INSOMNIACS place to talk in the wee hours

Wenchie, well isn't that special. Superdoopermothergooser to hear that you are healing so fast. I'll second Loverly's triple YAY. I know we are all sighing a sigh of relief. I don't have a problem with you giving him the info. It's the pebble in the pond thing, you never know how far the ripple will go. Seeing the ripple go out is a nice comforting feeling. What do you think, should I go in and revise, or leave it alone. In the past I've gone in on old posts and thought, sheesh the writings awful. Other times it's like wow, I wrote that. I could make myself crazy with revisions. It is a consideration that other products may have value i.e the Aquaphor and the only one I talked about is the Silvadene. Well, we will think on it.

Your pic with the bell is great. Your eyes and smile are beautiful.

OMD Shep you are too funny. Kitties and pins. Aw shucks. ....Wow BFF visit, Mags just had a BFF visit. We need a third!

DS got to do an Oral defense in the florida court of appeals again yesterday. I think that's his third appellate case. Two state and one federal. Remember when we were all listening to him for the first one.

Insomnia grhhhhhh, going to try again.

The other day I said I was sending Ewagen a PM. It's not that I haven't sent very similar PM's before, but now wondering if it's a good thing or a bad thing. Still going through a transition mental thingy. I need your opinions as BC'ers. How would you have felt receiving this? Would it increase anxiety or be a tool to know what to do?

"Not to worry you but

1. push for an MRI. It will take a push. .....or

2. follow up US every three months for a year. US is great b/c it reduces your radiation exposure.

3. avoid constantly pushing/(palpating) it. That will cause swelling and pain in the area, allow for say once a week check, very gently. Usually we do breast checks once a month--right. But when we have these scares in life the NORMAL reaction is to feel it all the time. Trust me you will cause trouble pushing on it all the time. OKAY? But I did want you to know the compulsion to constantly check it out was a normal human response.

Check in with me if you have questions or the folks on the thread.

Love&Hugs&Prayers>>L&H&P's sassy"

Wenchi, Good in regards to leaving it alone. I think I had in there something about wound care referrals. I'll look, but my thought is as follows.

" With wounds a referral for wound care is an option. The two options are to a center or have a referral for a Certified Wound Care R.N.(CWOC) to come to the home. The advantage of going to a center is you see a doctor. The disadvantage is potentially exposure to bacteria. Similar to the risk of exposure to hospital bacteria. The docs have taken special training in wounds, but it actually isn't as intensive as the CWOC RN. The CWOCRN is only certified by having taken a very intensive semester long course at Emory University in Atlanta, Ga. They are very skilled and very knowledgeable about wound care and ostomy products. Most hospitals and centers will have a CWOC RN on staff that the docs consult for treatment recommendations.

There are essentially two types of wounds 1.Clean i.e no bacteria, 2. Dirty(universal slang) i.e bacteria or infected. There are many similarities in treatment. But there are products that would be used differently depending if it were a clean or a dirty wound.

The drug discussed here is silvadene. GREAT drug, but must be used appropriately or it can cause trouble with the skin around the wound.

One more option for those that have radiation burns is to ask for a referral for wound care to a local burn unit if one is reasonably close. They usually have outpatient wound and dressing care areas attached to the burn units. Personally, if a burn unit is available, I really like this option b/c "that's their business". But thousands to millions of patients with radiation burns are successfully treated without going to burn centers."

Okay Wenchi what do you think?

https://community.breastcancer.org/forum/70/topics/783321?page=19

Wenchi, Part of why you didn't see specific language about rads on the wound thread was, I considered it a sub category that would need it's own research, which I didn't want to do. A rads question would come up here on BCO, I would defer and say I don't know.

I now took a look at the rads forum and found this old thread written by a RO who apparently wrote the topic box and then never stuck around. I may have to incorporate a comment into something.

You will have to read the topic box. Her position on rads burns is different than a thermal burn. I understand what she is saying about skin cells, but it if the site like yours is "acting" like a thermal burn than it should be managed like a thermal burn.

The different managements that BCO folks have been told about are more from a thermal burn standpoint. MY wound care is from a thermal burn approach. She's an RO and it sounds official, but without doing a serious search, I can't counter her.

Thermal wounds have the potential to become infected. Radiation burns have the same potential. All the caveats(info), I talked about on the thread apply. Skin assessment, cleaning, proper use of silvadene, dressing care, steps to prevent contamination, recognition of problems

I could do nothing about adding what the RO from the other thread said. Your doc was happy with the way you managed your skin. He wants the info. By his licensure, he has the legal right to do what he wants. He can use the info as is after he reads it. Done

Why all the unknowns? I don't think that the RO's have been pushed to develop a national guideline of how to do skin care. This has been done for almost all other problems. I often shook my head as to the lack of continuity of care(how too) info for rads skin care. Actually , found it scary, but I'm just jane schmooo from Florida.

So, your task is to read the RO's topic box and see if the link should be added to the wound care thread. My task then would be to figure out how to intergrate it.

The pervious post that had the new statement in it, I think should be added.

Hope this made sense.