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naps
naps Member Posts: 61
edited April 2017 in Stage III Breast Cancer

Hi everybody,

A year out and I still find myself sometimes stymied by people who ask about my prognosis. I get that people are concerned and/or curious, but it is still surprising to me how some people I barely know feel they can ask this. I don't really even want to discuss it much with people closer to my inner circle. I have a nasty aggressive tumor type but am otherwise supremely healthy and choose to focus on the fact that it is curable and that I can beat it. I have chosen not to focus on any statistics throughout this experience and as I near the end of treatment (yowza!) am trying to move forward as unencumbered by fear and uncertainty as possible. Generally my strategy has been to be vaguely/truthfully positive in response to such questions, e.g. "I have gotten a lot of powerful treatment and feel good about the outlook." But some people press it further (!) and I would like to have some responses ready in my back pocket to silence them. :) I haven't really wanted to say "I don't want to discuss it," bc I think that will be taken as code for something bad. And I really do feel positive, most of the time, about the outlook.

I am coming up on a big family wedding with a few nosy and mouthy relatives and know that I may be in for some awkward conversations along these lines. I have thought about just smiling and saying, Why do you ask? to put the onus back on them, but I'm not sure that will be very effective either. I am just not that good at deflecting. :)

Any ideas?


Comments

  • Jackster51
    Jackster51 Member Posts: 357
    edited April 2017

    " I'm doing and feeling great. My doctors are very optimistic about a long and health life for me. But you know, none of us - including you - can really say what tomorrow holds for us right? All any of us can do is remain optimistic and hope for the best in this life. Thank you so much for your concern. How are you doing? "

  • AmyQ
    AmyQ Member Posts: 2,182
    edited April 2017

    Naps,

    Is it possible that the people who are asking are genuinely concerned? I like to try to see the good in people so without sounding like a pollyanna, I just think they really are worried and want reassurances or want to let you know they're concerned and that they're thinking of you.

    The above posters comment is actually perfect if you wish to engage them. I might even shorten your reply to I'm doing and feeling great, then leave it at that.

    Good luck at the wedding.

    Amy

  • ksusan
    ksusan Member Posts: 4,505
    edited April 2017

    "Thanks for your concern. I'm working on staying in the moment, so I don't want to talk about the future. Thanks for understanding and helping me with this!"

  • gracie22
    gracie22 Member Posts: 229
    edited April 2017

    Yeah, I feel you after navigating a family funeral recently and getting mildly grilled a few times. "i am feeling great. What's new with you?" worked for the most part. When repeatedly pushed by someone who is a relative, but not one I am close to or see with any regularity, I was meaner. "I hate 'medical shop talk'. So often when people push for info, they are either concerned about their own health or just being nosy, so I just don't go there. Suffice it to say that I am happy about where things are heading for me. How is your son doing?"

  • LisaAlissa
    LisaAlissa Member Posts: 1,092
    edited April 2017

    If you're dealing with someone who isn't in your inner circle, and they won't be deflected with "I'm fine, and you?" you might try something like:

    Pause, look them in the eye and say something like "that feels like a very personal question. Why do you ask?" And then be silent until they reply.

    If they ask again how you are, go back to the "I'm fine, and you?", etc.

    Sometimes people are just nosy, sometimes they have a personal concern, and sometimes it's just "wrong place, wrong time, wrong person." Only you can decide what the right answer is.

    HTH,

    LisaAlissa

  • wallycat
    wallycat Member Posts: 3,227
    edited April 2017

    Sometimes people ask because they genuinely care; sometimes people ask because they are dipping a toe for knowledge that they fear they may face (or know someone they love facing it) and want an example of success.

    If you are genuinely offended by an inquiry, you have every right not to answer or defer the question.

    Here are a few ideas:

    1. Cancer is a crapshoot, there's no way to know how anyone will do.

    2. When I die from something else, we will know I was a success story.

    3. Anyone can get cancer and no one knows who will beat it or not.

    4. I have a great team, the rest is up to the universe.

    5. Clueless and not gonna think about the ugly till/if I need to.


  • YATCOMW
    YATCOMW Member Posts: 664
    edited April 2017

    '"I've thrown the kitchen sink at it.....I did everything I could do......because of that I remain hopeful that I have kicked the cancer to the curb. It's behind me now".

    I don't want to be that "cancer girl" forever............I try to answer in a way that they don't ask again in the future.


    J>

  • Artista928
    Artista928 Member Posts: 2,753
    edited April 2017

    I have a snoopy neighbor who does care inside but does say some stuff we'd consider wtf. Nothing terrible but you know. Because I know she really does care and isn't just a snoop or just fishing to hope I'm getting worse I educate her. I know she has issues with memory and let's face it, if we aren't going through the same thing we're likely not going to remember what was said to us before. So I answer nicely basically repeating what I know I've told her before. I like to take the route that someone cares v someone is just being ignorant or mean.

    I personally don't mind talking about it even if it's on repeat. It's educating. Anyone can get cancer so why not give the lowdown in hopes that you could be saving that person in case it happens to her as well, rather than a buzz off type response. After all these txs my memory stinks so I repeat a lot of stuff. Thankfully those listening to me aren't looking at me like wtf. I certainly don't want someone else to feel that way from what I say.

    Now at something like a wedding/event then no, I won't address anything there and would let the parties know that it's not an appropriate place to talk about this.

  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited April 2017

    Augh! The "prognosis" question is my pet peeve. People might as well ask, "so, are you going to die, or what?" It's rude, nosy, and unsettling.

    When I was in treatment I learned some standard replies, depending on the circumstances. My favorite was "I don't know, what makes you ask?" For me, it was very helpful to have a go-to response so I didn't have provide an instant answer while deflecting rudeness.

