIS. I had an MRI two days ago & now have a second "spot" on the left and a new "spot" on the right. Next week I have a bi-lateral ultrasound and a unilateral mammogram on the left. I'm praying the new spot on the right turns out to be nothing and I will have surgery on May 23 as tentatively scheduled. Breast Cancer does seem to involve a journey rather than an event. Wishing each of you the best outcome possible!

  • IDC_Husband_2017
    IDC_Husband_2017 Member Posts: 8
    edited April 2017

    question to all. My wife had her core needle biopsy about a month ago, and is experiencing a tugging sensation in the area. Doc said that sort of discomfort is not uncommon and I realize we are both hypersensitive to everything now. Still, surgery is not scheduled until May 11 and I am worried about time to surgery since the last diagnostic tests. Anyone else have similar experience with lingering sensations from the CNB

  • BellasMomToo
    BellasMomToo Member Posts: 305
    edited April 2017

    Yes, I had a tugging sensation for several weeks after my CNB. A nurse told me that the nerves are regenerating and that's the cause of the feeling.


  • IDC_Husband_2017
    IDC_Husband_2017 Member Posts: 8
    edited April 2017

    thanks BellasMomToo! That's very helpful.

  • Tpralph
    Tpralph Member Posts: 487
    edited April 2017

    thanks for commenting husband and bellas mom. I too was/am having that experience and thought it was the tumour growing!  that is a bit of a relief. has been about 6 weeks now and the last couple days hasn't been bothering me like it was.  hopefully nothing has changed too much as I have/ will be waiting 2 months and 1 weeks before my surgery

  • IDC_Husband_2017
    IDC_Husband_2017 Member Posts: 8
    edited April 2017

    Tpralph, we got our diagnosis on 3/17, so our timeframe is about the same. Been told that's its common and that it's better to have the right plan than a fast one, within reason of course. Waiting is tough though.

    All the best.

  • Fancynancy5
    Fancynancy5 Member Posts: 7
    edited April 2017

    Hi All, I'm newly diagnosed and in the May (19) surgery group for mastectomy. I have ILC, 9cm, stage lllA I think... My oncologist just ordered bone scan and cat scan with contrast to see " if it has spread." I had a mammogram a year ago, how could this happen? To say that I am terrified is an understatement. I moved recently and have little to no support here. None of my girlfriends live close by! I'm rambling. If the test results show no spread to other organs I can face this war one battle at a time. If not I don't know what I'll do. I am just in shock. Any words of advice or wisdom until I have the scans and wait for the results? Thank you all so much.

  • Tpralph
    Tpralph Member Posts: 487
    edited April 2017

    ya that's tough. My mammogram didn't show anything either. Real shock! This community is excellent for putting your mind at ease. So many other stage threes here and are doing well. Even the ladies with stage 4s. I too am awaiting surgery and don't know about spread. It can be very stressful to wait. I've had multiple melt downs over the last couple of months. I have two IDC same breast and am getting BMX with Diep same day in may 18. So afraid to hear the pathology after. Told it can change from what they suspect even though I have had two ultrasound and a MRI. Hang in there and keeping chatting with the group. It will help and these ladies and fellows are a greAt support group.

  • Herculesmulligan
    Herculesmulligan Member Posts: 175
    edited April 2017

    oh guys my heart goes out to you. I don't have any magic bullets but one thought that's helped me is this: I'll worry about what I KNOW I need to worry about right now, and push away the "what if" worries. This disease is so fraught with things that could or might happen, it threatens to consume all your energy and thoughts. If you feel that happening, step back and focus on what you have in front of you right now. If one-off those possibilities be Comes reality, that's the time to worry about that

  • Fancynancy5
    Fancynancy5 Member Posts: 7
    edited May 2017

    Thanks so much for your support. I think about all the women (and men) going through this battle simultaneously as I go though mine. There is comfort knowing that I am not alone and that we are rooting for each other.

  • DizzyGirl
    DizzyGirl Member Posts: 59
    edited May 2017

    @dcdrogers I don't remember my PS being too concerned about having radiation with TEs and having implants placed after radiation. I think she said they would make any adjustments they needed to. Not sure if radiologist oncologist is being overly concerned or not. Ugh...


