TRIPLE POSITIVE GROUP

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  • deni1661
    deni1661 Member Posts: 463
    edited April 2017

    I have an echo coming up before surgery so I'll ask about the tinnitus then, it seems related to the meds. Thanks everyone for the comments!

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  • deni1661
    deni1661 Member Posts: 463
    edited April 2017

    Jrod, sorry you have to be here but welcome. This board and these wonderful ladies keep me sane. There is such a wealth of experience and information I hope you will find helpful throughout your journey. Stay strong and take care

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  • deni1661
    deni1661 Member Posts: 463
    edited April 2017

    coachvicky- praying your next surgery goes well, take car

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  • deni1661
    deni1661 Member Posts: 463
    edited April 2017

    Shelabela - sorry to hear about the latest results, I would be frustrated too. How can 3 more pop up while you're getting treatment? Are you getting Herceptin/Perjeta yet? Praying the biopsy indicatesthose new lumps are non cancer. Stay strong, take care

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  • deni1661
    deni1661 Member Posts: 463
    edited April 2017

    tresjoli2 - I'm so happy to hear your good news! Thanks for sharing, this is very encouraging for all of us

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  • deni1661
    deni1661 Member Posts: 463
    edited April 2017

    suburbs, I'm so happy you're getting an MRI soon. That will give you a better picture of how well you are responding. You are definitely not a whiner so get that thought out of your head! You are very positive and encouraging

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  • Suburbs
    Suburbs Member Posts: 429
    edited April 2017

    deni1661, it's feels a bit strange to be celebrating the order of an MRi but there you have it. Tonight was a fun filled evening reading the patient information brochure for mentor implants. The statistics make you wonder why anyone would bother to reconstruct. Yikes. I feel alarmed, or rather informed



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  • coachvicky
    coachvicky Member Posts: 1,057
    edited April 2017

    deni1661

    Thank you.

    Coach Vicky

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  • shelabela
    shelabela Member Posts: 584
    edited April 2017

    thank you Deni1661,

    I should find more out today. Hoping for good news!


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  • Jennliza
    Jennliza Member Posts: 184
    edited April 2017

    jrod, not sure who told you you would lose weight from breast cancer...it is usually the opposite. Believe it or not most women gain weight during treatment...

    Sorry about your diagnosis.....I found this board very helpful. However, pls remember that not everyone is equal and often those with problems post and those whose treatment went well stay off the boards...so don't think that recurrence or all side effects will happen to you. Stay positive!!

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  • Leslie2016
    Leslie2016 Member Posts: 316
    edited April 2017

    Today is my last radiation. Lumpectomy, chemo and now rads done. Herceptin for the rest of the year and starting tamoxifen soon. (MO told me to wait until rads were done). I'm very thankful to have found the lump and having a plan that got me to this point, thinking positively about the future. I'm looking forward to getting my life back on track and moving forward.

    To anyone struggling with their diagnosis...no, cancer and treatment isn't fun or anything we wanted to have to do, but medicine has come so far that we CAN be treated. Our outcomes are much better than they were 20 years ago, and I hope 10-20 years from now they are even better for others. I'm going to hold on to the fact that my pathology being what it is, I have a good shot at being around 30 years from now.

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  • PoseyGirl
    PoseyGirl Member Posts: 359
    edited April 2017

    Shelabela - any word yet? I'm curious that I read IIIB in your signature...how come you were put there? Was it in your chest wall? I hope the other points are cystic for you and thanks for the updates. Thinking of you.

    Jrod - Welcome and not welcome (i.e. it stinks to be here, but since you have no choice with your dx, I'm glad you are here.). You clearly have a strong sense of humour which I didn't have within me when I started out. Your humour will take you places for sure. The day I was being biopsied last June, a woman my age was in the waiting room and noticed how ill and upset I looked. She came right up to me like a force of nature, handed me a Kleenex box and says "I was in your shoes 20 years ago and I'm back now. I said 'bring it on; I'll take ya' then and now I'm going to kick its axx again". We are all different in how we handle, and all ways are ok. And I find this a very good support group and everyone is so willing to share information and support.


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  • shelabela
    shelabela Member Posts: 584
    edited April 2017

    poseygirl, still trying to figure out all this. No nothing in my chest wall, I have 4 spots in my left breast, plus multiple lymph nodes, main lump was 4 1/2 x 4. Maybe size and other lumps put my in that stage.

    So my Onco called. The spot by my nipple was there before I was just not told how close to the skin it was. The thickening of skin is from cells changing


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  • deni1661
    deni1661 Member Posts: 463
    edited April 2017

    suburbs, I hear you about the implants - my thoughts exactly. All of the reconstruction options were confusing and alarming....I went with DIEP because my PS said that was the "safest" option. Still not jumping for joy but had to make peace with my decision. Surgery in 2 weeks so I'm trying to prepare men

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  • deni1661
    deni1661 Member Posts: 463
    edited April 2017

    Shelabela- did you get results from biopsy? Is the thickening of skin normal from cells changing? Thinking of you and praying for good news

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  • deni1661
    deni1661 Member Posts: 463
    edited April 2017

    Leslie2016 thanks for sharing the good news and encouraging words! I too am grateful for the treatment options compared to just a few years ago. I'm happy everything is going well for you

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  • coachvicky
    coachvicky Member Posts: 1,057
    edited April 2017

    Hello All!

    Had my surgery yesterday. Official term was "biopsy of the left reconstructed breast."

    When I read "reconstructed breast" I thought that sounded strange at first. Then I thought ... look how far I have come on this journey!

