Bone Mets Thread

Ronnie, I was on Anastrozole (generic Arimidex) for seven months. About five months in my knee pain just got worse and worse until I just didn't want to walk at all. I didn't think to try Claritin at the time, but complained to my onc, so she switched me to Letrozole. I'm five months now on it, but doing much better than before. I'm also having acupuncture which I wasn't when on Anastrozole, so maybe that's more the difference this tiime. Good luck.

Thanks Deanna for the updates on Carol. I have been thinking of her and wondered if she had just taken a break. Glad to hear she's doing better. So glad you're out of the hospital, Patty, and feeling stronger, too!

babs~ such happiness. God bless you and your family. So beautiful. Thank you for helping me smile today.

~M~

Bjsmiller,

Thank you for your reply I sincerely appreciate it.. I have added Tumeric 500MG to my nightly med regiment in hopes it will help with the joint pain.. I will let you know if I feel any difference. I am wishing you better luck with the Letrozole.

God Bless,

Ronnie

Ronnie - give that a shot. 500mg may not be enough. First you need a bioavailable form of curcumin, one of the liposomally encapsulated formulations. Longvida is one good one that I use. Second, you may need more ... my CO has me on 2000mg of curcumin. If it doesn't help, you can try increasing both the bioavailability and amount. I am doing pretty well on 2000mg of Longvida curcumin.

>Z<

Longvida is a proprietary preparation method. It is sold under multiple brands. I just bought this stuff. I'll take one in the morning and one in the evening. But any curcumin prepared using the longvida method is the same.

The key characteristic is liposomal encapsulation to increase bioavailability. Longvida may not be the only way to get that, but I haven't bothered doing the research to figure out if there are other viable options.

Curcumin prepared with pepper (bioprene) also increases bioavailability. I don't believe it is quite as good, but much cheaper. Definitely worth trying if what I am suggesting busts your budget. We can only do what fits in our our budget, and that's fine.

>Z<

Beautiful photos, beautiful family, Babs! So much happiness radiating from everyone, and you look amazing!

Thanks for sharing Babs. You all look so happy!! Handsome couple.

I went for my final Doxorubicin infusion last week but I was so worn down and my bones in so much pain my MO decided to give me a pass and send me right to the RO. He set me up for 15 sessions of radiation to various spots on my spine. I've had 2 already and it's too early to feel much if any relief.

I will have my final chemo infusion after radiation towards the end of April, then we will see how it goes. I can feel the difference with no chemo. It's been almost five weeks since my last treatment. I'm coughing but have no chemo s/e's. I'm looking forward to seeing how things go after radiation. It will be such a treat to be relatively pain free and thinking normal.

Best wishes to everyone. 🐱

Noni~ I so know how you feel. With that chemo, you just seem to be in a fog. I pray that you will feel more like yourself soon. For me it took months. So please be good to yourself and rest when you need it. I have been done heavy chemo since October and I never want to have it again. No matter what , I've already told DH,DD,Ds'S that I am never going to loose my hair again. I can't go through that again. I feel all of the things you ladies feel everyday. I am keeping you all Close in prayer. Last week was great, then Saturday my hip/ back area has pain, now I realize I haven't excersised nearly that much in over a year and two months, so hubby says it's muscle. But it scares me to think that it feels just like all the other bone places I'm already in pain from on and off. Not to mention that one of the biggest side affects of anastrazole is back pain , it's enough to drive you mad. This disease is cruel and I hate it. Every single second since, has ruined my life, my plans, and who I am. How does one ever get that back.? I guess I can just pray for another half decent week. Scans in the first week of may. So it's drink that crap that tastes like hand lotion, and scan, then worry, then worry another week for the results.

One big awful loop, that I can't get out of. I'm just sick of hospitals and doctors and medicines and side effects and pain. And always feeling like I have the worst flu in every cell of my being. Everyday, Wow!I guess it's safe to say I'm not having a good day. 😞 The pressure of everything with my mom being so sick also in the hospital and I can't be there in another state . I think I'm starting to lose my mind. Hugs to everyone who deals with this beast everyday. You're all my champions. God bless. ~M~

Micmel,

All I offer is understanding, prayers, and gentle hugs.

Last night was the best I have felt in almost a year. Went to our sons for supper and then I actually felt good enough to play with the 4 grandkids. I even had enough strength to pick up the two year old, little Charlie. He was so cute he put his Mickey Mouse had on my head. The three year old finally asked me why I didn't have hair. Just told him it was because of a special medicine I had to take. He was satisfied with that. I pray I feel good because the Ibrance is working.

Firstmate,

I have a little experience with the skull met issue. I've had bone only mets until just recently. My understanding was that skull mets are "just" another bone met.

I did just recently get dx with leptomeningeal mets (LM) but it has nothing to do with any prior skull mets.

Wendy~ I am right there with you. I honestly am. I feel the exact same way and powerless to stop it. You're in my prayers. I am also still digging into this ibrance thing. I know the director of the clinical trials at Pfizer, I worked with him. He's a great person. Whatever he can release to me he will. He's looking into that area but Vancouver is has many studies going now. I'll keep trying Ty you all for the kind words of support You too 50s. Keeping you all in prayer. Ty for listening to my rants of cancer anger. I call it. Let's all write a book!! Ugh!!!! Sending you hugs Wendy. Sending strength and good results!!

~M~

Yay!!!! Diana yay you have been through the ringer. Clapping hands!!! Enjoy every second with Mickey Mouse!!! Yay !!

Kaption. Ty so much it means a lot. Hugs!! Back

The wedding was truly amazing. It was a night filled with great joy and love. Even my DS and his was there and happy for his sister( they just reconciled last week). He's in the last picture with some cousins.

I have to tell you that it is so important for me to share this all of you/my bc sisters. You are ALWAYS there for me!!!!!

oh my gosh Babs!!! The happiness is just palpable!!!! Thank you so much for sharing!!! And congratulations