March 2017 Surgery

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  • 2FUN
    2FUN Member Posts: 956
    edited April 2017

    I'm originally from the UP of michigan, grew up in Wisconsin, and lived in Milwaukee after college. Met DH to be, and eventually moved ro the Rochester, NY area. I miss the midwest! DS is going to university in Wisconsin! I don't think.he'll ever move back home! (Boo hoo). I worked residential rehabilitation for many years, but I rarely saw clients with pure upper extremity amputations. Those were usually covered by OT services. I hope you get enough.rehab, as that can make a world of difference in regaining your independence /function.

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  • EastcoastTS
    EastcoastTS Member Posts: 864
    edited April 2017

    DiV:

    So happy to hear from you! My thoughts are with you!

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  • raven4mi
    raven4mi Member Posts: 562
    edited April 2017

    Sjs, yes, you need to measure the output of each drain separately for a 24 hour period. Every PS is different on when they'll take them out. Mine says the output needs to be less than 15 ml in a 24 hour period, which is why I'm incessantly whining about mine which is consistently putting out 25-45 ml per day after 2-1/2 weeks. :) Some people just make more drainage than others, and I'm one of the lucky ones.

    DiV, thanks for popping in with an update. We've all been wondering how you are doing and it sounds like your attitude is the absolute best. I'm glad you're doing so well. Continued thoughts and prayers coming your way.

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  • lovepugs77
    lovepugs77 Member Posts: 296
    edited April 2017

    I have my one week follow up with the surgeon this afternoon. Fingers crossed for clear margins, clean nodes, and low oncotype score.

    I also really want to be allowed to use deodorant again.

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  • Mojo56
    Mojo56 Member Posts: 9
    edited April 2017

    hi all

    I had a single modified radical mastectomy on March 29. I had axillary lymph dissection and was told by surgeon that he took levels 1 and 2. I am still waiting to hear the pathology results although it has been a week.

    Does anyone else have experience with the results from one of these and also how treatment went from there?

    Thanks anxious


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  • Yvonne_M
    Yvonne_M Member Posts: 72
    edited April 2017

    Oh DiV, it's so good to hear from you. Love to you.

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  • Yvonne_M
    Yvonne_M Member Posts: 72
    edited April 2017

    Lovepugs & Mojo, hang in there, waiting is so hard, huh? I'm still waiting on my Oncotype, said it could take a couple weeks.

    Today is 4 weeks since my mast surgery. I'm feeling really good and I actually sometimes forget about it, then I'll feel something weird and go oh ya... THAT. Part of my PT has been some spring cleaning. The other day I cleaned some windows and now my triceps are feeling it. Love the feeling.

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  • LAW193
    LAW193 Member Posts: 69
    edited April 2017
    I just want to say thank you to everyone here for giving so much advice and sharing your experiences. It is really helpful.

    I called and told the doctor that I was concerned about having a mammogram one week after surgery and they agreed to reschedule it to when I am "less tender." So that is a relief. This afternoon I have my post op appointment. I think they just try and schedule all the appointments together because a lot of people drive really far to go to Dana Farber so they are trying to make it more convenient.
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  • Yvonne_M
    Yvonne_M Member Posts: 72
    edited April 2017

    Oh that's great, Law. One less thing. How are you feeling?

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  • LAW193
    LAW193 Member Posts: 69
    edited April 2017

    I was doing pretty well but I went back to work yesterday and that was harder on my SNB area than I expected. Apparently I move move my arm a lot more working at my desk than I did sitting back around at home :) Also the bandage came off completely on Sunday so it was less protected than it had been - my boyfriend put a giant bandaid over it for me but it seems to have irritated my skin so right now it is completely uncovered. The actual incision looks okay but the entire area around it hurts. I'm glad the doctor will be looking at it today.


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  • Yvonne_M
    Yvonne_M Member Posts: 72
    edited April 2017

    Oh wow... ya take it easy and glad you are seeing the doctor. Don't want to mess around with this stuff or it'll bite you back. Not sure if you are allergic to medical tape, but I've been putting maxi pads and medical tape on my leaking frankenboob. My drain holes have finally sealed up but they are awfully red and that concerns me, not sure what to do about that.

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  • lovepugs77
    lovepugs77 Member Posts: 296
    edited April 2017

    Law, I can't imagine having a mammogram one week after surgery. I'm not sure I could stop myself from hurting someone if they tried to smash my breasts right now. I've been using transparent dressings with gauze pads since I changed my bandage on Saturday. The brand name is Nexcare, but I just buy the Walgreens brand. It's the same thing they use at the doctor's office and is waterproof, so it lasts a few days.