  • Kicks
    Kicks Member Posts: 4,131
    edited April 2017

    If there is anyone who has a real reason to know 'anything private/personal' - they would already know. Those 'nosey busybodies' are not worth wasting your time on or,giving them any info they will turn into unsubstantiated rumors.

    If someone honestly asks, a simple " Doing great." is all that's called for as an answer. For those 'nosey nasties' persist - be prepared to turn it right back on them. "How's your heart (or any other health issue you know they have) doing?" or "How's your 'relative' doing with rehab?", etc.. In other words - turn it back on them.

  • Lily55
    Lily55 Member Posts: 3,534
    edited April 2017

    I use numbers 1 and 2 when I feel cornered.........

  • TectonicShift
    TectonicShift Member Posts: 752
    edited July 2020
  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited April 2017

    These are all great! To the "what's your prognosis?" I did occasionally say, "Same as yours. I'm going to live until I die." But I do agree with Kicks; there's no need to engage or provide ANY information. "I'm doing great, thanks."

    I also employed the tactic of turning the question on the questioner..."I'm fine, but how are YOU?" This ricocheted once, when the guy had a bad back and I endured a monologue of how he had suffered.

  • Artista928
    Artista928 Member Posts: 2,753
    edited April 2017

    Unless you know the person really doesn't care about you, I don't get the snarky responses.

  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited April 2017

    Arista, I'm not given to snarky responses, and generally speaking, I'm pretty polite. But "what's your prognosis?" even asked by loving family or friends, is an inappropriate question. It's no different than asking, "Are you going to die?"

    Particularly when I was in active treatment--overwhelmed, scared, and sad--this question sent me to dark places. I would stumble around trying to provide a truthful answer while mentally shrinking from it. It was helpful for me to have a few standard responses to pull out of my hat, depending on the circumstances.

    Now that I'm years out, I'm no longer in the same place, and I'm fine with sharing anything with anyone. The prognosis question is no longer asked.

  • Artista928
    Artista928 Member Posts: 2,753
    edited April 2017

    I see it differently. If the person asking my prognosis really loves me I know he/she is concerned- and is not being a snoop or doesn't mean it other than concern. When my friend's sis was dx'd with cancer I asked her that. It wasn't good (pancreatic cancer) so knowing that time was for sure short we all spent more time together which helped her psyche. To me it depends on who's asking. My bro asked me when I broke the news. Wasn't sure definitely not on the day of dx but told him everything I knew and kept him updated. He and I are close. So it depends, imo.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2017

    Kicks & Tectonic: Your responses nailed it ! I had a friend that every time we'd get together would say stuff like "gosh you look so good!!" Finally after getting this too many times, I said "how the hell SHOULD I look??" But that failed and she still says it and won't get over it !

    Shelly

  • Artista928
    Artista928 Member Posts: 2,753
    edited April 2017

    You can always tell your friend you don't like these type of responses. If she says why just say because I don't, can't explain it. It she's your real friend she'll stop with it. If she doesn't stop and it irritates you so then cut down on seeing her. You can't change a person if that's just the way they are and have always been that way. If they are consciously doing this due to your bc stuff then that's where you may want to step back if it's that annoying.

  • JoniB
    JoniB Member Posts: 346
    edited April 2017

    No one has ever asked me about my prognosis; I've only been asked how I'm feeling. If they were to ask, and if I didn't want to talk about it, I would say "I'm optimistic that I will be fine".

  • TectonicShift
    TectonicShift Member Posts: 752
    edited July 2020
  • hopefour
    hopefour Member Posts: 459
    edited April 2017

    I have struggled with why MY story has to be so public! I was shocked that people were hearing about my BC from others and sharing options among themselves!! This is my life and my story to tell…if I tell you then thats because I trust you…if I haven't then you have no right to ask!! I have never shared my stage with anyone outside my family….its my story and I decided not to share that part with anyone…period! If anyone asked too many personal questions trying to figure it out I was even more vague and changed the topic…period! I had a young teenage son when I was going through this and it was clearly understood NEVER to talk in front of him to me about my cancer…period! It's my story and how I want it to effect my life and the boundaries I set was up to me…period! So much of cancer is not within our control…I never felt so exposed and vulnerable but, how I handled it was in my control and this story of cancer was my story and no one else had a right to tell me how to live it or whom I would tell ….period! I let it be know that if I had not told you my cancer story then you had no right to ask me anything….period!!!!

  • hopefour
    hopefour Member Posts: 459
    edited April 2017

    In rereading this past post I realize it was a bit harsh…sorry! It was not toward any of you sweet sisters dealing with the rudeness of others! This is a very painful topic for me as I had it go both ways….some who ask too much ( especially in front of my four kids) and others who I thought would be there with thoughtful support walked away without asking once how are you doing! It's your story as its your life…you decide what will be told and to whom!

  • utjoy
    utjoy Member Posts: 56
    edited April 2017

    I love people, I really do, but, man they can say thoughtless things!

    I'm a musician...I was on stage a few years ago and an old friend came up and set in with us...in between songs he asked me how my dental implants were...loud enough for the crowd to hear...I replied, "Fine! How's that penal implant of yours working out?"

    We both laughed so hard we could barely finish the set...he deserved it! Eh...I guess folks just like to be in the know?

  • DancingElizabeth
    DancingElizabeth Member Posts: 415
    edited April 2017

    hopefour - I agree with everything you said. And, feel the same way. I don't think your post was harsh. I've told a few people at work - who ended up - telling people - that I don't even know that well. Then - I've gotten advice (and, questions) from these people that I normally don't have very many interactions with. Its hard. I'm kind-of a private person - already. (- except for on here...)

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