Brain mets after 2 years NED... Positive stories please

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Strong4mom_57
Strong4mom_57 Member Posts: 3
edited May 2017 in Stage IV/Metastatic Breast Cancer ONLY

On behalf of my mom

2009 my mom was diagnosed with 2a TNBC, our doctors were very reassuring and we were confident that my mom will beat this.Our family was ready to fight. She did well she was in remission for 4 years.

Before we knew it 2013 came and we were happy, my mom really had faith cancer was behind her. During a routine check up and scans we found a nodule in her lung, her dr in disbelief wanted to wait it out. January 2015 another scan confirmed her scare the tumor grew in size and her doctors moved quickly to get it out 1.5 cm nodule. From there she was placed on a platinum based chemo. She managed to have NED status for 2 yrs, but a new years brings new disappointments.

January 2017 my mom was taken to the hospital due to muscle spasms. I left my job and went right away, while waiting my mom fell into a seizure and I knew immediately the cancer spread to her brain. I was devastated. 1 cm lesion on her left parietal lobe. In trinidad we dont have any form of SRS so our only options was craniotomy and WBRT (5 rounds for 1 week).

I write because we are looking for positive stories. Online data is really scary and her doctors arent reassuring at all. Are there any long term survivors with brain mets especially TNBC.

Please let us know. Im my mothers only child and I cant imagine my life without her as we are so close.

Thanks simply for taking the time to read.

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Comments

  • Hopepraylove2017
    Hopepraylove2017 Member Posts: 16
    edited April 2017

    no advice or experience in this but I'm praying hard for you. I'm here also looking for info for my mom. Many, many prayers going to you guys from me!!

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  • smtray
    smtray Member Posts: 9
    edited April 2017

    Hello I was 5 years out from my breast cancer and about 4 weeks ago my doc did a MRI on my brain because i was having headaches. It was found that I had a 4cm tumor on the lining before the brain on the back of my head. Doc moved fast I had surgery and had it removed. I have no side effects. Just very tried. No I am doing radiation only 5 treatments. First one was yesterday and today I'm just really tried. My doctor says my prognosis is very good. Might not need chemo. I just take some kind of pill eve day. I'm trying to be very positive about it all.

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  • susan_02143
    susan_02143 Member Posts: 7,209
    edited April 2017

    One of the members of my September 2005 Chemo group, a very young woman progressed and then it went to her brain. That was at last 8 years ago. Today, she is working as a teacher, raising her two boys and still looking for a man who is up to being her partner.

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  • Goodie16
    Goodie16 Member Posts: 446
    edited April 2017

    My stage 1A cancer progressed to a solitary met to my brain. I had a craniotomy and GammaKnife radiation to the tumor bed. That was two years ago this past March. I'm NED in the brain and from the neck down. I hope to stay that way for a long time to come.

    Best wishes to you, and your mom.

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  • Pagej
    Pagej Member Posts: 52
    edited May 2017

    I am tnbc survivor as well. 3 years ago dx stage 2. No nodes. Lived blissfully unaware I would be stage 4 for 2years and have now lived for the last year with a known solitary brain tumor. I had it radiated a year ago. It's stopped dead in its tracks. So far, NED except for a dead brain tumor... have body scans often and still clear. Hope to remain this way for many years I'm only 33.

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  • Strong4mom_57
    Strong4mom_57 Member Posts: 3
    edited May 2017

    Thank you for your reply you all give me HOPE. I will keep you all in my prayers. The statistics online are so grim, i believe my mom and I need to stop reading as your stories are so positive. I am most grateful and happy to hear your stories. I really pray the find a cure for this disease. I am currently toying with the idea of removing my boobs and everything, but i dont have children yet. My prayers are with all of you.

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