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  • Yvonne_M
    Yvonne_M Member Posts: 72
    edited April 2017

    Oh I like the look of those Nexcare pads! Thanks Pugs.

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  • stephilosphy00
    stephilosphy00 Member Posts: 386
    edited April 2017

    Hi all, I met with the surgeon for the first time after neo-adjuvant chemo. What he said was a shock to me, he said he would not take out any nodes if I am willing to do radiaion. I had one node positive before chemo, and after chemo, all nodes look healthy under ulreasound. I am totally fine to radiation, but how could not taking any nodes out possible ?

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  • LAW193
    LAW193 Member Posts: 69
    edited April 2017

    Thanks lovepugs! I think I will get some of those nexcare/Walgreens ones - even if the doctor gives me a new one today it would be nice to be able to change it. good luck at your appointment today!

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  • Scottiemom11
    Scottiemom11 Member Posts: 1,298
    edited April 2017

    Sjsparks. . .glad to hear your pain is manageable. I kept a record on my phone of the drain output. I think Dh emptied them twice daily and I recorded the amounts each time then totaled them daily. When I hit day 9 and one started coming out on its own, PS had me come and and removed all 4 based on the total output.

    DiV. . .you have an amazing attitude and so glad to hear from you. Take care, you will remain in my prayers.

    I'm having a better day today. Keeping my fingers crossed.

    Scottie

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  • Yvonne_M
    Yvonne_M Member Posts: 72
    edited April 2017

    Hey Scottie, so glad to hear you are having a better day. Yay!!!

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  • 2FUN
    2FUN Member Posts: 956
    edited April 2017

    Stepholosophy I don't know the answer to your question. Maybe call the dr and ask for them to ex plain it to.you?

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  • Molly50
    Molly50 Member Posts: 3,773
    edited April 2017

    DiV, you are a remarkable woman. You sound like you are adapting really well. Thank you for checking in with us. Mojo, I had ALND but not modified radical mx. I had levels l/ll nodes removed. It was sore for quite a while but so far no LE.

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  • lovepugs77
    lovepugs77 Member Posts: 296
    edited April 2017

    Well, I didn't get the news I was hoping for. He took 5 nodes during the sentinel node biopsy, and 4 were positive. 2 of those were extending into the surrounding tissue. So I get to have another surgery next week to remove some more nodes, and then chemo. I'm so disappointed right now.

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  • Yvonne_M
    Yvonne_M Member Posts: 72
    edited April 2017

    I'm sorry Pugs. :(

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  • bareclaws
    bareclaws Member Posts: 345
    edited April 2017

    lovepugs77, I'm so sorry you got that news. Now you know and can go forward with a plan. In the meantime, love the pugs. I know my dogs are sometimes the only things that keep me going.

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  • lovepugs77
    lovepugs77 Member Posts: 296
    edited April 2017

    Unfortunately, I am currently pug-less. I do have two sweet kitties to love on, though.

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  • Tappermom383
    Tappermom383 Member Posts: 643
    edited April 2017

    So sorry to hear your news, pugs. Not what any of us want to hear. We're all here with positive thoughts for you.

    MJ

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  • raven4mi
    raven4mi Member Posts: 562
    edited April 2017

    So sorry for your news, Pugs. :(

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  • Scottiemom11
    Scottiemom11 Member Posts: 1,298
    edited April 2017

    Pugs. . .so sorry sending you hugs. Know that we are here for you.

    Scottie

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  • 2FUN
    2FUN Member Posts: 956
    edited April 2017

    hang in there pugs! I'm sending extra prayers your way. Hopefully you can stay calm, and know this next surgery will move you closer to full healing!

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  • Sitti
    Sitti Member Posts: 230
    edited April 2017

    lovepugs77 I'm so sorry you got that news. :(

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  • wallan
    wallan Member Posts: 1,275
    edited April 2017

    Pugs:

    So sorry about your news. Hugs to you.

    wallan

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  • Sitti
    Sitti Member Posts: 230
    edited April 2017

    DiV It's good to hear from you. Thank you for giving us an update. You remain in my thoughts and prayers.

    Law193 I'm glad they changed that mammo for you, can't imagine having one a week after LX. I found the SNB area to be especially sensitive. Hopefully you are able to get some relief from the soreness.


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