    @Fancynancy5 I also live an hour from my closest family so I understand what you are going through. That being said, I had family come up for each of my 6 tchp chemo session (long day from 9 to 3), and for a few major appointments. I have also had a few co-workers and friends attend appts with me. I also joined a local support group for women with all kinds of cancer and they have been wonderful. The local breast cancer support group is only focused on education and isn't worth going. I am mostly weathering this storm alone but I have proven to be stronger than I ever thought I was. You will likely figure out the same. My advice is to try to find someone to attend major appts like first time seeing oncologist and surgeon because they go over a lot and it is good to have two sets of ears. Today I have my post chemo pet scan and mri and I am going alone. I will get through it but it would be more comforting to have someone with me. I will have family with me for my appt on Wednesday when I know I will hear the results of today's scans.

  • Kim345
    Kim345 Member Posts: 13
    edited May 2017

    Flowmom14,

    Reading your posts and thinking of you today as it's your surgery day!! My thoughts and prayers are with you. Let us know how it goes!!

    Kim34

  • Tpralph
    Tpralph Member Posts: 487
    edited May 2017

    thinking of you and sending well wishes flowmom, the first of all of us for this month!

    who is next?

  • dcdrogers
    dcdrogers Member Posts: 115
    edited May 2017

    @Flowmom - hope surgery went well and that you are recovering nicely. Please let us know how things went once you get rested.

    @Kim345 - It looks like I may be next. BMX scheduled for May 4th.

    ~Dee

  • Tpralph
    Tpralph Member Posts: 487
    edited May 2017

    will be thinking of u dee and sending positive vibes for a very successful surgery and recovery. Keep us posted!

  • IDC_Husband_2017
    IDC_Husband_2017 Member Posts: 8
    edited May 2017

    @dcdrodgers, good luck and speedy recovery. Sending mojo to all

  • Lordhelpmetoo
    Lordhelpmetoo Member Posts: 197
    edited May 2017

    dcdrogers, good luck with your surgery. Please keep us posted

  • JuliaJazz
    JuliaJazz Member Posts: 246
    edited May 2017

    @herculesmul Your advice is excellent.  A friend who is a survivor gave me the same advice when I told her and I have been doing well to following that so far.  I read and think about the next step (for me that is the upcoming surgery).  I don't read all about chemo until I find out whether or not I will need chemo for example.  I am staying pretty calm, sleeping well, etc. Blessings to all of you. 

  • Remali
    Remali Member Posts: 36
    edited May 2017

    Hi everyone.  I'm somewhat of a newb here.  I had my second lumpectomy just last week (April 28th, the first was April 5th).  I just found out today that the margins still are not good, and that I now will have to go back and have a mastectomy.  I am just so discouraged, I had really thought that this second lumpectomy, so soon after the first one, would be it, and I would be done.  I can't help but think, aren't there imaging options, such as MRI, that can give the doctors a good idea of the tumor they are dealing with?  I am still learning, and perhaps MRI is not a good option for this. Anyway, I am going in to discuss this all with my oncologist, and I am wondering, again, if I should consult other surgeons, too.  Although, I do know that the surgeon is unable to see the cancer/tumor during surgery, I just find it very frustrating that here I am, two lumpectomies in April, and they still did not get all of the cancer

    Good luck to everyone who has surgeries coming up!  This is such a helpful group.

    ~Renee

  • sunnyjay
    sunnyjay Member Posts: 238
    edited May 2017

    My mx surgery is coming up in 2 weeks (May 17). I'm 45 and was diagnosed on March 23 with IDC and some DCIS. The IDC tumor was 2cm so was considering a lumpectomy with radiation. However, my MRI results showed that the DCIS was 3 cm and deeper than the IDC. The BS felt that it would be difficult to get clear margins with a lumpectomy. So now will be having mx with reconstruction. I have my pre-op tomorrow, so will be getting more info. DH was worried when I told him the diagnosis since he went through this with his mom about 10 years ago, and she passed away 5 years later. Since my care team was very positive that the outcome will be good, I am not worried right now. Just taking things one day at a time. I told my husband that once I start to worry, then you can worry.

    My current issue is how long my body will take to recover. I am a bridesmaid for one of my best friend's wedding 3 1/2 weeks after surgery. Since I was told that the recovery is 4-6 weeks, I had to give up my BM duties. I still plan to attend, and am very much looking forward to it! But it does involve a short flight and I don't know if I will experience lymphedema, or any other post-surgery ailments.

  • dcdrogers
    dcdrogers Member Posts: 115
    edited May 2017

    Thanks for the well wishes. Is it crazy that I'm looking forward to getting this surgery over and done with? I just want to get on to the next phase and put this BC behind me as much as I can. I don't think I'll ever be able to put it behind me completely, but I so look forward to being Cancer free.


    ~Dee

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