    My Plastic Surgeon said it was just a cyst and not a suture granuloma. He said it looked fine and not to worry. He did, of course, send it to pathology.

    Thanks again for the support, well wishes, and messages.

    Coach Vicky

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  • shelabela
    shelabela Member Posts: 584
    edited April 2017

    coachvicky, that's great!

    Deni1661, I did get the results. The cells are dead! The thickening is from being attached to the nipple. So close to the skin. Thank you for asking

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  • Suburbs
    Suburbs Member Posts: 429
    edited April 2017

    shelabela, this sounds like good news. Hurrah. Hope you are feeling better.

    Coachvicky, sounds like more good news. Another hurrah!

    Leslie2016, congratulations on reaching a milestone. I am wondering what Herceptin only every 3 weeks will be like without the TC and Perjeta. Perhaps like a walk in the park in comparison. Must put this on my research to do list. : )Please keep us posted.


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  • Leslie2016
    Leslie2016 Member Posts: 316
    edited April 2017

    Suburbs, I've had 2 rounds of herceptin on it's own so far....NO side effects. I was almost dancing going in to the chemo area the first time I was getting herceptin alone, I was so happy that I wasn't there for chemo and knew whatever SE's I did have, it would not be as bad as that docetaxel. Nurse assured me I shouldn't have any SE's (she was right) and said many woman getting herceptin almost use influsion time as "spa" time so to speak...it only takes an hour, but it's downtime...read a book, have a cup of tea...quiet time. :) She is right...I'm looking forward to sitting and reading on Wed when I do this round. I've had my second echo...no problems. They will monitor your heart function while doing herceptin, but other than that, I don't have any SE's

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  • Suburbs
    Suburbs Member Posts: 429
    edited April 2017

    Leslie2016, thanks for the heads up. Yes, I can imagine that you felt like dancing on the way to infusion. With TCHP, I refer to myself the last kid picked up at daycare, the last one to finish. One hour sounds fabulous compared to 6. Where is my party hat.I'm seeing a glimmer of light at the end of this tunnel.

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  • Jrodtx716
    Jrodtx716 Member Posts: 4
    edited April 2017

    I got some not great news today. They found some lesions on my liver in the PET Scan, so looks like another MRI, then a possible biopsy. The oncologist said they could be benign, so we will see. This delays the start of my chemo. However I am meeting with a doctor on Monday to see about getting into some drug trials at MD Anderson. I also got my port in yesterday, I know i will get used to this weird feeling in my neck, but since it's day one, feel like I swallowed something wrong. MRI is scheduled for Monday at 6:15. And for Jennliza, yes I read that you can gain weight, which was a shock....but again I just went by the movies and made for TV specials and chemo meant skinny. Right now I don't care, fat or thin, just want to get the chemo started and get the party started

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  • bareclaws
    bareclaws Member Posts: 345
    edited April 2017

    Jrodtx, welcome to the party none if us want to attend. The delays must be driving you crazy. I hope your tests come back in your favor and chemo gets rescheduled again quickly. I'm about five months into this now and am just now starting to get my head around this triple positive business. As far as I can tell, we just have to jump through a few extra hoops. And of course at MDAnderson, you have access to all the latest research and treatments.

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  • Suburbs
    Suburbs Member Posts: 429
    edited April 2017

    jrodtx716, sending positive thoughts and hoping your new news ends up being a non-event. I understand your concern about wanting to start chemo soon. If you have questions, you've come to the right place. And as for support, this group has been my life line the past two months. Please keep us posted.
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  • Jrodtx716
    Jrodtx716 Member Posts: 4
    edited April 2017

    I was also told they were going to do twice daily radiation for 4 1/2 weeks. Is that normal? From what I have read they stopped doing the twice daily radiation for IBC. Did anyone else have to do twice daily? Did this lead to more blisters or more fatigue from radiation? And thank you all for the kind words, I don't have a strong family support, but luckily I have great friends, and now I have y'all, so again thank you

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  • shelabela
    shelabela Member Posts: 584
    edited April 2017

    jrodtx716,

    Welcome. Sorry to hear about your PET scan. We are all on that uncertain train right now. But we are on board together.

    I don't have a port so i don't know about that feeling. Just got done with Taxol #10.

    I was told i would need Radiation 1x a day for 5 weeks.

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  • PoseyGirl
    PoseyGirl Member Posts: 359
    edited April 2017

    CoachVicky, glad to hear your news (I just messaged you asking). And good for you too, Shelabela.

    I was one of those people who definitely lost weight on this journey. I started at 118 and went down to 106. I'm gaining so fast right now and am pretty much back to my weight. So I think it's individual.

    Jrod, I'm so sorry that you have to go through all this anxiety and waiting. I had spots on my liver when diagnosed in June and then I had an enhanced MRI to take a closer look. They said mine were hemangioma. So hang on to that possibility right now. But yes, the scans and waiting are grueling to an extreme degree. Hugs to you.


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  • coachvicky
    coachvicky Member Posts: 1,057
    edited April 2017

    Great news Ladies!

    Got my pathology report a few minutes ago.

    The cyst is BENIGN!

    Coach Vicky

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  • deni1661
    deni1661 Member Posts: 463
    edited April 2017

    That is AWESOMEnews coachvicky! thanks for sharing

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  • deni1661
    deni1661 Member Posts: 463
    edited April 2017

    shelabela- glad to hear the good news!

    Jrodtx716 - sorry to hear you are going through more tests and waiting. That's the worst, hang in there. We're on this journey together. This group has been a life line not just for information but also support and encouragement when it's most needed. Sending prayers for good news soon and treatments can get started. Take care


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