No nodes removed.. is it possible?
I met with the surgeon for the first time after neo-adjuvant chemo. What he said was a shock to me, he said he would not take out any nodes if I am willing to do radiation. I had one node positive before chemo, and after chemo, all nodes look healthy under ultrasound. I am totally fine to have radiation, but how could not removing any nodes be possible ?
Comments
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Hi Stephllosphy00
I had too neoadjuvant chemo and my SN was mapped just before surgery. It was taken out but was negative. The surgeon did not take out another node.
Before Chemo I had three lymph node in my left sided axilla but the biopsy done by radiologist came back fine. I read all about lymph node extraction and wonder if mine needed to be extracted.
I had radiation too to whole left breast and axilla.
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That's seems kind of strange to me. I had two suspicious axillary nodes at diagnosis - one was biopsied (negative), but the radiologist considered that "discordant" and recommended excisional biopsy (not done) or biopsy at time of surgery. These days my BS is planning to do the SNB at the time of surgery - which I'm pretty sure is a different group of lymph nodes. She said that if any cancer is found then an axillary disection would be recommended since (she says) outcomes are improved with removal of any cancerous nodes.
Guess I have more questions than answers again!
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Hmmm that's why I am so concerned about what my surgeon said today. I saw you were also doing neoajuant chemo. How did you respond to it?
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The general consensus seems to be that the most important part of treatment generally is the surgery. In that vein of thinking I would say get it out and that way you never have to have that hanging over your head. Then again, I'm no doctor and it's not my decision. You may want to get a second opinion or ask for a tumor board.
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I will get a second opinion next week from a surgeon who is able to do nipple sparing masectomy.
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Personally, I would ask for a SNB, and if positive, axillary dissection. You don't say whether the node that was already removed had been determined to be a sentinel node or not. If it was, then maybe you are OK going without since SNB has already been done.
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As far as response to neoadjuvant chemo - I couldn't feel the lump after the first round of chemo! That has been confirmed by a NP, a RO, and a BS. I just had my 6th and last round of chemo yesterday and will go for a follow up MRI on 4/14.
My MO and BS both do not recommend CT or PET scans unless there are concerning symptoms leading them to look for mets. Apparently too many false positives, too much anxiety, too much radiation, and too much cost.
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Steph, I believe that current guidelines allow for omitting axillary node dissection (not removing the underarm lymph nodes) if the nodes are clinically negative after neoadjuvant therapy (chemo before surgery) and radiation will be given to the axilla. In other words, if your nodes appear clear now, they might say you just need radiation. That would be because they think this treatment would be effective without putting you through ALND. I think it is the latest thinking, to spare patients the increased risk of lymphedema that comes with ALND. Just as in the past they used to do a radical mastectomy on everyone, and now they often do a lumpectomy, with just as good results. So do have more conversations with your doctors in order to understand their recommendations for your particular case.
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Thank you so much for your response! I will be very happy if no nodes have to be taken out but the problem is how reliable ultrasound is. I have seen many cases here ultrasound or MRI show all nodes clear but after surgery pathology shows multiple nodes positive and I am very scared this will happen to me.
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